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Good News...
I just found out that I have been matched for a clinical trial. I don't have many details, but I'm pretty happy about it. My next doxil infusion is next week, so I don't know if they'll keep me on Doxil, or place me on the new drug. I'll post when I have more information :) .
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color of ovanrian cancer ribbon
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Alexandra
Yesterday, Feb. 15, 2016, we lost our beloved Alex. Peace be with you my dear friend. I love you Alex.
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Carbo Taxol 3 week cycle experience?
Hey folks, Most of the carbo-taxol regimens I've read about appear to start with carbo-taxol, then weekly taxol. I'm getting carbo-taxol in a single large dose then will get three weeks rest. And I'll do this 4 times. Have any of you have the latter regimen? What were your side effects like and how long did it last? I just…
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New Resource
https://www.amazon.com/Healing-Platform-Build-Your-Cure/dp/0692759891/ref=sr_1_1?ie=UTF8&qid=1486919944&sr=8-1&keywords=the+healing+platform A new book about integrative oncology.
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Anyone Tried A Keto Diet?
Hi all, I'm 1 year into my diagnosis (as of later this month). I have grade 3c low grade serous carcinoma of the ovary. Slow growing, chemo ineffective. I'm wondering if anyone here has tried a ketosis diet? I've heard it's a good cancer diet as it starves the cancer of the carbs it needs to grow. Any successes? Any find…
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The Wait...
Well, last week and this week have been exciting. On Monday evening (which was day 16), I started having cramping, which turned to nausea, vomiting, and diarrhea-- lovely. I ended up taking zofran and compazine for Tuesday (after consulting with my doctor. Then on Wednesday, I had a CT scan, which contributed to cramping…
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Fort Worth
Any members in the Fort Worth area? Trying to connect with Gyn survivors.
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Private Message Spam
Hello everyone, Thank you to all of you who have alerted us to the PM spamming from earlier today. I apologize for the inconvenience. While we do have securities in place, we are not always able to catch all spam, and we are trying to figure out how this one got around our system. If you received a message from jegac1…
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Question about time left to live
My Aunt has stage 4 Ovarian Cancer which has spreasd. The CT Scan convinced the doctirs to stop chemo. I would like to know HOW LONG can you live without Chemo. Does anyone know a TIME RANGE? Thanks
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5.3 mass on RT ovary..CA125 40 & OVA1 6 No idea what I am looking at....
Okay...I have been having OVCA symptons for over 4 years and the last year has been pretty intense. I have been to 4 specialist and spoke to my OB-Gyn on numerous occassions about my concerns. I have been referred to psych to help with anxiety instead. FINALLY, I went to a new OB last week, told her my usual symptons and…
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Survivors Needed!!!
I have a dear friend that is battling stage 4 cervical/ovarian cancer for the third time and it has just spread. She is young and vibrant and an amazing human being. She hasn't left the hospital in over a month and is feeling down and losing hope. Are there any Survivors on here in the Los Angeles area that would be…
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Ovarian Cancer & BRCA1 Positive Mutation
Hello everyone! I have read so many stories of you brave women who fight daily and still find the positive!! So here is a bit more positive to share! My Sister was Diagnosed with OV Cancer Stage 4 in July, she just had her last Chemo yesterday and is doing great!! She was tested for gene mutations and came back positive…
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Muscle pain after radiation
I finished 30 radiation treatments for ovarian cancer in December. A few weeks later, I developed pain deep in my buttocks. Recently learned it is probably piriformis muscle. Have had PT for past two weeks and pain persists - can't walk w/out it. Noticed on another forum that this could be a side effect of pelvic…
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Muscle and joint pain after chemo
i am 3 weeks post chemo. I had 18 chemo cocktails, six rounds - carboplatin and taxol and then 2 weeks of just taxol, and then start all over again. I experienced terrible neuropath, it was so painful I thought my fingers and toes would fall off. The last month knocked me for a loop. I had problems with low white blood…
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One year ago today...
