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More chemo for me, Gemzar this time
My MD wants to start me on Gemzar next week. He said 3 weekly infusions, then one off. Wow, that little dance with NED was short! Well, maybe this drug will do the trick.
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anyone get osterporosis from chemo
i now have osterporis where the chemo leached all the calcioum from my bones, anyone else having this problem please if you have had chemo make them do a bone scan on you
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Stage 4 Ovarian Cancer Prognosis if surgery before chemo is not an option?
Hello there, I am new to this site. I feel blessed to have found it as we are seemingly running out of options. My mother-in-law has Stage 4 ovarian cancer. there we no signs of anything this past May, but in August her poor organs are covered. She is unable to have surgery due to some very severe past complications with a…
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Lousy Dreams
I felt like I was dealing with the cancer DX, blood clot injections and upcoming Chemo pretty well. Eating well, sleeping well and getting moderate exericse do the degree I could being 3 weeks post surgery. Then the last two nights I started to have very troubling dreams. Not nightmares but still waking up and leaving me…
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ALOHA FROM HAWAII
Aloha everyone, My name is Catherine. My mom was diagnosed with ovarian cancer a few months ago and was removed and caught on the first stage. However, she was been feeling some bad back aches and other joint issues. Well, she is now in Hawaii for a medical referral and just got labs back from her doctor and was told that…
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Progress for Linda
This has been a toughie treatment regiment like any other (this is our third go-round) for my wife Linda. Cisplatin knocks her low and the followup taxotere makes her queasy and weak. But we go along doing the best we can. Yesterday was a low point emotionally for her as I could not actually stay with her for probably the…
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Dodged another bullet
Well girls, had a scare. Had to go in for another pelvic "inspection" and CA125. Turns out I pulled a muscle (slightly) but enough to set up the alarm pattern. All turned out ok-pelvic was good and CA125 dropped down again, now at 5. Got the go ahead to head down to our winter home (Fla keys) I then continue with an…
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AZ Grandma????
Anyone heard from AZ Grandma? She had been NED for several months, last I remember, but was having some weird stuff going on with her CBC counts. I hate it when people just seem to drop off the edge of the world! I have put my contact info in my profile, so if I disappear you guys come looking for me, okay? Carlene
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Sister went to hospice today
sad day for us today, my sister was taken to hospice and is not expected to live more than a day or two more. Thanks to all who have prayed for her and for our family
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New Here
Hi everyone, I just joined up today. Am working on reading through posts, but wanted to post and get involved in the community. I am 44 yrs old, I was originally diagnosed with fallopian tube cancer actually, but the docs say it's rare but basically the same as ovarian, and that is how they are treating me. I was diagnosed…
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I never liked the way NED danced anyway!
Hi all, I don't post a whole lot, but 'am sad today. 'Was diagnosed 3C Sept. 2008, extensive debulking, 8 rounds of carbo/taxo, an extra surgery for bowel obstruction 11/09, and a year of taxol maintenance, 'finished in June. In June 2010, 'had a CT and was declared NED... WELL, I went back for my 3 month checkup last week…
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I am dancing with Ned
Went to my surgeon today to have my port removed. He had a bit of trouble because my body had built up a protective webbing. Dr said your body wants to keep it. I told him I like to save things. He laughed. He had quite a time and said your body is really holding on to it. I told him it was probably because he took so many…
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Suggestions please!
Hi ladies, I was thinking! (dangerous I know!) In the uk , (don't know if it got to the states) a few months ago someone started a game on Facebook, to raise awareness for breast cancer , like we need it!, anyway the game was done through inboxes and involved ladies putting the colour of their favourite bra as their…
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HELP
I wrote a few days ago about my niece (28) but I am so frightened by the latest news from my brother - today. My niece was supposed to have a colonoscopy, but had a violent reaction to the liquids and anema last night and was rushed into Accident and Emergency at the hospital. My brother and family spoke to the Consultant…
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Will CA 125 go up due to a hernia?
