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Houses passes Johanna Law for GYN cancer eduation
Use this link to email your senator http://www.capwiz.com/ovarian/issues/alert/?alertid=18035546&type=CO
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The excitement just never ends
In a motel in south Texas and I'm off to the closest ER. My alien is now bigger- the size of a dime - and beef steak red in the surrounding tissue.
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I really didn't need this (and I KNOW hubby didn't!)
As if I'm not stressed enough over blood work on Monday and my first 3 month check up.... here is a brief synopsis of the last week.... (Not including work stresses) **hubby has a bunionectomy on Friday 10/1 (Note: He is a diabetic who thinks that Snickers bars and Lemonheads are required food groups) **hubby carries on…
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PARP trial news
I ran across this on the inspire board. I am not sure when it was broadcast but it is great news for OVCA. I am NOT in this trial though...darn!! I will be starting the ENMD-2076 trial. http://www.msnbc.msn.com/id/3032619/#31532986
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Add some teal to the pink
If you live in the US, you can go to this address http://www.tealtoes.org/contact Fill out the form for the TEAL TOES cards (they list symptoms on the back). A few weeks from then, you'll get an envelope in the mail with a bunch of very nice laminated teal toes cards. Wherever I go, Pharmacy, Doc's office, Library....if I…
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had multiple rounds of chemo? Could you have low grade form of OVCA?
Just want to say that recent research by MD Anderson makes a distinction between low grade and high grade forms of ovarian cancer and their research shows traditional chemotherapies are ineffective with low grade form. These are responding to "hormonal" agents like Tamoxifen, a breast cancer drug. After six different…
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My mom leaves ICU for Acute Rehab today
It's hard for me to believe that my mom is getting ready to discharge from the hospital today after the long haul she has been through. They removed her trach and she is breathing room air without any O2 support needed. She is able to walk about 25 feet and is doing better eating normally. She is starting to learn how to…
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Letter to a boy/girl
So, in another online community I participate in, we have a thread called "letter to a boy/girl" where we generally write a note to that special someone. you can vent or express your undying love or talk about how you stalk them on facebook or whatevs. Due to some circumstances in my life the past few weeks, thought it…
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Grateful to have found this discussion
I was diagnosed with stage 111 ovarian cancer last Feb had surgery but they didn't remove anything. After 6 treatments my CA125 was 28 & the tumor had decreased in size and there were no more tumors. After that there was nothing I was told to do or expect. I learned so much from you ladies, from the peach fuzz on my face…
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Breast cancer has a ribbon but we have a band!
Hi gals just bumping this up in case some of you haven't seen it. Love NED❤ https://player.vimeo.com/video/13338331
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Catumaxomab
Has anyone heard of this? It is being used in a study wherin it prolongs remission in ovarian cancer. I tried to read up on it but I tend to get lost in medical information. Karen
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Hair question....nobody laugh
I suddenly remembered a woman I used to work with, whose hair began to get very thin after menopause. Her doctor recommended Rogaine for Men (because the one for men is stronger and being post-menopausal, there was no danger of her getting pregnant). Would something like that be advantageous for us, as well? My hair was…
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I'm beginning to understand something
I've wondered, this past year, why we can't just stay on some kind of maintenance chemo after our initial treatment is finished and we are NED, as is so often the case. I asked my Gyn/Onc and he cited several reasons, the primary one being a reluctance to pump poisons into a person's body forever, without knowing if it…
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I have a friend
I have a friend ( insert husband, daughter, son, neighbor, etc. ) who I will never be able to thank enough. She is simply always there when I need her. She takes me to appts., chemo infusions,and blood testing. She calls just to say "hi" and ask if there is something I could use from the store. She doesn't shy away from…
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Information
Ladies check into Weiman home products they are proudly sponsoring the Ovarian Cancer Coalition. Need to buy these products for sure. Thanks, ladies
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Re: Need help with this and some more questions
Thank you everyone who gave me support and information. I am sure you know how much this means to me. More than I can say. My cancer is CA Metastic to Pleura; CA Ovary Stage 4. In the surgery I had on Sept. 10 there was so much cancer in the abdomen and the intestine was blocked. Tumors were removed from the abdomen and…
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PPC, interested in IP chemotherapy, need some answers!
