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Haven't been on boards for a while couldn't find them on new format-Have completed 4 chemos, and 5 w
Just wanted to say hi to everyone. I have not been on the boards for a while as I was not able to locate them after the website format change. I stumbled on to them again yesterday. I was diagnosed with uterine cancer stage 3 in Feb 2010. Had 2 major surgeries end of March and early April. Surgeon removed all of the cancer…
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connie
i just looked up lynch syndrome and was sad to see what a difficult condition to live with for all these years. i don't know when you first learned you inherited it, but i certainly know it must have been very hard for you and your family. it seems like you've gone through a lot in your life, yet you seem to still have…
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Invited to participate to CLINICAL TRIAL of # XL147 at Fox Chase in Philly!
I received a call today from Dr. Mark Morgan at Fox Chase Cancer Center in Philadelphia offering me the opportunity to participate in a clinical trial: ( http://clinicaltrials.gov/ct2/show/NCT01013324 ). The trial is in PHASE 2 and is for recurrent endometrial cancer, for drug # XL147. Dr. Morgan said that if I am ever…
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Extreme Fatigue
I have chemo #6 this Wednesday morning. I never had a good week after chemo #4 and went right into Chemo #5 with a cold and sinus infection. So I have not had a good week after chemo #5 either. Now I am headed to my 6th and last Chemo in 2days time. I am extremely fatigued can't walk across the room without having to sit…
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Newsweek Article
Linda found the URL for the Newsweek article. I think it is really interesting. New drugs are certainly in the pipeline to help us. http://www.newsweek.com/2010/09/07/what-we-can-learn-from-curable-cancers.html Love you all, Diane
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New Treatment
Hi All, I've been looking but not posting, many things have happened since my last post. I completed 6 treatments of Carbo/Taxol in June, a scan in July came back clean. Then a few weeks afterward I started spotting blood from my vagina,rushed to my GP, she found a tumor in my vagina, biopsy show it was the same type of…
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Dr. William Li on Dr. Oz
Did anyone else see this segment on Dr. Oz? This researcher is talking about eating antiangiogenic foods to starve cancer. Antiangiogenesis is how some drugs work. I *think* it will repeat on the Fox Channel Monday 9/13 possibly. Same message as Believeau and Servan-Schreiber. Dr. William Li on Dr. Oz – Antiangiogenic…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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Radition treatment OVER
Hey ladys wow, i most say im sorry for not coming on as offten as i once use to. We been so very busy here i hope this fines you all well, i know there is probley loads of new ones here as well. Today was my last round of radition treatment the nurses all made such a big deal and kept telling me congrates they even gave me…
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MUGA scan: here's what it was like (a pre-"Doxil" heart strength test)
I just had my 1st ever MUGA scan and it was so different than what I expected that I thought I'd share what it was like just in case any of you ever have to get one. If you are to take a chemo known to be hard on your heart (like Doxil), you will probably have to have a baseline MUGA scan done, and then regular MUGA scans…
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visit this morning with my gyn-onc: the good, the bad, and the ugly
sisters, saw my surgeon this morning for my 3 month check in/up, and here's the news: the good: my external and internal exams were "pristine", i reminded him that he usually says my vagina looks "fabulous," and he replied that he's expanding his vocabulary.... so, even though my acupuncturist and medical oncologist both…
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A little distraction
Got a little distraction this week following PET scan while waiting for results tomorrow. My daughter had an emergency c-section yesterday, over 7 weeks early, and I've joined the 'grandma' ranks! Little guy is 4.5 lbs. and already off ventilator, in the NICU of course, but doing well. Mom had a difficult pregnancy…
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connie and recurrence in '08
connie, thanx for sharing that information; makes your thriving today all the more remarkable. when you had your mets, what treatments were recommended and what did you decide to do?? it really was helpful to learn that you were treated successfully back then, and you're here to tell the tale. everyone's individual success…
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was just reading yesterday re: ct and pet scans, and now can't find the post. anyone know whereof i
darn, just can't find the fairly recent posts (i think) on ct and pet scans--alot of the posts had to do with nodes that were slightly enlarged and then dissolved or resolved or got smaller, etc. cannot find this at all, and i've been looking. could have been under a different thread altogether, but just am wondering if…
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Attitude changes once you have a recurrence about how you use your precious TIME
Since I've been up all night with the steroids from my chemo yesterday, I may as well post something I've been thinking about that may help some of you one day. I remember when I was doing my 1st 6 rounds of adjuvent carbo/taxol followed by radiation back in late 2008/early 2009, and how I counted down the days until…
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went for six months check up--still ned by pap and exam. Is that good enough?
