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Is anyone using immunotherapy or anything other than chemo?
Hello, just trying to find out if anyone is using any other drug than Chemo? There are some trials out there for immunotherapies. Does anyone have any information on what they offer at sloans in NYC? Anyone have a good doctor they see there? I am asking for my SIL who has uterine/endometrial cancer. Not sure of the details…
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Abnormal Pap smear on my 2nd post chemo check up
It's been a year since my chemo and radiation treatments ended in or about Feburary or March. I had a good first post treatment check up and Pap smear but last month for my second checkup and pap smear, I just got a letter saying to call his office because the Pap smear was abnormal and further action is required. I'm very…
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Saw the oncologist for the first time
Met with the GYN oncologist this morning. He suspects my endometrial cancer is in the early stages, but makes no promises since he won't know for sure what we are dealing with until after surgery. I will be having a Hysterectomy with lymph node removal using the DaVinci Robot procedure on Friday, June 15th. All other…
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Completely off topic!
My dauhter ave me an Amazon Gift for my birthday a few days ago. I want to get a Ninja of some kind. We older ones had this talk a few years ago as to which one is best, but I forgot! I would like something that makes at least two drinks(green smoothies)at a time, but have VERY limited counter space. Any suggestions? I…
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Have to wait two weeks to get into Wound Care
I called my GP this morning to ask her to refer me to Wound Care for my port site. Her nurse called back and asked me to call my oncologist first to see if they wanted to refer me. So....I called them and told them truthfully that I had lost confidence in their ability to fix this thing since they tried twice while the…
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Article: F.D.A. Regulator, Widowed by Cancer, Helps Speed Drug Approval
Important and interesting article. Too bad that his wife had to pass for him to understand the urgency. Link to article: http://www.nytimes.com/2016/01/03/us/politics/fda-regulator-widowed-by-cancer-helps-speed-drug-approval.html?_r=0
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Good news
Over the weekend I got to thinking about some of our older posters we have not heard from in years. Christmas does this to me! So I reached out to a former poster to see how she is. She left our group due to personal problems and time comfraims. She has MMMT I think or maybe UPSC, but, it was grade 3. She is alive and…
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Going to try and glue myself back together
My port site (port is gone) is still an open sore. They told me to come back in 10 days if it wasn't healed but that 10 days is tomorrow and I don't think they'll be there on New Year's day soooooo, I bought some steri-strips and I'm going to try and stick myself back together tonight. It will be four weeks on Tuesday…
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San Diego
Hola! Is there anyone here from San Diego, California?
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Here is hoping 2016 is better
To all the "below the belt" warriors, Looking back over 2015, and keeping in mind the previous years, I think of the friends we have lost. It is with hope I look forward to 2016 with wishes that advances in treatment, or dare I say, a cure, is found and we don't lose anymore beautiful, intelligent, compassionate women.…
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Almost finished with 6th chemo treatment, mixed results
Hello everyone! In a nutshell, my sister (46 years old) was diagnosed with Stage 1A grade 2 uternine cancer. Had the total hysterectomy, followed by around 3 internal radiation treatments as a precaution only. no nodes were involved or and wash was negative. 4 months later horrible pains brought her to ER and a CTscan…
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Good news?
I had my second chemo yesterday, everything went great (same as the first time). I'm hoping to get ahead of the pain I had last time by starting Advil last night and continuing agressively today, hoping to ward off the worst. My chemo nurse said to take Norco the second day, however, I'm hoping I dodn't need it. I was…
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Port out and done with chemo
I went in this morning for a 20 minute appointment and it took two hours. I told my gyno/oncologist I was stopping chemo. He said he didn't blame me; I was having a lot more bad side effects than most. He had recommended the chemo to kill off any microscopic cancer cells and with three chemos, it was a good chance that had…
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Possible skin/infection or ?
Sorry ladies, I'll try to be as polite with this subject as possible, but I seem to hve developed a patch of red skin that burns to the touch or when wet. It now has become raised, probably swollen (I don't know cause I can't see down there). I also noticed tonight it seems to have spread to the other side. There is no…
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Merry Christmas
Just wanted to wish everyone out there a very Merry and blessed Christmas. Hugs and prayers for all, Lou Ann
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Helen, you had posted something about B-17. Can't remember where, but was very interested.
