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Uterine/Endometrial Cancer

Pelvic hip pain and chemo #29
For the last 2weeks I have been having pain in my right hip and pelvis. I tried Tylonal and even broke down and took a hydrocodone. neither helped one bit. I thought it had to be from the Taxol or bone marrow. Yesterday and today were chemo # 29 days my Doctor had different ideas. I could tell He thought the cancer may…
How to find a Naturopathic Oncologist
Hi Ladies! I am hoping this Valentines Day/Presidents Day weekend is going well for everyone! Since I posted about my last CT scan results and CA 125 numbers, and the information about working with both conventional and naturopathic oncologists at the same time, I have received a lot of interest in finding a naturopathic…
roll call for those who are 5 years cancer free!
I know every one slowly goes away from this sight after they have gone through hell during doc visits chemo etc, I have been reminded that I am also one of these , I am here to encourage all, I had stage 4 grade 3 endometrial cancer, was told by first doctor I would not live 6 months with out operation and with operation I…
Weekly chemo vs every 3 weeks
Hi, I think TeddyandBears_Mom started out doing weekly chemos but switched to every 3 week schedule? I was wondering if smaller, but more frequent doses would keep my blood counts esp. platelets up better? I think I read where she said the weekly was worse than every 3 weeks. Also, if I mention this to my doctor and he…
Finally got results
Hello everyone, I just thougt I'd share my update on my endometrial biopsy. After 2 months of waiting and getting biopsy re-done, I saw gyn today and she said all they found was a polyp and she recommends ablation with freezing to get rid of polyp. However, I told her that my periods are not bad--it has only been twice in…
Hysterectomy and debulking recovery questions???
I had a full hysterectomy and debulking done Friday (last week). There were small tumors on most of my organs, but they were easily removed. He got all visible cancer, and said that chemo will get the rest. Anyway, I am normally a VERY active person (I ran 8 miles two days before diagnosis), and am not used to being…
Low platelets again today-no chemo
My platelets only rose 1 point, now 95. Haven't heard from doctor yet about not getting chemo on Monday, but I'm sure sometime this afternoon they will cancel because they are strict about being above 100. I've read some cancer centers and doctors believe in treating according to symptoms, not numbers. I don't have…
My chemo has to be postponed tomorrow-low platelets!
I think they are giving ne a massive dose of chemo - the taxol is a little over 500 (something or other when I think I have it calculated that I should have somewhere under 400) and it's wrecking my blood work. My counts are all low, but WBC & red is still above cutoff. However, platelets are 94, down again from last time…
Heart
How is your husband doing Nempark...and of course you?! Wanted to check since the recovery can be rough on everyone. Let me know if I can help! Being there three times I know I wasn't easy to get along with. But would rather it be me than my husband is such a ninny, a sore toe sends him into a panic! LOL! Take care of you…
Pelvic Radiation Disease
Ladies, Another below the belt cancer survivors I met through the worldwide web did a lot of research as a result of her treatment and found a lot of information about pelvic radiation disease. I thought I would share the website with you all: http://www.pelvicradiation.com
ConnieSW....Oh so encouraging
Connie, it is true that a word spoken at the right time is so sweet. Thank you so much. I am hearing this all the time but you can understand how humans are we want it to be overwith and done yesterday. Thank you and you made me laugh when you said "not Debra Jo"
My mother's Hysterectomy
My mother just got back from a 4 day hospital stay following a hysterectomy. They removed her Uterus, ovaries and lymphnodes. Her bladder Dr.(not sure what they call that) was also present during the operation and said it looked good (she had bladder cancer several years ago and recovered from that). My mother also had…
Port Ache
So, I've been pretty active lately, pruning roses, sawing branches, riding the bike, re-arranging cabinets, etc., and really stretching my right arm. It seems as though the area around my port, really, the whole upper part of my chest extending toward my right arm has a very mild ache. There's no heat or swelling that I…
Heart....Recovery????
Hello ladies, thank you so much for thinking about me. The surgery went well, unfortunately he developed a clot in the right arm his working arm. Had to be intubated again and surgery on the arm to remove the clot. The arm was swollen and pained like crazy, still paining even though majority of the swelling is down. All…
Debra Jo... Heart
Hi Debra, I read that you had many heart problems. I am wondering why is it taking so long for him to start walking. Also the Arm they removed the clot is not functioning. He can squeeze my hand but he cannot straighten the fingers. What I mean is that he cannot open and close his hand, he can only close. Do you have any…
Light at the end of the tunnel and it's not a train
