Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

More Information on IV vitamin C
http://www.youtube.com/watch?v=QM94wa-VO_o Although integrative practitioners have known about the power of IVC for a long time, research is finally catching up.
back onto chemo
i just got the results of my petscan and my doctor says i will have to go back on chemo...i was diagnosed stage IV aug 2101, finished chemo in jan 2011 after a debulking surgery in sept. now i have a mass in my abdominal muscle, and some suspicious cardiophrenic lymph nodes. my first round of chemo was carbo/taxol but my…
Our blog
Hi everyone, I am soon hitting the 1 year anniversary since diagnosis (Stage 4, all the "bad" grades). Hard to believe it has only been a year looking back! I had a Pet scan and not a spot of cancer....for now ;) . I wanted to remind newcomers that I had my husband maintain a blog for fellow sufferers recounting the ordeal…
Tired and achy legs
I had my last chemo on Oct. 25. My legs often just feel tired and achy. I do live upstairs, so I make several trips up and down them stairs several times each day. The exercise of it sure is good for me :) July 4,2009 I broke my left ankle. I had to have surgery on it. Sometimes I wake up during the night with my ankle…
Surgery scheduled for Nov. 10th
Hello My Teal Sisters - I am scheduled for surgery Nov. 10th at Memorial Sloan Kettering for 1st recurrance after initial diagnosis in Dec. 2008 - tiny nodule near my lower colon that dr. wants OUT! Will be major surgery so I ask for your thoughts and prayers my sisters - chemo will follow but I am up for the fight - Love…
Earlier this year
When I joined this board, earlier this year, the mood was a bit somber. We had some much loved members pass away. Despite that I still got a lot of support. Somedays I could not stand myself. The detials were myriad. The test seemed endless. The worry was always there. Yet you gals were always here to help. With Linda's…
Doctor Ordered CT Scan After CA 125 Went Up
After my first round of chemo, my CA 125 went up from 170 to 446. They retested me a week later and it went down to 369. I just met with my oncologist on Monday and she is concerned as to why it went up, because she felt like I was too far out from my TAH surgery for that to have influenced the numbers and I hadn't been…
Linda Procopio Obituary & Guest Book
I have checked on both the Uterine Cancer board and the Ovarian Cancer Board and did not see this posted. I thought I would post the link. http://www.legacy.com/obituaries/newsitem/obituary.aspx?page=lifestory&pid=154644107
Anyone out there?
Is there anyone out there that is on the GOG 213 study,or was but is no longer.!thanks Judy
What's your craziest "chemo brain" moment?
Friday I had to see my family dr. for renewal of my meds. The nurse was updating my chart. She said what year did you have your C-Section? I said May 18, of this year. She looked at me kinda funny and said this year? I said "yeah." Then I realized she had not asked about my hysterectomy. I finally figured it out and said…
Something good?
My daughter goes to the university of Guelph, she is hoping it is one step closer to a cure. http://www.uoguelph.ca/news/2011/11/discovery_may_h.html
14 years old??
Hello, I am familiar with the ACS discussion boards. My husband was diagnosed with colorectal cancer in 2004. Sadly, he passed away in 2005. I found alot of support and helpful information here. The reason I am here today is I just found out a friend of mine's daughter is being treated with chemo for ovarian cancer! I…
Any Canadians out there?
I love to connect with someone from my area, to meet someone on the board would be amazing. Is anyone from Ontario, Canada? Kelly
:(
Hi ladies, I have been away for a while , mum managed to complete the 6 rounds of doxil , but the numbers are creeping straight back up again. We are not surprised, but still shocked to hear it none the less. The onc gave us three options . 1 do nothing, ( not an option !!!!) 2 topotecan , in mums case it only has about a…
update
I just had my 3rd chemo yesterday, since having my 3rd debulk surgery on August 31st. My doctor's comment after surgery was, "I thought this was going to be palliative, and I am very pleased to say we wre able to remove all visible tumors. There is 5% we need to rely on the chemo to get." I did have a couple chemo assays…
What are the chances?
I was dx. with stage 3a, grade 3, clear cell in July 2010. I will get my last Avastin treatment in about a week. I'm in a trial GOG-252, I had IV/IP Taxol and Cisplatin along with the Avastin. I had a mammogram in October 2010 that was fine. I had a mammogram last month that was fine. Last week I felt/saw a hard lump in my…
