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Post RP and SRT journey - oh joy
Hi all I thought I would start a fresh thread as things have changed dramatically. My PSA has rised to 0.24 and I have now started HT (casodex with two three monthly injections of Triptorelin). Back story. PSA rose to 4.0 early last year. Biopsy suggested G7 (4+3). RP surgery (bilateral nerve sparing) confirmed the Gleason…
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A roller coaster ride…
I had a new Internist that was a Neurosurgeon in India. He was the only doctor taking new patients in my town (former doctor moved into a clinic with a Chiropractor to save funds on facility costs, but the DC would review the MD anytime he wrote a prescription for a Controlled Substance). My doctor left and decided to just…
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Gleason 7 Active Survellance
Yesterday I had a consult with a very good surgeon at the UNM Cancer Center. He does a lot of prostate removals with a high success rate and low side effects. He said because of my previous TURP and bladder opening scaring he would not recommend surgery, as it was sure to cause incontinence. He thought I should try active…
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Radical Prostatectomy Recovery Tips
My 55 YO husband is having RP in early September. I'm looking for any tips, ideas to help him recover. Anything I should/shouldn't do? I'm turning our spare room into a guest room with adjustable bed frame bed and tv (w/Netflix)... Any other ideas of what would help him relax and recover? He's a busy body so being down…
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HDR Brachytherapy
My question is to those who experienced HDR Brachytherapy, the treatment and the post surgery results. Recently diagnosed with Pi-RAD 5 lesion. Extracapsular extension suspected. PSA went from 6.9 to 11.5 in 3 months but now 9.0. Urologist offered radical surgery. 2nd Urologist said I should do something so sent me to…
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New Diagnosis
Hello, I have been following this board for some time trying to educate myself on PCA. I had a PIRADS4 lesion from MRI ( 6.1 PSA 4K of 27% ) and I attached the results from a just completed fusion biopsy. I do have a Gleason 6 reading. The atypical small acinar proliferation concerns me but I don't see anything over a 6. I…
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TESTOSTERONE SUPPLEMENTATION AFTER RADIATION AND FIRMAGON
HAD RADIATION AND FIRMAGON 5YEARS AGO .CANCER IS GONE BUT SO IS MY TESTOSTERONE .IT NEVER CAME BACK .DR RECOMMENDED TESTOS TERONE SUPPLEMENTATION.HAS ANY BODY TRIED THIS?
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A few (bizzare) questions for anyone treated
Backstory: My dad's PSA has been increasing steadily since 2018. (from 2.5ish in 2019 to 4.5 now). He's scheduled for MRI. The urologist said given the steady increase he think it's likely to be it's cancer. He's turning 69 and is pretty fragile even for his age- already been through intense chemo/radiation for head and…
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new here was diagnosed with very aggressive pc Dec. 2022
My biopsy showed 12 of 12 positive 5x4's and 4x3's a very high 9. I'm 78 and went with radiation 44 treatments with hormone injection every 3 months plus hormone tablet everyday. I know y'all are in the same boat but I guess my question is when will I start to feel the effects of the cancer? Im a born again christian with…
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Peripheral neuralgia/ pudendal neuralgia post radiation
Disclosure, I am actually a 56 yr old female, that underwent intense radiation to the pelvis 2 years ago for Anal cancer with progressively worsening neuralgia pain, numbness, tingling to buttocks/pelvis and difficulty sitting for more than 5 minutes that I attribute to nerve damage or entrapment since radiation. I’m at a…
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Wow what news
https://www.fox9.com/news/new-cancer-pill-shows-promise-many-doctors-say-too-early-to-tell
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Urination Trick
The best way for me is standing up,but it makes a mess. What I've found is if I hold a wad of toilet paper close and pee into it, it saturates and drains straight down into the toilet. Simple and effective and then I'm good for another 5 minutes!
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Shoot i am back after 5 years
Some of you old timers will know who I am.anyway, five years ago at age 57 I was diagnosed with prostate cancer. My PSA level went up to 7.8. After a long, draining decision and chose to do radiation therapy with the booster. I still think I made a wrong decision but I have to live with it. PSA dropped down to 0.8. But…
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Keytruda
Just ready for my 21st immunotherapy with Keytruda. Interested if other folks have been down this road and what type of side effects they might have experienced. Fatigue and shortness of breath are now getting a bit worse for me. What's the expected duration of Keytruda treatments with prostate cancer? Appreciate any…
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Psa went up
Hello. 55 yr old male no health issues. Last year my PSA was .5. This year it went up to .9. I have an appointment with doctor in 3 weeks. Should I be worried? Honestly, I am very worried. Am I over reacting? It was .5 for many years since I started doing psa test.
