The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

My mom recovery from surgery
My mother has surgery and we found out she was stage 4 b. As hard as that was to hear I saw something in her doctor that I have never seen before, hope. She is to start chemo as soon as she recovers from surgery and puys a little weight on. She is going to beat this and she will go into remission. This is just a little set…
Lymph node involvement in groin / arm pit
Greetings Everyone, During my hysterectomy I had 23 lymph nodes removed - all in my pelvic area. Prior to my dx I had a lot of pain in my left groin area and my arm pits. I told this to my oncologist prior to my hysterectomy but she couldn't feel any swelling and felt the chemo that followed my hysterectomy would address…
My Mom's Surgery
My mom goes into the hospital on Tuesday for a hystirectomy; the good part is that we made it to surgery and her tumor shrunk by half. She is now cureative instead of controlable. The hard part is that I am more scared now then when she first got diagnosed, it is really hard to see my mom this way and I have no idea how to…
acupucture
Several people have mentioned using acupuncture to treat the side effects of chemo. My treatment center is offering a telephone teletalk on the value of acupuncture in cancer treatment. If anyone is interested in attending here is the info: Moffitt Cancer Center Tuesday Teletalk 1/19/16 7:00 to 7:30 PM 1-800-206-6032 enter…
Pain?
Does anyone take anything else besides motrin for muscle/bone pain? I don't want to necessarily get started on stronger pain pills that cause other problems, but nothing I'm doing is helping and it's increasing. I walked on the treadmill this morning, took a hot shower, sat with a heating pad, massaged my legs, NOTHING! My…
External Radiation Procedure
I don't know if this has been addressed in a previous thread, if so, I apologize in advance for asking. In March I will begin 25 rounds of external radiation. For those who have done this, are you naked or covered? A friend of a friend told me you're buck naked lying on the table in the custom cast made so you don't move.…
Chemo hell!
Are any of you or have you in the past followed this chemo path? Day 3, 4 and 5 are hell - dry heaves, pain, dizziness, fatigue, dehydration, white-coated tongue? I can no longer take oxycotin since I'm having night terrors and bad constipation. The night terrors were so bad I stayed awake throughout Sunday into Monday for…
Thank you Look Good Feel Better program by Am Cancer Society
I got to participate in the Look Good Feel Better program last Wednesday evening. The program was put on by volunteers from a beauty salon and even nurses at a local cancer care center. We received a makeup kit that was fabulous, filled with everything from moisturizers, night eye cream (Estee Lauder) , to concealers,…
It wasn't fair and I'm sorry
It wasn't fair and I'm sorry. You guys are the best and going through the same hell I am and I shouldn't have put my mental problems on you. I have looked into some of the new trauma treatments that Chris (Editgirl) suggested to me and they look promising. I even found someone in the Green Bay area that offers it. I am…
?'s about Endometrial Stage 3C, Uterine & Breast Cancers
I was diagnosed with Endometrial Stage 3C on the 7th of December 2015. In the meantime, I had a mammogram which cameback with several abnormal spots. Biopsies were preformed & results came back on 1 that it is cancer. Met with the Gyn-Oncologist towards the end of December & was told that the cancer had also spread into my…
Finally starting to feel better
My last chemo was over five weeks ago and I'm finally starting to have some energy. Hopefully this means that my red blood count is back to normal. I don't gasp for air just walking from one end of the house to the other!!! My fingers, especially on my right hand, are still numb - I dropped a 2# open box of uncooked…
Has anyone tried Physician's Naturals products. I'm looking for a source of curcumin.
Anyone who has tried this companies products I'd like to hear your opinion. They seem okay and have FDA approval/oversite. thanks a heap, claudia
Two Years NED
I finished chemo two years ago last week and 4 brachiatherapies(sp) in Fed. Had my two year yesterday and all looks good. I was diagnosed with UPSC Stage 3 c3; one bad lymph node out of 23. I tell myself before each exam I'm not nervous but lets get real. We can't help but have reserverations each time. My CA125 marker is…
Crawling back up towards the living after chemo 2
I went into chemo two so much better prepared (or so I thought), and it still drug me down into the hole. I kept ahead of the nerve pain until yesterday, took Narco during Saturday night and it must have helped a little because I slept 2 hours at a time. However, yesterday, I didn't want to take another so I tried to…
Chemo # 28
Chemo #28 done. Extremely tired, but doing Ok so far. Yesterday labs, Dr. Visit and taxol. Hemoglobin still low, anemia, platelets lower that the cutoff for treatment by 7. We decided to go ahead with treatment anyhow. CA 125 was up by 30. I will have another Ct scan after the next round. Today was the Carbo treatment We…
