Newbie with a crazy question

sasha_jax4

I had MRI on back, found 3.5 cyst on ovary and kidney. Had US and CT. Tests concluded kidney cancer likely and healing currently from surgery. Cyst on ovary tests were disputing a bit US made ovary cyst sound run of the mill and ct made it sound like a problem. Gyno not concerned because I have pcos and fibroids. Periods, pain and ovulation pain have all been worse. My question is how do I get a yes it’s cancer or likely it’s not? What test is that? I have known people with various cancers that were too advanced by diagnosis for a positive outcome. I know ca125 is a test, but is not accurate. Is that what I have left?

Any input would be helpful.

abrub

Biopsy

My cyst on my ovary turned out to be a metastasis from Appendix Cancer; the cyst on my kidney has been nothing (remains unchanged after 10 years.)  You may want to ask about a biopsy or removal of that ovary.

sasha_jax4

What makes them willing to do biopsy?

What makes them willing to do biopsy I guess would have been a better question for me to ask?

abrub

Emphasize your concern

Or ask why they are not confirming with a biopsy.  I'd been complaining about issues for several years before my gyn did my hysterectomy which found my cancer.  I think he felt bad because in retrospect, he realized there were things he should have caught.  However, I'm glad mine was found when it was, because I ended up getting connected with the right doctors, which might not have happened a few years earlier, and I know that the cancer had spread MANY years earlier, well before there was enough evidence to indicate a need to investigate.  (I always had ovulatory pain, so severe pain in my right side was nothing unusual.  Thus, we never knew when my appendix actually ruptured and spewed out the cancer.  At my hysterectomy, it was fully re-healed, with no indication that it had ever ruptured.  My cancer would never have been found before the rupture anyway.  If he'd done surgery sooner, the tumor might not have grown enough to be recognized as such, and I wouldn't have been treated.)

That said, ask your dr why they are comfortable without doing a biopsy.  You also have the right to get a second opinion, from a dr not affiliated with that same medical group.  

sasha_jax4

Ca125

my GP is drawing a ca125. I figure it’s a start to see how high or low I am. I know it’s not 100% accurate, but if high then I have good grounds to request biopsy. Thank you for everything!

LorettaMarshall

sasha_jax4 said:

Ca125

my GP is drawing a ca125. I figure it’s a start to see how high or low I am. I know it’s not 100% accurate, but if high then I have good grounds to request biopsy. Thank you for everything!

Sasha~Have sent U additional references on separate topic forum

Dear Sasha – I’ve sent you an answer on line here:  https://csn.cancer.org/node/313687

 I put it on a separate topic so others who always have the same questions as you are having now can be helped as well.  These will help if it is determined that you indeed have Ovarian Cancer.  I didn’t mention “kidney” cancer, so the diagnosis could well be “kidney cancer with metastasis to the ovaries” but we certainly pray not!  Sounds like you’ve not been given any certainty at this point as to what your actual diagnosis is.  We hope you’ll find all the answers soon.  When I have a CA-125 test, it usually takes two or three days for the results.  So you may not know the moment you go in for the test, what the actual number is.  But that’s only a part of finding the problem, so we wish you all the best. 

 You’re young and have 4 little lives who need their mother to be healthy.  So you have to “get to the bottom of these problems ASAP. 

 Love Loretta

 

sasha_jax4

Loretta thank you

thank you Loretta. I read your very informative post. I will follow the research links. I so appreciate the caring and wealth of knowledge you offer. Just getting through the kidney cancer and having 4 little ones is a lot. I’m hoping the ovary is a false alarm, but I must make absolutely sure. Thank you!