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Calling Linda, llight, Maggie, Jan, Ro, Diane, Culka, Claudia, Maureen, Barb, et al. Are we up to r
Here it is, Ladies, I'm really excited and encouraged about the conversations here. A few weeks ago I, thanks to Maureen suggestion, I wrote to UPSC researcher, Dr. R. Wendel Naumann. Much to my surprise and excitement, he responded with recommendation with we raise money for research. No small task for anyone. Here is his…
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I'm dancing with NED !
Finally some good news. Since my diagnosis last November I have had little good news. Finally my first post treatment CT scan came back clear!thanks to all of you for your words of encouragement in coping with having scan number one. Now if only my neuropathy of my hands and feet would calm down I would be thrilled. My…
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More CA125 Test News
So my sister's CA125 went from 15 two months in a row to 38.4........the Doctor order a CT scan that didn't show anything, but he was still concerned that something was lurking since she has already had 2 reoccurrences. He really prefers a PET scan, but her insurance considers it unnecessary!!!! So, he did another CA125…
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Newbie just diagnosed-scared
HI I'm Jamie I was diagnosed last Thursday with Focal well-differentiated endometrial adenocarcinoma. The Dr. seems optimistic she can get it out on Tuesday with a complete hysterectomy and my ovaries. I'm scared-I'm 42. I worry I will grow older overnight-I worry I won't wake up after surgery-I'm worried my husband will…
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is anyone taking pain meds for pain now, and if so, which ones?
sisters, i'm still taking some pain meds from my surgery over a year ago; my chemo doctor thinks this is normal given the extent of my surgery. still, i'm slowing getting off of them, and wondering if anyone else is still on pain meds, and what your symptoms are? and what side effects they may be having? my acupuncturist…
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For Ro
Ro I read somewhere in the blogs that your insurance may not pay for doxil. FIGHT IT. It is now recommended for relapses of ovarian and uterine cancer. Send the company articles. Have your Doctor fight for you. Be assertive; tell your Doctor you want him to fight for it; not have someone in the office do it. Plain…
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Questions about chemo side effects
I've got a question about the chemo side effects. My Mom started her chemo Tuesday and has felt nauseous and tired off and on all week and even felt pretty good yesterday. I just got off the phone with her and she was telling me that every night since she got the first chemo she has had pain all over her body (only at…
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Anyone with leiymosarcoma?
Hi there, In April of 2009 I was diagnosed with high grade uterine leiymosarcoma. Anyone out there with a similar diagnosis?
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Any one have this symptom?
So I have been thru Radiation (Feb 10) and Chemo (May 10) and for the past week or so I am getting twinges of pain in my lower region (below the belly button). It is a quick twinge, similar to back to the old Ovulation days.... Since I no longer have those parts, I am wondering if I need to be concerned? Anyone else have…
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Sad Day
My mother, dearest of all people to me, got the results of Monday's CT scan. The "original" mass on her bladder, debulked 1/22/10, has doubled in size even through 4 courses of Ixempra. There are 2-3 new tumors. There is one last drug to try, but the tumor assay did not have a favorable response to anything. The doctor was…
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Newly diagnosed UPSC
Hello Amazing Ladies, I have been skulking around this discussion board for the past month being totally awed and inspired by your journeys. My mother-in-law, aged 69 and otherwise in perfect health was diagnosed with UPSC grade 3 on May 10th after a biopsy done due to minimal bleeding that had persisted over several…
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What tests are required in the first year after the cancer diagnosis?
Yesterday I saw my radiologist-oncologist. Some of you who read my posts already know that I had a big dilemma about radiation and finally I said no to radiation. My radiologist was very nice and not too “pushy” at all. He simply explained that right now it is easier to deal with microscopic (if any left I still have in…
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lower back pain not cancer because goes away with mortrin!
hi sisters, probably alot of you already know that if you have some pain somewhere that disappears when you take motrin, advil, etc., it's not cancer. i was beginning to worry about my nagging lower back pain, and kinda remembered reading something about it not being cancer if it's responsive to ibuprofan, etc., but wasn't…
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FOR SUSAN SMILES
Hi Sis: I am here. I just posted this thread especially for you. I did get your e-mail and was soooo glad to hear from you. Hope you are doing well. May Jehovah continue to bless you and your family. Love June.
