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Need suggestions for altered taste
Just started on Taxotere/Carbo and so far the worst side effect is altered taste. I'm having a hard time tasting anything. Everything tastes terrible. Any suggestions or is this my new normal for the next 6 months?
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I am pleased to say
After on three treatments I am in remission. I can't believe this I did not dream I would ever be saying this since I am stage for let alone say it so soon. I will be on advastian as a maintance chemo for at lest one and a half years and more than likly more than that but as long as I stay in remission that is all I care…
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cisplatin-immuno suppression question
I had ear issues prior to chemo. I was sad to find that the chemo affected my hearing. I have lost some hearing in certain ranges. :( But..I am alive. :) I may have asked already but keep forgetting how long does done stay chemo suppressed after finishing chemo?
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interim status report on my recurrence treatment on the clinical trial.
I posted on the uterine board, but I would like to share this on the ovarian board also. I have UPSC 4B or OVCA 3C: ambiguous origin. The treatment is same and the prognosis is about the same too. In fact, the clinical trial I am on is for the ovarian cancer patients who are deemed platinum resistant. here we go. I just…
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new to this board....stage IV ovarian
hello to everyone...i found this board and take great comfort in many of the posts....i tried to find a match for my stage IV in two support groups and was told there was no one! that was pretty discouraging. i was diagnosed 13 months ago ... i was having trouble breathing and my pcp thought i had asthma so he kept…
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I'm so incredibly grateful.
I had my first CA 125 test early last week, the first since my last chemo in July. I had been at 6 since my debulking surgery on May 5. For the last 2 months I've had a sore throat which was finally diagnosed 2 weeks ago as oral herpes! If my immune system couldn't ward off herpes, how could it stave off cancer? It takes a…
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Newly diagnosed
Hi everyone, I was diagnosed July 29th...had surgery to remove my left ovary august 20th and started chemo august 29th. I'm on my third round.
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Good news....I think. At least it's not bad news.
Just got home from my appointment with my friendly, local gyn/onc. We can't tap the fluid and test it because it's trapped in the hernia sac and they can't go thru the mesh with the needle they use for paracentesis. On the other hand, because it IS inthe hernai sac, and nowhere else, it might be totally unrelated to Cancer…
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Good news to report
Hi, my loves, Many of you might know that I've been chemoing for the past 22 months for my first recurrance. (for newer sisters, I was diagnosed 3C/May 2006 and had about 3 years of NED). For the past several months, my CA-125s have stayed steady at around 78. I had become resigned to thinking that chemo was at least…
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BRCA2 With No Family History of Ovarian or Breast Cancer
Hi - I am 38 years old and was recently in shock to find out that I have the BRCA2 mutation. I have absolutely no family history of ovarian or breast cancer. I just had a baby. I would really prefer not to have my ovaries removed. I am not keen on hormone replacement therapy as there is a history of heart stuff in my…
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Platelets still WAY low
I am scheduled for my last big treatment next week (25th) However, today my platelets are still only at 35. He gave me the 5th treatment 3 weeks ago today at 74. I'm wondering if that's why they're so low. I'm just discouraged. I want to get this over with and try to pick up the pieces and move on with my life! Carla
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Joliet Women's Cancer Support - Joliet IL - December meeting cancelled due to holidays
Support group held the last Wednesday of each month at 7pm. Held at Joliet Oncology-Hematology Associates (JOHA)2614 W Jefferson St, Joliet IL Just behind the Babe's Hotdogs Visit Joliet Womens Cancer Support on FaceBook to let us know that you're coming!
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Anyone with ovarian cancer who is BRCA 1 or 2
I've decided to go at the suggestion of my doctor for BRCA testing. From what I understand, and I don't know too much at this point, within the last couple of days there was new information about BRCA women who had ovarian cancer (I think BRCA 2 not sure) and new chemotherapy available for that. Has anyone else who has…
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New to the board! Hello :)
Hi everyone! Since my diagnosis, I think I have been moving non-stop. I am 25, and this past spring a 14x14x14cm mass was found on my left ovary. It was actually a miracle. I had no symptoms, but went to the doctor to have a IUD placed before I went abroad to visit my (now ex) boyfriend, and that is how they found the…
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Very excited!
