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Ovarian Cancer

How often are CA125s done?
I was diagnosed with stage1c ovarian cancer 1/31/13. Had total abdom hyster on that day with a 9 lb ovarian mass. My CA125 was never very high---78. After surgery it fell to 5.5. I had 4 rounds of taxol/carbo. My 1st big check-up in October had a CA125 of 5.5 again. My MD does not have one scheduled for my January apptmt.…
It's Teal
So.... Last weekend was our move at work. We moved all the stuff on Friday and Saturday and we were up and running for business on Monday morning. As you know we live in a Seacoast community and I work 10 minutes from home. Well. when the president was deciding on colors for paint - she picked TEAL of all colors. It is…
low grade fever 99.5-101 area since home from hosp after debulking
I have been running judt enough fever to have chills. I feel fine - incision is good. no sisn of infection doc has done bacterial cultures on blood-urine & stool - all are negative. Just wondering if any of you remember this post op nuiscance? I see mt gyne onc Nov 28. M,aybe just the ol worn out body trying to heal.…
Chemo side effect?
Hi, Ladies, i'm relatively new to the board, but found this is a very good place to get help and positive energy. Being diagnosed with Fallopian tube cancer, stage 3B in June, I have gone through surgery (non-optimon) and currently Taxel/Carbo chemo. Everything seems OK till my last chemo which was done about three weeks…
Am I nuts?
This morning, before leaving for work, I swear, I read a posting from an 18 year old woman asking from advice. I had some good thoughts I thought would be helpful to share, but needed to get to work. Now that I have time to respond...the posting is no where to be found! What's the deal? I know I'm nuts...I a Buckeye...but…
Ladies please be aware of a possible fraud
Dear ladies, Someone named Helen13 sent a longgggg note to me saying she had 8.3 million dollars to share with the less fortunate. I don't know how to report this possible fraud. I have heard about this happening on many different cancer sites. These people are asking us to give them our account number. So sad.
ascites
I'd like to hear if anyone is having the same problem with ascites as I am having. When I was first diagnosed back in April 2013, one of the first symptoms I experienced was an accumlation of, what I discovered later, was ascites. It became so bad that you might have thought I was 8 months pregnant. That is..if you didn't…
What Do You Think.......
Alexandra is doing right now?????
I am so pissed off at Cancer right now
Yesterday my 8th grader came home fron school and told me that the principal talked to the 7th and 8th graders to tell them that one of their fellow classmates had been diagnosed with a serious illness. We also got an email from the school telling us about it and it had a link to fundraiser announcements for the family. I…
To Jbahama
I am very sorry you and your sister-in-law and the rest of your family have had to suffer from ovarian cancer. I believe most of the women on this board will agree that families suffer right along side us and their burden is great. We are more than willing to offer support and compassion. But you have not come here for…
What worked for you?
Hello friends, I'm looking for survivors of aggressive ovarian cancer and would like to ask: What drug treatments/alternative therapies/foods worked for you? Thank you for your time and sharing.
Bloodwork Today
So I meet with my new oncologist since our move on Monday at 11:00.. I went today to have my CA125 drawn for the appointment. Had it done about 7:30 this morning and sbout 2:00 I called the doc to get results. My CA was 5.8. I just about fell off my chair. lol. In NY I always went to the same lab and it came back everytime…
If you can't get enough Ovarian Cancer trivia... here's some more
If it recurs - A resource for women with recurrent ovarian cancer The resource includes materials from Canada, the United States and the United Kingdom and also provides links to detailed online consumer-oriented information on specific topics of interest. http://ovariancanada.org/OCC-PDFs/RECURRENCE_FINAL A good…
Tell me about Gemzar/carbo
I was diagnosed OVCA March 2012 and had three rounds of carbo/taxol before surgery June 2012. Serous, stage 3c, high grade, with an unrelated stage 1 uterine cancer. After surgery, I did IV/IP cis/taxol for six months. CT looked pretty good and ca125 was "less than5." Since January 2013 I have been on taxol every 28 days,…
My vacation
went to Orlando...sunny and warm. We swam everyday except one due to rain...went in hot tub at night...went trick or treating by the pool and got lots of candy. Watched movie by pool on big screen..FrankenWienie. Went to Downtown Disney twice...Gherdellis Chocolate..had hot cocoa with Carmel and sea salt ...next time…
