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Symptoms, symptoms, symptons...Maybe TMI
I know that once diagnosed, treated, and found NED, it takes the body a long time to heal. Some incidents though just make you want to run for the hills. My big symptom that I ignored was constant contsipation and painful gas. During chemo and right afterward finishing my digestive system was a mess. For the past few…
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Ok onto the next
Got the word from Johns Hopkins on Friday my wife is not a candidate for surgery. That just sucks as it means one less weapon in the arsenal. I will be calling there oncology department today so they can review her stuff while its there and give any chemo suggestions or maybe they have a trial or clinical going she could…
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Third round of chemo
Found out today I will be starting on Thursday my third round of treatment in a year and a half. Plus I had my right kidney removed between treatment 1 and 2 for kidney cancer, I have been a busy girl ! I am starting carboplatin,gemzar and avastin. Any advice ? I am hoping my hair falls out because I hate the curley mess I…
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Jingle all the way! update
Hi Loves, Many of you might know that I've been chemoing for the last 23 months for a 1st recurrance after being NED for 3 1/2 years (3c). In October my CAs dropped to 48... not in normal range, but I was over the moon. In Nov. they jumped to 150 and I really began to panic. I had a CT scan and saw my ONC this week and my…
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Writing a Eulogy for my Sister in Law
I am sitting here trying to write a Eulogy for my Sister in Law that was taken from us with Sarcoma Cancer. It dosen't matter what kind of cancer they are all so bad. She battled her cancer just over 2 years and was there for me for the last year on my cancer journey. I will probably be here for another 2 hours trying to…
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I had my first recurrence
.... in January 2011 after a full years remission. I was treated with 6 cycles of carbo/taxol which didn’t work, followed by 4 cycles of doxil which didn’t work either. Now they’re going to change me to topotecan. I hate this, it absolutely stinks. I know others go thru far worse than me but I could really do with a break!…
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Is it rare to have normal CA-125 reading , at 17 or so and still have ovarian cancer?
Is it rare to have normal CA-125 reading , at 17 or so and still have ovarian cancer? Reason being, I have had BC and went to have a check up since I hadn't had a pelvic in years ( due to hysterectomy , though I still have one ovary and one fallopian tube)and was having "symptoms" that scared me. Pelvice was normal as was…
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Has anyone heard from ChristineB
Has anyone heard from Christine B? I have not seen her on here for a long time and not on fb either. Linda
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Been Away
Sorry to have been off the board for awhile. I was so saddened by Linda's passing that I needed time I guess to get back together. After 6 months of chemo, ct scan on Monday, I received the results on Wed. I am back with NED! ct scan was clear and CA125 was 7. I feel so blessed. Dr. was excited for me; said pack your bags…
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2nd recurrence
My cancer returned after 8 months of being cancer free. Just had my follow up appointment with the oncologist after completing 6 sessions of chemo. The CT125 is 8 and the CT scan is clear. The oncologist said that when, not "if" but "when" the cancer returns again, that it will be in a shorter period of time. Has anyone…
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Does everyone have extremely lenghthy waits at their doctor's office?
The first time I saw my oncologist in June my appt. was at 9:30. I did not get out of there until almost 2:00. I have had to wait as long as 2 hrs. just for lab work. Once I had to wait 1 1/2 hrs. just for my dr. to determine whether or not i would take a treatment because of low platelets. (he's only in this clinic one…
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Metastasis
My sister had a biopsy done on her left breast following an abnormal mammogram. The biopsy confirmed that her ovarian ca has spread. Her Gyn/Onc says that for now she will continue with her 5th cycle of Taxol/Avastin and Cisplatin. If her CA 125 continues to drop before the next cycle they will finish the 6th cycle. If…
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Topotecan
I've been having bloating recently so I had my CA125 taken and went to see my oncologist. My numbers are up from 122 to 1,467. It is so strange because I don't actually feel unwell and where I usually get fluid around my lungs they are currently clear. Anyway I will be having Topotecan. It is a weekly cycle where you have…
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Trip to Colorado Naturopath and Eat the dark meat
Hi All- I am rejuvenated after a trip to meet with a naturopath in, Colorado where I had the good fortune of meeting up with Tethys! We had a pre-Thanksgiving dinner together with my daughter who took me from Springfield , Illinois to Colorado. I learned so much from Tethys. I am thamkful to this board and all the…
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Ready for Surgery
My mother is scheduled for debulking surgery December 8th. She is 70 and was diagnosed with stage IV ovairan cancer on Sept 23rd. Her CA-125 was 625 then 115 and now 48. She has had 3 rounds of taxol/carbo and responded fairly well. We are not sure what to expect from surgery. They plan to have her go through 4 to 6 more…
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Libby's Update (Wow! I have missed alot!)
