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Decadron side effects
I have been given decadron steroids before chemo and was concerned about the side effects such as the sleeplessness, "moon face" and weight gain. Have any of you experienced such side effects? I talked to my doctor about it, and they agreed to reduce the dosage, but I'm still concerned. Any advice?
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Stage 3C Ovarian Cancer
My mom got diagnosed with Stage 3C ovarian cancer (age 54) on December 21st, with spread to the omentum with ascites with one lymph note involvement. Per doctors recomendation, my mom completed neoadjuvant chemo before surgery (4 rounds of dose-dense of taxol and carboplatin). Symptom wise she has been great, with the only…
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Low grade serous cancer
Hi Folks, My wife is 59 and has been diagnosed with recurrent metastatic low grade serous ovarian cancer. She had borderline ovarian cancer 38 years ago and ended up with congestive heart failure (cardiomyopthy) due to the chemo treatments in 1979. It is my understanding that this low grade cancer is very chemo resistant.…
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Clear Cell Carcinoma-How frequent to get CT scan
I was diagnosed with stage 1 ovarian cancer, however it is clear cell which apparently is more aggressive and does not show up on CA-125. I am finishing my last round of carbo-taxol on Feb 21st. I have a CT scheduled for March 8th but wanted to know if anyone knew how often I should get one since the only way to find clear…
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Blood Count Problems
Hello everyone! While I have been an avid reader of the discussion board, this is my first post. In December, I was diagnosed with stage 1C ovarian cancer and stage 1 uterine cancer. I have had two surgeries and 3 doses of chemo thus far. My chemo has been on hold for 3 weeks due to low ANC and platelets. I will be…
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Snajada~Am choosing 2 answer U here since U R writing on a very old post that's not very active!
Dear Mike: So that others might see your letter and respond, I am putting it here on a new topic forum all your own. I see that you have written before, but you haven’t received a reply. That’s because you answered on a topic line that began 8 years ago, and most on that link have not posted recently. I see that there have…
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need help
my mom , has ca 125 - 156 .. doctor is saying its suspicious .. although ultra sound is saying "there is heterogeneous SOL measuring 8.0X 5.6 cm seen in operated bed posterior to urinary bladder -likely mitotic in nature. mimimul free fluid is seen in the pelvis ". CEA IS 1.41 COLONOSCOPY - NORMAL i m very tense and scared…
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LYNPARZA~A separate reply 2 "PandaGypsy" re her upcoming treatment if she can afford it! + video & p
Dear “PandaGypsy” ~ I read your very post here at this link: https://csn.cancer.org/node/309418 Since I had no personal experience “firsthand” with Lynparza I didn’t respond. However, I have had “first hand” experience with having my “omentum” removed, but that wasn’t your question. I see on your “about me” page…
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Side effects
Hi All, im a care giver to my mother who was diagnosed with Ovarian Cancer Stage 3. She underwent an 11 hour surgery on January 31 where they removed organs and cut the pancreatic tail. Since then she has had diarehha everyday and it's caused her to get dehydrated pretty regularl. We've needed to take her back into the…
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Has anyone had Doxil start working after 5-6 rounds?
I just had round 6 of Doxil. My cancer has been stable, even though I'm feeling better. This last infusion (round 6), my CA-125 started to fall. I'm supposed to start with a new doctor in April (my husband is in the military and we are moving to a new state). My other doctor would like me on a clinical trial. Here are my…
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Lucky4thtime~Am putting your inquiry here so others will be sure 2 see it
lucky4thtime Posts: 1 Joined: May 2017 May 14, 2017 - 9:38 pm Hello--anyone taking Avastin and Abraxane ? This is my fourth go-round with ovarian cancer. A rare, spontaneous metastas--a tumor-- popped up in in the upper lobe of my right lung, out of the blue. My last go round was 2009. The surgery was terrible: I…
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Newly diagnosed
I had a hysterectomy on Tuesday because of my right ovary being the size of a football. The doctor came in yesterday to talk to me, it was Mucinous Carcinoma (spelling?). Obviously we won't know the stage or grade until all the pathology is back. She said she is fairly sure it is stage 1 but the cyst leaked while they were…
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Stage IV recurrence/chemo not working
My mother is undergoing chemo treatement for a recurrence. Has anyone with Stage IV cancer (with a recurrence) experienced multiple chemo failures? If so, what did you do? Did you try biological therapies, angiogensis therapies, etc..? How long have you been fighting the recurrence? Thank you. ALS26
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Enrolled in Hospice today.
