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Ovarian Cancer

Recurrence Symptoms
I will be going for my CA125 test next month. I have been NED for a little over 3 years now. I was initially diagnosed as Stage IIIC OVCA. I am still nervous every three months even after all of these years. As the time nears, I suddenly start feeling sick. I feel nauseated, bloated, fatigued, etc...I know these are more…
Been almost 6 weeks
Hi everyone- Just felt the need to check in and reach out this evening. Mom has been gone for almost six weeks and I am still floundering quite a bit. Its been odd and extremely painful, trying to reach back into "life" and be the so called normal everyday. How do I let go of the first 40 years of my life? How do I move…
cancer reoccurence
When undergoing chemo after being in remission for 6 months, are the side affects the same?
I DID IT! JUST FINISHED MY LAST TREATMENT!
My platelet count went from 35 to 82 in 7 days. They gave me the treatment. I will be on Avaistan for 2 yrs., twice monthly. I see the dr. Nov. 15. He will then schedule a pet scan. CA-125 was 14 three weeks ago :) Thanks for all your help and support! To the lady who recommended the Tahini butter, maybe it worked, just…
NEW TO THIS NETWORK
HI I AM 26 YEARS OLD AND IN MARCH OF THIS YEAR I WAS DIAGNOSED WITH OVARIAN CANCER. IT ALL STARTED WHEN I WENT TO GET MY PHYSICAL, MENTION TO MY DOCTOR SOME PAIN ON MY PELVIS AREA I HAD AND SHE SENT ME TO GET AN ULTRASOUND. IN MY ULTRASOUND THEY FOUND A CYST ON EACH OF MY OVARIES AND THEY WERE HUGE. AT THE BEGINNING THEY…
Stuff I don't need to hear
I got a call from my sister the other day. The first thing she wanted to tell me was about someone who healed their cancer with their mind. The second thing she wanted to say was "I think you are obsessed with your cancer--that's all you ever think about." I had to end the phone call right there--I don't need to hear that…
this disease sucks !
Even if the news is not terrible there is no way to share it with my family without freaking them out ! I just got my ct/pet scan result in the mail and I only understand half of it but know enough to know there is progression and will need further treatment. I just want someone to lie to me and tell me it will be alright,…
Posting for a newbie lost in the forum...
Hello all, My name is Michelle and I usually post in the Caregivers board. Today we have a new poster that posted and said they were a little lost and are autistic as well as dyslexic. But is very concerned for his wife and I thought I would post his question here and someone here might be able to help him. If so, you may…
Harry Connick Junior
was on Pierse Morgan today. His mom died from Ovarian cancer when he was 13. (Maybe you guys already knew that.) I want him to be our Spokesperson! What an absolutely cool guy!!! kathleen
Ovarian cancer and brain metastases
The mechanisms by which primary tumors produce brain metastases is thought to be hematogenous (blood) spread from primary or secondary sites in the lung. Since the brain has no lymphatic system, all tumors metastasizing to the brain do so by spreading through the bloodstream. Arterial blood passes through the lungs before…
chemo # 7
Hello ladies !!! I just finished chemo 7 today. My ca 125 is now at 110. Great news !! My ct showed residual cancer in 4 lymph nodes. Onc said 2 on the right under liver and gallbladder- 2 nodes on the left under stomach and duodenum. He also said these were really hard to get to. They were all less than 1 cm. He will…
lupron
does anyone have experience with Lupron? the onc doc gave me a choice to do the lupron shot, or more chemo, and possibly give arimidex or another estrogen blocker another try im already in menopause, but from what i have read online about lupron one of the side effects is migraines...i already have to fight migraines off…
Weird rash
Last night I noticed that I was scratching my but, my neck and my torso a lot. Then, it occured to me that there might be a rash there (DUH!). When I looked in the mirror I saw this weird bumpy rash where I was scratching. I decided not to worry about it, and went to bed, hoping that it would go away. This morning, the but…
Guess what
... I am still ned!!!.I couldn't believe it,my ca-125 stayed at 16.so now I go back in December before the holidays. I had some questions I wanted to ask but I flew out of there to spread the good new. I can sleep now for another few months. I couldn't do this journey without my teal girls,,so bless you...val
Good News??? Not so much
well news was not so very good at my 3 month post vaccine trail check-up- no longer in remission - c-scan shows that there is a very small nodule that has gotten bigger in my pelvis - good news is that it is contained and not spread anywhere - dr's at Sloan are not messing around with it - i have an appt. with my surgeon…
Just finished my last round of chemo
