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Uterine/Endometrial Cancer

May I share?
Ok, today was my first external beam radiation treatment. The set up on the table took 15 minutes and the actual treatment about 4 minutes. I got up, got dressed and headed to blood draw then off to my low dose infusion. I was told to have an empty stomach and a full bladder for the radiation so that's what I had. While…
Newbie
Hello, I just signed in and have been reading all the post. Great information, and very uplifting. I wanted to introduce myself. I am 65 years old and have Uterine Cancer. Had surgery and everything removed on Nov 2, 2015 I have completed 5 rounds of chemo and have my last one is on Wed. I was wanting to know what NED…
Hair Growing Back Between Treatments
I am happy that my hair has started to grow back on my head, eyebrows and eye lashes but... it's also growing back with a vengeance on my face! I have this facial fuzz all over my cheeks and long side burns. Beggars can't be choosers but, wow, this is crazy. Has anyone else had this? If so, how did you handle it?
Hi Ladies - I am new
I have not been diganosed with Uterine Cancer but I have an appointment tomorrow for a uterine biopsy and just wondered if any of you ladies could answer my questions My uterine thickness is .42 cm. Isnt that what the "ENDO Thick" means? I am 44 and not in menopause. is that not pretty close to normal? My doctor requesting…
Just Diagnosed
Hello All, I am 39 yrs old, (will be 40 in Sept). I was diagnosed with PCOS in 2007 and never had a pregnancy. For years I had irregular periods. I was just diagnosed with Uterine cancer yesterday after a biopsy revealed abnormal cells. I go to see a specialist on Monday for my first consultation. I have been experiencing…
Which UPSC Sisters haven't found us yet in our new site location?
Who is still among the missing of the UPSC Sisters? Do any of you have email addresses so that we can let any of the others who haven't posted yet here, know where we are? I wish they'd fix the 'email notification' feature since that would give them the link automatically.
Round 31 started
Blood counts were all higher than my doctor had hoped for. Al high enough to go ahead so I was able to start this round of chemo. the chemo was lowered al little with the hope that a lowere dosage would keep from having to get a transfusion. We are also going to try to space them 4 weeks apart instaed of 3 to give my blood…
Genomics
Not sure if there is a thread on here about genomics. Apparently latest research shows that some high grade endometroid tumors have certain types of genomic alterations also found in serous tumors and may benefit from more aggressive treatment after surgery. Plan to ask my surgeon to make sure genetic testing is done on my…
Neuropathy!
Here I am almost 3 weeks out from my final chemo and wham! Neuropathy hits with a vengeance! I realize it can come at any time, but thought I was getting by without this symptom. Numbness from feet up to my throbbing knees plus hands and feeling it move up my arms today, I also feel cold. I was hoping to go shopping today…
Update from Lou Ann
Today was supposed to be chemo 31 but no such luck. Because o the Nuelasta shot my wbc was the only blood counts that were any where near. Platelets, RBC and hemoglobin were way to low. So I got two units of blood instead. By the time they typed, cross matched it and infused it we got on the road to head home at 4:30 in a…
Hi!
I'm back, the water is going down, the road is washed out, I-10 is closed, the mud stinks, BUT no water in the house this time, Thank God! My poor uncle has 7 feet in his house, but he's ready to get that out and start over! TTYL Debra(Jo)
Can't eat
I'm trying, but after Sundays fiasco with some funky herby chicken, I can;t seem to eat anything. Nothing tastes good, bordering on getting sick after two bites. Tonight I tried 5 different things, only to throw them all away. The only thing that tasted good was an irish coffee from the local irish pub. I'm giving up for…
Roll Call For UPSC only
Would like to find out the number of women on here who have UPSC, stage, NED or not yet status, age at discovery, and treatment. For such a "rare" cancer, there seems to be quite a few of us on here and showing up recently. Debra, Vidor, Texas, 57.6 years at dx.,UPSC 1a/b, grade c, treatment at M D Anderson in Houston, six…
Moli updating
Hello ladies I hope today finds you all in good spirit and tomorrow will come with clearer views and NED. My Journey continues . Just as I expected, my surgery is postponed although I had my pre-op meeting on Friday I still have a meeting with the plastic surgeon on Tuesday instead of surgery, due to the fact that I…
Well.....
As some of you know East Texas and West Louisiana have been slammed by the flooding. I thought my house might be in the clear this time, but I can't take the chance on staying here with my 90 year old mother. We had three feet in the house last time. So, I will be bugging out tomorrow with her. My house is inbetween the…
