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Ovarian Cancer

Good news day
I just returned from a long day at the hospital. First, I visited my onc/gyn who reported that the CA125 had taken another dive since last month, to 22.7. It was 76.7 last month and 167 the month before, and this last year it hovered around 150ish all year on doxil. He sent me down to the port doctor, to check out why the…
Putting it in perspective
Today, I went to my favorite restaurant to get my favorite Prime Rib Sandwhich to go. I noticed a cup asking for donations because of the death of a co-worker. I realized that it was for the wonderful server/assistant manager who had always been so kind to me. Giving my kids an extra large helping of vegetable beef soup…
nancy591: Looks like we have scans planned roughly the same time; same fears (((hugs)))
Hi, Nancy! I saw the news of your upcoming CT/PET buried in another thread. Couldn't help but think that our journeys are running parallel lately. I had my 3rd round of Doxil this morning, and don't have today's CA-125 back yet. But my CA125 has been insane on the Doxil so far, with labs taken every 3 weeks, sig-zagging…
Funny how "De-sensitised" we become to cancer
Thought I'd share my little experience with you to illustrate how we can become so used to having cancer that we ALWAYS assume everything that goes wrong in our bodies "MUST BE CANCER" I had to go for a follow up cervival screen because my routine test came back with "changed cells" Well my first thought…
My sister passed away today
Darlene fought the fight for several months but went home to be with Jesus this morning. She is out of her suffering and pain now.
Maybe it's just me....
I have a friend - a lady a few years older than me, who calls/visits every few months. She is the same friend who, when I was in the hospital last year, unable to eat and vomiting uncontrollably, that told my husband I might be making myself throw up - an absolutely ludicrous notion. Anyway, this friend came over yesterday…
Stage 1C GR 2 Clear Cell Recurrence
Hello, Just thought I'd give an update on what's going on with me. First some background. I was originally diagnosed with OVCA Clear Cell Stage 1C Grade 2 in August, 2009. Had complete hysterectomy, usual chemo protocol of 18 weeks carboplatin and taxol. Have been happily enjoying remission for about 1 year. My last CA125…
What next?
I was getting up this morning when my mom came to my door and said we have a flood. Evidently she had flushed the toilet, gone to sit in the living room and didn't know it was overflowing until the water reached the living room. We started throwing towels down but soon ran out. We got out the wet/dry vac but it was missing…
More on Angelina Jolie
I have no idea how accurate this information may be, but here is what I found, regarding Angelina Jolie and how we might contact her. Angelina Jolie's Manager: Geyer Kosinski Media Talent Group 9200 Sunset Boulevard Suite 810 West Hollywood, CA 90069 Phone: 310-275-7900 Angelina Jolie's Attorney: Robert Offer Sloane,…
Does anyone have the BRAC-1 or BRAC-2 Gene? How about stress, do any of you lead very stressful liv
My grandma on my dads side passed away when she was 44. She had breast cancer. I've got two older sisters, 4 Aunts (from my dads side), about 5 cousins (2 are a few years younger than I) and none of them have this diagnosis. I am somewhat angry because I've got two babies to raise and my quality of life is so diminished. I…
I feel so ill
Hi everyone Just thought I'd drop a line to say...............OMG Caelyx (Doxil) is so harsh. I am feeling pretty bad. It is 5 days since my 1st infusion and I have never felt so ill before in my life.I was OK until day 4 so I didn't take any anti-sick tablets. When day 4 came along I felt sick and had diarrohea. I am not…
Has anyone known of anyone trying Insulin Potentiated Chemo. for reocurring plat. resis. Primary Per
My mother is in bad shape here in Atlanta and I am looking to try something out of the box. Tyler
Best second round treatment with least side effects...........
My mother was put on Topotecan about a month ago which ended up putting her back into the hospital. Her CA 125 is around 1900 and she has fluid in the lungs which had to be drained and fluid in the kidneys that had to be drained and a possible intestinal obstruction.......She is supposedly platinum resistant now. Please…
Gync/onc visit
Saw my doctor today for my first official since last chemo in July. She said everything looked good but ca-125 up from 7 to 21. She doesn't seem to overly concerned but will keep an eye on it, next ca-125 will be in Jan. I asked questions that I wasn't able to ask before, I liked the answer to some but not to the others.…
meeting Lisa13Q!!!
Just wanted to let everyone know that Lisa13Q and I had the chance to actually meet in person yesterday in the waiting room of the chemotherapy center. Our visit was brief, just a few minutes long. I could have stayed there all day talking!!! Hopefully we will have our visits cross paths again so we can meet. Best of luck…