So Thursday was my last round of chemo I got my CA-125 just before my chemo and it went from 5 to 9 they said it was nothing to worry about but I just did not want it to go up. I am praying it is nothing but I am nerves though I have been seeing it go down all this time and then the last time it goes up. Has this happen to…
First PET Scan
Hi All.... Having my first PET Scan this coming Tuesday morning. I was told not to eat any sugar, caffiene or carbs 24 hours before the test and nothing at all 6 hours before. Easy enough....but does no carbs include veggies???? The only carbs that convert to sugar is starch right??? I dont want to eat the wrong thing and…
Question about Neulasta
My mom is taking chemo for ovarian cancer once per week for 3 weeks. The day after the 3rd treatment, she gets a Neulasta shot. Then she has a week off before the cycle starts over again. For the last 3 months, she has developed a fever of up to 103 approximately 7 days after the Neulasta shot. She has been hospitalized…
Need suggestions for altered taste
Just started on Taxotere/Carbo and so far the worst side effect is altered taste. I'm having a hard time tasting anything. Everything tastes terrible. Any suggestions or is this my new normal for the next 6 months?
I am pleased to say
After on three treatments I am in remission. I can't believe this I did not dream I would ever be saying this since I am stage for let alone say it so soon. I will be on advastian as a maintance chemo for at lest one and a half years and more than likly more than that but as long as I stay in remission that is all I care…
cisplatin-immuno suppression question
I had ear issues prior to chemo. I was sad to find that the chemo affected my hearing. I have lost some hearing in certain ranges. :( But..I am alive. :) I may have asked already but keep forgetting how long does done stay chemo suppressed after finishing chemo?
interim status report on my recurrence treatment on the clinical trial.
I posted on the uterine board, but I would like to share this on the ovarian board also. I have UPSC 4B or OVCA 3C: ambiguous origin. The treatment is same and the prognosis is about the same too. In fact, the clinical trial I am on is for the ovarian cancer patients who are deemed platinum resistant. here we go. I just…
new to this board....stage IV ovarian
hello to everyone...i found this board and take great comfort in many of the posts....i tried to find a match for my stage IV in two support groups and was told there was no one! that was pretty discouraging. i was diagnosed 13 months ago ... i was having trouble breathing and my pcp thought i had asthma so he kept…
I'm so incredibly grateful.
I had my first CA 125 test early last week, the first since my last chemo in July. I had been at 6 since my debulking surgery on May 5. For the last 2 months I've had a sore throat which was finally diagnosed 2 weeks ago as oral herpes! If my immune system couldn't ward off herpes, how could it stave off cancer? It takes a…
Newly diagnosed
Hi everyone, I was diagnosed July 29th...had surgery to remove my left ovary august 20th and started chemo august 29th. I'm on my third round.
Good news....I think. At least it's not bad news.
Just got home from my appointment with my friendly, local gyn/onc. We can't tap the fluid and test it because it's trapped in the hernia sac and they can't go thru the mesh with the needle they use for paracentesis. On the other hand, because it IS inthe hernai sac, and nowhere else, it might be totally unrelated to Cancer…
Good news to report
Hi, my loves, Many of you might know that I've been chemoing for the past 22 months for my first recurrance. (for newer sisters, I was diagnosed 3C/May 2006 and had about 3 years of NED). For the past several months, my CA-125s have stayed steady at around 78. I had become resigned to thinking that chemo was at least…
BRCA2 With No Family History of Ovarian or Breast Cancer
Hi - I am 38 years old and was recently in shock to find out that I have the BRCA2 mutation. I have absolutely no family history of ovarian or breast cancer. I just had a baby. I would really prefer not to have my ovaries removed. I am not keen on hormone replacement therapy as there is a history of heart stuff in my…
Platelets still WAY low
I am scheduled for my last big treatment next week (25th) However, today my platelets are still only at 35. He gave me the 5th treatment 3 weeks ago today at 74. I'm wondering if that's why they're so low. I'm just discouraged. I want to get this over with and try to pick up the pieces and move on with my life! Carla
Joliet Women's Cancer Support - Joliet IL - December meeting cancelled due to holidays
Support group held the last Wednesday of each month at 7pm. Held at Joliet Oncology-Hematology Associates (JOHA)2614 W Jefferson St, Joliet IL Just behind the Babe's Hotdogs Visit Joliet Womens Cancer Support on FaceBook to let us know that you're coming!

Ovarian Cancer

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