One year ago today, I was officially diagnosed with cancer. I had gone in for a routine appointment, and they ordered an x-ray. On the x-ray they found fluid on my lungs. I was sent to the ER to have the fluid drained. They thought I had pneumonia. I was given a CT Scan, and the radiologist noticed a small spot near my…
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After Chemo Steroids....
Hey all....I have had 2 of 6 treatments. Each time they pump me full of steroids during the infusion and the side effects are a red face and INSOMNIA. I have never taken the oral steroids that are prescribed for the 3 days post chemo. Does anyone know what the purpose of these steriods are? If it would lessen the bone pain…
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Update...
I just had my fourth infusion (about a week ago). My CA-125 is still not lowering, though my symptoms are lessening. I still have fatigue-- though I am in chemotherapy, so it doesn't really surprise me, and the aches are the weirdest things. My aches/pain seems to move to different parts of my body each round. At first, I…
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Talcum powder causes ovarian cancer?
Hi, I recently came across this article that caught my attention, http://thelawfirm.com/talcum-powder-lawsuit/. Is this really true. I have been using talcum powder since quiet some time now. It is said that there is an association between talcum powder and ovarian cancer, and it may increase the risk of ovarian cancer…
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Atlanta GYN Oncologist
I need to find any onclogist in Atlanta who takes care of ovarian cancer. I was referred to Dr. Joseph Boveri at gyn Atlanta and didn't like him. Are there any doctors who are compasionate or this doesn't happen anymore?
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Neoadjuvant chemo effectiveness
My mom is diagnosed with ovarian 3c (we are still in shock coz she's supposed to be the healthiest & fittest in the family) is advised 3 chemo-surgery-chemo.Now she's done with first chemo & her stomach is still distended. Anyone with Neoadjuvant chemo had this experience? Did the tumour start shrinking from first chemo…
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Ovarian Cancer and Diet
For some reason, many patients do not want to hear that if they make some lifestyle changes, it may reduce their risk of cancer, recurrance or even help fight cancer. But for those who are interested this sounds like a very interesting trial, which focuses on the approach I have been taking with regard to my diet.…
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Daughter has questions about moms dx
my mom was just dx with ovarian cancer in December she had her first chemo tx six days ago and is having trouble with legs cramps and coNstipation..... what can we do to help her over this obstacle?
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questioning my decision for hysterectomy
so my surgry is Dec 15 and they need to take ovaries and tubes. The uterus and cervix were 'optional' (unless of course they see something when they open me up). I agreed for them to remove them for three main reasins: (1) so I can take HRT as I have BRCA, (2) I have adenomyosis, and (3) I don't heal well so thought I'd…
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I have some good news :)
I went for my fourth appointment. The doctor is going to go ahead and give me the fourth Doxil treatment. He thinks that if my CA-125 doesn't go down that it's likely from scar tissue or any number of things. He said that if my cancer was progressing, I would be a whole lot sicker, instead of getting better. He is going to…
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Low WBC
Is it normal to still have a low WBC one year after chemo completion? I am trying not to worry before my repeat blood work in two weeks
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One More Doxil Question
I'm just curious... If you achieved NED on Doxil, how long was your NED? I have very few symptoms after starting Doxil and my pleural effusion has cleared up, and remained clear.
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Happy Holidays-- small update :)
I had my third appointment for my recurrence. My third round of Doxil is Friday. Just minor mouth sores, that's it. My CA-125 "ticked up" a bit. I "look" good according to the doctor. My pleural effusion is finally GONE (like completely gone), he could not find my largest tumor, and no more fluid near my liver (that he…
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Nivolumab(Opdivo) for ovarian cancer
Has anyone gotten into a trial or used this drug off label for ovarian cancer? My mom has stage iv ovarian cancer and we are thinking to try this immunotheraphy drug for her. It is FDA approved for a few other cancers and I know it's in trials for ovarian and other cancers. Just seeing if anyone has tried it or known…
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Needing your opinions, please?
I'm new to this forum and have already gained a wealth of knowledge regarding my situation. I'm 57 years old and had a hysterectomy 30 years ago, but still have my ovaries. In the last few months I've experienced cramp-like symptoms in my right ovary that extends across my pelvic area. In the beginning I thought it was…