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Recurrence - probably
This is tough to face, but because my CA-125 has risen to 279 at the last draw for it in early June, I am now seeing a qynecologic oncologist at Roswell Park who is monitoring my condition. So far I am asymptomatic, which is fine with me! I've had two CT scans (one in December, one in June) and a PET scan in February that…
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We chose Caelyx = Doxil...
Hi Ladies tks for the comments... we chose Caelyx because since I'm my Mom's caregiver it`s hard for me to take her 5 days in a row and so often. I have a 1 year old and am 4 months pregnant. I hope this chemo is good for her... heat issues don`t worry me since we had a nice trip to the beach before this chemo and in…
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doxil
I just finished treatment with gemzar and it didn't work. My doctor has suggested we try doxil. I have read it has some pretty bad side effects. Especially on the heart and the hand and foot syndrome. Did any of you out there have any bad side effects from the doxil? And did you loose your hair?
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Caelyx or Topotecan??
Can anyone tell me which one is a better choice? The thing is Dr. says Topotecan has worse side effects and the administration is not nice... 5 days in a row than rest 16 that again, while Caelyx is once every 4 weeks, although is is more expensive. Has anyone had any of these?? Thanks for your opinions. Liz
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Update! Sorry it took so long!
Thankyou so much for everyones private messages and e-mails. its been overwhelming in a good way. im just having a hard time getting back to everyone but i promise i will! this is Jesse by the way! Jenna has been doing ok. Just very tired and very sick. I need some advice...how do i get her to eat??? the site of food makes…
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Baby after Cancer
I was diagnosed with ovarian cancer just over a year ago while pregnant. I had my beautiful daughter in August and then underwent chemotherapy. We've talked with the doctor about number two as he said we need to have kids soon so my other ovary could be removed. Has anyone had experience with this?? Other things that might…
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elevated CA125
Ladies, its been a while. I've been doing great. Enjoying family and life. However, just lately my CA125 skyrocketed to 1200. A CAT scan came back totally clear. I feel a warm sension in the abdomin area which makes me think perhaps there is some kind of inflammation. My oncologist wants to run another test in a month or…
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Whoopeeeee!!!!
I just had my appointment with my gyn/onc and got the results of the CT scan. Everything was perfect, physical, CA-125 of 6, and the CT scan was negative with the liver spaces smaller than last time indicating that it is healing itself from the RFA of last July. I will complete the last four doses of Taxol maintenance and…
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Avastin not working
After 4 chemos my Mom is still having pain in her abdomen, so I guess Avastin sadly didn't work. The Dr. is going to change her treatment, I'm very nervious since I don't know what to expect. Please has us in your prayers. Liz
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I made it
Ladies I made it..no more chemo,tests or Dr. visits for another 8 weeks!!! I finished my 6 cycles of Topotecan with a ca-125 of 15.9. I made chocolate cupcakes for all the office helpers,chemo nurses and of course the Onc to celebrate this final day!!! I feel like I have a million things to do and wonder why?? Probably…
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ca 125 stationary on the 4th &5 th chemo
Good Day to All, My wife was diagnosed with ovarian cancer clear cell and staged 1c .Her ca 125 was 119 went down to 64 on her 3rd chemo She had a complete hysterectomy and the doctors took out also her appendix and ommentum and both ovaries She is right now scheduled for her last chemo this jun 13 . We were hoping that…
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Can Someone Advise me About Genetic Testing??
Dear Discussion Group Members: My mother's oncologist referred my mother (78 years old) for "genetic counseling" this week. After a long meeting, the counselor urged genetic testing. My sister, who is partnering with me in managing care for my mom (who has Stage III Ovarian Cancer & is on a course of pre-operative chemo)…
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Finally recovering from issue's
Hey Everyone, I truly believe I'm finally on my recovery road and all the hassles are behind me. After all my other issue's I shared after surgery I then started having problems with infections in my stitches. I JUST NOW 6 weeks later last Thursday May 29th had my stitches removed, because they weren't dissolving right. I…
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update
Well, I will continue to praise the Lord my God. Lisa, my nurse called this morning and I was on line up loading pictures, saw her call on call wave. I called her back on my cell phone and it was kind of breaking up. I heard 72 which meant my ca 125 would have gone from 122 down to 72 so my immediate reponse was Praise…
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prayer
Hi ladies, I just need your prayers. I am sitting here at work in tears and I hate to get like this. I had a transfusion yesterday a 11 hour process which I really don't understand why it has to take that long. I go to the doctor tomorrow for exam and CA 125. I will start 5 days of chemo on Monday. Do any of you have bad…
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Update and my apologies!