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Need info
My sister was diagnosed with stage 4 uterine cancer. i need to know if Fox Chase is a good center or if she should go elsewhere
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a needle biopsy of one slightly enlarged node asap or waiting and watching a couple of months????
sisters, i had worked out with my chemo and gyn-onc doctors that we would take a wait and see approach on my one slightly enlarged periaortic node that showed up on my first post treatment ct scan. in the meantime, i would continue eating very well, following the anti cancer diet, exercising, acupuncture, meditation,…
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Anticancer info online
Claudia suggested I begin a new thread with a previous post I made in the hopes of highlighting this information. Sorry for any repetition this might be for some of you. --llight --------------------- Dr. David Servan-Schreiber who wrote the book, "Anticancer: A new way of life" is a neuroscientist who got a brain tumor 17…
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newly diagnosed
I was diagnosed with adenosarcoma as a result of a hysteroscopy to remove cysts in uterus to prepare me for IVf- or so I thought. I am extremely angry and scared as you all well know. I feel like the carpet has been lifted from under me. I am 30 years old and was preparing to be a mother. I see the oncologist on thursday,…
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im 29 and have Uterine cancer Hysterectomy will be done in a week or so
Hi all i am new to this I found out on march 22nd 2010 i had Uterine Cancer they said its a grade 1 but they wont know the Stage until they do a full and complet Hysterectomy on me this will be done on April 16th not that far away and of course im 29 years old and now my dream of ever having a baby is over with so im…
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Questions on Side Effects from Brachytherapy-
I am finishing up my last round of Chemo next week and the plan is that within 3 weeks I will start External Radiation for 5 weeks. What got added to my treatment plan yesterday was a few sessions of Brachytherapy. Has anyone had this and what type of side effects did you encounter? Also, what type of side effects did any…
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Well differentiated clear cell adenocarcinoma of endometrium Stage 1 for my Mom
Mom got her port-a-cath and had her first chemo today. She slept through most of the chemo being given as they loaded her up with anti-nausea drugs first plus 50 mg of Benadryl so she was zonked out for the most part, didn't even wake up when they did her blood pressure every 15 minutes. And now we wait. Her nurse gave me…
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Question about NED
I'm new to all the terms and stuff and don't want to sound stupid but what does NED stand for? I've seen it and know it is a positive and think it means remission but what do the letters stand for?
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Anti Cancer, A New Way of Life book access on line free for steps to take to get healthy and fight c
Some reading for those newly to the site and looking for helpful information.. here's the url: http://www.anticancerbook.com/steps.html you have no idea how much your lives will change for the better. This approach has helped me achieve my goals of remaining symptom free. Forever hopeful, claudia
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Especially for LINDA and CLAUDIA-any infor on MMMT?
I tried the internet all doom and gloom. I was diagnosed with stage 1a. Had the works done. 8 months post op. Ct scan and chest xray clear. In remission. Any info on this type of cancer will be really appreciated. Be well. June
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Niece diagnosed
I am an ovarian cancer survivor, my neice was just diagnosed with uterine cancer and was asking if I knew the best treatments. She has surgery on the 21st. Thanks much
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Newly Diagnosed
I received a diagnosis of uterine cancer on Friday morning. Needless to say, I was horrified and saddened and my doctor was also quite surprised. I am a young, very active, 56 year old with a younger husband. I have gone through menopause already, but have been taking biodentical hormones and testosterone and have a…
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Mom starts chemo tomorrow and I'm scared for her
Hi. It's been a few weeks since I last posted. My Mom has recovered really well from her hysterectomy. She's still tired easily and has to force herself to do some things but overall healed really well. She gets her port-a-cath in the morning and then goes immediately for her first round of chemo. I know she is scared but…
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JAZZY1-Jan
Hi Jan: I was diagnosed in November 2009, had total hyst six sessions of carbo/tax no radiation. Jan, I was so distraught and even my family that we did not have any questions for the doc. The only time I started to ask questions was when I joined the board here. My surgery was a breeze I had the button holes and was…
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facing first CT scan post treatment How do you cope
This friday I will have my first CT scan post 6 months of treatment. I would appreciate any ideas on how everyone gets through it. I am already getting anxious. I don't want to be that person that lives from scan to scan. I want to start living again.Any coping ideas would really help right now. Wish me luck. Thank You. SUE
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Wellness - something to think about
Today I enjoyed the company of some very awesome women. We started with yoga at a member's beautiful and nurturing home. We spent time talking and sharing about ourselves and our lives. We hung out in the pool and shared our intentions and made plans to help each other with our separate dreams. Without this cancer journey…