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Uterine/Endometrial Cancer

Strands of Hair
Two days ago it would be day 12 after first treatment. Driving home my head was hurting and began to rub it. That is when the first several strands were noticed in hands. The next day, more and more in shower, sink, etc. not much on pillow. My husband and a few others finally convinced me to just cut excessively short, GI…
Hair has started to grow back!
I've noticed some hair on my head is starting to grow back!! It's kind of sporadic and if it continues like this I may resemble Larry of the the Three Stooges but hey, maybe I could do a comb-over!! The hair coming in is perfectly white so it's hard to see but it's there!!! I can also see - using a magnifying mirror - a…
The uncertaintity of life
Our daughter called me a little while ago and told me a friend of our oldest granddaughter died at school this morning. She was 16 years old and our granddaughter had been friends with her since kindergarten. She went to the nurse's office and told her she wasn't feeling good. All of a sudden, she went into cardiac arrest…
Alexandra
For y'all who don't jump boards like I do, Alexandra is saying her goodbye's over on the Ovarian board. She is in Hospice and God's hands now. Debra(Jo)
Valentines Wish
To all the wonderful, strong, and beautiful ladies of the Uterine Cancer Board, my wife and I send Valentines love, healing, and good wishes to everyone suffering or dealing with this crazy disease. Ten weeks ago I never heard of UPSC and thanks to all of you, my wife and I have gained the strength and knowledge to deal…
Pelvic hip pain and chemo #29
For the last 2weeks I have been having pain in my right hip and pelvis. I tried Tylonal and even broke down and took a hydrocodone. neither helped one bit. I thought it had to be from the Taxol or bone marrow. Yesterday and today were chemo # 29 days my Doctor had different ideas. I could tell He thought the cancer may…
How to find a Naturopathic Oncologist
Hi Ladies! I am hoping this Valentines Day/Presidents Day weekend is going well for everyone! Since I posted about my last CT scan results and CA 125 numbers, and the information about working with both conventional and naturopathic oncologists at the same time, I have received a lot of interest in finding a naturopathic…
roll call for those who are 5 years cancer free!
I know every one slowly goes away from this sight after they have gone through hell during doc visits chemo etc, I have been reminded that I am also one of these , I am here to encourage all, I had stage 4 grade 3 endometrial cancer, was told by first doctor I would not live 6 months with out operation and with operation I…
Weekly chemo vs every 3 weeks
Hi, I think TeddyandBears_Mom started out doing weekly chemos but switched to every 3 week schedule? I was wondering if smaller, but more frequent doses would keep my blood counts esp. platelets up better? I think I read where she said the weekly was worse than every 3 weeks. Also, if I mention this to my doctor and he…
Finally got results
Hello everyone, I just thougt I'd share my update on my endometrial biopsy. After 2 months of waiting and getting biopsy re-done, I saw gyn today and she said all they found was a polyp and she recommends ablation with freezing to get rid of polyp. However, I told her that my periods are not bad--it has only been twice in…
Hysterectomy and debulking recovery questions???
I had a full hysterectomy and debulking done Friday (last week). There were small tumors on most of my organs, but they were easily removed. He got all visible cancer, and said that chemo will get the rest. Anyway, I am normally a VERY active person (I ran 8 miles two days before diagnosis), and am not used to being…
Low platelets again today-no chemo
My platelets only rose 1 point, now 95. Haven't heard from doctor yet about not getting chemo on Monday, but I'm sure sometime this afternoon they will cancel because they are strict about being above 100. I've read some cancer centers and doctors believe in treating according to symptoms, not numbers. I don't have…
My chemo has to be postponed tomorrow-low platelets!
I think they are giving ne a massive dose of chemo - the taxol is a little over 500 (something or other when I think I have it calculated that I should have somewhere under 400) and it's wrecking my blood work. My counts are all low, but WBC & red is still above cutoff. However, platelets are 94, down again from last time…
Heart
How is your husband doing Nempark...and of course you?! Wanted to check since the recovery can be rough on everyone. Let me know if I can help! Being there three times I know I wasn't easy to get along with. But would rather it be me than my husband is such a ninny, a sore toe sends him into a panic! LOL! Take care of you…
Pelvic Radiation Disease
Ladies, Another below the belt cancer survivors I met through the worldwide web did a lot of research as a result of her treatment and found a lot of information about pelvic radiation disease. I thought I would share the website with you all: http://www.pelvicradiation.com
ConnieSW....Oh so encouraging
