Loss of parathyroid glands caused what felt like a stroke

MaddieB123
MaddieB123 CSN Member Posts: 1 *
in Thyroid Cancer #1

I was diagnosed with stage one thyroid cancer. The cancer metastasized outside of the thyroid which means it should be stage two but since I’m under 30, they don’t take it as seriously unfortunately. when I had my thyroid removed, my surgeon did not inform he had to remove two of my parathyroid glands. This caused me to not be able to maintain electrolytes, calcium, magnesium, ect. I had what felt like a stroke. I had muscle spasming, I could not control my body. All of my muscles locked up and cramped. My hands were fully cramped closed felt like they were breaking. My whole face was paralyzed, my mouth stuck, making an O, I could barely breathe. My vision was very blurry going in and out. This caused per vision damage, I now have to wear glasses. At the ER they tested my blood and saw I had no calcium, magnesium, vitamin D. I received a drip and pills and then they sent me home. The next day it happened again, but worse. They kept me at the hospital for a week. I called my surgeon and endocrinologist office so many times, but they didn’t get back to me for a few weeks saying they wish they knew.
This problem kept happening until my doctor finally got back to me and got me on a regular prescription for calcium, magnesium and vitamin D. I have lasting neurological and vision problems. My surgeon also removed half of my voice box so cancer took my voice too. I felt like my cancer was not taken seriously because I’m under 30, as they keep telling me. I’m still waiting to hear if I still have cancer or not. I had radiation last month, they scanned me the next day, but they won’t tell me until the end of the month. Fingers crossed.
Has anybody else gone through something like this?
I’ll be 30 next month so if I still have cancer, hopefully I will be taken seriously this time.

Comments

  • Ahauf
    Ahauf CSN Member Posts: 2 Member
    #2

    Hi, i’m so sorry you’re going through this. I had my thyroid and parathyroid glands and a lot of lymph nodes removed and my neck when I was 22. The doctor really didn’t tell me much either and I still struggle. I’m still searching and trying to find a good endocrinologist who really listens to me. I’d be open to talk if you would want to sometime?
    April

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