Hi everybody, I am new to all this, and I would like to thank Tina for sharing a link with me to this page. My mother has been diagnosed with PPC, we were first told that it was ovarian , she has had 3 lots of chemotherapy and has had surgery all good so far, surgeon said there was no visible trace of the beast left after…
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My chemo held hostage update
Finally... my insurance company has released the funds that they owed to my Oncologist and after a very long and even more stressful 5 weeks for me, I return to chemo today. I'm terrified to find out if my counts have risen. I'm trying to think good thoughts. (((HUGS))) Maria
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SANAM hows ur mum?
Hi Sanam, Has ur mum finshed chemo treatment and i have not heard anything from You. Please do ca125 test which will help for doctor treatment. Put her on vegee diet. Please keep us update ur mum ... U r in my prayers Thanks Kumar
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Mom Update
First I would like to say thank you to everyone that replied to my post regarding my mom's surgery September 3rd. Mom went for a second opinon September 27th at Princess Margaret Hospital in Toronto. The doctors there were not as pessimistic as Mom's oncologist. They said the chemo is working and there is still lots that…
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Anyone experience burning in their throat
Has anyone experienced a burning in their throat or feeling of not being able to swallow food while on carbo/taxol? My mom is feeling like she can't swallow and this burning sensation in her throat and nothing seems to help it. She has is getting severe heartburn. She's tried Pepcid and similar drugs and they don't seem to…
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our sweet BONNIE
Caringbridge jourbal post on Bonnie's blog today, not sure who posted it: "Biblestudy time look up Isaiah 43 1 3 one special verse that Bonnie has walked with 7.5 years and shared with many friends Bonnie did wake a couple times through the night from pain the nurses uped thr amount of pain meds and now she receives adivan…
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"Break the Silence" tee shirts
For the benefit of those who asked me via Face Book and CSN e mail about purchasing the tee shirts we wore in the NOCC 5K last Saturday, they aren't technically for sale (ours being such an exclusive group and all...ha ha), but I think I can score a few shirts. I promised to be responsible for the postage and for mailing…
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Confused and upset over doctor's visit
I just don't know what to think. I got my results from PETCT Scan today. Frist, my CA125 when up from 30 to 34. Then the last spot I had, which is in my liver, has not shrunk anymore. My doctor wanted me to do the two more infusions of doxil and thought it might kill it like it did the other spots I had. But it stayed the…
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Libby's Update
Good Afternoon, Ladies!! I have had 3 infusions of Doxil (dose is 50 or 55 which is a higher dose because of being on PARP clinical trial). After first infusion I had heartburn like pain in esophagus, had 2 shots of Neupagen for white count (already). Second infusion I had constipation, mouth sores, some itching around…
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Primary Peritoneal Cancer - new thread
Many thanks Tina for the valuable info you've posted. I checked and you're right, she is on carboplatin 550mg and taxol 330mg. Does this sound right? She's also been given sickness tablet, so that's better now. But she hasn't been eating, so she was admitted to hospital again to check her immune system, apparently chemo…
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What are you reading for fun?
I thought I'd start this topic so we can share the great books we read for fun. While these can include cancer books, it's also a place to talk about books we read to "escape" for a while. Some of my favorites: The "fever" series by Karen Moning DarkFever, BloodFever, FaeFever and DreamFever. Fantasy series. Along the same…
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Looking for NCEllen
I would like to get in touch with you Ellen. I believe I saw somewhere that you live in Matthews? Please write back.
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Lynch Syndrome
Was wondering if anyone was familiar with Lynch Syndrome. Mom has to have a genitic test next month to see if she may have it. Her oncologist believes she may...due to her having colon cancer at such a young age then the reoccurance of the colon cancer then the ovarian cancer. He also stated if she had it then all of her…
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My wandering mind and rambling fingers...
It's getting late and the house has been quite for about 3 hours now, everyone including the dog is asleep, except me as usual. The TV is turned on low, can't really concentrate on any one show, so it's just background noise. My mind keeps wandering and zeroing on this nasty entity that bedevils me!! I was first…