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Advanced metastatic stage 4 PC triplet therapy
Hi, I’m looking for stories of successful triplet therapy for pc with Mets to lymph nodes, bladder and pelvic bones Gleason 8. I need some encouragement and help in my husband’s and my journey. thank you jo
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https://m.youtube.com/watch?v=-ZXDohxylg0
Sure hope this video pops up the new PSMA scan is a major breakthrough they can actually use this technique while they are operating to help find any residual cancer cancer in certain lymph nodes it’s pretty amazing
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Husband Recent Diagnosis - Gleason 7
My 55 YO husband was recently diagnosed after high PSA (17), MRI showed spot, biopsy confirmed. Talking with surgeon tomorrow on treatment options. Does anyone have feedback on which treatments worked for them and has kept them cancer free? I have a list of questions for the doctor, but would love any specific questions…
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prostate hormone therapy
is hormone therapy necessary for those having received radiation? what are the pros and cons?
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Prostate recurrence 6 years after radiation ADT
Found out my PSA is 70 ng/dl. PSMa Pet scan lymph nodes from pelvis to cervical. Pelvic bone Mets and L1 bone Mets. No organ involvement. prescribed fermigan and abutamide. 51 years old. Do people go on disability with chronic ADT?
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Just need a motorcycle & a divorce - Anger & Shock, caregiver fatigue
I was diagnosed Stage IV prostate cancer in the ER after my primary care & urology docs refused to do a PSA test because I was one year too young. I had bone metastasis from my head to my feet. I was 49. The ER doc was in tears giving me the diagnosis. It’s been six years since then, I had to quit my high paying IT job &…
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No Lupron side effects. Is this normal?
Been on a 3 month shot of Lupron for over a month. Scheduled for radiation latter this month. I have read all about the horrible side effects of Lupron that can occur. I have always been in good shape. I do 30 minutes of circuit weight trading on machines almost every day and hike with my dogs in the national forest for…
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Biopsy results
Hello, Biopsy result shows 3 tumors, two are 3x3, and one is 3x4 for a total gleason score of 7. The report also says that cribriform pattern 4 was identified focally. A quick google search suggests that cribriform presence isn't a good thing, anyone have a similar? See the surgeon tomorrow for discussion on results. Thank…
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PSA Detectable 6 Months After RP Surgery
Hi all, Posting on my father’s behalf. My father had a prostatectomy in January. His PSA has been undetectable since then except for recently (6 months post RP) when it rose to 0.28. The doctor has ordered a PSMA PET/CT scan to determine the cause and where. Spoke somewhat about possible follow-up radiation therapy. Has…
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My Husband's prostate cancer has come back after 15 years.
My husband was diagnosed in 2007 with prostate cancer. He was given hormone treatment, and radiation treatment. After being monitored by his consultant, and PSA level was coming down . I remember the last time his consultant said that his PSA level was undetectable, he was clear of cancer. Once every 6 months he would take…
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PSA Rising Fast after RP
PSA Rising I was first diagnosed with PC at the age of 53. My RP surgery was on 12/20/2020. A week and a half later, I was experiencing a lot of discomfort and morning erections from the catheter, so the doctor removed the catheter. The day after that (12/31/2020), my testicle grew 3x to its regular size, so my daughter…
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On opting out of further hormone treatment
I'm 70 years old and was recently diagnosed with PC, Stage 4, Gleason 9. I've been on hormone therapy (Zytiga) for 6 months, with good results (PSA 0.08) but debilitating side-effects. Probably another 3 months, then radiography treatment. After this, I'm considering opting out of further hormone treatment. It's a quality…
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ADT plus chemo
I have watched some videos with Dr. Schulz and he seems to recommend to go after the cancer recurrences strong and hard ADT and Chemo for recurrence plus radiation if needed. I went to Sloan and they did not recommend chemo for my disease burden. What says this community?
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Pc
I was diagnosed with pc back in 2021 I was scared to find out so I wanted a year to find out and when I did I was full blown stage 4 my psa level was at 98.8 did 5 chemotherapy my psa got down to 1 started taken cancer pills went back now my psa is back up around .40 having to do 8 more rounds of chemotherapy my iron down…
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Recently diagnosed with Gleason score of 9
My biopsy last week revealed a few fives and sixes but the ugliest was a score of 9. The strange thing though is my PSA score of 5 about six months ago. Because of the high Gleason score, my urologist suggested the DaVinci surgery and a second opinion. After numerous recommendations and a consultation with Dr. Kawachi at…
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My journey
I have been reading, and wasn't going to, but figure there are others like me. Not diagnosed yet, but on the journey.. 49 (for a few more weeks anyway), otherwise healthy. Routine PSA, first time being checked, 5.4 ng/mL. 1 month later, 5.7 ng/mL with a PSA Free % of 9%. Was told I would get a urologist appointment in 12…
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CyberKnife as Treatment
Has anyone heard of or been through the treatment that uses CyberKnife. I'm only reading really good things about this noninvasive type of treatment. CyberKnife.com.
