Hurthle Cell Carcinoma

nanamac
nanamac Member Posts: 3
in Thyroid Cancer #1

Hurthle Cell caarcinoma anyone?

 

Comments

  • nanamac
    nanamac Member Posts: 3
    #2
    Hurthle Cell

    I have had Hurthle Cell

  • nanamac
    nanamac Member Posts: 3
    #3
    Hurthle Cell

    I have Hurthle Cell and have several surgeries for it over a number of years.  Is there anyone on here who has HC?

     

  • smith221519
    smith221519 Member Posts: 3
    edited August 2017 #4
    nanamac said:

    Hurthle Cell

    I have Hurthle Cell and have several surgeries for it over a number of years.  Is there anyone on here who has HC?

     

    I have it as well. 

    I have it as well. 

  • smith221519
    smith221519 Member Posts: 3
    #5
    nanamac said:

    Hurthle Cell

    I have Hurthle Cell and have several surgeries for it over a number of years.  Is there anyone on here who has HC?

     

    Did you do RAI?

    Did you do RAI?

  • MarthaNP
    MarthaNP Member Posts: 6
    edited April 2019 #6
    Hurthle cell



    My question: Do you have Hurthle Cells on FNAB and had removal and NO cancer?

    Background: I am new to this discussion. I am a 37 yo white female who has had a nodule for 9 years on my right thyroid. It was biopsed 8 years ago, and was completely benign. It was followed for 7 years with totally normal, unchanged ultrasounds. Then, one month ago I had an irregular ultrasound showing the nodule was the same size, but different SHAPE. The only way to describe it is to say it was once round, and now it looks like "mickey mouse". The report showed "interpolar region thyroid mass on the RIGHT, based on the sonographic appearence, this is "intermediate probability" for thyroid malignancy based on the ATA criteria. Measurement of the nodules: On the right, there is a tri-lobe mass, measuring 10mmx9mmx10mm. On the left there is a tiny hypoechoic lesion in the lower pole measuring 4 mm in greatest dimension. This may be a cyst with a small intracystic nodule." I was told to have it bioped again. The biopsy showed "intermediate cellular specimen contains a prominent population of Hurthle cells, which are discohesive with midly enlraged nuclei. There is also a smaller population of unremarkable follicular cells. Scanty colloid and scatted lymphocytes are in the background. The nodule may represent a benign lesion with Hurthle cell metaplasia, but a Hurthle cell neoplasm cannot be completely ruled out."

     

    With all this being said, I received two opinions (one general surgeon, one ENT) and am electively having a partial thyroidectomy on Thursday this week by ENT specialist at Dartmouth. I have read all about Hurthle cells and looked in this forum. It was quite confusing at first. I was curious if there is anyone here who had Hurthle cells, that did not turn out to be cancer? Should I still have a PET scan? I know Hurthle cells CAN (possibly, by some theories) turn cancerous and read the other information that removing the nodules is possibly a good idea. I see some of you have been through so much. I just was curious what your specifications were for your initial diagnosis? Does it sound similar to my reports? I have to wait about 2 weeks for full pathology reports. I am terrified. I am a medical professional and I am reading the evidence based informatoin about the Hurthle Cell cancer diagnoses and I am fearful that is what I will be diagnosed with. In addition, I have "enlarged lymph nodes upper end of normal". Thanks for any input and sharing your brave stories. I am so frightened of it all. 




  • Melo0576
    Melo0576 Member Posts: 10
    #7
    Hurthle Cell

    I had hurthle cell carcinoma in the right lobe of my thyroid along with papillary cancer on the left lobe and isthmus gland. The thyroidectomy wasn‘t bad. After 2 weeks you’ll be able to resume your normal activities. Your throat might be a little sore and it is difficult to project your voice. But those symptoms won‘t last. Side effects from radiation could be a little rough. RAI might swell your salivary glands, possible dry eye and tiredness. Which can be remedied with drinking extra water and sucking on sour candies. You’ll be fine as long as you treat it quickly. My 1st endocrinologist unfortunately delayed with my diagnosis and treatment and by the time I went to Memorial Sloan Kettering the cancer spread to my whole thyroid. The whole ordeal is overwhelming and scary but I assure you that you will be fine in the end. Once your thyroid is removed they’ll put you on synthroid or levothyroxine (personally I think the brand medication works better). The recovery is quic. I wish you the best of luck! 

  • Melo0576
    Melo0576 Member Posts: 10
    #8
    Hurthle Cell

     When I first had an ultrasound of my throat the radiologist told me that “it’s typical of women my age to have goiters or nodules that are benign.” But when I had a FNA they discovered a nodule hurthle cells with a 99% chance of becoming cancerous. Long story short I was initially told there was nothing abnormal but pathology said otherwise. From what surgeons tell me..thyroid cancers are the most treatable  with high success rates. If your pathology report comes back diagnosing you with hurthle cell carcinoma, keep in mind that it’s treatable with a very low reoccurrence rate. 