Using up my wig care products
I hate to waste things, so I am using up all my $10 a bottle wig care products on my "new" crop of hair, and have found that the wig restorer actually makes a great treatment for dry, brittle hair. The shampoo works just fine on real hair, as does the styling gel. I have a number of scarves and hats, plus several wigs (all…
Ortho Molecular Therapy, Including IV Vitamin C
An excerpt from the book “Embrace, Release, Heal,” from an interview with Abram Hoffer, MD, PhD, a specialist in orthomolecular therapy (OMT) (treating with vitamins and nutrients). “…Dr. Hoffer was glad to report that there is a growing international movement to study and use OMT. The University of Kansas, for example,…
Cooked Foods
This article discusses contributors to ovarian and endometrial cancer: http://www.medicalnewstoday.com/articles/90823.php
new thread for Linda
Let us start a new thread for our dear Linda P. I am glad you are resting and finding relief from the drain. You have helped me so much in the past and I will never forget your kind words. You have many teal family here who love you and pray for you daily. Enjoy your visit with your family..they sound awesome and they…
Audio Help for Caregivers
Hi All- Not sure if this idea has been posted before. My husband is taking a lot of meds for pain control, esp. when he has flares (bone mets from prostate ca.). A couple of weeks ago, he yelled out my name from the bedroom where he was resting and scared the be-jeebies out of me and my daughter. He was really so weak from…
First yearly checkup with gyn/onc
I saw my surgeon on Tuesday. It was a year ago on 11/03/2010 that he told me I was in remission. He is pleased with my CA 125 of 5. I mentioned that I sometimes worry when I get a pain, a twinge or I feel bloated. He said when that happens to look at my CA 125. He said that is accurate and that my cancer is in remission. I…
I'm new
What should I expect during the first year after chemo treatment? After treatment, I felt tired and sick and my memory was limited. After six months, I thought I would be back to normal, but I am still felling tired, my body aches, and my memory is really bad. I went back to school and I feel like i am going to have to…
I'm new
What should I expect during the first year after chemo treatment? After treatment, I felt tired and sick and my memory was limited. After six months, I thought I would be back to normal, but I am still felling tired, my body aches, and my memory is really bad. I went back to school and I feel like i am going to have to…
I'm new
What should I expect during the first year after chemo treatment? After treatment, I felt tired and sick and my memory was limited. After six months, I thought I would be back to normal, but I am still felling tired, my body aches, and my memory is really bad. I went back to school and I feel like i am going to have to…
Linda P. Where are you?
Checking in on you, please send us an update.... Sending thoughts and prayers.....Laurie
Evelyn Lauder, dies of ovarian cancer
Evelyn Lauder, the woman who launched the pink ribbon campaign for breast cancer awareness, has died from ovarian cancer. In 1992, Lauder worked with her friend Alexandra Penney, the former editor-in-chief of Self magazine, to create the pink ribbon campaign for breast cancer awareness. It started small with Lauder and her…
Cabozantinib (XL184) clinical trial
Thanks to Greg (gdpawel), I found this promising targeted therapy phase II clinical trial (identifier number NCT00940225) which may be of interest to some OVCA survivors who have had their second recurrence. I am not eligible because the inclusion criteria requires that the subject has failed on their second line of chemo…
To have surgery or Not??
My mother was diagnosed in September with Stage IV. She has gone through 3 rounds of carbo/taxol and her CA125 went from 625 to 111. Her oncologist has suggested the debulking surgergy but some of our family members think the surgery will be too hard on her. She is 70, in great health other than the OV cancer but she is…
Anyone else with Nightmares?
Good morning ladies, Lately I have been having bad dreams involving my parents. In a nutshell this is the one I had last night. I had called my mom to tell her i was finished work so she was coming to pick me up (I don't know how that got in there since i have a car and mom never picked me up from anywhere). Well she…

Ovarian Cancer

Discussion List

Discussion Boards