CT Results
Well, CT results are in: 1. History of endometrial cancer with enlarged left external iliac and left para-aortic retroperitoneal nodes that are highly suspicious for nodal involvement. Prominent right external iliac aortocaval lymph nodes are also worrisome for nodal spread of disease. im taking this as NOT good news.…
How are you...
Nempark, just checking on you and your husband. How are things going? Thinking of you. Double Whammy are you ok? Kathy G. just checking! Who ever I missed, I missed you in my heart!
Grateful to be alive!
It's a beautiful day in Green Bay. The sun is shining and it's supposed to be in the 60s. I think our long winter is finally over about a month earlier than usual. I was outside with Spunky (my little Maltese) this morning and I realized how happy I am and then I felt guilty for feeling happy. Do other cancer survivors…
CA125
For the past 2 years my CA 125 has been <6. I had clear cell uterine camcer and had chemo and radiation. This time my CA 125 was 8 and while the chemo nurse says no worries my doctor says let's recheck in one month. Does anyone else habe any issues with fluctuations in ca 125?
Stage IV UPSC Survivor Checking In...All Good
Hi Ladies! I just wanted to check in, let you all know I hold you in thought daily, and that after my latest labs/chemo, my CA125 is down to 10 which supports last month's CT scan which showed spots on my liver completely gone, lymph nodes back to normal, and nothing new or suspicious!! Yay!! Just want to keep spreading…
Just beginning this journey
Recent biopsy results confirmed Grade 2 adenocarcinoma. Met with surgeon and hysterectomy scheduled April 4 with vaginal extraction, robot removal of two seminal nodes. Both surgeons fairly confident that treatment plan likely will include follow up monitoring or perhaps radiation. Possible, but not expected, chemo.…
chemo #5, no taxol today
I had good blood results yesterday, but doctor said no taxol today because of my feet. He said he wanted to skip it today and see if the neuropathy gets better by next time. I really begged him but he said it would not make a difference in my prognosis. He also said the only other thing he would consider would be switching…
Chemo #6 Completed
I have just completed 6 treatments of Carboplatin and Taxolplatin and have had only a slight reduction in the nodules in my lungs. The doctor wants to try two more rounds. One oncologist wants me to stop after that and the other more experienced oncologist thinks I could go on trying to get rid of the nodules. Has anyone…
Megace
Ok, new tactic for 2nd recurrence of uterine adenocarcinoma - mets in the lungs - was ordered today. My background: total hysterectomy 2008, stage 1c, completed only 3 of 6 rounds of chemotherapy with carboplatin (allergic to Paclitaxel) + 3 rounds of brachytherapy. Mets to lungs in 2011 - lobectomy and resection of left…
Grams has her 5th round of chemo tomorrow
Hey ladies, just wanted to check in grams is doing good, she goes in tomorrow for her 5th round tomorrow, my aunt is up with her for this one, so prayers that she aces this one also. Her last round is april 1st and I will be up north with her for that round. Her brother, my great uncle Darrel started chemo last week and he…
Cisplatin in combination w radiation
Hello ladies, I am currently on break from frontline treatment. After my 6 rounds of taxel/carbo (w one transfusion) I felt so beat up I asked my onco team if I could have 4 weeks off, instead of 3, before starting radiation. Since the chemo stays in your system for five weeks after infusion they agreed. When I went for my…
Heading to the doctor tomorrow
It's been a little over five months since my hysterectomy and this morning I found blood. I called my oncologist's office and my chemo nurse called me back. She said it was probably some "granulation" in the vaginal cuff and would have to be cauterized. I FINALLY got my port site healed after how many months and now…
Endo biopsy
I'm hoping you can help give me some insight. My mother in law just told me she needs to get a biopsy done on her endow lining. She said that during routine exam "they saw something they didn't like" and so she needs to get a biopsy done under anesthesia out patient. I'm reading and freaking out that this could be cancer,…
How "bad" is chemo?
I have stage 4 ovarian cancer*, and I start chemo on Friday. I recovered mostly from debulking and hysterectomy (got all visible cancer). I am eating normally, active, and besides some residual tiredness, I feel good. I'm just trying to figure out how much of my "normal" lifestyle I can return to once I start chemo and…
New wardrobe or not?
I've lost almost 35# since I was diagnosed which is really good although when I was lying on the bathroom floor, barfing up my dinner, I didn't think so. Anyway, all my clothes are too big. I usually wear a turtleneck sweater and jeans in the winter so I took my sweaters and, using my sewing machine, turned them inside…

Uterine/Endometrial Cancer

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