So I couldn't wait to come home and type this to let you ladies know that I am spreading the word about ovarian cancer. I have been volunteering at the hospital I was treated at by teaching kartate thru the Kids Kicking Cancer program. I know the director because he is a student at our Martial Arts Academy that my fiancee…
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New, Surgery next week for 10cm complex mass
Hi everyone, I am due to have surgery next week for a large complex ovarian mass and I am a bit nervous as I have previously had cervical cancer. the mass was found during a hospital stay for Chron's disease, the doctor mentioned in passing that they found an ovarian cyst during an MRI but neglected to mention that it was…
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For edt36: good to hear Mom is better
Just wanted to start a new thread to let you know I am praying for a good PET scan for your mom. The other post was old & long & had scary stuff on it a about chemo. I read a big explanation about ovarian cancer written by an oncologist--there's a part where he wrote some advice for people who are not making progress with…
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transfusion
Hi all !!! I got my lab results back from my 6th chemo. My platelets are at 44, so I am going to have a transfusion in the next couple of days. Soon as they can get me in. I knew I was awfully short of breath and tired, and now I know why. Has anyone else had to experience this? The onc said most likely having been through…
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Body Aches?
I have had 5 treatments of carbo/taxol, and 4 of Avaistan. I am scheduled for the 6th and final treatment on Oct. 25. It should be the 18th, but the dr. decided to give me an extra week since my platelets have been so low. I'm having pain in my shoulders, legs, feet and hands. It's not constant, but more than it was. How…
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Coughing
I have posted this before, but I still can't shake this cough I have. Did 5 rounds of radiation and started chemo 2 1/2 weeks ago-Carbo/Taxotere for a recurrence. I can't stop coughing. Is it the cancer or the treatments that cause this? It has me worried that it is in my lungs, although the PET/CT scan 6 weeks ago showed…
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Alimta
I've read where a few people are on Alimta (Premextrend - not sure of spelling). Just wondering if you were getting this drug through a local medical oncology office or if it is only given in a big cancer center. Thanks alot. Any results with this drug i.e. stopping growth? Any help you can give would be appreciated.
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Pain where ovary used to be
I had a full hysterectomy and I have been off chemo since June 28th and my last scan in July said I was NED. I had my CA-125 done about a week ago and it was 11, but the next day after that I started getting a pain where my left ovary used to be. Both my gyn/onc and hematologist said they dont want to do a scan until I am…
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Waiting for latest CA 125 result
I had my blood drawn yesterday. I hate this couple of days. Once I get my result I can breathe again for another three months. And I really hate the phone call I will make tomorrow to get the result. My heart pounds as I await news of my fate. Ovarian cancer has a hold on us even when it is (hopefully) not there. Damn it!…
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The Cancer Project
Check out www.cancerproject.org After reading an article in our local newspaper I signed up for "Food for Life" cooking classes sponsored by the Cancer Project. I had heard of this program several months ago on TV but this group had no local programs then, but happily now they do. There is the website with recipes and…
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Friend has ovarian cancer
She got the news a couple of days ago and I am from the breast cancer board. She was told that after surgery she will need chemo and radiation. I know it's early yet to determain her stage since what I've read tells me that is usually done after surgery. I was wondering if the chemo drugs are similar to mine from breast…
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Seeing my hometown gyn/onc Wed
I am worried about the "small amount of ascites" that showed up on my CT scan last week, so I am going to ask my regular gyn/onc if he will send me next door to the hospital and get them to take a sample of the fluid and test it for malignancy. I'm betting he won't do it, but I'm going to ask. My doctor came very highly…
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Latest info about my port problem
After going back & forth for several weeks now, I met with my surgeon and it was decided that the port I've been having a problem with needs to be removed. I still have some redness near the scar line but it's much better than before. All they can tell me is that this infection most likely happened as to the way my port…
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New here
My mother was diagnosed with stage 1 ovarian cancer this July. The surgeon said there was no fluid her uteruse was soft....stage 1. The surgeon put hr surgery off for two weeks. When he went in it had spread she had fluid in her abdomen and it was on her colon and bladder. He diagnosed her atk a stage 3 c. I feel so angry…
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CA 125 Went Up Instead of Down
I just had my second round of Taxol/Carboplatin on Monday. My lab work prior to chemo showed my CA 125 had elevated from 170 to 446 since my first round of chemo. That seemed very strange to the doctor and they are going to retest it next week at lab draws. Anyone else experienced something like this. My cancer had been…
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Passive exercise and a great supplement
I don't know if anyone has talked about chi machines before, and I'm not trying to sell them, but I though I'd share a bit about them. They are good for anyone but perhaps vital for people who are too compromised by illness to be able to do conventional exercise. You basically lie on your back with your ankles elevated on…