I'm Back!!!
Hi All Sorry for my absence. I have had another stint in hospital (11 days) with infection problems. 3 my Onc thinks! My Picc line (which was removed and another put in on the other arm), shingles and a chest infection! Consequently he threw all sorts at it and finally we pulled through. This was a tough one and even…
Debulking done & back home - doing OK don't know details- except surgeon happy follow up Appt Nov 28
Got through debulking Ok got home Fri 8th still sore - no pain Nov 28 I should know dwtails - again TKS for your awesome support will spend more time on site whenIhave a chance to catch up wilth bills etc Susan P from Alberta Canada
I will survive
Here's the link to the original 1979 Gloria Gaynor "I will survive" video http://www.youtube.com/watch?v=Faf1ch7Q9XE&list=RDFaf1ch7Q9XE It the perfect pick-me-up song when you're feeling blue. Following it is the mix of other old disco favorites. Happy Sunday to all us fabulous girls!!!
Radiation
Has anyone had experiences with radiation. What was it like and are there any side effects. Depending on the results of my biopsy if my cancer has reoccured, my Doctor is talking either more chemo or radiation.
have OR date for debulking finally
dx in may with advanmced OC ca 1258of 4000 & mets in organs. tx 3 crbo/ taxal chemos 3 wks apart- after 1st session good mets shrinkage but not good enough for debulking so repeat 3 treatmens - las t ab out 2 wks ago. don't see doc until 17 Oct BUT hospital phoned with OR datre of Oct 29 -which means Doc has seen results &…
cancer free 9 years from dysgerminoma
Hi I just joined and when I was first diagnosed with stage 2 dysgerminoma Praise GOD I didnt have to have any type of treatment because it was all removed with surgery. there weren't any support groups around. I was 18 when I was first diagnosed. My Dr said dysgerminoma is very rare and rarely ever comes back. I would love…
CA125
So my CA125 is 96 after being supposedly cancer free for 3 months. I saw my oncologist on Thursday, I dont think he seemed to concerned. He ordered another CT scan and then I see him on Friday. It is pretty scary especially since I feel great with no symptoms. Has anyone had this problem and if so what happened.
Alexandra
Did I miss your vacation update??? We moved over the weekend and just got our internet today... I can not wait to hear all about it. I thought about you all week.
Any suggestions for my mom's very bad night sweats (Stage 4) and sleep deprivation?
Hi everyone: My mom is in Stage 4 ovarian cancer and in hospice care. She's a 7-year survivor, but her cancer became unresponsive to chemo, so now we are in an end-of-life situation. My question relates to her comfort. She has bad night sweats and is unable to sleep much. Her hospice nurse hasn't suggested anything,…
Happy Halloween!
Happy Halloween everyone....we all know that we are are strong and unafraid and if sometimes we are weak and scared, we always get back to strong and unafraid. Keep fighting the fight and don't eat too much candy! Susan
It's my vacation from cancer.
After only 9 months NED my very first ovarian cancer recurrence was confirmed in September. I have no symptoms yet, I don't want any more chemo and PARP trial doesn't start until end November or December; I may or may not qualify depending on the results of pelvic biopsy that has not yet been scheduled. It is getting cold…
CERVICAL DISPLAYSIA
Hello Again. I've asked questions on this before, but just trying to get some experience feedback on this if possible. Daugther (27) has been diagnosed with cervical displaysia. Her levels (from low grade to now at Cin III, confirmed with biopsy) have fluctuated over the last couple of years. Oncologist recommends either…
Hernias
I have been reading, especially on Facebook, about a lot of ladies getting hernias. Are we supposed to be especially careful about liftng or doing other things? I was never advised much about "after" by any of my doctors. I am stubborn and if i need to get a bin down and no one is around for example, I will at least…
STAGE 1 INVSASIVE LOBULAR CARCINOMA
Oct 23, 2013 - 8:05 pm Hello, Ladies. I posted some time ago about a suspicious lump on my CT scan. After mammogram and biopsy, here is what I was told: Clinically it is Stage 1 Invasive Lobular Cancer. It is estrogen receptive. It has been caught early, is only 1/2" in size, and is treatable. I will see the surgeon on…
Poor kid! Enjoy! Out of the mouth of babes!!
http://www.youtube.com/watch?v=pulZ3jgLM6o

Ovarian Cancer

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