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Hysterectomy and debulking recovery questions???
I had a full hysterectomy and debulking done Friday (last week). There were small tumors on most of my organs, but they were easily removed. He got all visible cancer, and said that chemo will get the rest. Anyway, I am normally a VERY active person (I ran 8 miles two days before diagnosis), and am not used to being…
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Low platelets again today-no chemo
My platelets only rose 1 point, now 95. Haven't heard from doctor yet about not getting chemo on Monday, but I'm sure sometime this afternoon they will cancel because they are strict about being above 100. I've read some cancer centers and doctors believe in treating according to symptoms, not numbers. I don't have…
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My chemo has to be postponed tomorrow-low platelets!
I think they are giving ne a massive dose of chemo - the taxol is a little over 500 (something or other when I think I have it calculated that I should have somewhere under 400) and it's wrecking my blood work. My counts are all low, but WBC & red is still above cutoff. However, platelets are 94, down again from last time…
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Heart
How is your husband doing Nempark...and of course you?! Wanted to check since the recovery can be rough on everyone. Let me know if I can help! Being there three times I know I wasn't easy to get along with. But would rather it be me than my husband is such a ninny, a sore toe sends him into a panic! LOL! Take care of you…
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Pelvic Radiation Disease
Ladies, Another below the belt cancer survivors I met through the worldwide web did a lot of research as a result of her treatment and found a lot of information about pelvic radiation disease. I thought I would share the website with you all: http://www.pelvicradiation.com
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ConnieSW....Oh so encouraging
Connie, it is true that a word spoken at the right time is so sweet. Thank you so much. I am hearing this all the time but you can understand how humans are we want it to be overwith and done yesterday. Thank you and you made me laugh when you said "not Debra Jo"
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My mother's Hysterectomy
My mother just got back from a 4 day hospital stay following a hysterectomy. They removed her Uterus, ovaries and lymphnodes. Her bladder Dr.(not sure what they call that) was also present during the operation and said it looked good (she had bladder cancer several years ago and recovered from that). My mother also had…
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Port Ache
So, I've been pretty active lately, pruning roses, sawing branches, riding the bike, re-arranging cabinets, etc., and really stretching my right arm. It seems as though the area around my port, really, the whole upper part of my chest extending toward my right arm has a very mild ache. There's no heat or swelling that I…
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Heart....Recovery????
Hello ladies, thank you so much for thinking about me. The surgery went well, unfortunately he developed a clot in the right arm his working arm. Had to be intubated again and surgery on the arm to remove the clot. The arm was swollen and pained like crazy, still paining even though majority of the swelling is down. All…
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Debra Jo... Heart
Hi Debra, I read that you had many heart problems. I am wondering why is it taking so long for him to start walking. Also the Arm they removed the clot is not functioning. He can squeeze my hand but he cannot straighten the fingers. What I mean is that he cannot open and close his hand, he can only close. Do you have any…
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Light at the end of the tunnel and it's not a train
Happy Monday!! My port site is almost healed! It's been almost four months but the hole has gotten so small I can't even pack it anymore. I see my wound doctor tomorrow and I'm hopeful it's my last appointment. I may even have a week where I have NO doctor appointments at all!! I'm hoping you all have a good week - free…
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SORRY GUYS! HUSBAND OPEN HEART SURGERY
So sorry guys for such a statement. I wrote from the hospital my husband had open heart surgery and the recovery is not as we thought it would be. I am now 6 years ned and I always check in but a thing name "life" often gets in the way. I don't know how many of you remember just two years after my dx my daughter was dx…
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One more week at Wound Care
I thought maybe today would be my last time for Wound Care but my doctor ended up doing a chemical cauterization of "granulation tissue." Yowza, that burned!!! But, she said in order for the port site to totally heal she had to get rid of that extra skin that was growing too fast. She also told me I'm going to have quite…
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Journey beginning - emotional today.
Sitting home after recovering from a laparoscopic biopsy. Still cannot wrap my head around this reoccurring uterine cancer. This is been going on now for three months the last word given to me was stage four. My chemo starts this Thursday I kind of get the impression that this is just a treatment not really a cure for me…
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Any Ideas?
