-
High ca125, clear Petscan results?
has anyone out there had higher than normal ca125 and followed by a clean Petscan? My moms last ca125 was 62 and she only has one more chemo to go 3200 pre surgery then 6 cycles were as follows: 770 540 77 68 65 62 they will do a scan and I'm very worried I will keep faith and hope alive just curious if any of you were…
-
Stubborn Pleural Effusion
I was diagnosed in Feb 2016. I had a pleural effusion (how I was initially diagnosed). Anyway, they drained it and it returned after my hysterectomy. I had the hysterectomy and debulking before chemo. My doctor told me that it would clear up with chemo. It has not cleared up. I have no symptoms. The only symptom i have is…
-
Stage 4 Ovarian Cancer Treatment options and Survivors
Hi, My Mother was diagnosed with Stage 4 Ovarian Cancer with metastatis and spread in Abdomen. Underwent her second chemo. Want to understand if there are any alternate therapies which have been tried in parallel with conventional treatment. Do's and Don'ts in terms of deight and foods. How to minimize the side effects of…
-
Advice needed re: wife's Ultrascan and surgery
Hi, My wife is 30 years old and has been heavier periods and bout of frequent urination over the past 6 months. She went to her gynecologist who sent her in for an ultrasound. I have pasted the results below. A couple questions, the radiological results definitely sound extremely suspicous of malignancy to me just from the…
-
Need advice from medical professionals on my wife's treatment
* My wife is victim of Ovearien Cancer. It was dignosised 8 months ago. She received 3 cycle of ( NACT)chemothatapy. Than she went for Cyto Reductive surgery than got another 3 cycle of (AJCT)Chemo Therapy. * after completing this while we screened anagin PET/CT scan reports says "A small peripheraily enchanceing hypodence…
-
Promising Research
This research has been published in Nature: http://www.independent.co.uk/news/science/cancer-vaccine-immunotherapy-universal-immune-system-rna-nature-journal-a7060181.html
-
My wife's latest test results plus I wanted to just say hello again.
Michele was diagnosed with stage 3C or 4 on March 31st. She's now had a full round of 3 chemo treatments plus the first treatment on her 2nd round, so 4 total. Her appetite hasn't changed a bit and she doesn't have any change in the taste in her mouth. She finally started losing her hair this past week, so I got the honor…
-
It's been a long time since we've had a check-in
This board has been somewhat sluggish since our dear Alexandra left us...I, like some others, have been wondering about some of the regulars, and the newer folks too, so I thought I'd try a check-in. I'm an almost 5 year survivor of ovarian 3C. I'm BRCA 2 positive.. I've had 3 recurrences and currently am on a Parp…
-
Stage 1C g3
Hi Ladies, Haven't been around for a while, I started chemo in January and have been so ill ever since. I'm having Carboplatin only but it clearly doesn't agree with me. I had my 3rd dose on 4th March and it was the wors one so far, eight days of sickness despite anti sickness medication. I still don't feel great, but am…
-
FDA alert-Avoid CIPRO RX for Urinary Tract Infections, sinusitis, bronchitis if lesser drugs will su
Good evening friends~ Today in my list of medical alerts, I see this article by the FDA released May 12, 2016. Now we are told that Ciprofloxacin (Cipro), should not be used to treat uncomplicated infections such as sinusitis, bronchitis, and urinary tract infections for which other drug types are effective. Each one of us…
-
BRCA and antiestrogens
reading literature in brca and antiestrogen therapy seems that BRCA gene related ovarian cancers do not respond to antiestrogens any BRCA positive ladies have any input on drug therapy when frontline carbo/taxol fails?
-
Mother is carboplatin-refractive, what else can we do?
My mother, age 76, was diagnosed with Stage 3C Ovarian Cancer in October 2015. It was too advanced, diffuse to operate so she did the traditional Carboplatin/ Taxol chemo for a series. In January, the dr said that while the tumor shrank, it was complicated to operate and she'd risk a colostomy, which scared her. The dr…
-
stage 4 ovarian cancer second line therapy
Good morning all, My mother is 65 years old and was diagnosed with stage 4 ovarian cancer in December after sudden accumulation of 7L of ascites. She had optimal debulking at Sloan kettering in January 2016: Total hysterectomy, omentectomy, removal of gall bladder, spleen, part of duodenum rectum bladder and lymph nodes.…
-
Do you realize how important this info is to a spouse of an OC fighter?
I don't know how welcoming you all are to a male on this discussion group of mostly women, but I got to tell you that since my wife's diagnosis on March 31st, 2016, this is the only one that I've found helpful to learn about ovarian cancers. By reading many posts, I feel I have a general grasp of info where I am actually…
-
CA 125 for ovarian cancer
rising CA 125 after first cycle with taxol+carboplatin?? any one has same?should I worry please answer me, before surgery,it was 4000,then after surgery it went down to 800, now after first cycle of paclitaxel+carboplatin it is 1300???? I appreciate any kind soul who can answer me frankly and advice me,thank you
-
Thank you, Redbook!
