2 time cancer survivor!

virgoian84
virgoian84 Member Posts: 2 Member
in Thyroid Cancer #1

HELLO EVERYONE!!! I’m so happy I found this site and am excited to share my story and get others opinions!

so this all started about 10 years ago, my OB/GYN felt my neck and discovered numerous lumps on my thyroid after scans and biopsies. I was found to have papillary thyroid carcinoma. When they remove my thyroid, they found that it had spread to the lymph nodes, as well as the muscle in my neck. I went through radiation after my thyroidectomy and went into remission. I had a small recurrence after a PET scan did another round of radiation and another scan and was told I was clear. And the doctors haven’t really followed up on me since.

Let’s fast forward to today 10 years later. I work two jobs and have been taken out of work because my blood pressure has been steady about 180/150. I have no energy night sweats, abdominal pain, chest pain, upper back pain lymph nodes in my neck and under my right arm I’ve also been discovered to have a predunculated polyp 5 mm that was removed. I’m still waiting on biopsy results a month later. I also had a mammogram done and a sonogram on my right breast. They found three lobulated masses in my right breast and was told we need to wait and see and recheck in six months at this point I can’t work. I’m so sick running a low-grade fever on and off my anemia is severe. I have fatty liver, high RDW, low iron, low hemoglobin, low MCV, low MCH, High TSH, high lipase and my whole world is crashing down around me at least it feels as such I don’t know how much longer I’m going to be able to keep my home And I can’t even worry about that right now with how terrible I’ve been feeling and yet the doctors aren’t doing anything….

Comments

  • virgoian84
    virgoian84 Member Posts: 2 Member
    #2

    I just thought I’d post a little update for anyone who’s reading… my results came back from my colonoscopy, thank goodness all benign! But sadly didn’t have good news at my cardiologist today. They did an EKG and an ultrasound on my neck to take a look at blood flow, they found some nodules and masses in my neck again and in the thyroid bed so now it is or hopefully they will do more and the cardiologist is recommending a scan and potential biopsy of the area….

  • Arx001
    Arx001 Member Posts: 27 Member
    #3

    Hi, I know little about thyroid cancer (I believe it is the least fatal cancer) but thyroid problems can also be tough.

    Two questions:

    • How come they don’t track your health? Did you quit your oncologist? There are established procedures, for example I will have multiple number of three monthly tests and then six month and then one year visits etc.
    • Why don’t they recommend a PET-CT scan after the ultrasound just to see it all?

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