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Friend diagnosed: Need the real information.
Hello Everyone, I am very familiar to these boards in that I have been on the Head and Neck discussion board since April 2010 when my guy was diagnosed with Stage IV SCC of his tonsil. I know what these boards are and what they do. I could not have been the supportive caregiver I was without what gets shared here. Now one…
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good news re: Nov. 10th surgery - prayers DO work!!!!!
Just to let you sweet sisters know that my surgeon Dr. Barakat called today to say that he feels the surgery scheduled for Nov. 10th does not need to be major open up serious as he had originally thought but can be done laproscopically (!) because the nasty tumor is so tiny and isolated with no spread - this would mean…
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Ovarian cancer 3c diagnosed Dec 2008
I was diagnosed Dec 2008 with 3c ovarian cancer first treated with standard protocol . Carbo,taxol six rounds. Remission for a year, then metasties .treated last July with carbo, taxol, and avastin. After six rounds, started avastin alone starting jan 2011. It has been ten months on avastin, wondering how much longer it…
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strange symptom
hello All, for the last few weeks i have foamy urine. did any of you have something sim to that... i did looked online - it sounds like too much protein in urine, but not sure what causing it i am not in remission, but not on chemo either. i have finished chemo in may, two spots still there - one on liver, one on spleen,…
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Clinical trial GOG-0252
I just joined this group today and am so pleased to have others who are going through the same thing. I have stage 3 primary peritoneal carcinoma, being handled as ovarian. I am part of clinical trial GOG-0252 and was hoping to connect with other women in this trial to compare notes. I am actually feeling quite well -…
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last big one
I go in tomorrow for my blood test before chemo to make sure I can get my chemo (which I have never had an issue with) then I have my last chemo of avastian and taxol/carbo. I do think it sucks that I have to go a year and a half to two years on avastian I was so looking forword to no more chemo but if it keeps me in…
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Treatment 3 and 6?
I had my hardest time after treatment number 3. I was sick some, only time I had to take anti-nausea meds. I took #6 last Tuesday (25th). I just got really sick again. I haven't felt great since the treatment. Chemo is SO strange. Wonder why some treatments hit us harder than others? I know one thing, there is NO ONE who…
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Anti-Depressants
How do you guys feel about maybe starting an anti-depressant to just take the edge of things while going through treatment?
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Lots of Heartburn after Avastin/Taxol chemo..please help!
Today is the 2nd day after chemo and I'm having lots heartburn. Not sure is it from Taxol or not. Can anyone had this symptom or any advice please?
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Splitting Chemo round
What happens if you can't finish a round of chemo in one appointment. Can you split it? Last time I got really sick during chemo
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Length of Remission
My dear wife, Cindy, was in remission for 11 month and the monster came back while on Taxol maintenance. She is now taking Carbo, Gemzar, and Avastin, assuming she gets back in remission, is there a chance her next remission could last longer? Any ladies out there with a similar experience? The original Carbo and Taxol…
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Seeking advice -
Hello all, My sister (68 yrs old) was diagnosed with adenocarcinoma endometroid type, FIGO grade 3. cancer in the summer of 2010. She is being treated at Sloan in NY. She had a total hysterectomy (they removed regional lymph-nodes as well as portion of the omentum) shortly after followed by adjuvant chemotherapy, she then…
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Check this out
I got an email to participate in whatnext.com which is sponsored by ACS. It is a site where you detail your journey with cancer. After I had completed all the sections I received an email on 9/12 telling me I would be featured on the site within the next few weeks. They said they would also mention it on Facebook and…
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need for chemo
I had stage 3 ovarian so had 6 chemos and surgery. At my 6 month checkup, my markers were 182. One doctor said chemo fairly soon but cat scan first (results soon). He's no longer doing chemo and gave me a new doctor who said we'll proably let it ride. Oh yes, regular dr. found tumor during exam. Should I be concerned? Is…
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Under 30 Ovarian Cancer...
I am looking for someone who is around my age who has had Ovarian Cancer to chat with. I had a hysterectomy when I was 23 and with all the scares about HRT I would like to talk with someone. Please email even if you just want to talk a little about your experience. Thanks..
