-
For Bonnie
A new thread. I find it so appropriate that Bonnies profile picture on FB is of a angel. My heart is heavy with this loss of a fellow warrior. Heartfelt sympathy to her family.
-
vaginal bleeding
I know this topic was addressed before but I cannot find much on it when I search. Has anyone experienced vaginal bleeding. I noticed a very small amount of bright red blood today. None on my underwear. A bit on the toilet paper. Sorry to report that it cannot be from rough sex..or any sex for that matter! Have other women…
-
Jayne is doing quite well, all things considered
She had surgery to replace the stent in her kidney, which went well, and today she posted this... Thanks to good old Yoga, walks with my cat and dog and sunshine; the pains in body are much better...glad we didn't go to ER! I'm so used to this waiting it out!)
-
I AM NED!!!
Just go thte news----I am NED. Thankful and celebrating!!! Had to share. V
-
You Ladies
Are awesomesauce. That is all. Carry on.
-
crap
My ca125 took another 10 point jump and is now at 43. PET/CT on 9/1/10 showed stability. A new treatment regimen is probably in my immediate future. If so, I will probably go with the clincial trial oral EMND-2076. I've been on chemo non stop since January. I am on my 2nd regimen. Thankfully the bowels are moving fine and…
-
Has anyone been perscribed opium for diarrhea ?
My daughter had her second chemo and has had severe diarrhea. Her white blood count was zero, even after having the shots to raise her white blood count. She still had one shot left and we are hoping that the shots have not kicked in yet. Has anyone been perscribed opium for diarrhea?
-
Haven't been on in awhile, but need some help
Hello Ladies~ To refresh, I was dx Stage 2 Ovarian Cancer in August of 2005 at the age of 34, just had my 5 yr. anniversary a little over a month ago. Underwent complete hysterectomy with removal of everything, including omentum, and 9 lymph nodes which were negative for cancer. My gyn onc was able to remove all of the…
-
Getting the word out...
Here's a link to a local TV news show, spotlighting our local NOCC chapter, and the mini-interview with our coordinator, Karen Zeitman. http://www.wfaa.com/news/health/Break-the-silence-on-ovarian-cancer-102670169.html I am participating in the 5K on September 25th. Carlene
-
Chemo Brain
Okay what is chemo brain? I went to breakfast yesterday and my daughter kept asking me if I felt alright. It wasn't till later in the day that I realized I was like kinda in a fog , is this chemo brain ? I can't recall the conversation and barely recall her boyfriend being there.
-
Tenth Annual NOCC 5K Break the Silence "Race"
It was a rainy morning in the Dallas/Ft Worth area, but the NOCC Walk to Break the Silence went off as scheduled. I walked, as did 7 other friends and family members. See the photos on Face Book (search Carlene Mullins if you aren't already on my Friends list). We had a balloon launch for all the women who lost their…
-
Someone please help me
I am barely able to sit at the keyboard because I am weak and lightheaded but I so need someone to help me feel I can get through this. I am sobbing and feel like everything is so futile. I will probably reread this at some point and wish I hadn't posted it but at this moment it is what I need to do. I am having such…
-
Need advice. :)
Hello!! I am new to this board. i am so glad some one told me about it. Finally have a place to talk to people who know what i'm going through!! :) I need some advise and info. I was diagnosed at stage 3C on Feb. 1st this year. i underwent a massive surgery including ovaries, appendix, omentum and 2 bowel resections. 5…
-
Update on my mom in ICU
Hi everyone. I wanted to give you all an update on my mom who has been in the ICU since her colostomy surgery on August 20th. She is trached and received her second weekly dose of Cisplatin on Tuesday. She has finally had a slow down in the chest tube drainage and they were able to do the pleurocedesis this week as well.…
-
Well isn't he an idiot?
So today I got home from school. And I have this project that nobody told me about until last minute (I was absent last tuesday) And they told me a few days ago. Now here I am with this stupid project I have to do. So today I'm almost done but i'm in a group with boys and they don't like to co-operate so i've been doing…
-
Libby??
Hi Ladies, Anyone hear from Libby or her daughter...I know she's in same trial as my mother and I have PM'd her and her daughter but not heard back...am a little concerned...I know her 2nd CT was at same time as my Mother's (2 weeks ago)....Hope she's doing well...I know the doxil dosage in this trial is high....hope she's…
-
I have a question..
