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Just saying------
To all the great members here: I thought I'd like to express to you, How I feel and my point of view, And how fortunate I was to find A Discussion Board of this kind. There's a problem we all share That is why we gather there To talk and question how we can fight This beastly disease with all our might! Now we are a…
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Hello! Question about BRCA/Genetic Testing
Hello everyone! First, i have been reading through some of these posts and am in awe of the support here! I guess I should explain a little... I am 27 year old woman with no children. I have been diagnosed with ovarian cysts in the past (age of 15) but have been on birth control consistently for the past 3 years. I have a…
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Buzzzzzzzzzz
I have decided to keep my buzz cut. It's been a couple of months since my last chemo and my hair is slowly filling in. It is quite sparse in the front. I want to let it all fill in and then have my hairdresser buzz it. Not having hair did not bother me initially or the second time. I actually found it rather freeing. I…
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Azgrandma
Just wondering how your scan came out. Hope all is well. Kathy
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Anyone in/near Phoenix need a visit?
Hi all, I've been away for awhile dealing with the passing of Mom....it will be 9 months the 27th. There isn't a day I dont think about her...but i have found some peace here in AZ....I got a puppy in July of last year and have been training her in agility....I've begun to re-engage in life a little bit more but am forever…
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Fallopian Tube Cancer Chemo Question
Ive been diagnosed with stage 3A fallopian tube cancer (serous carcinoma)...the doctors follow the same regimen as epithelial ovarian cancer...I can get platinum based treatment via IV or IP (intraperitoneal)...my question is does anyone recommend IV over IP, or vice versa? Ive been told that IP has better success rate but…
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windybill-Good to see you back on here
Even if sad news got you here. Carlene was one great lady . So hows you Mom doing? And you of course. hugs kats
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don't know what to title this
I will make this as short as possible. I went for my second opinion last Tues. The first clinic I went to did not send the imaging to the second clinic in time for the appointment. The 2nd clinic discussed my symptoms and finding of the first clinic's written radiology report of tvultrasounds. She said that I feel pain…
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The Sound of Music (OVCA adaptation)
Life was all roses and ponies and kittens... Then cancer struck and my fate has been written Blood tests, Taxol bags and vaginal slings These are a few of my “favorite” things Prominent lymph nodes and palpable lesions Morphine, steroids and oozing incisions Wigs, hats and scarves decorated with bling These are a few of my…
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Operating Room of the Future
Whatever you're doing, take 6.5 minutes and watch this amazing video http://www.youtube.com/embed/IfJemqkby_0?rel=0>
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I learned a new word today!
Everything below is kinda embarrassing, so if you have no vagina - stop reading and get out of here. About a month ago I noticed a new curious symptom, like tiny farts or air bubbles coming out of vagina, mostly when I change positions or caugh. It did not bother me until I started researching this phenomena and concluded…
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Need Suggestions and help for ovarian cancer
Hi, We live in india. My mother was diagnosed with IIIc ovarian cancer in Oct 2011. She underwent 6 cycles of chemo on carboplatin/mitotax and then surgery after that. It recurred again after 3 months, then she was operated again and then this time, underwent 6 cylces of chemo on lipodox which ended in Apr, 2013. Her ca…
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"Fight Like A Girl" Song with Lyrics by BomShel
http://www.youtube.com/watch?v=wRWZ1A-CbJA
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Face Book
All you ladies are welcome to be my friend on Face Book. Just search for Carlene Mullins, and I'm in Dallas/Ft Worth Texas, if there are a ton of them. I just have one request......I don't post anything about cancer on my FB page/wall. There are a lot of people who don't know I'm sick and I surely don't want them to find…
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Doxil and Prozac
Hi All My wife is 6 years since first diagnosis of OVCA stage 3c. She has just finished Gemzar+Carbo+Avastin (3rd chemo course) with continueation of Avastin for 3 more cycles and the CA-125 has been clibing for the last 2 month to 600. So the Docs have decided to start her on Doxil. I have found out from previous posts…