Good morning ladies, Hope everyone is doing well this Sunday morning. My wife and I made it through 1st chemo last Wednesday with no problems. She was a real trooper, went through port procedure fine, 5 hours of iv's, and 8 hours of hand, feet, and head icing. My wife is the best!! Thursday she was a ok, worked all day and…
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Chemo options
Ladies, I haven't been on for a while, mostly because I've been pretty stable. My CA 125 has been running in the mid 200s since early October, but have jumped from 252 to 378 in about 4 weeks. A year ago I was found to be platinum resistant to Taxol/carboplatin so when My CA 125 took a jump, I started on Doxil. After 6…
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The waiting game
Hello Everyone:) This is the first time I post on ANY discussion board. I am 41 years old, have 2 young girls (5 and 8). I'd like to share my concerns in hopes that someoneout there can tell me what to expect. In 1999 I was diagnosed with a pituitary tumor and began meds for prolactinoma, where my gland produces too much…
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I refused a trial!
Yesterday I supposed to start a new treatment, immune therapy with Temsirolimus, but the Dr. said they have not gotten approval from the insurance yet and offered me the trial with Lenvatinib(for tyroid) and Pembrolizumab(for melanoma). I agreed, but then at home when I read the info I got so scared.... On Monday I'll ask…
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Urinary tract infection?
i found some very old posts from 2009 about symptoms that felt like a urinary tract infection. Has anyone currently posting had this? I just had my last bracy on Thursday and probably a day before I started having a little stinging while urinating. Well now it has increased along with some frequency. Has anyone else had…
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Chemo Updates
Chemo #1 - a very long day. Saw doctor and then off to the infusion room. Doctor visit - plan is 6 sessions, 1 every 3 weeks, then hormane therapy pills, 3 month check ups, repeat chemo as needed. I asked about Stage again, at recurring cancer they dont really stage( but was told 4) and it is grade 2. So this is basically…
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Questions to ask about pelvic wash and many otherse
I've been reading through many of the older posts and seen that people keep mentioning the pelvic wash. Does everyone have that? I will be seeing my oncologist next Thursday for the first time since before radiation. (I saw the radiation oncologist during that time) anyway the regular oncologist never mentioned the pelvic…
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Ladies in Florida
I was thinking that there are several of us who live in Florida. Perhaps we can arrange a getogether in the new year. I feel so close to the people on our board and I thought we all might enjoy meeting in person. I live halfway between Tampa and Orlando. Let me know what you think! Sandy
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Treatment decisions
I think I've read just about everything on this board going back a few years and see a lot of different points of view on treatment options. I've also read anything I can find regarding uterine cancer. Back in late 1930 my Great-grandma Eldri found out she had colon cancer. By January of 1931 - a few months later, she was…
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Has anyone tried Reiki for helping side effects?
I have a chance to buy a Reiki session at half price ($50 instead of $100). Has anyone ever tried it and if so did you think it helped with the neuropathy? That's what I struggle most with. I can't do it every week, but maybe once a treatment would be doable although at full price, it would be expensive. I just hate to…
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Wound care today!
I had my third appointment at the Wound Care clinic today. My doctor was happy with the way the old port site is finally healing although I still have to go back again next week. She put her little poker into the wound looking for puss pockets (hurt like h*ll) and didn't find any. She talked to her nurse about changing the…
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Start Chemo in 2 days
Okay so I start in two days. I have 5 little pills to take the night before. I have two perscriptions for nausea and vomitting but not sure when to take, says one every six and one every 4 hours as needed. I have been taking Miralax for some time now. What suggestions do have for me? Should I take one of the nausea pills…
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1st Chemo Tomorrow
First chemo for my wife starts tomorrow. Port placement first, then taxol for 3 hours and 1 hour of carboplatinum. We are nervous, prepared, and happy. Nervous about side effects and happy to move forward and get this behind us. Thanks to Editgirl, NoTime, DebraJo and all the other great ladies here, we are prepaired.…
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Snow & how weak I must be!
I stayed home from work today because I didn't want to be out on the roads in our snow (blizzard) conditions. Sooo, being bored and the snow/wind last let up, I decided to showel snow. I have always done this so even though the snow is really wet I thought, no problem. eah, right. I'm pooped after just about 5 minutes,…
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Different Kind of Check in!
Ok ladies, I have been searching for several members here and other boards lately. Different people have mentioned others that I had over-looked. Karen, Kathy, and Kelly over at the Ovarian board have thought having a check in for EVERYONE! Not a staging thing or dx, ect., just an "I'm here" thing. And besides yourself,…
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Naturopath in New York City or close
Do you know personally an Onco Naturopath in New York? I found plenty online, but how to choose the right one? Any recommendations? Thank you sisters!