-
PREGNANT, JUST DIAGNOSED WITH CANCER
I don't have many details, but my daugther's sister-in-law is due in February and has just been diagnosed via biopsy. I only know it is a gynecological cancer, but don't know which or what stage. Her doctor says baby is doing well, and there is nothing they can do regarding the cancer until the baby is born (C-section). At…
-
Sharing and looking for suggestion
Dear ladies, It has been a long time since I last visited here. I will need time to read through so many threads that I missed. I have updated my "about me" page. I cut and paste it here just to share with you about my case. I also appreciate any suggestion/advice from you because I am actually pretty frustrated and lost…
-
Mom, 74 has ovarian mass "extension" please advise
My mom is 74 and has lost quite a bit of weight without dieting. She has had zip for an appetite. They did a scan on her and found a large ovarian "extension" on her right ovary. She goes on the 30th to a gynecologist. I'm really worried its ovarian cancer. However, it could still be something else right? She has all of…
-
my mother is giving up
my mother was diagnosed nearly 2 years ago.she is 54. at the begging she was broken but after she had surgery her courage grove up and she believed she is going to be fine .we been true a lot of bad days and good days. chemo is working very good but in past few days she started to feel worse and we are going to see doctor…
-
Made it to another Thanksgiving
This will be my 3rd Thanksgiving with Ovarian Cancer and although I'm normaly very up and positive about things, every year I say is this my last. Am I the only one who does this? and then there's x-mas I do the same. I am so thankful to still be here and thankful for my friends and family,this board and to the dr's who…
-
Dr. Oz had another show
on ovarian cancer and is spreading the word about symptoms..he had a few woman on who saw his show about ovca and they went to get checked.Turns out one did have it and was currently on chemo. The other lady had a crciod tumer and he showed what it looked like. It had a tooth and some hair. There is finally some one out…
-
Giving Thanks
Had my PET/Scan on Monday and I just got the results today. I was definitely frantic due to all the bad news that I have been receiving. The doctor walked in and said, "Well I get to be the bearer of good news, do you want to hear it". I about fell off the chair. All my tumors have shrunk 30%. Taxotere/Carbo is…
-
Elevated CA 125 opinion is needed
My CA 125 elevated from 11 at the begining of October to 26 on November. CT scan was OK, no recurrence. Anyone had elevated CA 125 in a very short period such as mine? I feel scared, going back at chemo is hard. Anyway, the doctor says that there will be no treatment till a tumor will show up on CT scan.Doctor thinks I…
-
Hair Color
So my hair is finally coming in and it is coming in silverish gray and brown all mixed together. It is so weird. I know I am young and did have some gray hairs before chemo but not this many. Yikes! How has everybody else's hair come in?
-
Did my speech
Yesterday I did my first ovarian cancer/self-acceptance speech. I spoke to about 40 people mainly girls between 13 to 18 yrs oldalong with their teachers, for approximately 35 minutes and I told them my story and advocated that we all have problems, but accepting what is wrong makes it easier to handle and allows you to go…
-
CT-scan on Monday
and I'm really terrified. It's my first in a year (been on chemos for the past 23 months for my first recurrance). I find out the results next Weds. and I'll let you know. Meanwhile I'm going to enjoy Thanksgiving to the hilt! ((((HUGS))) Maria
-
No more chemo
Well, we got the bad news today. No more chemo. The onc thinks her tumor load is large enough that it can't possibly do any good for her. Her counts are really bad, hemoglobin and platelettes both down a long way and that's without chemo for three weeks, and having blood and iron. So, we have no idea how long, probably…
-
energy
I finished my first taxol/carbo and the neulasta and had no idea the shot would make me hurt so much later because my sister who had non-Hodgkin's lymphoma had the shots and they did not hurt her. She finally let me in on the fact that she was on morphine at the time. I was taking ultracet but finally had to start percocet…
-
Linda Procopio
This was just posted one hour ago on the Uterine Cancer Board. Love to you all - Suzanne Subject: Sad News It is with great sadness that I make this post on behalf of my Mother, Linda Procopio. She passed away today after her long fight with Uterine Cancer. The Cancer Survivors Network Community provided Mom with wonderful…
-
HAPPY THANKSGIVING TO ALL
I know that things have been rough for so many of you. And without a doubt we all have had enough sadness and losses in the recent months to last a lifetime. But as always, there's still something, somehow to be thankful for. As I count my blessings this Thanksgiving (as I do every 'ordinary' day as well), I wanted to say…
-
Damn this disease
I got a message on my cell phone to call regarding a person who was in my Living strong/Living well program. It was her cousin who informed me Shiela had passed away yesterday. I am in shock. This was a young women who was so strong and healthy. I assumed she was in remission from breast cancer. I last saw her at our…
-
PET Scans?