I realize this is from February but I appreciate that they are bringing this forward. I hope you enjoy the article: http://www.redbookmag.com/body/health-fitness/a42578/female-cancers/
-
Clear cell ovarian cancer
Hello. My mother was diagnosed with stage 1c clear cell ovarian cancer last summer. She had surgery to remove everything followed by 6 cycles of carbotaxol chemo. She completed chemo in October of 2015. Unfortunately, the cancer came back as stage 4 this February. She started doxil/avastin but has had an allergic reaction…
-
Feeling hopeless
this is my first blog. my name is Tania and i'm battling recurrant stage 4 ovarian cancer. I was diagnosed late feb/ early march 2015. Had 3 rounds of carbo/tax followed by debulking and hysto and then 4 more rounds of carbo/tax. My CA125 went from a high if 1745 to 7 and clean CT in Sept 2015! I could hardly believe it,…
-
New and so confused in this
<p>I was diagnosed with cervical cancer after some time of painful sex. I have most my cervix removed and after I wwas told to do a pet scan and a mri. After that it showed I had a tumor growing in my ovarie I had it biopsied and take. Out but I feel so strang bc they dont want to do chemo or radiation. And this entire…
-
ROLL CALL - JUNE 2013
It's been 6 months since the last Roll Call. Time sure flies. Please post a short status report of where you are in your journey. Dear long-term survivors! If you are just lurking please post too to give newbies some hope and inspiration. Thank you ladies,
-
New here and wondering if anyone else had choriocarcinoma??
I was diagnosed last February with ovarian choriocarcinoma after a miscarriage. Very rare cancer. It's been one year since my treatment and I feel pretty good physically. I haven't really talked much about what I went thru last year. People just don't understand. They try..but they just can't. So was just hoping someone…
-
WA DC July 2016 Conference
I registered for the Ovarian Cancer National Alliance conference July 8 to 11, 2016 in WA DC. From Washington State to WA DC, wow what trip! Maybe you will be there too?
-
Just trying to see if I can post
Don't know about you, but my posts have not gone thru for days, so forgive me for not answering. I put them in WORD and tried to paste and the same old SECURITY msg comes up. I've complained, but so far nothing has improved. I'm still here. If this posts, it's a fluke, but I'll try. Loretta
-
pet scan/help us decide
Hello all, my mother was diagnosed with stage 3C-4 ovarian cancer,she got the debulking surgery before one month and this week was her first chemotherapy shot, CA 125 after surgery still high like 1000 long story short:my mom before surgery only had CT scan of abdomen and Pelvis last week her primary care physician(not the…
-
New to this journey
Greetings: I feel like I am in the twilight zone, but glad to have found this support network. Beginning last November after having the flu and then what was seemingly a bad reaction to anticiotics that resulted in stomach issues of diarrhea, nausea, vomitting, the symtpoms seemed to continue and appeared off and on. At…
-
worried and wondering
so I came to this site because I'm worried and wondering. Hoping to gain some insight while I either wait, or figure out what to do. In early 2011 I had an abnormal pap. In June 2011 I had a cancer positive colpo. I became pregnant with my second son in Oct 2011 and my prenatal exam revealed that my pap was clean. I didn't…
-
Ovarian Cancer after hysterectomy
I was dignosed with Ovarian Cancer last week.I had a hysteretomy 28 yrs. ago.I am amazed that I have Ovarian Cancer with no Ovarys.Wondered if anyone on here has gone through this.Thank you
-
Medical Marijuana (MMJ) for tumor shrinkage
In reading this forum it seems that most women are using MMJ for relief of symptoms (nausea, pain, sleeplessness, etc). Is anyone (or anyone you know) utilizing THC Suppositories with a goal of tumor shrinkage? Are you using the suppositories as the only form of treatment, or using it in conjunction with chemo or some…
-
Another loss
Just read on Facebook that Colleen (Cafewoman53) passed on Friday. My condolences to her family. We joined this site around the same time in 2010. We became Facebook friends as well. I was blindsided by this. I didn't know she was that ill. We have lost most of the ladies I met here when I first joined. I am overwhelmed by…
-
New here~fallopian tube carcinoma stage 2
I was diagnosed June 24,2014 with fallopian tube carcinoma stage 2..I had mentioned prior to testing to my PCP that something was wrong..I was tired, abdomen swollen, and was getting up at night every 15 minutes to use the bathroom..he still had me wait to have a pelvic ultrasound saying that 8 months prior I had had a…