Hi Guys: Went to Onc today for six month check up. He said everything is okay and that I will see him in three months. I wonder how thorough he is since he does not even do blood work. Would he be accurate with a pap and examination? I asked his nurse about scan and she said there is no need for that, only if I feel sick.…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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treatment decisions
I pop in here and it's hard to deal with some of the news I learn. Linda's story etc. I will have a story soon after I get my tests next week. My brother-in-law just got his news this week - that his small cell incurable cancer is no longer responding to the chemo and there are no more options for him. Essentially he has…
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Breathlessness during chemo
Hi, Has anyone experienced breathlessness due to chemo treatments? My mum has MMMT with lung metastises. Recent CT scan after 3 chemos indicated much improvement of the lung metastises. Oncologist says the breathlessness is due to general weakness (as she lost >10kg), rather than anything to do with the cancer itself. Has…
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Ear problems
Went to my 5th carbo/taxol treatment on August 24th. I was coming down with a sore throat and cold that morning but they went ahead and did the infusion anyway. Cold lasted much longer than usual and I still have a cough and my ears have a lot of pressure and I can hear my heart beating in the right ear which is driving me…
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OUTCOME OF MY RECENT SURGERY & A QUESTION
I have been very remiss about not posting this information here since you all have supported and helped me so much, but my recovery has been painful, difficult, and slow. I have heard from my doctor and also had my post-op exam and my cancer was fortunately very early stage, Stage 1 grade B and I will require no further…
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Does anyone have this information?
Hi, My name is Susan and I'm posting for JJ, who just received a bad report after finishing her 18 weeks of carbo/taxol chemo last week. She is understandably upset, so I'm posting for her asking for help from all of you lovely ladies who are so unbelievably strong and upbeat in your unwavering battles!! Soooooo, here are…
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Mother Diagnosed with UPSC Stage 4b
My mother is 60 years old and was recently diagnosed with Stage 4b UPSC. She is a 9 year survivor of breast cancer for which she received Tomoxifen treatments which may have contributed to her developing endometrial cancer. I would like to thank all of you who have posted about your experiences, treatments, fears, hopes,…
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I am scheduled for HIPEC
Hi everyone! I am scheduled for HIPEC (Heated intraperitoneal cancer) surgery. It is very gruesome I know. I will take chemo after the hipec. Probably doxil as it worked better than carbo/taxol for me for some reason. I am scared but have decided to do it. it is the only way to truly control peritoneal carcinmatosis. Some…
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HOME FROM SUCCESSFUL HIPEC SURGERY!
Hi everyone! I completed 11 hours of surgery; they removed any visible cancer, also removed my spleen, gall bladder and appendex (he told me they removed them for better visualization under the diaphragm. then they instilled heated chemo (some type of platinum) for two hours and removed it. He also did a complete…
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visit with onc this morn. #3 of 3 mos check up. Something felt at top of vagina.Should I be freking
I don't post alot on here but I do follow the posts and prayer for you all..Linda, Diane, Connie you guys are so brave. All of you women are and I get so much hope and strength from you all. This morning I had my pap and the doc was down there an awful long time and she said don't worry I am just trying to stop the…
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Rising CA125 Levels After Change in Chemo
Has anyone had a rise in their CA125 levels after changing chemo drugs? My CA125 levels were steadily decreasing on Carbo/Taxol. Due to increasing neuropathy I had to switch to Doxorubicin and after three rounds of chemo my CA 125 has risen 17 points to 114. I'm trying not to worry about this until I get the results of my…
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New to board-10 year uterine cancer survivor
Hi everyone, I just found this board and thought I'd share my story. I wish a board like this had been around way back when I had my treatments. I was diagnosed in November 1999 with uterine cancer (age 42). This was after more than 5 years (yes years!) of spotting between periods, heavy bleeding with clots and pelvic…
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sexuality and radiation treatment
I was wondering if women have problems achieving orgasm after pelvic radiation. I figure the more problems I know going in the better prepared I will be for lifestyle changes I may need to make.
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Grandmother just diagnosed with stage 4 Cancer
I am not sure why I am on this site other than I am sad and mad and just needed to talk with others in my shoes. My grandmother has been having pains for a few months and never went to th doctor, after visiting my family this summer we were able to convince her and its been a downward spiral since. Two weeks ago the doctor…