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Haven't posted in awhile
In July mom (Chris8588) found she's cancer free (happy dance happy dance happy dance) and she's been doing wonderfully! She's back to work part time. On the 18th it'll be one year since we found and boy what a year it's been. I am so proud of my mom for everything she's been through and survived! My mom is the most…
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Peripheral neuropathy treatments
I came across this website http://www.peripheralneuropathytreatments.com while researching magnetic bracelets / anklets. They are selling this expensive ($759+) gadget called "The Rebuilder", that claims to cure 95%, reverse or at least reduce pain caused by neuropathy. They are also selling the Magnet Therapy Kit that…
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Today is my three year "cancerversary"
It's hard for me to believe but it's been three years since I was diagnosed with ovarian cancer. What a rollercoaster ride this has been! I'm grateful to be alive and NED and I'm so appreciative of the supportive and love from you ladies. I pray for you all daily. Hugs, Kelly
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VEGF Inhibitor
Avastin works as a VEGF inhibitor. Elevated VEGF results in angiogenesis, excessive production of new blood vessels, allowing new blood vessels to develop and feed a tumor. A tumor cannot grow larger than 2 mm, without a blood supply. This research indicates that Grape Seed Extract is also a VEGF inhibitor:…
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Naltrexone
Has anyone used the drug Naltrexone?
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Hello Dear Ones - checking in
Hi Loves... I haven't been here in awhile and I wanted to read through posts to see how everyone was doing. Sorry I've been absent for awhile, but been real busy with chemo treatments, granddaughters and a new puppy! I must be crazy, but this little (quickly getting larger!), ball of fur has made me very happy. For those…
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Doxil shortage
I heard from my ONC that there is a North-America wide Doxil shortage. Other brand names are Doxorubicin, Caelyx (in Canada), Myocet, Adriamycin PFS, Adriamycin RDF, Lipodox or Rubex. Looked it up and yes, that's true. http://www.fiercepharma.com/story/jjs-doxil-shortage-last-until-least-end-2014/2013-10-07
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Good news to share
My latest PET/CT scan was clean, my CA125 is 4, so after a year of Carbo/Gemzar maintenance, I was told at my recent appointment - NO MORE CHEMO! (At least for the time being). So cross everything possible that this holiday with NED lasts longer than the 7-month one I had between the end of my front-line treatment and my…
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Dr. Laura Shawver Featured on The Burrill Report Podcast
The Burrill Report: Bringing Personalized Medicine to Ovarian CancerMatching the right drug to a particular patient's tumor type, though increasingly common in treating certain types of cancer, is not yet the norm for ovarian cancer patients. The Clearity Foundation is trying to change that by providing ovarian cancer…
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large intake of air
Last night I went to a home party. They were selling kitchen items. The company was featuring items that would receive a 25% donation to breast cancer research if you made a purchase. So the company rep said, the host had told her a couple people at the party had fought cancer, who? and what type? One woman 15 years free…
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Allow me a little closure....Please
I’ve been here a mere three years. Some of you have been here longer than I. Some here are new to me. Some, who were here when I joined, are gone. I deeply miss my dear friend, CarolenK (aka LaudryQueen), who I met here years ago. I still cry when I think of her. She was an amazing, well-read woman. I’ve observed a lot of…
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Monthly Toll Free Telephone Support Group for Women with Ovarian Cancer
Next session is Oct. 9th
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those of you NED & CA 125 in single didgets---are yoiu able to function as if you weren't ill?
Due to my severe stroke & use of just my right side - brain damage - along with chemo brain Stroke fcauses bbrain fog balance & weakness issues. this is all exacerbated by chemo & cancer side effects. hoping for an improvement inwell being after debulking & single digits. Opinions ? have you noticed a big difference in…
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Boehner Advises Americans to Delay Getting Cancer for a Year
WASHINGTON (The Borowitz Report)—In a special Sunday radio address, House Speaker John Boehner (R-Ohio) delivered a health tip to the American people, advising them to delay getting cancer for a year. “We’re involved in a high-stakes fight over our freedom from centralized government control of our lives,” said Mr.…
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News on PARP inhibitors???
