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Prostate Cancer

Peripheral neuralgia/ pudendal neuralgia post radiation
Disclosure, I am actually a 56 yr old female, that underwent intense radiation to the pelvis 2 years ago for Anal cancer with progressively worsening neuralgia pain, numbness, tingling to buttocks/pelvis and difficulty sitting for more than 5 minutes that I attribute to nerve damage or entrapment since radiation. I’m at a…
Wow what news
https://www.fox9.com/news/new-cancer-pill-shows-promise-many-doctors-say-too-early-to-tell
Urination Trick
The best way for me is standing up,but it makes a mess. What I've found is if I hold a wad of toilet paper close and pee into it, it saturates and drains straight down into the toilet. Simple and effective and then I'm good for another 5 minutes!
Keytruda
Just ready for my 21st immunotherapy with Keytruda. Interested if other folks have been down this road and what type of side effects they might have experienced. Fatigue and shortness of breath are now getting a bit worse for me. What's the expected duration of Keytruda treatments with prostate cancer? Appreciate any…
Psa went up
Hello. 55 yr old male no health issues. Last year my PSA was .5. This year it went up to .9. I have an appointment with doctor in 3 weeks. Should I be worried? Honestly, I am very worried. Am I over reacting? It was .5 for many years since I started doing psa test.
Leaning to RP due to Dad's History
I'm 64. At 61my PSA jumped from 2.5 to 6. After MRI and a fusion biopsy was diagnosed with 3 core samples being cancer. Gleason score 6. Went into AS. Had another biopsy in late 2022, tumors have gained in size but still Grade 6. My father passed at 72 from Prostate cancer. Had high PSA at his physical when 70, it had…
Please take a few minutes to watch this important video about PSMA scans
https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjlgIKAhKOAAxW6m2oFHebnCNMQwqsBegQIEhAG&url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D-ZXDohxylg0&usg=AOvVaw2YI7sJ0VG3QjqJ4p-w0qfm&opi=89978449
PSA went up in two years
Hi friends, My PSA went up from 2.2 to 4.2 in two years, I am 49. My % free PSA was 14% and now is 17%, so this metric went in the right direction. Any suggestions? I am of course concerned and will be working with my physicians for more tests. Hope a biopsy is not needed.
Psa rise after partial hifu
I had 90% of my prostate treated 1 year ago. My psa was 1.26 at 3 months; 1.41 at 6 mo; 1.46 at 9 mo; 1.53 ay 1 yr. Dr is not concerned. I am. Can ty find anything on psa increase after partial hifu. Thoughts?
I had my surgery today
I’m typing this post on my phone from my overnight hospital bed. Today was my Davinci robot-assisted RP, and I’m happy and relieved to finally have it over with. For those who are curious, those who may face this surgery themselves and for myself to remember while it’s still fresh in my mind, here are some of my…
PROSTATE MRI
why would the Doctor order a mri when my PSA went from 2.5 to 2.9 in 6 months?
Promising Lookout
Hello all... new here. I'm 44 years old dx (PSA 7) w/ prostate cancer (PC) 3+4 in March 2023. My dad is a PC survivor. He was dx in his mid 60s. He's now in his late 70s. After careful consideration of my options, I decided to proceed w/ robotic radical prostatectomy (June 2023). I am 1 month post-op. Pathology report was…
A wives journey
Husband (66) has been diagnosed with low grade PC. PSA doubled to 5.6 in one year. MRI confirmed 2 lesions prompting a biopsy. 6 out of 12 core samples 3+3, one core sample 3+4. Gleason 7. Husband opted for AS at this time with Doctor’s approval. Doesn’t want radiation nor HT. Refuses 2nd opinion. that was 3 months ago.…
Focal laser ablation
I just received FLA for my 2 lesions of cancer in my prostate. Has anyone else had this procedure and what are long term successes even though it is relatively new. Thank you!
Hello. New here and cancer is back
Hello, New here and looking for knowledge from others on this board who might have similar circumstances. Original diagnosis 2014 - Prostate biopsy - Radical prostatectomy with Gleason of 4/3. 2016 rising PSA - MRI confirmed tumor on bladder - Scope of bladder confirms no perforation - 40 courses of radiation at MSK -…
Here’s something to discuss
they say prostrate cancer it’s a second most deadliest cancer for men but the same time they say prostrate cancer is the most beatable treatable cancer. so with this being said would it be safe to say that what makes it so deadly is When men don’t catch it in time and it has spread distantly and that would be a sad thing…
