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ro, wondering re: your 2 september post, rising ca 125 and clear ct scans
hi ro, meant to get back to you re: a question about your ca 125 rising, but clear ct scans, thank goodness. may i ask how many times your ca 125 rose and to what number? my ca 125 is still within "normal" (around 20), but has been slowly rising this past year from 11 to 20 after chemo, so i was interested in your…
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CYBERKNIFE
sisters, i was just hearing about cyberknife from a friend when i read a brief post by claudia mentioning it. i have begun looking it up, and it seems a very, very interesting and exciting possibility. i'm sure many of you have heard of it, but, until recently, i hadn't. cyberknife is a very directed radiation that…
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September is Gynecological Month
To all my sister warriors, Since September is National Gynecological Awareness Month I just want to say put on your Peach colored ribons or shirts and shoult from the highest montain tops that we will find a cure for uterind cancer. When I was diagnosed last November, all my friends ran to their Gynecologists scared silly…
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Ascites
Re. my post yesterday to June, the tummy bloating is due to mild ascites that my mum has developed. There is omentum thickness which indicates spread in the abdomen. I am very upset about this, however hoping that the oncologist alters the chemo medicines which take care of this. She is extremely weak so I am not sure if…
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New Research on Radiation & Brachy on Stage 1 & 2 Endometrial Carcinoma
Does Brachytherapy Improve Survival in Addition to External Beam Radiation Therapy in Patients With High-Risk Stage I and II Endometrial Carcinoma? Am J Clin Oncol. 2010 Aug 1;33(4):364-369, MA Crosby , JD Tward, A Szabo, CM Lee, DK Gaffney ABSTRACT Introduction: The benefit of adjuvant external beam radiation therapy…
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Low white cell counts following 4th chemo
Hi friends, I am currently on the sandwich therapy, and to date have completed 3 chemos, 5 weeks of radiation, and then my 4th chemo two weeks ago. I just had my bloodwork results back last night, and my white counts are very low. My medical team focuses mostly on the neutrophil count. My WBC is 1.4 (normal range is 4-10),…
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Karen or anyone please
Hi Karen and Anyone, Please advise me and help me. I have mentioned Karen Name because she has same type of uterine ca my mother had... My mother stomach feels full of gas and she feel some time pain when she back from toilet. Pain is not too much but she has gas all time. I am so much worried abt her. Her doctor do only…
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Madura-how is mom?
Please let us know how mom is doing. June
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Any advice for taking L-Glutamine powder?
Hello, I was advised to take vitamin B6 and 30 oz. a day of L-Glutamine powder for neuropathy related to my chemotherapy. The powder has a little bit of flavor-kind of chalky. Ideally I would take about two tablespoons three times a day. Does anyone else take this? Do you have a favorite way to get it down? I'm not much of…
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Ok Guys, here is a good joke for all of you!!!
Do you remember I told you guys that my Doc has no bedside manners and is always in a rush? Well,,,,, I saw him yesterday, buying lunch and I approached him just to say hello (he was alone). Here's the kicker, he did not know who I was and what he treated me for. How about that?? He is not an old guy so age is not an…
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ABOUT THOSE STOMACH PAINS-THANK YOU ALL!!!
Went to GI, he read the endoscopy and said that it is a gastritis. Prescribed Dexalon one a day and I have been feeling better. Had my three month check-up with Gyn and results negative. So I can breathe again. Thank you all for being supportive and concerned. I pray that we all continue to be healthy. Big hugs to every…
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To Moekay
MoeKay, Your story is insprirational, I read your post in a thread about survival rates. I am encouraged by your experience in NED. I had stage 3C, surgery, removal of some lymph nodes, and am on the sandwich therapy. So far I have completed the first three chemos, 5 weeks of radiation (of a target area that extended…
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Low Platelets preventing chemo #6 anyone else have this problem?
Couldn't get my last treatment on Wednesday because of low platelets 55,000 and the normal is 140,000 and above. Did anyone else have this problem? Did they come back up after waiting a week? If not what happens next do they just not do treatment #6? Do they do a blood transfusion? Any help would be appreciated.
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New UPSC sister on board
My mother was recently diagnosed with UPSC Stage IIIc2. She is 69 years old. Prior to this she was very active and healthy. She had a radical hysterectomy on August 9th, 2010 and has done extremely well (with the exception of constipation). She has also become extremely depressed and finding it really hard to focus. I seem…
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My mother diagnosed with UPSC
My mother (late 70s) was recently diagnosed with UPSC following a radical hysterectomy. Cells found in lymph nodes removed at the same time. We are waiting for the results of the surgeon's conference with colleagues this coming Wednesday, but the surgeon has said she thinks they will recommend 6 chemo treatments (3 weeks…
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cancer treatment centers of america
anyone have experience with these hospitals
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Jazzy Jan-how are you?