Hoping for help with symptom management (pain control and shortness of breath). And support for my family. We'll see how it goes.
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Having surgery in a few days...very scared!
Hi everyone, I'm having a complete hysterecomy in a few days, and I can't shake the anxiety and fear I have. Maybe others on here have experienced this before. If so, what did you do to calm yourself. To be honest, I'm more afraid of waking up with a breathing tube down my throat. I'm terrified of that! Anyone experience…
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Omentum
My mom has a small mass in her omentum. CA 125 levels are 229. No visible tumors in the ovary or any other organ in the body. Dr. says he feels something in the pelvic area after an exam. All other bloodwork is clear. CT scans, sonos, xrays only show the small mass in the omentum. Knowing that it cannot be primary in the…
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Symptoms and Screening
Hello everyone, I felt it was important to join CSN to post my experience with the hope that I can provide some good and useful information. A little bit about me. I am the mom of two young boys (ages 2 and 4). I had my boys at the ages of 45 and 48 (via donor egg). I am now 50. According to the criteria, I am at average…
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Recruitment begins for world's first ovarian cancer vaccine trial
If any of the women are interested - I wanted to pass along. Clinical trial candidates are women diagnosed with advanced stage III or IV ovarian cancer who will have traditional surgery where tumor samples will be collected for vaccine production, followed by standard chemotherapy. If cancer-free after traditional…
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New Caregiver to my mother
My name is Tenzin, and my mother has just been diagnosed with OvC Stage 3C. She's had the tumor debulking surgery and Chemo starts next week. My father is infirm with diabetes and arthritis, so I'm now the primary caregiver for both parents. If this isn't an argument to avoid having only one child I don't know what is!…
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My journey - dose dense carbo/taxol week 1/2/3/4/5/6/7/8/9
I appreciate reading the experiences of others, as it has given me a feel for what I might experience on my journey. I am posting this as a summary of my experience recognizing that everyone's experience is different: on 17 Jan 2017 I received the news that I have ovarian cancer (clear cell carcinoma). 1Feb I had a…
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Anyone here ever have a complete hysterectomy?
After chemo and an updated CT scan, I will be scheduled for a complete hysterectomy. Apart from having cancer, I have huge uterine fibroid tumors. I wanted to know what to expect. I'm a little afraid of the unknown. What did you experience? I'd appreciate any feedback you might have. Thanks in advance.
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Might be lying.
Hello, thank you so much. Please read all! :( I have someone close to me who is really making me concerned. This might be a very long post. So, this person has had ovarian cancer for 2 years now. In the past 2 years there has been no difference in her state of being. It's someone who does not really get along with me…
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phantom ovarian pains
I had a full hysterectomy in July of last year and I sometimes experience really bad cramps. Has anybody else experienced this first hand? My oncologist told me that she has several patients that have expressed the same pain. Does it get better?
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A Surgeons Surgical History
Is there a website that shows what type and how many surgeries a surgeon has peformed?
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Fear of Recurrence
Hi, you can call me Bee. I was diagnosed a year ago today. Today was a really tough day for me and I was wondering if anyone had any advice on how I can deal with the fear of my cancer of coming back. I was diagnosed on March 11, 2016. I went through chemotherapy from May to July and I'm happy to say that I'm much better…
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Good News :)
It's been a rough few months. I lost a friend to triple negative breast cancer. The day she passed away I "felt" her with me. While my CA-125 is dropping! In February it dropped 5 points, in March it dropped 40, today it dropped another 4. It's still elevated, but falling. My doctor thinks two more infusions of Doxil then…
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Neoadjuvant
Hii, This is ankitha, recently my mom diagnosed with an ovarian cancer, she is at her monopouse and her age was 47, she doesn't have symptoms, once she had slight pain in abdomen so went for checkup immediately, then the tests reveliled that she has ovarian cancer...It's a schok for us no family history of any kind of…
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High Dose IV Vitamin C
I have been touting this for years, since it served me well when I was in treatment. Now it's in clinical trials. https://www.eurekalert.org/pub_releases/2017-03/cp-hdo032317.php
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Alternative treatment options
hi! I just got diagnosed with ovarian clear cell stage 3B, I had a debulking surgery and I am looking to ask if anyone has tried alternative treatments and their experience with those? thanks to you all
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Breathlessness?
I am slated to have the start of round 3 tomorrow (dose dense carbo/taxol)... and I feel like crap. I have no energy and if I climb the stairs from the basement, I am out of breath. I have no temperature and no swelling anywhere. From another forum, sounds like my blood counts really dropped (they were low last week, but…