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Leaning to RP due to Dad's History
I'm 64. At 61my PSA jumped from 2.5 to 6. After MRI and a fusion biopsy was diagnosed with 3 core samples being cancer. Gleason score 6. Went into AS. Had another biopsy in late 2022, tumors have gained in size but still Grade 6. My father passed at 72 from Prostate cancer. Had high PSA at his physical when 70, it had…
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Please take a few minutes to watch this important video about PSMA scans
https://www.google.com/url?sa=t&rct=j&q=&esrc=s&source=web&cd=&ved=2ahUKEwjlgIKAhKOAAxW6m2oFHebnCNMQwqsBegQIEhAG&url=https%3A%2F%2Fwww.youtube.com%2Fwatch%3Fv%3D-ZXDohxylg0&usg=AOvVaw2YI7sJ0VG3QjqJ4p-w0qfm&opi=89978449
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PSA went up in two years
Hi friends, My PSA went up from 2.2 to 4.2 in two years, I am 49. My % free PSA was 14% and now is 17%, so this metric went in the right direction. Any suggestions? I am of course concerned and will be working with my physicians for more tests. Hope a biopsy is not needed.
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Psa rise after partial hifu
I had 90% of my prostate treated 1 year ago. My psa was 1.26 at 3 months; 1.41 at 6 mo; 1.46 at 9 mo; 1.53 ay 1 yr. Dr is not concerned. I am. Can ty find anything on psa increase after partial hifu. Thoughts?
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I had my surgery today
I’m typing this post on my phone from my overnight hospital bed. Today was my Davinci robot-assisted RP, and I’m happy and relieved to finally have it over with. For those who are curious, those who may face this surgery themselves and for myself to remember while it’s still fresh in my mind, here are some of my…
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PROSTATE MRI
why would the Doctor order a mri when my PSA went from 2.5 to 2.9 in 6 months?
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Promising Lookout
Hello all... new here. I'm 44 years old dx (PSA 7) w/ prostate cancer (PC) 3+4 in March 2023. My dad is a PC survivor. He was dx in his mid 60s. He's now in his late 70s. After careful consideration of my options, I decided to proceed w/ robotic radical prostatectomy (June 2023). I am 1 month post-op. Pathology report was…
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A wives journey
Husband (66) has been diagnosed with low grade PC. PSA doubled to 5.6 in one year. MRI confirmed 2 lesions prompting a biopsy. 6 out of 12 core samples 3+3, one core sample 3+4. Gleason 7. Husband opted for AS at this time with Doctor’s approval. Doesn’t want radiation nor HT. Refuses 2nd opinion. that was 3 months ago.…
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Focal laser ablation
I just received FLA for my 2 lesions of cancer in my prostate. Has anyone else had this procedure and what are long term successes even though it is relatively new. Thank you!
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Hello. New here and cancer is back
Hello, New here and looking for knowledge from others on this board who might have similar circumstances. Original diagnosis 2014 - Prostate biopsy - Radical prostatectomy with Gleason of 4/3. 2016 rising PSA - MRI confirmed tumor on bladder - Scope of bladder confirms no perforation - 40 courses of radiation at MSK -…
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Here’s something to discuss
they say prostrate cancer it’s a second most deadliest cancer for men but the same time they say prostrate cancer is the most beatable treatable cancer. so with this being said would it be safe to say that what makes it so deadly is When men don’t catch it in time and it has spread distantly and that would be a sad thing…
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Enzalutamide, has anyone been on this?
My husband has now been told that he should take Enzlutamide tables. Lots of side effects with it. He has to sign to say that he has given his permission to use this. Has anyone on this discussion board been on this drugs?
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Advanced metastatic stage 4 PC triplet therapy
Hi, I’m looking for stories of successful triplet therapy for pc with Mets to lymph nodes, bladder and pelvic bones Gleason 8. I need some encouragement and help in my husband’s and my journey. thank you jo
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https://m.youtube.com/watch?v=-ZXDohxylg0
Sure hope this video pops up the new PSMA scan is a major breakthrough they can actually use this technique while they are operating to help find any residual cancer cancer in certain lymph nodes it’s pretty amazing
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Husband Recent Diagnosis - Gleason 7
My 55 YO husband was recently diagnosed after high PSA (17), MRI showed spot, biopsy confirmed. Talking with surgeon tomorrow on treatment options. Does anyone have feedback on which treatments worked for them and has kept them cancer free? I have a list of questions for the doctor, but would love any specific questions…