Jazzy Jan, I just found the boards again-was unable to locate them after the website format change. I always find you such a source of inspiration. How are you? I am on the sandwich therapy -and have completed so far my three chemos, five weeks of radiation, and now completed the 4th chemo just over a week ago. How are you…
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Threads about statistics
Hello everyone. I feel it is best not to get caught up in statistics. As some have stated, our bodies our individuals, and treatments have come along way. There are also other factors of how we take care of ourselves. I was surprised to meet for example a few people at radiation, who continued to smoke during their…
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Haven't been on boards for a while couldn't find them on new format-Have completed 4 chemos, and 5 w
Just wanted to say hi to everyone. I have not been on the boards for a while as I was not able to locate them after the website format change. I stumbled on to them again yesterday. I was diagnosed with uterine cancer stage 3 in Feb 2010. Had 2 major surgeries end of March and early April. Surgeon removed all of the cancer…
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connie
i just looked up lynch syndrome and was sad to see what a difficult condition to live with for all these years. i don't know when you first learned you inherited it, but i certainly know it must have been very hard for you and your family. it seems like you've gone through a lot in your life, yet you seem to still have…
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Invited to participate to CLINICAL TRIAL of # XL147 at Fox Chase in Philly!
I received a call today from Dr. Mark Morgan at Fox Chase Cancer Center in Philadelphia offering me the opportunity to participate in a clinical trial: ( http://clinicaltrials.gov/ct2/show/NCT01013324 ). The trial is in PHASE 2 and is for recurrent endometrial cancer, for drug # XL147. Dr. Morgan said that if I am ever…
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Extreme Fatigue
I have chemo #6 this Wednesday morning. I never had a good week after chemo #4 and went right into Chemo #5 with a cold and sinus infection. So I have not had a good week after chemo #5 either. Now I am headed to my 6th and last Chemo in 2days time. I am extremely fatigued can't walk across the room without having to sit…
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Newsweek Article
Linda found the URL for the Newsweek article. I think it is really interesting. New drugs are certainly in the pipeline to help us. http://www.newsweek.com/2010/09/07/what-we-can-learn-from-curable-cancers.html Love you all, Diane
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New Treatment
Hi All, I've been looking but not posting, many things have happened since my last post. I completed 6 treatments of Carbo/Taxol in June, a scan in July came back clean. Then a few weeks afterward I started spotting blood from my vagina,rushed to my GP, she found a tumor in my vagina, biopsy show it was the same type of…
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Dr. William Li on Dr. Oz
Did anyone else see this segment on Dr. Oz? This researcher is talking about eating antiangiogenic foods to starve cancer. Antiangiogenesis is how some drugs work. I *think* it will repeat on the Fox Channel Monday 9/13 possibly. Same message as Believeau and Servan-Schreiber. Dr. William Li on Dr. Oz – Antiangiogenic…
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Hi, I just joined hope I am doing this correctly
Hi, July 15 th 2010 diagnosed Stage Iv B endometrial clear Utreine Carcinoma. Total hysterectomy,oopherectomy and everything else north,east,west and south. No symptoms preceding this except two weeks or so of Mild to moderate constipation. In retrospect turns out I have stenosis of cervix and nothing dripped, I.e. Blood,…
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Radition treatment OVER
Hey ladys wow, i most say im sorry for not coming on as offten as i once use to. We been so very busy here i hope this fines you all well, i know there is probley loads of new ones here as well. Today was my last round of radition treatment the nurses all made such a big deal and kept telling me congrates they even gave me…
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MUGA scan: here's what it was like (a pre-"Doxil" heart strength test)
I just had my 1st ever MUGA scan and it was so different than what I expected that I thought I'd share what it was like just in case any of you ever have to get one. If you are to take a chemo known to be hard on your heart (like Doxil), you will probably have to have a baseline MUGA scan done, and then regular MUGA scans…
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visit this morning with my gyn-onc: the good, the bad, and the ugly
sisters, saw my surgeon this morning for my 3 month check in/up, and here's the news: the good: my external and internal exams were "pristine", i reminded him that he usually says my vagina looks "fabulous," and he replied that he's expanding his vocabulary.... so, even though my acupuncturist and medical oncologist both…
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A little distraction
Got a little distraction this week following PET scan while waiting for results tomorrow. My daughter had an emergency c-section yesterday, over 7 weeks early, and I've joined the 'grandma' ranks! Little guy is 4.5 lbs. and already off ventilator, in the NICU of course, but doing well. Mom had a difficult pregnancy…