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connie and recurrence in '08
connie, thanx for sharing that information; makes your thriving today all the more remarkable. when you had your mets, what treatments were recommended and what did you decide to do?? it really was helpful to learn that you were treated successfully back then, and you're here to tell the tale. everyone's individual success…
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was just reading yesterday re: ct and pet scans, and now can't find the post. anyone know whereof i
darn, just can't find the fairly recent posts (i think) on ct and pet scans--alot of the posts had to do with nodes that were slightly enlarged and then dissolved or resolved or got smaller, etc. cannot find this at all, and i've been looking. could have been under a different thread altogether, but just am wondering if…
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Attitude changes once you have a recurrence about how you use your precious TIME
Since I've been up all night with the steroids from my chemo yesterday, I may as well post something I've been thinking about that may help some of you one day. I remember when I was doing my 1st 6 rounds of adjuvent carbo/taxol followed by radiation back in late 2008/early 2009, and how I counted down the days until…
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went for six months check up--still ned by pap and exam. Is that good enough?
Hi Guys: Went to Onc today for six month check up. He said everything is okay and that I will see him in three months. I wonder how thorough he is since he does not even do blood work. Would he be accurate with a pap and examination? I asked his nurse about scan and she said there is no need for that, only if I feel sick.…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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treatment decisions
I pop in here and it's hard to deal with some of the news I learn. Linda's story etc. I will have a story soon after I get my tests next week. My brother-in-law just got his news this week - that his small cell incurable cancer is no longer responding to the chemo and there are no more options for him. Essentially he has…
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Breathlessness during chemo
Hi, Has anyone experienced breathlessness due to chemo treatments? My mum has MMMT with lung metastises. Recent CT scan after 3 chemos indicated much improvement of the lung metastises. Oncologist says the breathlessness is due to general weakness (as she lost >10kg), rather than anything to do with the cancer itself. Has…
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Ear problems
Went to my 5th carbo/taxol treatment on August 24th. I was coming down with a sore throat and cold that morning but they went ahead and did the infusion anyway. Cold lasted much longer than usual and I still have a cough and my ears have a lot of pressure and I can hear my heart beating in the right ear which is driving me…
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OUTCOME OF MY RECENT SURGERY & A QUESTION
I have been very remiss about not posting this information here since you all have supported and helped me so much, but my recovery has been painful, difficult, and slow. I have heard from my doctor and also had my post-op exam and my cancer was fortunately very early stage, Stage 1 grade B and I will require no further…
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Does anyone have this information?
Hi, My name is Susan and I'm posting for JJ, who just received a bad report after finishing her 18 weeks of carbo/taxol chemo last week. She is understandably upset, so I'm posting for her asking for help from all of you lovely ladies who are so unbelievably strong and upbeat in your unwavering battles!! Soooooo, here are…
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Mother Diagnosed with UPSC Stage 4b
My mother is 60 years old and was recently diagnosed with Stage 4b UPSC. She is a 9 year survivor of breast cancer for which she received Tomoxifen treatments which may have contributed to her developing endometrial cancer. I would like to thank all of you who have posted about your experiences, treatments, fears, hopes,…
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I am scheduled for HIPEC
Hi everyone! I am scheduled for HIPEC (Heated intraperitoneal cancer) surgery. It is very gruesome I know. I will take chemo after the hipec. Probably doxil as it worked better than carbo/taxol for me for some reason. I am scared but have decided to do it. it is the only way to truly control peritoneal carcinmatosis. Some…
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HOME FROM SUCCESSFUL HIPEC SURGERY!
Hi everyone! I completed 11 hours of surgery; they removed any visible cancer, also removed my spleen, gall bladder and appendex (he told me they removed them for better visualization under the diaphragm. then they instilled heated chemo (some type of platinum) for two hours and removed it. He also did a complete…
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visit with onc this morn. #3 of 3 mos check up. Something felt at top of vagina.Should I be freking
I don't post alot on here but I do follow the posts and prayer for you all..Linda, Diane, Connie you guys are so brave. All of you women are and I get so much hope and strength from you all. This morning I had my pap and the doc was down there an awful long time and she said don't worry I am just trying to stop the…
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Rising CA125 Levels After Change in Chemo
Has anyone had a rise in their CA125 levels after changing chemo drugs? My CA125 levels were steadily decreasing on Carbo/Taxol. Due to increasing neuropathy I had to switch to Doxorubicin and after three rounds of chemo my CA 125 has risen 17 points to 114. I'm trying not to worry about this until I get the results of my…
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New to board-10 year uterine cancer survivor
Hi everyone, I just found this board and thought I'd share my story. I wish a board like this had been around way back when I had my treatments. I was diagnosed in November 1999 with uterine cancer (age 42). This was after more than 5 years (yes years!) of spotting between periods, heavy bleeding with clots and pelvic…
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sexuality and radiation treatment
I was wondering if women have problems achieving orgasm after pelvic radiation. I figure the more problems I know going in the better prepared I will be for lifestyle changes I may need to make.
