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Taking a break
Hello everyone, I love you all dearly, but, I need to take a break somewhere in my life from something stressful. Just a quick update, my husband remains in the hospital (Day 6 I think) and is still battling acute renal failure. Docs are talking possible dialysis soon. My dad is in hospital with general crap that he should…
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Carbo/Doxil- What do I need in my medicine cabinet?
Hi Ladies, 'Starting second round of "major" chemo on Tuesday. I have heard lots of horror stories about Doxil and was wondering what I need to buy in preparation.(One lady told me satin sheets are a must) I have had the carbo, so I envision myself bald with creepy, itching rashy skin! LOL I'm wondering if my wigs will…
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Tough Sisters
I heard a quote today that I thought you might like. "A woman is like a teabag, you never know how tough she is till she's in hot water." Here's to all my tough sisters.... (((HUGS))) Maria
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update on my mom
Hi dearest ladies I was away for a while. My Mom had her last Gemzar/campto regime on Thursday (12 sessions:6rounds).After four rounds her scan was clear and CA125 came back on 13(1200 in DX). The oncologist didn't recommend any maintenance.she has to have her next CTscan in 2 months( I have no idea why 2months instead of…
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Just Venting
I am feeling pretty crappy lately. It's kind of hard to explain and most of my friends and family don't understand. My ca125 is 8.7 and ct shows no sign of disease. I AM very happy about that!!!! But I am experiencing alot of other things that make me feel bad. Like aches all over. like you've been hit by a truck or…
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MICHAELA MARIE
Please pray for our sister, MM. She recently had emergency surgery, barely came through it, and is now enduring a great deal. I won't post details, as I did not ask yet for permission to do so. But I felt that asking for prayers was important. Thank you all so much. I know that you'll hold good thoughts and send prayers…
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scared and alone
I have gone to chat on here several times and read a lot of your posts on the forums, but I have never posted for some reason. Last September the doctor found a mass on my left ovary after an ultrasound for some freak thing that they never figured out. I was 33 at the time. I am going back in on Monday (Nov 1st) for an…
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Recurrance with ascites and strange bowel movements!!!!
As you ladies may know my CA125 jumped from 71 to 1,280 the other weeks so I am to go back on chemo. My CT scan (take in Sept) shows little change since my treatment stopped in March this year. No ascites, all major organs, bones and lymph nodes clear. However I am finding it so hard to comprehend - this rise in numbers.…
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Strange bowel movements
Here I am again, I do apologise but you guys are the only people I can think of to answer my strange and bizzare question. Just a reminder.............. I have stage 4 PPC where the fluid went to the cavity around my lungs. Because my numbers went up so drastically and the CT scan showed little change I am confused. So, I…
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New here--ovarian, clear cell
Just diagnosed on Oct. 14 when I had surgery. Clear Cell, Grade 3 Stage 1C. Surgery went well and will start chemo Nov. 19th. Pretty anxious. Just started early retirement end of June and was planning on a great ski season (lots of mid week skiing). I suspect chemo will dictate some of my skiing regime! Anyone with…
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DeQuervain's Release
That's the name of the procedure I am having done tomorrow morning. It will, hopefully, relieve the hand pain I have been dealing with for the last two months. I can hardly wait....for my hand to stop hurting, that is. Carlene
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Prayers for something unrelated to OVCA----Update (of sorts) Read the first post
My husband, who had foot surgery and was in the hospital a few weeks ago with an infection is back in the hospital tonight. He has been diagnosed with anti-biotic induced Acute Renal Failure. He is diabetic. Please pray for his swift and full recovery. I'm scared. Leesa UPDATE Ken is still in hospital. His creatine has…
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Saundra's in the hospital
This is Joe, Saundra's husband. Sandy went into the hospital 14 days ago (sorry to be late, been busy). She has a bowel obstruction, now it seems in the small intestine. May be several obstructions or "focal points" as the oncologist says. She has been on an NG tube for 10 days, and IV nutrition. Her pain is pretty much…
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Didn't really want to post this now, but ...I thought maybe some good news might give us all a littl
Ok, Here's the thing. My heart is breaking for Tina and Froggy, and Jayne,...and all of the others who are fighting actively. I'm really careful about what I post, because, Lord knows, I don't want to make anyone feel worse. Then, I put myself in the shoes of women newly diagnosed who come here and read about recurrences.…
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Update on Linda
Nothing dramatic to report other than we've waded through one cycle of cisplatin and docetaxol. That first round was heck on her. Cisplatin really knocks her over. But we've moved to a hospital closer to home with the idea that if we have problems or need for infusion we can get her easily. Just 10 minutes from home. This…
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Need help---my mom is having difficult adjustment back home
Hi everyone--- My mom moved discharged rehab on Tuesday to her home. I have been staying with her since. She thought that she would feel less anxious at home, but truthfully I think it is worse. She is so scared. We had problems with the wound vac from the start that sent her over the edge. The last two days she has had…
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Strange goings on on the boards???
