Newly Diagnosed Ovarian Cancer

kickthebigC

Hi everyone! My journey started on 10/29/15 with the diagnosis.....my ONLY symptom is moderate ascites.

Since then after labs, pelvic...more labs, another pelvic, ct scans etc....my gynecologist oncologist says she is 95% sure it is ovarian cancer .....I am having a biopsy on wed along with some fluid removal to see what it consist of.

 I am not sick...my lungs are clear...nodes in lung clear....she said she she's a very small spot on my sternum that is so small she can't biopsy it.....and 3 small nodes on my liver ligament....so she is going for 3 rounds of chemo, surgery, 3 more rounds of chemo. She feels the first round of chemo will clear up the spot and ligament nodes.....all other organs are clear.

I asked her to please tell me what stage she thinks i am based on her experience she said stage 3 ...which is what the majority of women come in with!

I also have to have a colonoscopy on Friday and a mammogram the following tues......god help me! 

Any encouraging words would be so appreciated .....god bless!

2timothy1 7

You

It is a shocking word to hear. You will get past that.

I was diagnosed 4 years ago this month, 3C. I'm now on my 4th clinical trial. It is working. My tumors are shrinking. They are coming up with new drugs all the time. Just hang in there. Think as positively as you can about anything good in your life. 

Pray.

God bless you & I'm sorry you have to take this journey. 

 

Ziva

Ovarian

I was dx in Oct 2013 with Ovarain Carcinosarcoma also stage 3c. Have had surgery and 6 rounds of chemo. Just had first recurrence this past Feb. Another surgery and more chemo. I am NED at the moment. Hang in there.

Carrot358

Ziva said:

Ovarian

I was dx in Oct 2013 with Ovarain Carcinosarcoma also stage 3c. Have had surgery and 6 rounds of chemo. Just had first recurrence this past Feb. Another surgery and more chemo. I am NED at the moment. Hang in there.

Carsinosarcoma 3c

thanks for writing Ziva.  And for doing everything you did to be the winner in this battle.  I have the same diagnosis, as of October, 2015.  Just had ports put in yesterday (complete hysterectomy and removal of the tumor and omentum on 10/12/15), on Friday I begin chemo, paclotaxil in their port in the morning and isolation in the ip port in the afternoon.  That is week one of three, the third is "off", for6 rounds.  Sound familiar?  How did you know it was back?  I am very happy with my medical team.  Totally confused by what makes sense related to diet and care other than western medicine.  Although I have many suggestions and people who use a variety of different resources.  Just wanted to put a little more of my progression, confusion, etc out there with yours and others.  I check often to see what women have written.  

Lily_Anne

Hi There

It's scary isn't it? However positivity helps. The fluid is usually the biggest clue, standard treatment in the UK is TAH, omentum and cervix. Followed by six rounds of chemo if wanted.

I was stage 1C but it still came back, so fiesty little aliens.

You can win the battle, good luck.

LA xx

NoTimeForCancer

Carrot358 said:

Carsinosarcoma 3c

thanks for writing Ziva.  And for doing everything you did to be the winner in this battle.  I have the same diagnosis, as of October, 2015.  Just had ports put in yesterday (complete hysterectomy and removal of the tumor and omentum on 10/12/15), on Friday I begin chemo, paclotaxil in their port in the morning and isolation in the ip port in the afternoon.  That is week one of three, the third is "off", for6 rounds.  Sound familiar?  How did you know it was back?  I am very happy with my medical team.  Totally confused by what makes sense related to diet and care other than western medicine.  Although I have many suggestions and people who use a variety of different resources.  Just wanted to put a little more of my progression, confusion, etc out there with yours and others.  I check often to see what women have written.  

Carrot, there is lots of

Carrot, there is lots of 'stuff' out there but try to figure out what works for you.  Food, to combat constipation from chemo - I remember being surpised and shocked everytime.  Chemo makes your veins hard?  (I didn't have a port)  Chemo makes you constipated?  (I found out how to use Miralax)  It takes how long? (WTH?) It was overwhelming, but please believe me - YOU CAN DO THIS.  It is scary, but take it a step at a time and you are going to win the race.  Be good to yourself and rest when you are tired.  

mopar

TAKE IT ONE DAY AT A TIME

We all know what you are feeling, but take one day at a time.  I even say, one 'moment' at a time.  Please keep us informed.  Till then, I'm sorry you must deal with this.  But you've got a great support system here.  Prayers for you.

Monika

 

Ziva

Carrot358 said:

Carsinosarcoma 3c

thanks for writing Ziva.  And for doing everything you did to be the winner in this battle.  I have the same diagnosis, as of October, 2015.  Just had ports put in yesterday (complete hysterectomy and removal of the tumor and omentum on 10/12/15), on Friday I begin chemo, paclotaxil in their port in the morning and isolation in the ip port in the afternoon.  That is week one of three, the third is "off", for6 rounds.  Sound familiar?  How did you know it was back?  I am very happy with my medical team.  Totally confused by what makes sense related to diet and care other than western medicine.  Although I have many suggestions and people who use a variety of different resources.  Just wanted to put a little more of my progression, confusion, etc out there with yours and others.  I check often to see what women have written.  

Carcinosarcoma 3c

Carrot358, My 3 month CT showed a growth on my diaphram. My CA 125 had a slight change but nothing alarming and I felt good. Surgery was done again and the spot removed. I have different feelings about the recurrence. My first feeling was Oh Crap it's back. My second feeling was it was in the same spot that my oncologist had removed before. He had told me there had been a small spot on my diaphram and he scrapped it off hoping he had gotten it all. Evendently he didn't. So to me this was good news. It wasn't new cancer, it was the old cancer that hadn't completely been removed. As for diet...... I eat more veggies, less meat, cut out most dairy, (some I eat if they are considered low in lactate) and no processed foods if at all possible. I do a few supplements, and I walk/jog 1 1/2 to 2 miles 5 days a week. I consider myself lucky at this point. All we can do is continue to fight this beast the best we can. Chemo sucks but I handled it fairly well and will continue to get chemo if the challenge arises again. I don't check in here as often as I would like but it is nice to come here and listen/read, vent, and write down your felings anytime you feel the need.

jay_rogers

Doctor customize your

Doctor customize your treatment to be sure you receive the highest chance for successful treatment with the least impact on your body. Surgery usually is the first step in treating ovarian cancer. Surgery usually is the first step in treating ovarian cancer.