79 year old with Advanced PC to L-1 & Pelvic

Ocean450
Ocean450 Member Posts: 3 Member
in Prostate Cancer #1

Always have enjoyed the wonderful testimonials from Forums!

I Went to ER with Urinary Retention on this past December, 2024. Inserted Cathether due to Very large Gland

First Urologist visit confirmed PC, CT couple of weeks later confirmed APC

Then PSA with a high Gleason of 4+5.. Had first HT Firmagon injections a month ago, 2nd injections coming up in a few days. Speciality Cancer Drug NUBEQA is pending for financial assistance. Cathether still inserted…I still am considered a healthy athlete for my age, so am considered a good canditate for the TURP surgery to shrink the gland.

I understand that everyone's system is different with the endurance of PC treatment..

Unfortunately, I feel personally that I am in the info Grey area with My Care Team just being a name and birthdate.

Am I on the right path for treatment so far?

Comments

  • Clevelandguy
    Clevelandguy Member Posts: 1,290 Member
    #2

    Hi,

    Do you have a little more info on your test results, ie; position of the tumor inside your Prostate, any spread outside of the Prostate, how many sample cores were positive and associated Gleason score? A score of 4+5 is pretty aggressive. A Turp is usually done to widen the urethra area and should do nothing to reduce or put your cancer in remission. Hopefully you are considering some type of treatment for your Prostate cancer. Usually at 79 a better course of action might be some form of radiation treatment.

    Dave 3+4

  • centralPA
    centralPA Member Posts: 402 Member
    #3

    I would search out a place that does a HoLEP over a TURP. Generally considered the gold standard for hollowing out the prostate. Works before radiation treatment or after.

    Did you have a PSMA PET exam?

  • Ocean450
    Ocean450 Member Posts: 3 Member
    #4
    https://csn.cancer.org/discussion/comment/1721747#Comment_1721747

    Hi,

    Thank You for the reply.

    No, when I mentioned My info is not completely an open book on My patient portal, been told from practice that they are working on a new system. So my notes will be asking your very questions. It has methasized to My L-1 & Pelvic bone confirmed by CT in January. Hence: First Firmagon HT injections. (Testerone Castration) last month, 2nd next week with prior updated Blood tests.Pet CT tomorrow

    Yes, understand the Turp and its purpose, kind of a double whammy fighting that separate problem

    Hope to hear from You again

  • Ocean450
    Ocean450 Member Posts: 3 Member
    #5

    Hello CentralPA

    Thank You for replying .Understand, your info on the HoLEP over the Turp. Unfortunately the area I am in is controlled by one Group of Urologists and Ongologists. No Independent doctors. Yes, my research has said that is the gold standard for hallowing, which they don't offer. I agree with the research on that procedure, alot of Ongologists aren't trained to do HoLep over Turp.

    Yes, I have a PET CT tomorrow

    Please stay in touch

  • Clevelandguy
    Clevelandguy Member Posts: 1,290 Member
    #6

    Hi,

    I think I would go for a second opinion with a different hospital network

    Dave 3+4

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