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Recurrence Symptoms
I will be going for my CA125 test next month. I have been NED for a little over 3 years now. I was initially diagnosed as Stage IIIC OVCA. I am still nervous every three months even after all of these years. As the time nears, I suddenly start feeling sick. I feel nauseated, bloated, fatigued, etc...I know these are more…
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Been almost 6 weeks
Hi everyone- Just felt the need to check in and reach out this evening. Mom has been gone for almost six weeks and I am still floundering quite a bit. Its been odd and extremely painful, trying to reach back into "life" and be the so called normal everyday. How do I let go of the first 40 years of my life? How do I move…
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cancer reoccurence
When undergoing chemo after being in remission for 6 months, are the side affects the same?
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I DID IT! JUST FINISHED MY LAST TREATMENT!
My platelet count went from 35 to 82 in 7 days. They gave me the treatment. I will be on Avaistan for 2 yrs., twice monthly. I see the dr. Nov. 15. He will then schedule a pet scan. CA-125 was 14 three weeks ago :) Thanks for all your help and support! To the lady who recommended the Tahini butter, maybe it worked, just…
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NEW TO THIS NETWORK
HI I AM 26 YEARS OLD AND IN MARCH OF THIS YEAR I WAS DIAGNOSED WITH OVARIAN CANCER. IT ALL STARTED WHEN I WENT TO GET MY PHYSICAL, MENTION TO MY DOCTOR SOME PAIN ON MY PELVIS AREA I HAD AND SHE SENT ME TO GET AN ULTRASOUND. IN MY ULTRASOUND THEY FOUND A CYST ON EACH OF MY OVARIES AND THEY WERE HUGE. AT THE BEGINNING THEY…
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Stuff I don't need to hear
I got a call from my sister the other day. The first thing she wanted to tell me was about someone who healed their cancer with their mind. The second thing she wanted to say was "I think you are obsessed with your cancer--that's all you ever think about." I had to end the phone call right there--I don't need to hear that…
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this disease sucks !
Even if the news is not terrible there is no way to share it with my family without freaking them out ! I just got my ct/pet scan result in the mail and I only understand half of it but know enough to know there is progression and will need further treatment. I just want someone to lie to me and tell me it will be alright,…
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Posting for a newbie lost in the forum...
Hello all, My name is Michelle and I usually post in the Caregivers board. Today we have a new poster that posted and said they were a little lost and are autistic as well as dyslexic. But is very concerned for his wife and I thought I would post his question here and someone here might be able to help him. If so, you may…
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Harry Connick Junior
was on Pierse Morgan today. His mom died from Ovarian cancer when he was 13. (Maybe you guys already knew that.) I want him to be our Spokesperson! What an absolutely cool guy!!! kathleen
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Ovarian cancer and brain metastases
The mechanisms by which primary tumors produce brain metastases is thought to be hematogenous (blood) spread from primary or secondary sites in the lung. Since the brain has no lymphatic system, all tumors metastasizing to the brain do so by spreading through the bloodstream. Arterial blood passes through the lungs before…
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chemo # 7
Hello ladies !!! I just finished chemo 7 today. My ca 125 is now at 110. Great news !! My ct showed residual cancer in 4 lymph nodes. Onc said 2 on the right under liver and gallbladder- 2 nodes on the left under stomach and duodenum. He also said these were really hard to get to. They were all less than 1 cm. He will…
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lupron
does anyone have experience with Lupron? the onc doc gave me a choice to do the lupron shot, or more chemo, and possibly give arimidex or another estrogen blocker another try im already in menopause, but from what i have read online about lupron one of the side effects is migraines...i already have to fight migraines off…
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Weird rash
Last night I noticed that I was scratching my but, my neck and my torso a lot. Then, it occured to me that there might be a rash there (DUH!). When I looked in the mirror I saw this weird bumpy rash where I was scratching. I decided not to worry about it, and went to bed, hoping that it would go away. This morning, the but…
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Guess what
... I am still ned!!!.I couldn't believe it,my ca-125 stayed at 16.so now I go back in December before the holidays. I had some questions I wanted to ask but I flew out of there to spread the good new. I can sleep now for another few months. I couldn't do this journey without my teal girls,,so bless you...val
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Good News??? Not so much
well news was not so very good at my 3 month post vaccine trail check-up- no longer in remission - c-scan shows that there is a very small nodule that has gotten bigger in my pelvis - good news is that it is contained and not spread anywhere - dr's at Sloan are not messing around with it - i have an appt. with my surgeon…