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Need Suggestions for Neuropathy Relief

Barneygirl
Barneygirl CSN Member Posts: 90
in Ovarian Cancer #1
I have had 14 rounds of taxol, 4 rounds of Taxotere and 18 rounds of Carbo over the last 8 years and I am finally feeling the effects of neuropathy. It is suttle and comes and goes. Mostly in my hands, but sometimes in my feet too. Cold weather definitely makes it worse. What are you taking to prevent the further effects of neuropathy? I just started taking lipoic acid (200mg) and Metanyx (a form of B-12). I had been doing injections, but switched to a newer type in pill form.
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Comments

  • Tethys41
    Tethys41 CSN Member Posts: 1,383 Member
    #2
    Neuropathy
    Sorry about the neuropathy. You could increase the alpha lipoic acid to 600 mg twice daily, has cancer-fighting properties too. Add B6, L-Glutamine, and Melatonin (20 mg at bedtime), also has cancer fighting properties.

    Hope you find relief.
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  • cfont11
    cfont11 CSN Member Posts: 115
    #3
    Neuropathy
    I have neuropathy in feet from taxol. I take neurotin, 300 mg. 3X a day, b6 every day and alpha lipoic acid, 200 mg. 3X a day. It does not get rid of it but it helps alot. Ask your doctor about neurotin. It can make some people drowsy but I don't have any problem with it.
    Good luck!
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  • DebbyB
    DebbyB CSN Member Posts: 86
    #4
    I started going to water
    I started going to water aerobics and WOW does it help. I can get the movement I need to heal and I can do it without putting my full weight on my feet.
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  • kayandok
    kayandok CSN Member Posts: 1,202 Member
    #5
    DebbyB said:

    I started going to water
    I started going to water aerobics and WOW does it help. I can get the movement I need to heal and I can do it without putting my full weight on my feet.

    I feel so great in the water
    too! I took a whole day yesterday to play at the pool and sit in the "onsen" (hot springs tub) with my daughter. What a difference in my feet at the end of the day! I wish I could go every day.

    I use lyrica (used primarily with diabetic patients with neuropathy) on days I really need to get something done and have to push myself. It numbs the discomfort/pain and my feet lighten up, as opposed to feeling like cement. I choose not to use it every day, because of side effects) but all I can say is, "WOW!", for the days I use it and am so productive.

    I haven't found that B6 or any of the other things I have tried makes any difference in healing the neuropathy. What I need is a year off from chemo.

    kathleen
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  • Cafewoman53
    Cafewoman53 CSN Member Posts: 735 Member
    #6
    I read somewhere a lady
    I read somewhere a lady puts rice (uncooked) in a basin and walks on it and it has helped with her neuropathy . I think it works by stimulating the nerves. I don't remember if it was on this board or on the Inspire board that I read this.
    Colleen
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  • richival
    richival CSN Member Posts: 2 *
    #7
    https://csn.cancer.org/discussion/233042/need-suggestions-for-neuropathy-relief
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  • richival
    richival CSN Member Posts: 2 *
    #8

    It is encouraging to see the community suggesting a range of supportive measures like Alpha Lipoic Acid and B-12, as your experience with Taxol-induced neuropathy highlights the importance of targeted nerve support. For those seeking additional options to manage these symptoms alongside their current regimen, I found the NerveFresh resource helpful in identifying complementary strategies: https://secure.nervefresh24.com/index-nf-ds#aff=richievalone51cbb5.

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