Happy Monday!! My port site is almost healed! It's been almost four months but the hole has gotten so small I can't even pack it anymore. I see my wound doctor tomorrow and I'm hopeful it's my last appointment. I may even have a week where I have NO doctor appointments at all!! I'm hoping you all have a good week - free…
SORRY GUYS! HUSBAND OPEN HEART SURGERY
So sorry guys for such a statement. I wrote from the hospital my husband had open heart surgery and the recovery is not as we thought it would be. I am now 6 years ned and I always check in but a thing name "life" often gets in the way. I don't know how many of you remember just two years after my dx my daughter was dx…
One more week at Wound Care
I thought maybe today would be my last time for Wound Care but my doctor ended up doing a chemical cauterization of "granulation tissue." Yowza, that burned!!! But, she said in order for the port site to totally heal she had to get rid of that extra skin that was growing too fast. She also told me I'm going to have quite…
Journey beginning - emotional today.
Sitting home after recovering from a laparoscopic biopsy. Still cannot wrap my head around this reoccurring uterine cancer. This is been going on now for three months the last word given to me was stage four. My chemo starts this Thursday I kind of get the impression that this is just a treatment not really a cure for me…
Any Ideas?
Good morning ladies, Hope everyone is doing well this Sunday morning. My wife and I made it through 1st chemo last Wednesday with no problems. She was a real trooper, went through port procedure fine, 5 hours of iv's, and 8 hours of hand, feet, and head icing. My wife is the best!! Thursday she was a ok, worked all day and…
Chemo options
Ladies, I haven't been on for a while, mostly because I've been pretty stable. My CA 125 has been running in the mid 200s since early October, but have jumped from 252 to 378 in about 4 weeks. A year ago I was found to be platinum resistant to Taxol/carboplatin so when My CA 125 took a jump, I started on Doxil. After 6…
The waiting game
Hello Everyone:) This is the first time I post on ANY discussion board. I am 41 years old, have 2 young girls (5 and 8). I'd like to share my concerns in hopes that someoneout there can tell me what to expect. In 1999 I was diagnosed with a pituitary tumor and began meds for prolactinoma, where my gland produces too much…
I refused a trial!
Yesterday I supposed to start a new treatment, immune therapy with Temsirolimus, but the Dr. said they have not gotten approval from the insurance yet and offered me the trial with Lenvatinib(for tyroid) and Pembrolizumab(for melanoma). I agreed, but then at home when I read the info I got so scared.... On Monday I'll ask…
Urinary tract infection?
i found some very old posts from 2009 about symptoms that felt like a urinary tract infection. Has anyone currently posting had this? I just had my last bracy on Thursday and probably a day before I started having a little stinging while urinating. Well now it has increased along with some frequency. Has anyone else had…
Chemo Updates
Chemo #1 - a very long day. Saw doctor and then off to the infusion room. Doctor visit - plan is 6 sessions, 1 every 3 weeks, then hormane therapy pills, 3 month check ups, repeat chemo as needed. I asked about Stage again, at recurring cancer they dont really stage( but was told 4) and it is grade 2. So this is basically…
Questions to ask about pelvic wash and many otherse
I've been reading through many of the older posts and seen that people keep mentioning the pelvic wash. Does everyone have that? I will be seeing my oncologist next Thursday for the first time since before radiation. (I saw the radiation oncologist during that time) anyway the regular oncologist never mentioned the pelvic…
Ladies in Florida
I was thinking that there are several of us who live in Florida. Perhaps we can arrange a getogether in the new year. I feel so close to the people on our board and I thought we all might enjoy meeting in person. I live halfway between Tampa and Orlando. Let me know what you think! Sandy
Treatment decisions
I think I've read just about everything on this board going back a few years and see a lot of different points of view on treatment options. I've also read anything I can find regarding uterine cancer. Back in late 1930 my Great-grandma Eldri found out she had colon cancer. By January of 1931 - a few months later, she was…
Has anyone tried Reiki for helping side effects?
I have a chance to buy a Reiki session at half price ($50 instead of $100). Has anyone ever tried it and if so did you think it helped with the neuropathy? That's what I struggle most with. I can't do it every week, but maybe once a treatment would be doable although at full price, it would be expensive. I just hate to…
Wound care today!
I had my third appointment at the Wound Care clinic today. My doctor was happy with the way the old port site is finally healing although I still have to go back again next week. She put her little poker into the wound looking for puss pockets (hurt like h*ll) and didn't find any. She talked to her nurse about changing the…

Uterine/Endometrial Cancer

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