Hi ladies, I'm sorry to have been away so long. After my trip to Spain all has been just a rush. My 1 year old is now walking and with my pregnancy(a girl!!)and watching over my Mom, getting her drugs, talking her to chemo and basiccaly running the house is hectic. My Mom hasha 4 Avastin plus Genoxal chemos and is still…
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thank you
Hey Everyone, thanks for all the support and emails. I heard from the research nurse and the wheels are in motion. I should go into the hospital right after the Neil Diamond concert July 19th. :-) Priorities you know. I will be the first woman with ovarian cancer to try this. Fingers and toes crossed and lots of prayers.…
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Not working
The carbo isn't working, I got a reduced dose anyway and looking at study they have asked me to be in. Still sick from the chemo so my brain isn't thinking the best right now. The study is similar to bone marrow transplant but it would be getting one of my childrens killer cells. I'll post later about what it involves.…
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catching up
I'm back from the beach, and just read the posts. Bonnie, my heart goes out to you...I hope you find the strength and determination to go for the killer cell infusion. You have been such a fighter, and I can't imagine you stopping now. There are so many tough decisions to make, and the fatigue and side-affects make it even…
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i'm back
hi all i'm back from Spain. We had a great time although it was a little cool for us use to warm weather in Mexico. My Mom had her 3rd cycle last week and Dr. has ordered a CA-125 before we continue. I feel my Mom preasures for not having more treatments,I understand it's hard but what worries her most is the costs bc of…
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HAPPY MOTHER'S DAY!
To our MOMS: The women who made us what we are today, shaped our lives, led the way. Always taught us right from wrong, Gave us hope, made us strong. Offered us comfort in our fears, Wrapped us in hugs, wiped our tears. Fed our tummies, spirit and soul, Gave us strength, made us whole. To all our Mother's I'd like to say…
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7 down 5 to go
I am getting over the chemo no, 7 and sure look forward to the downward slope of this maintenance program. Got up and walked outside this morning. Will increase my distance daily as I have to go to Denver area and see a grandaughter graduate from high school the 21st. I will have a ct-scan June 6th and see my Dallas…
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Cartwheel News!!!!!
Hi ladies, My last ca-125 went back down into the normal zone(the flu made it jump up 50 pts.)So my Onc said I will finish the last 3 treatments in my 6th cycle...and then I'm done!!!!!! I'll finish all this on May 30th!!! Then I will get a 8 week vacation off all tests,Dr. visits and chemo's...8 weeks OFF!!!!! I'm so…
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Hello, it's me again
Hi Bonnie, Saundra, Monica, Joanne, and everyone else...How are you all doing? Last time I was here, there was a mixture of good and not so good news. I hope things are getting better. I am trekking to Hopkins again on Friday for the Gemzar and Carbo desenstization. Last time I had another reaction, but they got me…
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Recurrance already
Many of you may remember that some weeks ago I was so delighted as I was finishing my chemo. Within 4 weeks of completion, however, I have a recurrance, and I am now on my second round of chemo. I will be on Cisplatin and Gemzar combo - was going to be carbo and Gemzar, but bizzarly I had an allergic reaction to the first…
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traveling
Travel sounds good...I've never been to Mt. Rushmore. I will be traveling as well, but in the other direction...to the beach at Cape Hatteras. We love to surf fish. Treatment on Friday, neulasta on Saturday, then hit the road for N. Carolina. My thoughts are with you, Bonnie and I hope your scan is good and treatment is…
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After chemo...
My oncologist says that if all goes well, I should be done with chemo by September of this year, but for younger women who do not get complete hysterectomies, what type of after chemo surgeries or procedures are involved? My previous surgeon (I'm trying to switch because he treats me very poorly as a person) said they…
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Update on Carol
Hello! Just wanted to give you a quick update on my progress. My surgery was 4/30, and I came home 5/5, and my first chemo was 5/8. I had some difficulties the Sunday after my chemo, and ended up in the local ER (which was not all that helpful). The next day i went back to Wilmington where I had the surgery and chemo, and…
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North Western
Has anyone heard of a Dr. John Lurain at North Western Medical in Chicago? Would appreciate any info.
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quck update
I know a couple of check Caring Bridge.. for you this is a repeat. :-) Just a quick note to let you know I have to go in for chemo tomorrow and then again in three weeks. My ca125 is still moving upwards and my Dr wants to see if getting the treatments closer together again will change that. So chemo tomorrow, a ct scan on…