In July I was declared NED. At that time my CA 125 was 21. My last treatment was in June. In September my CA 125 was 49. Another CT scan was done and it was clear, but did indicate a small hernia. Now my CA 125 is 314. My MD told me in September that it could be up because of the hernia. This time the nurse told me the…
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Saundra's chemo cancelled
This Joe, Saundra's husband. Sorry I haven't posted lately. It's her 23rd day in the hospital with an obstruction in or on the small intestine. Her oncologist started her on topotecan two weeks ago (surgery is not an option). Today he said her blood counts were too low for chemo this week. He's keeping her on the oncology…
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Another celebrity connection
I read last night that Patrick Dempsey's mother has had ovarian cancer 4 times. When are the celebrities going to start making some noise? Surely with their power they could raise public awareness.
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Taxol consolidation treatment # 8
Saw my doctor today and got Taxol maintenance number 8. I asked him about Metformin, and he has read some papers on it but no clinical trials. He has a wait-and-see mind set as far as using it for maintenance and/or treatment. Inter sting note....I did not know this, though some of you might have, he remarked that, "We had…
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Another Troll Attack.....Please flag every "Hayee" post
I cannot believe the audacity of these people. What makes them think we would buy anything from them? I would pay 10 times the going rate for a product I wanted/needed before I would give one red cent to scum like this.
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Taking a break
Hello everyone, I love you all dearly, but, I need to take a break somewhere in my life from something stressful. Just a quick update, my husband remains in the hospital (Day 6 I think) and is still battling acute renal failure. Docs are talking possible dialysis soon. My dad is in hospital with general crap that he should…
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Carbo/Doxil- What do I need in my medicine cabinet?
Hi Ladies, 'Starting second round of "major" chemo on Tuesday. I have heard lots of horror stories about Doxil and was wondering what I need to buy in preparation.(One lady told me satin sheets are a must) I have had the carbo, so I envision myself bald with creepy, itching rashy skin! LOL I'm wondering if my wigs will…
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Tough Sisters
I heard a quote today that I thought you might like. "A woman is like a teabag, you never know how tough she is till she's in hot water." Here's to all my tough sisters.... (((HUGS))) Maria
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update on my mom
Hi dearest ladies I was away for a while. My Mom had her last Gemzar/campto regime on Thursday (12 sessions:6rounds).After four rounds her scan was clear and CA125 came back on 13(1200 in DX). The oncologist didn't recommend any maintenance.she has to have her next CTscan in 2 months( I have no idea why 2months instead of…
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Just Venting
I am feeling pretty crappy lately. It's kind of hard to explain and most of my friends and family don't understand. My ca125 is 8.7 and ct shows no sign of disease. I AM very happy about that!!!! But I am experiencing alot of other things that make me feel bad. Like aches all over. like you've been hit by a truck or…
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MICHAELA MARIE
Please pray for our sister, MM. She recently had emergency surgery, barely came through it, and is now enduring a great deal. I won't post details, as I did not ask yet for permission to do so. But I felt that asking for prayers was important. Thank you all so much. I know that you'll hold good thoughts and send prayers…
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scared and alone
I have gone to chat on here several times and read a lot of your posts on the forums, but I have never posted for some reason. Last September the doctor found a mass on my left ovary after an ultrasound for some freak thing that they never figured out. I was 33 at the time. I am going back in on Monday (Nov 1st) for an…
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Recurrance with ascites and strange bowel movements!!!!
As you ladies may know my CA125 jumped from 71 to 1,280 the other weeks so I am to go back on chemo. My CT scan (take in Sept) shows little change since my treatment stopped in March this year. No ascites, all major organs, bones and lymph nodes clear. However I am finding it so hard to comprehend - this rise in numbers.…
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Strange bowel movements
Here I am again, I do apologise but you guys are the only people I can think of to answer my strange and bizzare question. Just a reminder.............. I have stage 4 PPC where the fluid went to the cavity around my lungs. Because my numbers went up so drastically and the CT scan showed little change I am confused. So, I…
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New here--ovarian, clear cell
Just diagnosed on Oct. 14 when I had surgery. Clear Cell, Grade 3 Stage 1C. Surgery went well and will start chemo Nov. 19th. Pretty anxious. Just started early retirement end of June and was planning on a great ski season (lots of mid week skiing). I suspect chemo will dictate some of my skiing regime! Anyone with…
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DeQuervain's Release
That's the name of the procedure I am having done tomorrow morning. It will, hopefully, relieve the hand pain I have been dealing with for the last two months. I can hardly wait....for my hand to stop hurting, that is. Carlene