  • webteach51
    webteach51 Member Posts: 10
    #9
    Melo0576 said:

    Hurthle Cell

     When I first had an ultrasound of my throat the radiologist told me that “it’s typical of women my age to have goiters or nodules that are benign.” But when I had a FNA they discovered a nodule hurthle cells with a 99% chance of becoming cancerous. Long story short I was initially told there was nothing abnormal but pathology said otherwise. From what surgeons tell me..thyroid cancers are the most treatable  with high success rates. If your pathology report comes back diagnosing you with hurthle cell carcinoma, keep in mind that it’s treatable with a very low reoccurrence rate. 

    Need a good surgeon

    Hi,

    I see you had Hurthle Cell Carcinoma. I was just diagnosed with it following a molecular sequencin study. I want the best surgeon in case it metastisized. Who did you use to remove your thyroid at Sloan Kettering, if that's where you went.

    Thanks,

    Sue

  • webteach51
    webteach51 Member Posts: 10
    edited May 2019 #10
    Just diagnosed Hurthle Cell CA of both lobes: reach out!!

    I was just diagnosed with Hurthle Cell carcinoma by the ThryoSeq3 molecular study which is pretty accurate to diagnose Hurthle cell malignancies. Was wondering if anyone can repond to me to give me some insight as to what I am in store for. Surgeons you used, recurrences, RAI treatment, and the like

    Please reach out as I am freaking out.
    Regards,'

    Sue

  • webteach51
    webteach51 Member Posts: 10
    #11
    Melo0576 said:

    Hurthle Cell

    I had hurthle cell carcinoma in the right lobe of my thyroid along with papillary cancer on the left lobe and isthmus gland. The thyroidectomy wasn‘t bad. After 2 weeks you’ll be able to resume your normal activities. Your throat might be a little sore and it is difficult to project your voice. But those symptoms won‘t last. Side effects from radiation could be a little rough. RAI might swell your salivary glands, possible dry eye and tiredness. Which can be remedied with drinking extra water and sucking on sour candies. You’ll be fine as long as you treat it quickly. My 1st endocrinologist unfortunately delayed with my diagnosis and treatment and by the time I went to Memorial Sloan Kettering the cancer spread to my whole thyroid. The whole ordeal is overwhelming and scary but I assure you that you will be fine in the end. Once your thyroid is removed they’ll put you on synthroid or levothyroxine (personally I think the brand medication works better). The recovery is quic. I wish you the best of luck! 

    what surgeon did you use

    Who took out your thyoid at Sloan K. as I have an appt there next week.

    SUe

  • webteach51
    webteach51 Member Posts: 10
    #12
    MarthaNP said:

    Hurthle cell




    My question: Do you have Hurthle Cells on FNAB and had removal and NO cancer?

    Background: I am new to this discussion. I am a 37 yo white female who has had a nodule for 9 years on my right thyroid. It was biopsed 8 years ago, and was completely benign. It was followed for 7 years with totally normal, unchanged ultrasounds. Then, one month ago I had an irregular ultrasound showing the nodule was the same size, but different SHAPE. The only way to describe it is to say it was once round, and now it looks like "mickey mouse". The report showed "interpolar region thyroid mass on the RIGHT, based on the sonographic appearence, this is "intermediate probability" for thyroid malignancy based on the ATA criteria. Measurement of the nodules: On the right, there is a tri-lobe mass, measuring 10mmx9mmx10mm. On the left there is a tiny hypoechoic lesion in the lower pole measuring 4 mm in greatest dimension. This may be a cyst with a small intracystic nodule." I was told to have it bioped again. The biopsy showed "intermediate cellular specimen contains a prominent population of Hurthle cells, which are discohesive with midly enlraged nuclei. There is also a smaller population of unremarkable follicular cells. Scanty colloid and scatted lymphocytes are in the background. The nodule may represent a benign lesion with Hurthle cell metaplasia, but a Hurthle cell neoplasm cannot be completely ruled out."

     

    With all this being said, I received two opinions (one general surgeon, one ENT) and am electively having a partial thyroidectomy on Thursday this week by ENT specialist at Dartmouth. I have read all about Hurthle cells and looked in this forum. It was quite confusing at first. I was curious if there is anyone here who had Hurthle cells, that did not turn out to be cancer? Should I still have a PET scan? I know Hurthle cells CAN (possibly, by some theories) turn cancerous and read the other information that removing the nodules is possibly a good idea. I see some of you have been through so much. I just was curious what your specifications were for your initial diagnosis? Does it sound similar to my reports? I have to wait about 2 weeks for full pathology reports. I am terrified. I am a medical professional and I am reading the evidence based informatoin about the Hurthle Cell cancer diagnoses and I am fearful that is what I will be diagnosed with. In addition, I have "enlarged lymph nodes upper end of normal". Thanks for any input and sharing your brave stories. I am so frightened of it all. 




    Your nodules are small

    I had a molecular study giving me an 80 chance it is Hurthle Cell Cancer and my nodes a almost triple your size ...so good news is you got them early , much beter prognosis.

  • soniab1
    soniab1 Member Posts: 1 *
    #13
    https://csn.cancer.org/discussion/comment/1592423#Comment_1592423

    I too have this and have had several surgeries since 2014. Looking for answers as to when the madness will end. At this point my tumor marker indicates I have it somewhere but after scans they can't find it.

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