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New Here
Hello. My name is Tracie and I am a new member here. I am 43 years old, and was diagnosed on January 7th, 2008 with stage 3b ovarian. I have since gone through surgery (which just left behind microscopic bits and a few seedlings on my diaphragm) and intraperitoneal chemo. I had my 3 month after chemo check-up on sepember…
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My Mom´s 3rd year with OVCA
Hi all... I just wanted to share my Mom`s milestone... 3 years today.. I´m so so so grateful with God for letting me have her these years which have gone by so fast. Thanks to this time she has shared with me my wedding, my 1st pregnancy and birth of my son, his baptism, my 2nd preganacy, not to mention 3 X-mas and New…
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Avastin
My name is Terry Paci, I am 43 yrs old and I have just completed my 6th treatment of carbo/taxol, I am on the avastin and have been since the 2nd treatment, after I had my 1st treatment of Avastin I broke out in a rash and I was determined to leave the trial due to this problem, when I talked to my Dr. he actually talked…
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Latest Update
My Mom started having severe back pains since last Monday which don`t allow her to sleep because she can´t stand putting her spinal cord to rest not even on her pillows. She has been "sleeping" sitting on her bed for the past days and taking pain meds. This was only happing at night but yesterday it happened in the…
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6th chemo
I had my sixth chemo today. they had a heck of a time finding veins so they finally went to the crook of my arm and it worked. i've been on carbo /taxol/and avastin or plaebo every three weeks. my ca 125 was down to 7 and went to 9 hopefully that isn't anything I get a ct scan on the 24th and if the 5 cm tumor on my liver…
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Interview with our local paper
Hi Everyone, Last Thursday the local paper interviewed for Ovarian Cancer Awareness, because I write an article each year and send it to the Letter to Editor section. Anyway, just in case you were interested in reading the link below should bring you to the feature story they did in the Kanabec times for Ovarian Cancer…
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New here with a few questions...
Hello all!!! I'm new here and have a few questions that I was hoping you fantastic ladies could help me with. ***FYI--I'm a military dependent that has no choice, but to utilize military medical facilities.*** For the last eight months I have been dealing with exhaustion, which is progressive in nature. In the last two and…
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symptoms before diagnosis
This is my first time here. I was diagnosed Sept.14,2007. I had my first treatment of taxol/carboplaten on October 1st,2007. My last and sixth treatment was Jan. 21,2008. My ca125 is down to eight and I feel better than I have in years. I had my last check up Sept.8,2008. My next check up is Jan. 2009. That will be a four…
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Topotecan
Hello, everyone! I'm hoping to get feed-back on the Topotecan chemotherapy. I know that many of you have been on it. My doctor has suggested it for me. I would appreciate knowing how well you did, and what the side effects were. I'm pretty down in the dumps today after my appt. with my oncologist yesterday. I think I need…
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Carbo starts this weekend
Hi Everyone, My body is not coming back like we hoped, but I think it is the best my bonemarrow will do anymore. My wbc and anc are still very low, but my hemoglobin made it over 10 finally. Anyway I start the carbo on Sat/Sun to see if it will work again. That is if the hospital has a bed for me, I have to have desentized…
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Severe Contipation
Hi ladies, it's been a while but since my pregnacy due date is getting closer I'm very tired and busy. My Mom just had chemo last Thursday and a severe constipation issue which is making her very unconfortable, not able to eat and frustrated... she had tried drinking water, small walks, yogurts that are made for this,…
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new cancer patient
Hi to everyone. I hope you don't mind me joining the chat group. I am not a cancer patient. My sister, however, is. She was diagnosed with Stage 3 ovarian cancer in April and finished her 18 chemo treatments on Sept. 5. She is not loving life right now. I have so many questions about this, but I feel really uncomfortable…
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Update
Well, my CA-125 was up to 50 so we have decided (my oncologist and I) not to take the chemo of Taxol today (my 12th out of 12 low dose) as it appears not to be working from the CA-125. I will have the CT scan on the 8th and a physical by the GYN/ONC from Dallas on the 15th and then conference to see what the next course…
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narcotic induced constipation
I have had problems with severe constipation since starting on pain meds and no relief from any laxatives or life-style changes with the last boost to oxycontin. Lucky to get a small bm, even enema assisted and as long as 5 days. The body just stopped having to go. My daughter-in-law talks with her obgyn about me with…
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maintenance chemotherapy
Hi, I have only been on this board since March. I have stage 111c and am getting my 4th treatment of carbo/taxol plus a clinical trial of avastin/placebo on June 16th. I have 4 more to go. My doctor had suggested a maintenance program after I finish all 8 treatments of chemo for 1 year. Has anyone done this and had good…
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wasnt meant to feel like a heart breaker
Hey ladies, These past few days have been rough on me. Ive been through so much. Last night i cried myself to sleep literally. I always thought it was a just a statement but it can actually be done. I woke up with a headache that was out of this world. I feel like the world is crashing down on me. I stay up all night…
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Can a flu vaccine or Hep A vaccine increase the CA??