Did anyone have vaginal watery vaginal discharge AFTER hysterectomy and debulking surgery? After my internal radiation - I was extremely dry... that was 2 years ago. Now over the past few weeks I have been extremely watery. This makes me nervous but it doesn't really make sense to me because I have no uterus or ovaries...…
-
Second round of chemo
Mom just had her second round of chemo and is so sick. Yesterday whole body feeling tight, today throwing everything up. Her first round she didn't have any of this. Will round three be as terrible as this? She was so hopeful after her first round and only have fatigue as her side effect. Now, she's a little depressed at…
-
Taxol treatment
I am interested in what warrants getting taxol treatments after completing chemo. Is this a maintenance procedure or does something else have to show up. Thanks
-
Today's CA125
No change.....it's still 6.9, the same as last month. Pre-surgery it was an unbelievable FOUR THOUSAND. I'm one year from diagnosis, 7 months out of active treatment, and have had 7 out of 12 consolidation doses of Taxol only (AKA maintenance therapy). God is good. Carlene
-
Starting Doxil Thurs. WHEN do I use the ice packs, Eucerin cream, & Instant Ocean soaks?
I've read the posts on Doxil recommending Eucerin cream (original), ice packs on the palms and bottom of feet, and cool Instant Ocean foot baths. I did my shopping and have all my Doxil "stuff", but I couldn't find a post that said WHEN you use this stuff. Should I bring my ice packs to chemo on Thursday and 'chill' my…
-
does anyone know if acupuncture will help with fatique?
I was wondering anyone tried acupuncture,or new someone?For fatigue from ov cancer.My mom has recurrent ovc,put back on chemo,it landed her back in the hospital.No food since January because of the tube.If she had energy to get up,move a bit,outside even 5 min,i think shed better her chances of beating this.Muscles are…
-
WEDNESDAY UPDATE ON BONNIE
As posted on Caring Bridge today: 'as i lay with bonnie last night with many thoughts racing through my mind i thought of God great Love for all creation that he sent his only SON to pay for our sins that all who believe will have lifeeverlasting reading the daily devotions this morning john 15 16and17 youdidnt choose me…
-
sepsis
Hi to everyone,maybe this could help and avoid this for someone with same issues.I dont know. My father has said that the infection is in my mothers blood.apparently its the cancer.Its in her chest cavity.They have taken her off the TPN,Can not give it to her,it was fueling the infection.Her count is still relatively low…
-
Meghan....our little adopted sister
I had quite a long conversation with Meghan today and she is doing really well, all things considered. I told her she needed to log in here and give all her big sisters a heads-up. She said she would. Her dad has found a counselor for her, but she hasn't met her yet. Hopefully, it's someone Meghan can bond with and who…
-
CONTINUED PRAYERS FOR BONNIE
Just asking that we continue to keep our thoughts and prayers with Bonnie. She's back in the hospital, with pneumonia and a possible bowel blockage. This is according to the Caring Bridge journal entry by daugther, Michelle as of Saturday. And I know all of you ladies will rally with me this morning to lift her up in…
-
Blood clot
I am now fighting a deep vein thrombosis in my left leg where the last surgery (second debulking and colostomy) where lymph nodes, circulation and muscle were somewhat damaged. DVT's are pretty painful but the pain cleared after two days of the blood thinner. I have entered a study to see if this new drug is better than…
-
*2 things..*1 question & *1 request ..
Has any one heard of Dr .charles b simmone?any info,comments on his work,anything at all? and ! request, i want to ask if you have a moment please say a prayer for my mom,she was taken back into Boston to emergency room,staying,shes so weak,her count is 122,was 33 few mnths ago but no chemo since then,she cant handle it,…
-
Genetic Testing
I am wondering if anyone else has done the genetic testing. The day Mom was diagnosed the doctor talked to her about testing. After her first chemo the blood was drawn and has been sent off. My siblings and I are also going to do the testing. Fortunately, the Ontario government absorbs the five thousand dollar price tag,…
-
Yesterday was my anniversary, but not the good kind
One year ago yesterday I was diagnosed with Stage IIIc Ovarian Cancer. I had seen my PCP the week before, about a gall bladder issue. At least I assumed it was my gall bladder, and was already fussing and complaining about having to have surgery. (Gee....I wish I could have had gall bladder surgery surgery instead. I…