I have not been on here for a few months. I had no idea Linda had died. I am sad. I have had the same problem. Ascites twice now. Terrible, never had it before. We did go on our Hawaiian Cruise October 17-Nov 1. First week was great but by 3rd day of islands I was starting to feel not quite myself. I had already taken…
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Young Daughter With Ovarian Cancer
I am new to this whole discussion board thing and never thought I would be discussing cancer none the less. My 5 year old daughter was diagnosed with stage 2 ovarian dysgerminoma on early October of this year. My family is devistated. Although we are clinging to faith that her prognosis will be good, how can we explain to…
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anybody on PARP - particularly ABT-888 ?
Hi, I was dx with stage 4 primary peritoneal in june, 2009. I did IP chemo - taxol & cisplatin. I was in remission for almost 2 years and am not having a recurrence. I started the PARP trial a few weeks ago. I am on the ABT-888 trial. I get carbo & gemzar and will start taking the abt/parp pills very soon. Just wondering…
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What's up with you, Carlene?
...should I worry about you, our dear Mother Hen? Please just let us know everyone is good with you. (((hugs)))
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PREGNANT, JUST DIAGNOSED WITH CANCER
I don't have many details, but my daugther's sister-in-law is due in February and has just been diagnosed via biopsy. I only know it is a gynecological cancer, but don't know which or what stage. Her doctor says baby is doing well, and there is nothing they can do regarding the cancer until the baby is born (C-section). At…
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Sharing and looking for suggestion
Dear ladies, It has been a long time since I last visited here. I will need time to read through so many threads that I missed. I have updated my "about me" page. I cut and paste it here just to share with you about my case. I also appreciate any suggestion/advice from you because I am actually pretty frustrated and lost…
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Mom, 74 has ovarian mass "extension" please advise
My mom is 74 and has lost quite a bit of weight without dieting. She has had zip for an appetite. They did a scan on her and found a large ovarian "extension" on her right ovary. She goes on the 30th to a gynecologist. I'm really worried its ovarian cancer. However, it could still be something else right? She has all of…
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my mother is giving up
my mother was diagnosed nearly 2 years ago.she is 54. at the begging she was broken but after she had surgery her courage grove up and she believed she is going to be fine .we been true a lot of bad days and good days. chemo is working very good but in past few days she started to feel worse and we are going to see doctor…
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Made it to another Thanksgiving
This will be my 3rd Thanksgiving with Ovarian Cancer and although I'm normaly very up and positive about things, every year I say is this my last. Am I the only one who does this? and then there's x-mas I do the same. I am so thankful to still be here and thankful for my friends and family,this board and to the dr's who…
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Dr. Oz had another show
on ovarian cancer and is spreading the word about symptoms..he had a few woman on who saw his show about ovca and they went to get checked.Turns out one did have it and was currently on chemo. The other lady had a crciod tumer and he showed what it looked like. It had a tooth and some hair. There is finally some one out…
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Giving Thanks
Had my PET/Scan on Monday and I just got the results today. I was definitely frantic due to all the bad news that I have been receiving. The doctor walked in and said, "Well I get to be the bearer of good news, do you want to hear it". I about fell off the chair. All my tumors have shrunk 30%. Taxotere/Carbo is…
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Elevated CA 125 opinion is needed
My CA 125 elevated from 11 at the begining of October to 26 on November. CT scan was OK, no recurrence. Anyone had elevated CA 125 in a very short period such as mine? I feel scared, going back at chemo is hard. Anyway, the doctor says that there will be no treatment till a tumor will show up on CT scan.Doctor thinks I…
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Hair Color
So my hair is finally coming in and it is coming in silverish gray and brown all mixed together. It is so weird. I know I am young and did have some gray hairs before chemo but not this many. Yikes! How has everybody else's hair come in?
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Did my speech
Yesterday I did my first ovarian cancer/self-acceptance speech. I spoke to about 40 people mainly girls between 13 to 18 yrs oldalong with their teachers, for approximately 35 minutes and I told them my story and advocated that we all have problems, but accepting what is wrong makes it easier to handle and allows you to go…
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CT-scan on Monday
and I'm really terrified. It's my first in a year (been on chemos for the past 23 months for my first recurrance). I find out the results next Weds. and I'll let you know. Meanwhile I'm going to enjoy Thanksgiving to the hilt! ((((HUGS))) Maria