Hi again everybody!! Well, I was feeling a little bloated and got a little concerned as I also had some diarrhea. So I went down and had a CA125 done. (I had finished 5 rounds of IP Cisplatin Chemo in April, and the Dr. said in May that I was "in remission"). Anyway, my last CA's were 3.5 in May, and 4.3 in July. Now it…
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Insomnia
Hi everybody, I'm just wondering if anyone has any advice for me to be able to fall asleep! Night after night I lay there for literally HOURS trying to get to sleep. I've tried many sleep aids prescribed by my Dr., including Ambien, Ambien CR, Lunesta, Sonata, and Desyrel. I've tried the over-the-counter types; like…
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weird side effects
Hi Everyone! I have a question about a weird side effect of chemo I'm having. Have any of you ever had trouble with your knees swelling up after a chemo treatment? I had my 3rd carbo/taxol last Thursday. I normally get the leg aches a couple of days later, but this time it was really concentrated in my knees. Today they…
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Appetite
Ladies I need some suggestions. I have just begun this new chemo of Navelbine..and it has been very rough on me. I'm unable to eat very much,or keep it down or at least in me. I'm scared a bit as I always breeze through my chemos with no problems but this one is a horse of another color for me!!! one month ago I weighed…
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Hi New Member
Hi, I'm Shelley I had my surgery the end of July. A full hysterectomy including ovaries, fallopian tubes, and omentum. At first we thought it was just a Very large ovarian cyst. I did my regular OBGYN check up in March and this thing grew to the size of a large catalope (15cm) by July. The blood test did NOT show cancer…
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pet scans
I was looking up pet scans on the internet and it looks like it would be more informative than ct scans. like it could show if cancer was still active or not does anyone here have pet scans instead of ct scans or know more about it. Laura
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St. Jude's Hospital
FYI ~ I don't mean to advertise or endorse anything, but I am willing to pass along ways to support great cancer groups. On this-coming Monday, Sept 29th, Chili's Restaurants will be donating ALL PROFITS to ST. JUDE'S HOSPITAL! I think it's a worthwhile cause and a good excuse to go out to eat! Take care everyone, ~Susan…
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Another stress behind me and feeling great!
Well. not only have I made it through chemo, and my first week back at work, but I had my 1st mammogram since the ovarian cancer diagnosis. It was almost as stressful as my first post chemo check-up. I had it last Thursday and got the results today. Normal. WOOHOO!!! I never realized how strong I was until I got this…
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Of course there's hope.
Pleasem I hope that all of you will accept my apologies for my careless words in my last (first) post. All of you are so strong. I can hear it in your voices in your postings. Of course there is always hope. For everyone, at every stage. I'll pray for all of you and for my sister.
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DRUG TRIAL
Hi Everyone I came across another drug trial today as follows We will beat this disease one day. Irene Women with recurrent ovarian cancer can be helped by an experimental therapy using a drug already touted for its ability to fight other cancers, a finding that provides hope for improved treatment of this deadly disease.…
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update
as always hello ladies, today my sis went in for her chemo. i picked her up 9am sharp and went to the hospital to get rd 2. on the way there we laughed about a scene on the radio and she seemed so good. as we were stepping out car she said Ray lets get ready to rumbleeeeeee and we laughed some more.It was such a special…
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L'oreal supports ovarian cancer research
Here is a web site for Loreal Color of Hope, You can go to www.lorealcolorofhope.com they are trying to get at least 22,000 hits by the end of the month and I was like 11,457 ir I remember the number right. Just thought you might like to add to the number, also heard that the View was also supporting Ovarian Awareness the…
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Well she agreed to Chemo
hey Ladies, first how are you all doing? My sister begain Chemo Yesterday yes I said it right she put a fight and said she hope she is not doing this for nothing... but at least she tried. she is on paclitaxel/carbonplatin. or something like that for 1 time week every Wednesday for 3 weeks off 1 week for a total of 6…
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Medicare Question
Hi Everyone, I found many of the things that were in my Docs barrel are not FDA approved for Ovarian cancer. Has anyone had luck appealing Medicare, I know it is different in each state but just curious. If you have what did you do and how long did it take? I am scheduled to start back on the carboplatin in two weeks, if…