My sister's oncologist does not want to do a PET scan. He doesn't like them for Ovarian cancer. I was not with her at the appt so I didn't get a chance to ask why. Did you all get a PET scan? Do you recommend one?
-
Had ct scan, a possible new spot on vaginal cuff
I am a part of gog 213 study. Been on avastin for ten months post first reoccurence that was treated with carbo, taxol and avastin. Ovarian cancer 3c diagnosed Dec 2008. Had a ct scan today, they saw a suspicious one centimeter soft node at the top left of the vaginal cuff. Will get ca125 tomorrow, and see my doctor…
-
confused and frustrated
i have an appt tomorrow with my oncologist to discuss my disease progression....i will be starting on chemo again. it drives me crazy to wonder if the combination of drugs i will be given will be "the best" or just "the best my insurance will pay for" and/or is still available...in july when i had "suspicious recurrence"…
-
CARBO & GEMZAR
Ooops I posted a day or 2 ago and made a spelling error. Thanks for pointing it out to me ! :) I appreciate it. ..... I said I am NOT having a recurrence but I meant I am NOW having one. anyway, nobody responded yet regarding being on the ABT-888 study (parp) but with that , I am on Carbo & Gemzar. Has anybody been on this…
-
Starting round 3
of chemo on Tuesday the 29th. Even though I don't post very much I try to stay in touch by reading everyones post. I finished carbo/taxol at the end of May. I had a hernia surgery in Aug. My ca-125 was at 45 from 15,they thought it went up because of surgery. On my next ca-125 test it was 146, I had a ct-scan and blood…
-
Avastin
I am on the gog 213 study. I have recieved avastin twenty one times. Part of the avastin infusions were given in combination with carbo, taxol for six times during chemo for a reoccurence last June. Jan 2011 I continued on just evastin. In the GOG 213 trial you stay on it until there is a reoccurence. I am the only one…
-
Not the news I wanted
I found out the results of my biopsy - it is breast cancer. Still numb. Can't figure out how that can be when I tested negative for the BRAC 1 & 2 and have been on Avastin for 15 mos. Will know more tomorrow after I meet with the surgeon
-
mum is still rough but we got more steroids today!!!!
Yay , we managed to get some more steroids for mum today , so we are hoping that they will boost her up. She is eating next to nothing and is being sick alot, so hopefully they will make her feel better and give her some fight back , because at the moment she is loosing badly, she is not ready to loose and nor are we , no…
-
CA-125 update
I had another CA-125 test on Nov. 15. Results today. 9.1!!! Spending time with my kids. Daughter has been here since Friday. Son just arrived a little while ago. First time I've seen him since April. Cracker Barrel is preparing Thanksgiving lunch for us this year! Hope all of you have a great Thanksgiving. Carla
-
hard week of topotecan
Just finished my 5th round of topo, 5 days a week every 2 weeks. This was a rough one, had a reaction from the sterods, so they stopped them, left me extremly tired, anyone else on topo?. Have 3 weeks off with the holidays coming YaHooooo. Ca 125 is 306 stopped coming down before this last treament. Dr will do another…
-
Avastin
Hi gals, can someone explan to me what it means specifcally for the ovarian cancer gals that avastin has been pulled by the FDA? Does that only affect those on medicade and medicare? I am a bit confused. More specifically, those of you that have an ovca dx, and on avastin now and your insurance it covering it, will that…
-
Steroids?? can you keep on taking them or do you have to have a break?
Hi all, Quick question, mum is really poorly , she has just finished her last dose of steroids and has mow started on Topotecan,her third chemo drug, it has hit her like a sledge hammer, she is bed bound and vomiting. My question is can you keep taking steroids ? or do you have to have breaks from them? When mum had doxil…
-
FINISHED VACCINE TRIAL - EVERYTHING A-OK!!!!
Hey my sisters - just to let you know i am done with the vaccine trial at Sloan in NYC - had my final monthly check-up and scan yesterday - to quote scan: Everything - UNREMARKABLE (LOL) and "No Evidence of Disease" !!! Will now be checked every 3 months for the next 2 years - at this time I am 2 years NED from the end of…
-
Avastin/Cytoxan
My mother was diagnosed with stage 3C epithelial ovarian cancer in October 2010. After optimal debulking, she was treated with 6 rounds (3 ip/3 iv) of carbo/taxol. She recurred about 7 months later and was treated with 6 rounds of carbo/gemcitabine. She recurred again this August (based on steadily rising CA-125)and has…