Connie, it is true that a word spoken at the right time is so sweet. Thank you so much. I am hearing this all the time but you can understand how humans are we want it to be overwith and done yesterday. Thank you and you made me laugh when you said "not Debra Jo"
My mother's Hysterectomy
My mother just got back from a 4 day hospital stay following a hysterectomy. They removed her Uterus, ovaries and lymphnodes. Her bladder Dr.(not sure what they call that) was also present during the operation and said it looked good (she had bladder cancer several years ago and recovered from that). My mother also had…
Port Ache
So, I've been pretty active lately, pruning roses, sawing branches, riding the bike, re-arranging cabinets, etc., and really stretching my right arm. It seems as though the area around my port, really, the whole upper part of my chest extending toward my right arm has a very mild ache. There's no heat or swelling that I…
Heart....Recovery????
Hello ladies, thank you so much for thinking about me. The surgery went well, unfortunately he developed a clot in the right arm his working arm. Had to be intubated again and surgery on the arm to remove the clot. The arm was swollen and pained like crazy, still paining even though majority of the swelling is down. All…
Debra Jo... Heart
Hi Debra, I read that you had many heart problems. I am wondering why is it taking so long for him to start walking. Also the Arm they removed the clot is not functioning. He can squeeze my hand but he cannot straighten the fingers. What I mean is that he cannot open and close his hand, he can only close. Do you have any…
Light at the end of the tunnel and it's not a train
Happy Monday!! My port site is almost healed! It's been almost four months but the hole has gotten so small I can't even pack it anymore. I see my wound doctor tomorrow and I'm hopeful it's my last appointment. I may even have a week where I have NO doctor appointments at all!! I'm hoping you all have a good week - free…
SORRY GUYS! HUSBAND OPEN HEART SURGERY
So sorry guys for such a statement. I wrote from the hospital my husband had open heart surgery and the recovery is not as we thought it would be. I am now 6 years ned and I always check in but a thing name "life" often gets in the way. I don't know how many of you remember just two years after my dx my daughter was dx…
One more week at Wound Care
I thought maybe today would be my last time for Wound Care but my doctor ended up doing a chemical cauterization of "granulation tissue." Yowza, that burned!!! But, she said in order for the port site to totally heal she had to get rid of that extra skin that was growing too fast. She also told me I'm going to have quite…
Journey beginning - emotional today.
Sitting home after recovering from a laparoscopic biopsy. Still cannot wrap my head around this reoccurring uterine cancer. This is been going on now for three months the last word given to me was stage four. My chemo starts this Thursday I kind of get the impression that this is just a treatment not really a cure for me…
Any Ideas?
Good morning ladies, Hope everyone is doing well this Sunday morning. My wife and I made it through 1st chemo last Wednesday with no problems. She was a real trooper, went through port procedure fine, 5 hours of iv's, and 8 hours of hand, feet, and head icing. My wife is the best!! Thursday she was a ok, worked all day and…
Chemo options
Ladies, I haven't been on for a while, mostly because I've been pretty stable. My CA 125 has been running in the mid 200s since early October, but have jumped from 252 to 378 in about 4 weeks. A year ago I was found to be platinum resistant to Taxol/carboplatin so when My CA 125 took a jump, I started on Doxil. After 6…
The waiting game
Hello Everyone:) This is the first time I post on ANY discussion board. I am 41 years old, have 2 young girls (5 and 8). I'd like to share my concerns in hopes that someoneout there can tell me what to expect. In 1999 I was diagnosed with a pituitary tumor and began meds for prolactinoma, where my gland produces too much…
I refused a trial!
Yesterday I supposed to start a new treatment, immune therapy with Temsirolimus, but the Dr. said they have not gotten approval from the insurance yet and offered me the trial with Lenvatinib(for tyroid) and Pembrolizumab(for melanoma). I agreed, but then at home when I read the info I got so scared.... On Monday I'll ask…
Urinary tract infection?
i found some very old posts from 2009 about symptoms that felt like a urinary tract infection. Has anyone currently posting had this? I just had my last bracy on Thursday and probably a day before I started having a little stinging while urinating. Well now it has increased along with some frequency. Has anyone else had…
Chemo Updates
Chemo #1 - a very long day. Saw doctor and then off to the infusion room. Doctor visit - plan is 6 sessions, 1 every 3 weeks, then hormane therapy pills, 3 month check ups, repeat chemo as needed. I asked about Stage again, at recurring cancer they dont really stage( but was told 4) and it is grade 2. So this is basically…

Uterine/Endometrial Cancer

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