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Grandmother just diagnosed with stage 4 Cancer
I am not sure why I am on this site other than I am sad and mad and just needed to talk with others in my shoes. My grandmother has been having pains for a few months and never went to th doctor, after visiting my family this summer we were able to convince her and its been a downward spiral since. Two weeks ago the doctor…
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VIDEO: Home health / Enviro contaminants
I just found these one minute videos on Healthy Home subjects like Cleaning products, Plastics, BPA, Pots & Pans, Filtered Water, Microwaving, etc. These videos seem to confirm everything I've been reading. Wanted to post video info for those who find it easier to take in. How Healthy Is Your Home?…
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Topotecan Info
I hope no one feels as if I am intruding here, I am trying to obtain info on Topotecan. My 81 year old mother had Stage iv uterine cancer 6 years ago, but now her cancer has returned to her liver. I am wondering if anyone has taken Topotecan & how were your results, side effects, etc. Her oncologist told us that it won't…
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BPA Reduces Efficacy of Chemo
Been doing some research and really think we need to reduce our exposure to BPA. Here are snippets from sources I found: “BPA at environmentally relevant doses reduces the efficacy of chemotherapeutic agents. These data provide considerable support to the accumulating evidence that BPA is hazardous to human health.” Feb…
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The lychee fruit prevents the growth of cancer cells
Lychee is another very tasty fruit that can be added to our anti-cancer diet. Here it is what info I've found: "Health Benefits: • According to a Chinese book, the nature of the flesh of the lychee is warm and it can help improve the blood. • The Chinese believe that lychee has the ability to relieve pain and shrink…
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Got my CA125: went UP from 71.5 to 78.3, even though I'm getting taxol weekly. :(
When no one called me back after I phoned for the results of my CA125 labs taken yesterday before chemo, I knew it was going to be bad news because the nurses LOVE to call with GOOD news. Bad news alwasy warrants a call from my oncologist, and he doesn't call until he has a plan of action to suggest as consolation, so the…
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This is the mood that I woke up this morning with
I don’t thing life is about how long we’ll live, but how we live; this beautiful journey that starts when we are born. I think we are never ready for death... There will be always something new to experience. Our child wedding, our grandchild first communion, our.....who knows what, just another spring to see? Why we are…
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anyone have any natural remedies for neuropathy?
i had my last chemo last november, 9 months ago, and still have some tingling in the tips of my fingers and toes. i'm taking l glutamine, and am wondering if any of you have found something that helps with this. thanx and sisterhood, maggie
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Confused about Reusing Plastic Bottles
I've been reading more and more on plastic bottles and thought I'd research more extensively. I've attached a good article, but know a few of you are more up on researching. What have you all found about hazards and health issues due to reusing bottles? How about the plastic Tupperware we use for cut up fruit?…
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Second opinions by other Gyne-oncs
What a going on this morning in order to set up an appointment for a second opinion at Fox Chase with a Gyencologic Oncologist there. I thought I should share my experience in case it helps someone else. Apparently it's not as simple as a phone call. The Appointment Specialist at Fox Chase asked me briefly to describe my…
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New Cancer Treatments
Hello All, Here is a cancer treatment that is new to this country. Uterine cancer is not listed as one of the possible uses, but for some sister warriors needing new treatment options, it might be worth asking your doc about it. This comes from a report by Ralph Moss, a leading cancer research journalist who has a wide…
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Diagnosed with uterine cancer grade 1 on 05/11/10
I was diagnosed with grade 1 uterine cancer last Tuesday 05/11/10. I go to see the Oncologist tomorrow 05/1710 and I am so scared and uncertain about what is to come.
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Ct scan results
Well it's been awhile since I have posted but I thought I would share what I am going through now. I had a scan about 2 weeks ago and had my follow-up today with the Dr.. We were going to make a plan about what to do about the nodules in my lungs. Well my last Doxil treatment was in March so I have been on break since…