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Prostate Cancer

Prostate Removal?
Good Morning. I am new to this board. It was suggested by my wife, who had been involved in the forum for many years. So, to summarize, I am 72 years old. DX in 2016 with a Gleason of 6. I've been practicing 'active surveillance' since then. Fast forward to October of last year, with one or two plugs now showing Gleason 7.…
My 12 Year Update
It's been about 6 years since I was last on and thought I'd provide an update of my progress. I was diagnosed with low grade prostate cancer in Jan 2010 (Gleason 6, PSA 4) that probably wouldn't even be treated but just subject to "active surveillenace" now. After doing some research on the available options, I was one of…
Biopsy Results Back - Not Good - GC5 - Gleason 9 (4+5)
Greetings, Just got my biopsy results via my medical portal. Not good. GC5 - Gleason 9 (4 +5). Looks like 7 cores are positive with a mixture of G8 and G9. I have an appointment with the PA on Friday (in 2 days). A little bit in shock as it happened all so fast but also clear-eyed. Wondering what the questions are that…
BPH treatment options years after external beam radiation.
I am 7 years post radiation treatment. My PSA has gone from an 11 to 0.19. I have recently experienced urinary retention, completely unable to urinate, requiring a trip to the ER to be catheterized. I have seen a urologist (my original one retired) and we are discussing treatment options. She stated that the "radiated"…
Need treatment advice - especially regarding HIFU
Hi, Everyone. I'm 51 years old and was diagnosed with prostate cancer a couple weeks ago after an elevated PSA was found in my yearly checkup. This was the first time my PSA was ever tested. First test: 9.5, second time 9.7 with a 2.96 predicted value. Biopsy results came back with two positive results: one at 3+4 in right…
Second Opinion on Needle Biopsy
Hi Everyone: My husband is scheduled for a targeted needle biopsy of the prostate next week (based on MRI results), we are in Calgary, Canada. Based on You-tube videos from the Prostate Cancer Research Institute in California, they recommend getting a second opinion for pathology and Gleason scoring on the samples. I don't…
Frustrated and Depressed
I was diagnosed with prostate Ca in 2020. I had a radical prostatectomy, radiation and hormone therapy. I have not been able to have relations with my wife since my surgery. Mechanical and chemical agents don't work very well. I am very frustrated and depressed at not being able to achieve an erection. I am considering…
Checking out options
I had a prostate biopsy last Wednesday. My PSA levels had been going up, with my most recent one reading 5.59. Results came back yesterday, and I will speak to my urologist about 'where do we go from here?' on 3/13. Re: the biopsy, 5 samples were negative. 3 were positive, each with a Gleason score of 6, with less than 5%…
Sbrt
Hello, I’m new to this site but glad to have found it. has anyone had experience receiving radiation(Sbrt most likely) to the sacrum? I had a prostatectomy, but then a very high post psa of 5. A scan subsequently lit up a lesion in the sacrum. Thanks and grateful for any help
Remission
Well, I had my PSA (Prostate Specific Antigen) the other day. The results: PSA, TOTAL <0.04 ng/Ml Looks like I am still in remission. This is my 5th year since RP. I am still continent. I am intimate with wife, but I have slowed down a good bit and cannot hardly catch her anymore. I have always said there is more to us…
What treatment help
My father 74 age 3+4=7,grade 2,psa 8,8,biopsy 4 of 12 positiv all left and left centar 1 and 2 (6%-10%) 3 and 4 (11%-20%) Surgery or radiation
Not yet what to do...
Good day, I am living as a permanent resident in the Philippines for now 15 years with ma family. I am 69 years old and been tested prostate cancer in last August. Had all the test made and in my possession. One Uro. (from CEBU city) did the biopsy (gleason 7) and first PSA 14 ,prescribed me with bicalutamide 50 mg for a…
Right at the Beginning Line - Testing and Suspicious Results
Hello all, guidance is very much appreciated. Had a 3.2 PSA a year and a half ago. Unfortunately I did not follow through with a visit to the Urologist. Now I have 5.1 and a free/total of 10%. Monday I have an appointment with Urologist for a DRE. No additional symptoms other than frequent urination and a weaker flow.…
Starting the journey at 51
I had a physical in October and my PSA reading was 25 and was referred to a urologist. I had another PSA reading 2 months later and it was up to 27, so the Urologist ordered an MRI. The MRI came back with a lesion on each side grade 3 and 4. This prompted a Biopsy & Cysto which I had on Monday. I get the results on this…
Recently diagnosed Gleason 7 (4+3), psa 16, evaluating IMRT / IGRT vs surgery
I have all my cancer supposedly confined to my left side of my prostate; 5/12 biopsy reads were cancerous. I am getting a Prostate Specific Membrane Antogen PET Scan to confirm (hopefully) there has been no spread. I am very concerned about sexual side effects. Would like to hear from those who have had this type of…