Enzalutamide, has anyone been on this?
My husband has now been told that he should take Enzlutamide tables. Lots of side effects with it. He has to sign to say that he has given his permission to use this. Has anyone on this discussion board been on this drugs?
Advanced metastatic stage 4 PC triplet therapy
Hi, I’m looking for stories of successful triplet therapy for pc with Mets to lymph nodes, bladder and pelvic bones Gleason 8. I need some encouragement and help in my husband’s and my journey. thank you jo
https://m.youtube.com/watch?v=-ZXDohxylg0
Sure hope this video pops up the new PSMA scan is a major breakthrough they can actually use this technique while they are operating to help find any residual cancer cancer in certain lymph nodes it’s pretty amazing
Husband Recent Diagnosis - Gleason 7
My 55 YO husband was recently diagnosed after high PSA (17), MRI showed spot, biopsy confirmed. Talking with surgeon tomorrow on treatment options. Does anyone have feedback on which treatments worked for them and has kept them cancer free? I have a list of questions for the doctor, but would love any specific questions…
prostate hormone therapy
is hormone therapy necessary for those having received radiation? what are the pros and cons?
Prostate recurrence 6 years after radiation ADT
Found out my PSA is 70 ng/dl. PSMa Pet scan lymph nodes from pelvis to cervical. Pelvic bone Mets and L1 bone Mets. No organ involvement. prescribed fermigan and abutamide. 51 years old. Do people go on disability with chronic ADT?
Just need a motorcycle & a divorce - Anger & Shock, caregiver fatigue
I was diagnosed Stage IV prostate cancer in the ER after my primary care & urology docs refused to do a PSA test because I was one year too young. I had bone metastasis from my head to my feet. I was 49. The ER doc was in tears giving me the diagnosis. It’s been six years since then, I had to quit my high paying IT job &…
No Lupron side effects. Is this normal?
Been on a 3 month shot of Lupron for over a month. Scheduled for radiation latter this month. I have read all about the horrible side effects of Lupron that can occur. I have always been in good shape. I do 30 minutes of circuit weight trading on machines almost every day and hike with my dogs in the national forest for…
Biopsy results
Hello, Biopsy result shows 3 tumors, two are 3x3, and one is 3x4 for a total gleason score of 7. The report also says that cribriform pattern 4 was identified focally. A quick google search suggests that cribriform presence isn't a good thing, anyone have a similar? See the surgeon tomorrow for discussion on results. Thank…
PSA Detectable 6 Months After RP Surgery
Hi all, Posting on my father’s behalf. My father had a prostatectomy in January. His PSA has been undetectable since then except for recently (6 months post RP) when it rose to 0.28. The doctor has ordered a PSMA PET/CT scan to determine the cause and where. Spoke somewhat about possible follow-up radiation therapy. Has…
My Husband's prostate cancer has come back after 15 years.
My husband was diagnosed in 2007 with prostate cancer. He was given hormone treatment, and radiation treatment. After being monitored by his consultant, and PSA level was coming down . I remember the last time his consultant said that his PSA level was undetectable, he was clear of cancer. Once every 6 months he would take…
PSA Rising Fast after RP
PSA Rising I was first diagnosed with PC at the age of 53. My RP surgery was on 12/20/2020. A week and a half later, I was experiencing a lot of discomfort and morning erections from the catheter, so the doctor removed the catheter. The day after that (12/31/2020), my testicle grew 3x to its regular size, so my daughter…
On opting out of further hormone treatment
I'm 70 years old and was recently diagnosed with PC, Stage 4, Gleason 9. I've been on hormone therapy (Zytiga) for 6 months, with good results (PSA 0.08) but debilitating side-effects. Probably another 3 months, then radiography treatment. After this, I'm considering opting out of further hormone treatment. It's a quality…
ADT plus chemo
I have watched some videos with Dr. Schulz and he seems to recommend to go after the cancer recurrences strong and hard ADT and Chemo for recurrence plus radiation if needed. I went to Sloan and they did not recommend chemo for my disease burden. What says this community?

Prostate Cancer

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