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Update on my mother
OK, this may be long....the news is mixed. There has been progression in her cancer, BUT it isn't huge...here's where I see a blessing. Its just enough to place her into the PARP inhibitor part of the trial...which is what she wanted anyway. And I swear the growth is that close to the protocol to get her the Parp. My…
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My chemo is being held hostage!
Hi Friends....... It's been a long time since I've stopped by and this might get long, sorry. I've been being treated for recurrance since Jan. with carbo/taxolx4, doxilx4, and now gemzar. My oncologist of 4 1/2 years didn't reup with my insur. co. last May and we filed a continuence of treatment form. Well, the insur. co.…
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I'm holding on so tight, but I know my mom is still going to leave me :,(
There's no describing what my mother has endured the past two years. She was diagnosed with stage 3 ovarian cancer just six months after her beloved sister died from it (and their mother at age 35, I think we are cancer cursed.) Hysterectomy /debulking in March 08, followed by more complications and total weeks in the…
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taxol dossages
HI everyone, I had a good report from my doc, which was music to my ears, after being off chemo for 3 months. (I did do anti-estrogen treatments that helped hold things at bay.) THe CT was clear, although CA was up a bit. I will start weekly taxol next Friday. I am curious, for those of you who are doing some form of…
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Weekly Taxol- Is it only for 12 weeks?
I am taking weekly Taxol with Bi-weekly Avastin. I had my Ca-125 taken last week and it is now at 80 (it was 380 9 weeks ago) I missed last week but will resume this week at dose number 10. My question is does the weekly dose end at 12 weeks like I have read in some cases or is it continued until your markers rise or dr.…
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pramany pertinal cancer
Can anyone tell me if they no if anyone can stay in remission from PPC.Can you beet this cancer and if not how long has anyone known how long some one has live from this cancer,I had heard that some one lived 12 years.I am still not sure what this is,I was told that its just like ovarian cancer.Does any one know what it is…
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NED is in the House!
My wife has gone through her initial 3 rounds of taxol/carbo, had a successful surgery in June, and just completed her last three rounds of Taxol/Carbo. Her last three CA-125s have been a 2. She started with a 266 at diagnosis. Stage = 4. CT and X-Rays all came back negative. We are both doing the happy dance! Question,…
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ca125, what do you think of this?
background history: initial ca125 750 prior to surgery, 70 prior to chemo, dropped to 7 6wks after completing all chemotherapy. Recurrence suspected due to ongoing bowel symptoms, ct clear but PET showed hypermetabolic area. ca125 was 12, biopsy 3wks to confirmed recurrence was positive, ca125 dropped to 10. Started chemo…
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Would like get a hold of the spammer!
I am mad that someone had the audacity to break into our house and litter it with trashy solicitations for watches, handbags, etc. If you haven't noticed, they pulled up old posts and added a sales pitch at the end. I tried to flag each one and also notified the administrator. Hopefully, it will be resolved soon. I really…
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Lisa13Q
How did the scan go? Wishing your Mom the best!!!
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Woo Hoo! NED's here!
Hi all I just got back from the doc's office and there is officially NO EVIDENCE OF DISEASE!!!! NED is in the house! My husbands last MRI was clear as well so it's like having twin Neds. I am so happy. Now the prayers change to "please Lord, no recurrence.". Thank you all for you thoughts and prayers of support. I believe…
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My body and I are no longer BFFs
Sometimes it's hard to live in a body you no longer trust, that has betrayed you before and may betray you again. I would really like a new one. Even a used one would be okay, not too many miles, as long as it's clean inside (I can clean up the outside myself; I really would not mind.) It's not personal; I just don't feel…
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Scary week
What a week. I am very sad. My dear buddy, my 11 year old lab/chow "Blue" died last night. We had been fighting cancer together and he finally lost his fight. What wonderful protector and friend he was. I know it may seem trivial with all of us fighting for our human lives, but I miss him. My 8 yr old son was heartbroken…
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So very sad :(
My Mom had surgery yesterday. Unfortunately, the oncologist was only able to remove Mom's appendix and not the tumor. It was too big and the location interferred with her blood supply. My beautiful Mom has been given a lousy one year to 18 months to live. My Father wants a second opinion but I fear it won't make a spec of…
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Need Help
A little background. Went to the hospital with shortness of breath and told she had pnuemonia. Her plueral cavity was filling up with fluid making it difficult to breathe. After draining the fluid they came back in and said she had lung cancer. They did a procedure to try to block the fluid from buildig up, and then we…
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Lost In Myselft And Reaching Out For Help
I should and do thank God for letting me live as long as i am,But somewhere I lost myself along the way though cancer,chemo therapy,No feelings in my hands and feet,server pain in my feet from chemo therapy in 2007 from PPC,and more chemo therapy in 2009 from colon cancer.I take methadone for pain from back fusion before…
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cancer treatment center of america
anyone have experience with these hospitals
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Avastin and Oral Cytoxan side effects ?
