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any body out there choosing no treatment for their cancer?
My husband was recently diagnosed with duodenal cancer with probable liver mets. We have researched many of the procedures and treatments that may be available. My husband having watched his mother go through pancreatic cancer with all of the treatment was thinking, are you better off just not doing anything. Treatments of…
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Ampullary Cancer stage4
Hello, Still in a bit of shock over here. Hubby went in for Whipple for adenocarcinoma at ampule of cater. Found it in his liver. Did a gastro-jujenostomy so he can keep food down and close him up. Surgeon called our (am being treated for stage 3 RCC) oncologist from the OR and they discussed chemo for 3-6 months then…
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Mesonephric Endometiral Adenocarcinoma
I am wondering if anyone has had or know someone that had Endometrial Adenocarcinoma? I am trying to find a survivor of this very rare cancer, but so far I have not had any success. I was diagnosed in August 2015 with this very rare cancer. I was misdiagnosed for 6 months from various doctors treating for a UTI even though…
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Anyone else have the same diagnosis?
In 2017 I found out that 25% of my right kidney was cancer. Chromophobe to be exact. So I had it removed. 2021 I had a pea size tumor that was clearcil (I know I didn't spell it right) cancer. Last year I had another surgery where they removed 9 tumors but I still have over 20 tumors in my body and I am stage 4 now.…
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New here and don't really know what to do.
Hi
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Hello!
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Pancreatic Cancer
I am 85 years old, have inoperable pancreatic cancer, and I just started my first chemo treatment of Fluorouracil (5-FU) on September 25th. It has been eight days and I have had absolutely no significant side effects. My second round of chemo will be on October 9th with the addition of oxaliplatin. I am scheduled for 11…
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ampullary cancer
I was diagnosed with Ampullary cancer in Jun 2009. Was suppose to have the whipple procedure but was unable to complete the surgery due to the fact that the cancer had spread into the lymph nodes. I have been on chemo treatment since Aug 2009 it is called the GTX protocol and I have been doing very well. Has anyone else…
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Alternative treatment and cholangiocarcinoma is working
Hi All, My wife was diagnosed with cholangiocarcinoma, bile duct cancer, last fall. She was operated on but the cancer was non-resectable. The doctors and oncologists I spoke to were giving poor prognoses about her chances. The oncologists and other info I was able to find basically said that chemo and radiation wouldn't…
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Papillary carcinoma in left breast
It’s very rare and from what I read I found it early and will have a lumpectomy and radiation soon and a pretty good prognosis. I’m 62 and I’ve never had any problems with my breasts before. Has anyone else gotten this? Did it spread to another form of cancer in a year or 2? I read that happened to someone. Thank you!
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Aggressive Digital Papillary Adenocarcinoma with lung metastases
I have posted elsewhere on this cancer (a type of sweat gland cancer). This is my diagnosis and I am seeking others who may have experience with this entity. I am always looking for the experience of others: treatments, cancer centers that may have particular expertise etc. etc. If you or someone you know/ care about has…
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Ampullary Cancer
I was just diagnosed with ampullary cancer and would like to talk to anyone who has it or is familiar with it. Also I would like to know about the Whipple procedure and what all that involves.
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Gallbladder stage 4 cancer with small cells
I am care giver , I need information about gallbladder cancer with stage4 with smal cells. This is so rare that doctor is not able to help much , hence I am here to ask if anyone is going through similar phase and what steps you are taking to survive.