Does anyone have any info on status of FDA approval of any of the PARP inhibitors. Olaparib i believe falls in that catagorie Ive heard realy great things about them. Ive headr rumor of approval as soon as Jan. 2014 Unfortanetly my cancer is growing throughtout my active treatment hoping to get some info on other options.…
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Recurrence for stage 1a clear cell
I was just diagnosed with Stage 1a Grade 3 clear cell carcinoma. The oncologist recommended 6 rounds of Chemo even though the cancer was confined to one ovary. Has anyone experienced recurrence switch stage 1a? Did you have chemo? Thanks!!
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Strength and Humor, Alexandra
Dear Alexandra I just want to say that I hold you close in my heart and send you hope and huge hugs. Your strength and your humor will see you through. I am here for you, we are all here for you.. (((Hugs))) Lisha
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Lapse in government funding affects clinical trials web-site
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Anyone bothered by Teeth and gums problems after chemo
my gums are all receding after chemo and my gums are very sensitive three years later. anyone else having these problems
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Ovarian cancer
Please any information would be so helpful. My mom was diagnosed with stage 4 ovarian cancer two months ago. We went to a specialist who recommended chemo before debulking ( has anyone had this?) she had one round of chemo and she began to fill with fluid which we were told was normal. She went to get blood tests before…
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bone pain after treatment and what dr uses for pain control
I am having bone, leg and back pain after 6 mo ovarian cancer treatment. I am now 5 weeks from last treatment but I still need my pain meds. When do I stop needing these meds. What are some of you who have pain still using to rid themselves of the bad pain. also the neuropathy is still in my fingers and alot in my feet. I…
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My moms a fighter but I'm scared
In August 2012 my world fell apart when I got the news my mom was diagnosed with stage 2 ovarian cancer. At first I was convinced everything was just going to be okay because she's so strong. But over the course of a few months she started chemo and her legs along with her stomach started to bloat and fill with water and…
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How is everyone doing
Have not been to this board for awhile just checking to see how everyone is doing
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Marriage and Cancer Survival
http://www.dailymail.co.uk/health/article-2430365/Marriage-improves-cancer-survival-rate-20-BETTER-chemotherapy.html This is not a joke. It's an actual Harvard study. Someone used cancer research money to collect this statistics. Next time I have to go on chemo, I'll say "no thanks, my husband is already making me…
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BRCA1 BRCA2 mutations decision
Hi everyone. I've been reading the posts and have decided to join for some advice from fellow travelers. At 41, (17 years ago) I was diagnosed with triple negative, Her2neu negative, stage 2 invasive breast cancer. I had a lumpectomy followed by 6 rounds of CMF and 35 radiation treatments. I went straight into menopause…
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Mom just diagnosed with stage 4 ovarian cancer, I'm her son.
Hi everyone. This is a God sent site. I got the official word today about my moms condition(Ovarian Cancer 4th Stage). The doctor told my wife that my mom would be lucky to see another 3 months. The cancer has spread to her lungs and heart. They did surgery on her yesterday morning to remove the fluid that had accumulated…
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Thanks for your warm welcomes when I joined this discussion board.
Again, I want to say thanks to all of you who took the time to welcome me. Our place is very pretty with a park like yard. We hay and rent pastures for cattle, no farm animals of our own. We are a half mile back from the road, our nearest neighbour is a half mile away. Our view of the Rockies IS awesome. It was ok when I…
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started with CA 25 of 4,ooo anyone else with such high numbers & status of those of you with single-
I’ curious about those of you with a CA 125 in single digits - Have U had your debulking& are you in remission? My numbers have been very high. 4,000 – in May before any chemo. 1,700- after first chemo 500 – after all three ofcarboo/taxal the first round. 250 – after first of second round. Large but going in the right…
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Just saying------
To all the great members here: I thought I'd like to express to you, How I feel and my point of view, And how fortunate I was to find A Discussion Board of this kind. There's a problem we all share That is why we gather there To talk and question how we can fight This beastly disease with all our might! Now we are a…
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Hello! Question about BRCA/Genetic Testing
Hello everyone! First, i have been reading through some of these posts and am in awe of the support here! I guess I should explain a little... I am 27 year old woman with no children. I have been diagnosed with ovarian cysts in the past (age of 15) but have been on birth control consistently for the past 3 years. I have a…