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intro from a newbie
Hi all I’ve been lurking & joined a few weeks ago - I couldn’t figure out how to post a new topic- a few nights ago I found chat & people there told me how- I want & need to get active & involved on this site.I am 61 with 2 grown daughters- previous hysterectomy due prolapse – doc the left ovaries in due to age: hot…
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Just thought I'd let you know
Hi guys just thought I'd give you all an update on my 'journey' As some of you may be aware I was dx with breast ca in 2000 had lumpectomy and chemoradiotherapy and have been having regular 6 monthly checks ever since all been ok up till now - just been dx with DCIS (ducal carcinoma in situ) thankfully this is PRE cancer…
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No bowel obstruction, but miserable
Hello all, This is my first post. My mom was diagnosed in May 2011, and it's been a rough two years. She never achieved a full remission, and her longest stretch off of chemo was 6 months (she's in chemo currently...on her fourth drug, I believe). Good digestion has always been a struggle through the chemo. She would find…
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DR APTE at Moffit Cancer Center in Tampa
Hello Sisters, I am consulting with Dr. Apte at Moffitt in Tampa on Tuesday regarding full hysterectomy and removal of ovaries due to early stage ovarian cancer. I have looked online at his ratings on heathgrades and vitals.com and he had two terrible ratings(and no positive). I am hoping those were the only two…
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Cr 125
Well my mom who is 83 just finished her 3 rounds of taxol. At the end of each of the rounds cr 125 scores were 62 t0 59 to 66 to 77 and I am expecting this last test to be at 90 or more. Prior to the taxol she was on taxol avastin her test scores were 310 to132 to 77 to 62 then she had a seizure and went in to the…
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Alexandra, thinking of you
Hi Alexandra, I just wanted to say that I am thinking of you and sending you sweet gentle hugs. I'll keep you close tomorrow as you have your biopsy. Strength and Humor Lisha
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Happy Saturday - some medical funnies
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PARP drug
I know many of our sisters are on PARP trials . This is fantastic news on the phase 2 PARP BMN 673 for breast cancer. Yes, breast, but read on. I was told that the OVCA results were expected to be released shortly and are as good or better. It seems the BMN 673 had a 50% response rate with numerous "complete" responses.…
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PARP inhibitors and ovarian cancer
Someone just posted this on the Uterine Cancer Board, and it is such hopeful news for ovarian cancer that I had to pop over and make sure you all saw it too: Here's a link to the article discussing PARP inhibitors and the recent study results reported by Robert Bazell, NBC's Chief Science and Health Correspondent:…
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Totally pathetic question!
Hi people - I KNOW this is a ridiculous & pathetic question but HOW do I get my CSN picture the right way round??? It's driving me nuts!!!! Michelle x
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Strides for Hope
Hugh Jackman and my husband walked with me. All the women at my gyno-oncology office were there, too! Beautiful morning! Grateful to be able to enjoy it all.
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September 6, 2013 Wear Teal
Friday, September 6th is wear teal day to support Ovarian Cancer Awareness. I am so excited to be alive and able to wear teal!! Remember to wear your teal!
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Questions from a caregiver
My wife had ovarian cancer in 2011, had everything removed and went thur chemo, and at the end of the chemo she was cancer free. 6 months later she had breast cancer, in 2012 she had her breast removed and done chemo and radilation. and again they told her the cancer was gone. Now 8 months later in 2013 they told her that…
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Blessed
I found out December16th I had cancer...after chemo , surgery and more chemo my CA125 is a 3...Changing my lifestyle and diet to try and keep it that way. I Feel blessed...Stage 4 Survivor.
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STILL STABLE!!!
Hi Ladies. I had ct scans yesterday. Disease remains stable. I've had 8 rounds of Doxil. He said we will continue on this same treatment schedule and scan again after 3 or 4 more treatments. So thankful. Hope all of you have a great day and upcoming holiday weekend!! Carla