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What Else Can We Do For The Pain?
My 81 year Father was recently diagnosed with metastasis prostate cancer. It was shocking news and such a blow to us all. He completed a few radiation sessions and continues to take all his medications well. We are awaiting the start of his hormone therapy in a few weeks. Although he has prescription meds for his pain,…
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Treatment after prostate surgery
I know I may be asking this for no reason! I had a RP April of 2023 and have not had post op Psa` yet so I should not be worried yet..but that’s just who I am. Prior to surgery my Psa` was almost 24. Three years earlier ( my previous Psa`) was 3.5 . My Gleason was a 7 (4+3). After surgery I had positive margins and there…
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PCa and BPH - Good News about Both
An update fourteen years into my active surveillance. My “benign” prostate problems recently became serious with causing acute urinary retention, and I needed to clear the blockages. I chose a one-two protocol of Prostate Artery Embolization followed five days later by aquablation. While PAE will significantly shrink the…
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Can a low PSA be still metastasize?
My hubby is 70. Biopsies 12 of 12 positive. PSA dbl. in a yr. to 7.6 Robot surgery 18 months ago. Gleason 4=5+9 and 5+4-9. Invaded the seminal vesicles. Lymph nodes removed clear. Stage T3b. Can a PSA that low metastasize? Collecting information. Doctor is planning hormone treatments and radiation.
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Age vs. QOL vs. Prostate Cancer ADT treatment
Just to recap my husband’s situation: Age -77 (relatively healthy) psa-2.7 Gleason 8-4/4 tc2a clear bone scan biopsy 4 out of 14 positive cores Treatment prescribed: 12 mos monthly Firmagon (instead of Eligard which we requested) 25 radiation beginning after 2 mos of Firmagon 3 Cyberknife sessions The question is whether…
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Hormone treatment - were you given a choice of methods or drugs?
I am experiencing a biochemical recurrence and might be put on ADT soon. Whether I should head down this path before metastasis detection or not is a moot point - this thread is only about the different types of hormone therapies available and whether anyone was given a choice when they were put on it for whatever reason,…
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My Journey. Advice? Words of wisdom?
I would like to begin by thanking everyone for providing such a wonderful resource of knowledge and encouragement. I have been reading the forum for hours. You are all a tribute to what a positive attitude and a will to overcome can and will accomplish. A bit about my history. I just lost my father after an 8 year battle…
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Thoughts on recent diagnosis
I have recently been diagnosed with Prostate cancer and I am trying to justify active surveillance as I really don’t want to endure the side effects from the various treatment types. My first thought is to get a 2nd opinion of the biopsy (of course they might change the score ). Another diagnostic investigation might be…
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Cancer or infection?
Hi - I’m 57 and In mid-February I began seeing symptoms of tea colored urine, increased frequency, weak stream which got worse over the next couple of weeks to include fever and an episode of night sweats and finally so much painful urination that I went to the urologist at the beginning of March. He found pus in urine and…
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cystoscopy - requirement
I'm considering an AUS after 5 years post RALP incontinence. A surgeon in my area (Raleigh) that does them scheduled me for a cystoscopy before he'd even talk to me about the AUS surgery. Is this normal? Actually, I'm more concerned about the cysto than the AUS at this point. Thanks.
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I have (had) prostate cancer
Background: 61 years old, white male, 6’2”, 250 lbs. Smoker- ½ pack a day/I take medication for high blood pressure. Retired US Army SGM- 32 years. Currently in my 9th year working at a college. I sit behind a desk all day, but manage to work out a couple of hours a week. This all started with a 5.8 PSA. My PCM doctor, who…
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Delay in raditaion treatments
Won't mention facilities here but one offered Photon radiation and the other Proton. Both had excellent results but Proton less damage to prostrate, organs and tissues. Problem I am having is waiting for treatment to begin. Having to wait 5 weeks for a PET Scan to be done before treatment can begin. This wait worries me…
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Detroit Area Surgeons
Greatly appreciated all of your previous responses to my posts. If anyone can give me a head start with a well-seasoned, good surgeon for prostate removal, it would be helpful. I have one that I believe would an option, but want to get opinions. Thanks to all!