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Parotid Cancer
I was diagnosed in 1998 with acinic cell carcinoma in my left parotid gland. I have heard that this is very rare, especially in children. I was 15 at the time, and judging from the size of it, it could have gotten there as early as when I was 11-12, maybe even 10. I was wondering if anyone else knew anything about this or…
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Essential Thrombocythemia and myelofibrosis
Hello. I am a regular visitor in the breast cancer forum. Now my husband has been diagnosed with cancer. His report reads "The differential diagnosis mainly includes essential thrombocythemia and early stage of myelofibrosis". He is scheduled to see the oncologist/hematologist on March 15th. I would like to know some…
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Immunotherapy
I am 58 years old male and diagnosed with Base of Tongue Cancer last month. After series of tests, the oncologist decided to treat me with 4 chemotherapy and then 33 radiation therapy combined with a mild chemo. I heard about Immunotherapy that can help fight cancer. But some doctors said it is good and some said it is not…
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ACC , Adrenal Cortical Carcinoma
Anyone else recently been diagnosed/treated? I live near Seattle and seem to have great doctors at SCCA who "have a plan". I had surgery then stereotactic radiation and now getting insurance approval for mitotane with hydrocortisone. Sounds like it is usual treatment. This is tier 5 drug so UHC only covers 75% . My cost…
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Adrenal Cortical Carcinoma
This cancer affects about 1-2 people per one million. I was diagnosed with stage 3. Anyone else have this very rare cancer?
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appendiceal adenocarcinoma/Small bowel cancer
Hi, I’m new here looking at all of your questions and the answers and it’s been wonderful to see everyone helping. I come here for my mother, who was diagnosed with appendix, cancer, early 2020. Her appendix ruptured, and the mucin seeped out and is now in her colon, causing her to have small bowel cancer. Her CEA number…
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Primary small cell carcinoma of the breast
Hi everyone, I wanted to reach out to see if anyone else has had, or has known someone with, primary small cell cancer of the breast. What has your experience been so far? I was diagnosed in March 2023 with both invasive ductal carcinoma and primary small cell cancer of the breast with a neuroendocrine component, with the…
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Neutropenia with Chemotherapy
I was about to begin my 8th (final) cycle of chemotherapy. However, on what should have been Cycle 8, Day 1, my white blood cell count and, specifically, my neutrophil count were too low to proceed. The protocol is to wait a week to give the bone marrow a chance to recover. However, one week later, the numbers were still…
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Mesothelioma of fallopian tube
Looking for anyone with experience with mesothelioma of fallopian tube.
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Thymoma Survivors/Caregivers?
My fiance was diagnosed with a thymoma 11/21 and has undergon 4 chemo cycles (PAC Regimen), the tumor shrank drastically and he will now be able to have surgery on 4/11. Is there anybody who is has been through or is going through the same journey? Just looking for support and information...Thank you!
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Leiomyosarcoma chat
I am searching for survivors of leiomyosarcoma and would like to chat about treatments. Sandra from Alaska
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Any more gallbladder cancer patients?
It is wonderful to connect with gbc patients, but there aren't many of us!
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Myelofibrosis/blood cancer
I was diagnosed on 11/15/19 with myelofibrosis - it's a rare kind of blood/bone marrow cancer. I'm on a pill form of chemo - jakafi - and beginning the stem cell therapy transplant process. Having a 'rare' cancer is all kinds of frustrating. And it's isolating. As I've never had cancer before, maybe that's true for all…
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Spindle Cell Carcinoma
My mother in law was diagnosed with stage four spindle cell carcinoma (originating in the gall bladder) after having her gall bladder removed. She has tumors all through her abdomen. Some of them are even visible on the outside. My husband says that one looks like a half fist sticking out. She has been in an intense amount…
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Sacral tumor and Neuro/onco specialist near Chicago
Hello , I have just discovered that I have destructive sacral tumor pressing on L5 nerve and caused cortical breakthrough . I am going in for PET scan and biopsy in the next week. I am trying to find specialist near Chicago west suburban. Anyone that could provide some informations to help me going through this journey…
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Large Cell Neuroendocrine Carcinoma - Seeking Advice
Hi everyone, My dad was just diagnosed with large cell neuroendocrine carcinoma (2-3 inch tumor outside of his esophagus and widespread liver metastases) He just finished his first round of chemotherapy at our hospital in South Carolina, but we are trying to get him in to MD Anderson, as it seems like this is the best…
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SquamousCell Carcinoma-preliminary diagnosis
Hello there new here. So my husband Larry had a lump inside his throat between his right lymph node and saliva gland. They did a biopsy last week, and a couple days ago we were told he definitely has cancer. They believe it is squamous cell carcinoma of the throat, but that's only preliminary. He is going to get a PETSCAN…