Stage IV (4) Ovarian Carcinosarcoma - MMMT

grace289

Hi all, I'm brand new to this message board.

I'm currently 44 and I've been fighting ovarian cancer since August of 2023. I had surgery to re move a ~20cm tumor, then immediately started paclitaxil/carboplatin (+bevacizumab starting cycle two) every 3 weeks for a total of 6 rounds.

Continued the avastin for a few more months until my blood pressure was too dangerous.

Took Lynparza (olaparib) concurrently until we found an increased retroperitoneal lymph node in october of 2024. Biopsy took forever to get approved, finally had it in January of 2025.

Metabolic activity confirmed, so I continued on with paclitaxil/carboplatin until I had a reaction to mvasi in round 2 (8 total), so we switched to cisplatin for the remainder and completed treatment in August of 2025. Total of 14 rounds of paclitaxil/carbo-cisplatin.

Last month, routine CT scan showed a new 2cm tumor in/around my colon. PET scan then revealed metabolic activity in the colon tumor as well as recurrent increased activity in the lymph node, and another tumor (are "tumors" and "lesions" the same thing, medically-speaking?) near my spleen. My gyn-onc told me the cancer is now considered platinum-resistent since it returned so quickly after these treatments.

Spoke with the radiological oncologist this morning and we're setting up the plan to do radiation for those spots (in December) and then look at next steps. My gyn-onc has been amazing through this whole thing and is also suggesting alternative chemo (doxil) options in concert with the immunotherapy.

He's additionally found a couple of clinical trials in the area so I'll be checking with my insurance to see if they cover clinical trials.

I pushed my oncologist for a life expectancy and I'm grateful that he told me what to expect. He said a year, maybe two. I know he's telling me the scientific/medical expectation and is working to get me more time. At the same time, I'm going to fight until there's nothing left to fight. I'm not done with this life yet.

I just wanted to introduce myself and see if anyone else was struggling with this (very rare) type of cancer. 💖