New to this site and I posted this in another discussion. I was dx 8/2006. Since then 9 surgeries including initial debulking, bowel, spleen removal and removal of reacurring tumors and 35 chemo treatments (all kinds). I was on Avastin and taxotere and my oncologist is switching me to Avastin (every 3 weeks) and oral…
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Stories
Any stories about people whose first round of chemo after surgery wasn't working very well but they went on to attain remission? I would love to hear some. Thanks
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I think chemo has trashed my thyroid
Pre-Cancer, I had a somewhat sluggish thyroid, for which I took 15mg per day of Armour Thyroid. Every check up I've had since then has shown my thyroid function going down, down, down. The nurse just called me, with the results of last week's labs, and they are bumping me up to 90mg of the AT. Has this been an issue for…
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Sometimes...
Sometimes I just feel like screaming. I just needed to share that. Nothing new is happening, I'm just caught in the limbo between chemo and checkups. I've gained 10 pounds and I can't rid myself of the fear that it's ascites. My husband refuses to acknowledge any possibility of recurrence EVER. And I just needed to scream.…
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Tie One On
Hi- thought I'd share a Teal awareness project for the month of Sept. - I'm tying a teal ribbon on my car's antenna. I'm also making little card-stock symptom info cards that I will attach to ribbons to hand out to friends and family. When I go to the grocery store- I will place a ribbon and info card under the windshield…
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Doxil
Hi, I just saw my Dr. today. I've had 8 rounds of cabo/taxol and my ca-125 is 56. My Dr. wants me to start on Doxil. CT-Scan is clear.I thought he would give me a break and just watch me but he wants me to start it at the end of the month. I just had my last Chemo Sept. 8th. Has anyone done back to back chemos. I'm so…
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Clinical trial for vaccine
Hi everyone! I have been approached by my Drs office about participating in a clinical research trial for a vaccine for ovarian cancer! I evidently fit the criteria for the research at this time ( I am in remission & have had chemo in the last 2 mo.)...I don't know anything else about it at this time, as my oncology nurse…
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How do you get into the chat room
Hi i cant seem to get into the chat room,Can you help me,i tryed to hit chat on the left side of the under member directory and all it says is webmaster and i hit that and nothing happens.Thanks for your help.Mary
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Shout Out
My dear Teal Warriors, I had my check-up on Monday and still dancing with NED. I did learn something: the cancer survivor clock starts the day of dx. I thought it was a day of the last chemo. So I am a a 13 month OVCA survivor. I want to thank everyone of all the prayers and AWESOME advice and laughs I have received over…
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Oh For The Love Of Lady Gaga...
Okay, I know we're suppossed to be possitive, And I really really hate bringing my personal situations but, Honestly, I have absolutely NO ONE to turn to but you lovely ladies... So here is goes. I gave Hawaii A chance and came in with a really possitive attitude, but every night my dad picks a fight or makes me feel so…
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Surgery
Hi Everyone, My Mom is having surgery tomorrow morning at 8:00 a.m. She has to be at the juravinski cancer clinic for 6. I thought she would be an emotional basketcase tonight but she was surprisingly calm and animated. I pray that everything goes well for her. I am a little frightened because I have read and heard a few…
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Bonnie Update from today
Thursday, September 2, 2010 7:29 AM, CDT I realized, after a couple emails, I did not share with you what the Dr said was happening with my leg. I am bleeding inside and that is causing the swelling and pain. Did ice it to help stop the bleeding, but it is still painful and swollen. I was thinking, by today, it would be…
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Remembering a Lady with Grace and Courage
Forgive me if i seem out of place but im a male. Ive been in this particular board before to attmept to support and provide information on ovarian cancer months ago but left after realizing it may have been inappropriate for me to enter this specific cancer room. Being a two time cancer survivor myself and having…