Have you been to this site? http://www.worldwithoutcancer.org.uk/aspreventative.html Where else would you recommend finding information? I did find a very long technical article by, believe it or not, someone named, Earnest T. Krebbs, who I thought was the name of someone from Dobbi Gillis, is that the name of the old tv…
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Tough weekend and then a small glimmer of hope at the end of a long tunnel
Ended up in the ER Saturday after having a night of sharp pain in my upper left chest. Started out like heartburn so I wasn't to concerned.But it kept getting worse with pain spreading from the front to my back into my shoulder and neck. That scaredme enough to decide to get it checked out. Why do these things always…
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Thinking about quitting chemo
After three chemo treatments, I'm thinking about quitting and taking my chances the surgery got the cancer. I'm Stage II UPSC and I know it's an aggressive cancer but I had two CT scans after surgery and they couldn't find any tumors. My doctor told me I had a 50/50 chance after surgery that he had gotten it. With chemo…
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Research news
(Reuters) - Drug developer Advaxis Inc said on Wednesday the U.S. Food and Drug Administration had lifted a clinical hold on three of its experimental cancer therapies, sending the company's shares up as much as 38 percent. The U.S. health regulator had in October put on hold mid-stage trials of the company's lead therapy,…
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Metastasis into lung area
I have a friend that also has uterine carcinoma we both live in the same town and it was just by chance my husband mentioned to her husband (they belong to the same club) what I had found out about my cancer and what treatment I was going to have to go through. So I called her and we talked about the two different drug…
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Anybody heard of this?
http://www.lifeextension.com/protocols/cancer/uterine-cancer/page-07 I don't think I've ever had a CTC blood test. My cancer hasn't metastized, as far as they know, but it looks like a positive update. Love, Eldri
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Surgery in the morning
going in for surgery tomorrow (Monday). Don't know what to expect. i will have an urologist and my gyne/onc there. It will be done robotically. I am first having my left ureter reimplantEd into my bladder to eliminate the stent. The urologist said I am too young to have the stent changed 4 times a year for the rest of my…
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"The Death of Cancer" by Vincent DeVita
Good day ladies. I came across this book review today and thought you all might be as interested as I was. I have read Siddhartha Mukherjee's "The Emperor of All Maladies" and might have to go and get this book. In any event it reinforced the fact, for me, to be your own advocate. I hope you enjoy this as well. The New…
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MRI with contrast
Hola, I was wondering if anyone is familiar with the side effects of contrast in the body. I am trying to avoid to have mamograms, bcause of the radiation, but now my doctor ordered an MRI with contrast. Any advice?
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Chemo #6 Done and Done!
Had the 6th and final round today. Yay! I have to say that I was almost as anxious about this round as the first. I was hoping I had kept my numbers up so there wouldn't be a delay, and I knew that many women don't make it through frontline without a delay. And I was anxious about having a reaction to the Taxol/Carbo as I…
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Chemo day #27
I believe this was #27. I am starting to loose count. My lab and Dr's appointments were later than usually and they just put in a new computer system that went online yesterday, SO we got home after dark . Good news was that my platelets were high enough to go ahead with chemo today, Hemoglobin was up from 8.4 to 9.3.…
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PET and CT Scans have been ordered
So, I went for my weekly blood test today. All is well. Counts are down as expected but I'm one of the lucky ones where I build back up nicely before the next chemo. I was told they have ordered my follow up scans. I'm not sure when it will be scheduled yet but most likely in the next week or so. I am now experiencing that…
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Receiving chemo now,
I'm in the infusion room at my hospital receiving my first chemo and I am having no problems, nothing, zilch. And I am so stress free that I'm eating a ham & cheese sandwich! I received a perk bag with a hand made blanket, and lots more in the bottom of the bag, so it really made my "opening debut more pleasant. And BEST…
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Just had biopsy yesterday - long family history...
Last year I had multiple CT scans for some upper abdominal pain/overactive gallbladder - all showed a Ovarian cyst measuring 1.9cm Transvaginal and Abdominal Ultrasound in Feb 2015 showed the following: Uterus measures 9.4 cm x 6 cm x 7.2 cm. Neutral position. Endometrial stripe is a little thickened at 1.6 cm. Probable…
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Half way done with chemo!!
I was just thinking tonight - I'm halfway done with chemo!!! Whoopie!! No Neulasta shot either so hopefully this will be a better week-after-chemo than last time. Love, Eldri