Just logged onto the boards (not been on for a few days) and there are lots of weird messages from 2 people about buying drugs on line. THEN I see messages from my friends just saying BUMPED. Just a bit confused???? Tina PS It doesn't take much to confuse me - I'm on tablets you know he he
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more new research: Early Versus Delayed Treatment of Relapsed Ovarian Cancer
Early Versus Delayed Treatment of Relapsed Ovarian Cancer (MRC OV05/EORTC 55955): A Randomised Trial Lancet. 2010 Oct 1;376(9747):1155-1163, GJS Rustin, MEL van der Burg, CL Griffin, D Guthrie, A Lamont, C Jayson, G Kristensen, C Mediola, C Coens, W Qian, MKB Parmar, AM Swart for the MRC OV05, EORTC 55955 Investigators…
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Cancer terminology
Chemotherapy Terms Chemotherapy encompasses a wide variety of therapy treatments. Terms such as "adjuvant," "neoadjuvant," "consolidation," and "palliative" often add to the confusion surrounding chemotherapy if not properly defined and explained. The purpose of this page is to increase the level of understanding about…
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Gratitude
Sometimes I come to the boards and just read. Sometimes I try to provide hope and support. Sometimes I want to add a laugh for the day. Sometimes I'm lonely and want to connect with some people. I am amazed at how much this board has given me as I travel this cancer path with my mother and friends. I am also amazed at how…
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Is it possible to have one positive result with this disease or is it always bad news?
Big CT scan this wednesday....I fly out to NY a week from now to be there for the reading of the results....we have not had one good one...from the beginning...is it possible for there to be "no progression" or is that asking too much? Has anyone had this happen once they've had a recurrance or is it always going to…
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Niece just diagnosed - need information
My niece who is 28 went in to have a cyst removed from her ovary by keyhole surgery Friday before last. Once they were in there instead of removing the cyst they took tissue for a biopsy. She lives in England and I am here which is very frustrating as things seem to be moving so slowly. Her results didn't come back until…
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Port is not working properly
I went in yesterday for my chemo infusion. I have had my power port for 3 years and never ever had a problem. In fact my drip is always a bit faster than they expect and sometimes they have to slow it down. Yesterday, they plugged me in as usual, and although the drip goes through, it is way too slow. But, when I stretch…
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white sores in the nose
Has anyone had white sores in their nose while on chemo? My mom is on carbo and doxil currently, but has been on some form on chemo for 16 out of the last 19 or so months. She thought it might be yeast, so they have given her some yeast pills, but is there any other remedy any of you know of for these sores? She has also…
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Rash on arms and legs
Hello, I had my first chemo of taxel and carboplatin last week Wednesday on the 12th. I did not have any severe side effects, but on the next week on Monday evening I started to get an itch on my elbows and inner knees. Tuesday I called the doctor and he prescribed OTC Hydrocortizone cream and benedril. He said that this…
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Hair Loss
This is the third week after my first chemo, and now I am losing hair in handfuls. Can anyone give me suggestions? Do I cut it short and begin wearing a hat/ scarf now? I knew this was to happen, but not sure how to handle it? Thank you, Chris
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New conversation on Gemzar and Cisplatin
Hi, everyone! Okay, here it is, a new thread on the Gemzar and Cisplatin combo. Only, now it is hard to remember who said which for the last few messages. Anita, where is your CA125 after your 5 treatments? any guess as to how many more? Jean and MichaelaMarie, I have not had any real hair loss, either, after 1 1/2…
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Good Luck, Nancy591!
I read you were starting your trial tomorrow and I just wanted to send along and BIG good luck! Go get em, girl. (((HUGS))) Maria
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CA 125 falling
So Mom had her fifth round ofchemo on Monday and her CA 125 was 3,659. I know for a lot of you this would be alarming but for us it is great. Mom started out at 14,301. I am hoping someday she will move into the hundreds and out of the thousands. Her new anti nausea pills also seem to be working although thye are making…
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Dr Oz on ovca
Just watched new episode of Dr Oz on new developments in ovca research. Should be available on his website, www.droz.com. Most significant issue was that cancer cells may originate in fallopian tubes and then attach to ovary. Also explains how ovca can spread thruout abdomen so insidiously. Research was done @ U of…