Insurance problems!!!
A new year; a new insurance deductible! We changed plans this year and bought a plan with a fairly low out-of-pocket expense since I knew I would be hitting it. I called them today to make sure I didn't need a referral from my primary care physician before I go to my wound care appointment. The customer service rep didn't…
Neulasta effects
Good morning everyone, I registered my grams with an account her screen name is shirleylenell28, she isn't up to getting on yet, today is day 4 after her second round today and the effects of the neulasta shot and the chemo she is really feeling today. It makes my heart hurt to see her in so much pain, but she is one tough…
Mullarian adenosarcoma
I have recently been diagnosed with mullarian adenosarcoma. I had a benign uterine polyp removed 5 years ago Now I have a cancerous polyp coming from the cervix. In doing some research, I found out that the benign polyp could have really been an adenosarcoma but did not show up as that even in the pathology. Now I am…
Vision problems?
Hello Everyone, I'm new here... was dx in Sept 2015 w grade 2 stage 3c endometriod adenocarcinoma. I had a radical hysterectomy, along w 23 affected lymph nodes removed. Started chemo 3 weeks after surgery and completed infusion #4 (out of 6) of carboplatin/paclitaxel two weeks ago. My tumor marker has dropped from 60…
Good morning
Good morning everyone, I myself am not a cancer survivor, my grandmother, she is more like my mother she raised me is currently battling this terrible disease, she is 87 years young but you would never know it she was still working up till last year, and she is pretty smartphone and computer savy. She will be 88 later this…
My hair is growing back while on chemo?
OK, with this head rash infection, I admit I'm watching my head more than before, but when I run my hands over it, it feels like more hair! I also got my magnifying mirror out (chemo has changed my vision too) and I can see in the light lots of white hair, short like it was when I had it shaved, but it's new, not the old…
Is anyone using immunotherapy or anything other than chemo?
Hello, just trying to find out if anyone is using any other drug than Chemo? There are some trials out there for immunotherapies. Does anyone have any information on what they offer at sloans in NYC? Anyone have a good doctor they see there? I am asking for my SIL who has uterine/endometrial cancer. Not sure of the details…
Abnormal Pap smear on my 2nd post chemo check up
It's been a year since my chemo and radiation treatments ended in or about Feburary or March. I had a good first post treatment check up and Pap smear but last month for my second checkup and pap smear, I just got a letter saying to call his office because the Pap smear was abnormal and further action is required. I'm very…
Saw the oncologist for the first time
Met with the GYN oncologist this morning. He suspects my endometrial cancer is in the early stages, but makes no promises since he won't know for sure what we are dealing with until after surgery. I will be having a Hysterectomy with lymph node removal using the DaVinci Robot procedure on Friday, June 15th. All other…
Completely off topic!
My dauhter ave me an Amazon Gift for my birthday a few days ago. I want to get a Ninja of some kind. We older ones had this talk a few years ago as to which one is best, but I forgot! I would like something that makes at least two drinks(green smoothies)at a time, but have VERY limited counter space. Any suggestions? I…
Have to wait two weeks to get into Wound Care
I called my GP this morning to ask her to refer me to Wound Care for my port site. Her nurse called back and asked me to call my oncologist first to see if they wanted to refer me. So....I called them and told them truthfully that I had lost confidence in their ability to fix this thing since they tried twice while the…
Article: F.D.A. Regulator, Widowed by Cancer, Helps Speed Drug Approval
Important and interesting article. Too bad that his wife had to pass for him to understand the urgency. Link to article: http://www.nytimes.com/2016/01/03/us/politics/fda-regulator-widowed-by-cancer-helps-speed-drug-approval.html?_r=0
Good news
Over the weekend I got to thinking about some of our older posters we have not heard from in years. Christmas does this to me! So I reached out to a former poster to see how she is. She left our group due to personal problems and time comfraims. She has MMMT I think or maybe UPSC, but, it was grade 3. She is alive and…
Going to try and glue myself back together
My port site (port is gone) is still an open sore. They told me to come back in 10 days if it wasn't healed but that 10 days is tomorrow and I don't think they'll be there on New Year's day soooooo, I bought some steri-strips and I'm going to try and stick myself back together tonight. It will be four weeks on Tuesday…
San Diego
Hola! Is there anyone here from San Diego, California?

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The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Uterine/Endometrial Cancer

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