AUS 800 is installed will try to keep a diary kinda
Well I got the 800 on tuesday afternoon and my lousy luck continues! The doctor decided to put in a dual cuff because of my excess leakage (14 + pads a day). The problem now is i shut down completely. by Tuesday night they had to put in a foley cath. as i was in major pain and no way to pass liquid. Doctor is afraid the…
My AUS Procedure
I have read a few posts that describe a different procedure than what I experienced. I had mine in November 2010, so a lot may have changed since the other posts were written. The ones I have read describe an incision from the anus to the base of the penis. Mine was actually a 2 inch horizontal incision at the base of the…
Rising PSA after 7 years
October 2013 64yo after routine physical tested 10.2 PSA. 3 weeks later had a biopsy in office, first mistake. Came back with a G8 and T3b in November. Put off surgery till after the 1st of the year. Did not want to deal with this over Thanksgiving and Christmas. February had RP, catheter for 8 days, after removal dry…
Chemo & Prostate Cancer-Any experience?
my cancer has spilled outside of my prostate to my lymph nodes. I have gone to chemotherapy and and have gone from one chemo to taxotere. It appears that the cancer is growing. Does any one have anyone have any experience with chemo and prostate cancer?
3+4 Time for my 6 month...anxiety
Hey everyone. New here. But I am getting my 6 month PSA checked Tuesday and my anxiety is a little high. I had a robotic prostatectomy 1.5 years ago at 46. Final pathology was 3+4 fully contained and 15% pattern 4. All tests have been <.04 undetectable. I realize with those stats I'm in a very good position. But no matter…
Abiraterone acetate from Cost Plus Pharmacy
Is anyone using Mark Cuban’s Cost Plus pharmacy to get Abiraterone (Zytiga generic)? I s it reliable? I’ve been thinking about it. Abiraterone is listed on their site but next to 250mg, the standard dosage, it says “(Back order)”…
cost of drugs with Wellcare/Medicare
I just signed up for Medicare and Wellcare drug plan. I'm on Lynparza for stage 4 metastatic cancer. Just was told that my percription co pay would be $3000. because of the donut- hole BS. averaged out over a year is $1050. How do people pay these rip off prices? Curren
Deciding on treatment
I was diagnosed with prostate cancer in May of 2016 but apparently I have had elevated PSA results for at least 7 years prior to that (army clinic failed to inform me that my PSA was higher than expected in 2008 only to tell me in 2016). My original PSA was 11 but I was checked immediately after the results and it was 5.7…
Pain In Penis 5 weeks post surgery
I am having pain inside my penis 5 weeks after surgery. Worse pain is near base of penis. No pain urinating, flow ok. It is worse at night and keeps me awake. Asked my doctor and he said it is probably due to the nerves being extra sensitive after surgery. Very disconcerting. Anyone with similar problem. Thanks
Kaiser Walnut Creek - Dr. Rosenbaum
Hello! Has anyone had experience with Dr. Raymond S. Rosenbaum at Kaiser in Walnut Creek? He is the most experienced with the robotic surgery at that facility. He went to Harvard for undergrad and Albert Einstein School of Medicine for his MD. He must be a pretty smart guy! That's reassuring but it would be good to know if…
Artificial Urinary Sphincter Implant (AMS 800) -- help!!!
Seeking Others to Discuss Their Experience w/ AUS Implant (AMS 800): I am inquiring for my father-in-law (fil) who has limited internet access. He is 63, prostate removed 13 months ago, now suffering from incontinence. Received 2nd opinion yesterday from Mayo and was told he had 2 options: 1) status-quo -- it won't get…
PSA and testosterone increase
My PSA test 1/23/2023 showed .253 vs past quarterly's of <.064, <.01, <.064, <.064,.064. Testosterone was 45 vs past quarterly's of 24, <5,<10,22, 39 , 50.Blood was drawn while I had a bacterial infection as evidenced by Immature granlocytes at 1.2 vs 0.5% limit. I have been on ADT for 16 months. Any comments are…
My Hormone Vacation Begins
After 2 years on Lupron/Zytiga/Prednisone, there are currently no visible signs of PCa, so my Oncologist has granted me a hormone vacation. I recognize that it will probably be 6 to 9 months before I feel 'normal' again, but I am very much looking forward to it. Time to celebrate! My Related History and Data: Post-Robotic…
Should I Be Concerned
hello, good people. HAPPY NEW YEAR!! yesterday, i had my PSA blood draw and it went up quite a bit. my PSA yesterday was 1.31, up from .76 in late september 2022. i'm not feeling too good about those results. here's a list of my PSA 12.17.2019 | 11.45 = BEFORE HDR BRACHYTHERAPY ============== 01.21.2021 | 4.04 = 1ST. PSA…
They’ve stopped making Lupron?
I’ve been on 3 month Lupron for 5 years. I’ve just run across an article from December of last year that they’re no longer making Lupron. Anyone know anything about this. (I’m in the U.S.)

Prostate Cancer

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