Stage 3C - Metastasis"on" my liver Anone else have this on the liver?
I was diagnosed with Stage 3C back in May 2010. Had the surgery and on my last round of chemo. I had 3 tumors that were slightly larger than 2cm that the surgeon left. I was told that they would shrink with chemo. Does anyone know of anything pertaining to the liver and ovarian cancer? My liver function is normal and the…
Update on my niece
My niece was supposed to have a colonoscopy yesterday but had a violent reaction to the liquids the night before and was rushed into Accident and Emergency at the hospital. My brother and family spoke to the Consultant today who advised them that apparently she has a large mass blocking her colon and it is too far up for…
More chemo for me, Gemzar this time
My MD wants to start me on Gemzar next week. He said 3 weekly infusions, then one off. Wow, that little dance with NED was short! Well, maybe this drug will do the trick.
anyone get osterporosis from chemo
i now have osterporis where the chemo leached all the calcioum from my bones, anyone else having this problem please if you have had chemo make them do a bone scan on you
Stage 4 Ovarian Cancer Prognosis if surgery before chemo is not an option?
Hello there, I am new to this site. I feel blessed to have found it as we are seemingly running out of options. My mother-in-law has Stage 4 ovarian cancer. there we no signs of anything this past May, but in August her poor organs are covered. She is unable to have surgery due to some very severe past complications with a…
Lousy Dreams
I felt like I was dealing with the cancer DX, blood clot injections and upcoming Chemo pretty well. Eating well, sleeping well and getting moderate exericse do the degree I could being 3 weeks post surgery. Then the last two nights I started to have very troubling dreams. Not nightmares but still waking up and leaving me…
ALOHA FROM HAWAII
Aloha everyone, My name is Catherine. My mom was diagnosed with ovarian cancer a few months ago and was removed and caught on the first stage. However, she was been feeling some bad back aches and other joint issues. Well, she is now in Hawaii for a medical referral and just got labs back from her doctor and was told that…
Progress for Linda
This has been a toughie treatment regiment like any other (this is our third go-round) for my wife Linda. Cisplatin knocks her low and the followup taxotere makes her queasy and weak. But we go along doing the best we can. Yesterday was a low point emotionally for her as I could not actually stay with her for probably the…
Dodged another bullet
Well girls, had a scare. Had to go in for another pelvic "inspection" and CA125. Turns out I pulled a muscle (slightly) but enough to set up the alarm pattern. All turned out ok-pelvic was good and CA125 dropped down again, now at 5. Got the go ahead to head down to our winter home (Fla keys) I then continue with an…
AZ Grandma????
Anyone heard from AZ Grandma? She had been NED for several months, last I remember, but was having some weird stuff going on with her CBC counts. I hate it when people just seem to drop off the edge of the world! I have put my contact info in my profile, so if I disappear you guys come looking for me, okay? Carlene
Sister went to hospice today
sad day for us today, my sister was taken to hospice and is not expected to live more than a day or two more. Thanks to all who have prayed for her and for our family
New Here
Hi everyone, I just joined up today. Am working on reading through posts, but wanted to post and get involved in the community. I am 44 yrs old, I was originally diagnosed with fallopian tube cancer actually, but the docs say it's rare but basically the same as ovarian, and that is how they are treating me. I was diagnosed…
I never liked the way NED danced anyway!
Hi all, I don't post a whole lot, but 'am sad today. 'Was diagnosed 3C Sept. 2008, extensive debulking, 8 rounds of carbo/taxo, an extra surgery for bowel obstruction 11/09, and a year of taxol maintenance, 'finished in June. In June 2010, 'had a CT and was declared NED... WELL, I went back for my 3 month checkup last week…
I am dancing with Ned
Went to my surgeon today to have my port removed. He had a bit of trouble because my body had built up a protective webbing. Dr said your body wants to keep it. I told him I like to save things. He laughed. He had quite a time and said your body is really holding on to it. I told him it was probably because he took so many…
Suggestions please!
Hi ladies, I was thinking! (dangerous I know!) In the uk , (don't know if it got to the states) a few months ago someone started a game on Facebook, to raise awareness for breast cancer , like we need it!, anyway the game was done through inboxes and involved ladies putting the colour of their favourite bra as their…

Ovarian Cancer

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