-
New to everything
Hello everyone. My name is Trishell. I was diagnosed with stage 3c ovarian cancer two weeks ago. I don't know anything about cancer or what is going on with me. I had extremely bad abdominal pains and after several diagnoses and ER visits, I was told that I needed surgery for a total abdominal hysterectomy. It was after…
-
How do i help her with this?
Hi Ladies, My Mom (Saundra although she goes by Sam) is having a very difficult time with her diagnosis/prognosis. How do I help her with this? She was told in September that she has one year to 18 months. How do I help her with the fear of dying and the fear of the unknown? I have talked to her about her wishes and I have…
-
Has anyone done Topotecan chemotherapy
Hi, I was wondering if anyone has had Topotecan chemo treatments. What I'd like to know is were there many side effects, how was it tolerated, was it by IV, I noticed that there is also a pill, although I don't know if it is approved for ovarian cancer. Anyway, any information that could be given would be greatly…
-
New, 31 with Stage 3C OC
Hi Everybody I am new to this site and it looks like there is a bunch a wonderful women here. This whole situation has been horrible. My gynecologist misdiagnosed me thinking that I had dermoid cysts on my ovaries. Even with an MRI that showed some lesions she said she didn't think it was cancer and even reassured me that…
-
Carol848 - How is your sister?
Hi Carol, I've been hoping you would post and tell us how your sister did in surgery at MSK on the 15th. Please check in with us and let us know. I have been thinking about the two of you and how difficult it is in the beginning. Hoping for the best. DB
-
Interperotonial Taxol chemo?
Mom's doctor suggested a phase one study with the interperotonial (sp?) nanoparticle of Taxol. Does anyone have any information on this at all? She's 78 and has undergone 6 taxol/carboplatin rounds and is now going to have surgery. The IP chemo would be after surgery. She had extensive ascites. Would appreciate any info…
-
A question for Monika (Mopar) or anyone else regarding flax seed and fish oil.
Hello, This question is for Monika (Mopar) and anyone else who might know more about the benefits or risks of flaxseed for ovarian cancer. Please correct me if I'm wrong, Monika you said that flaxseed as related to estrogen should not be used? Can you or anyone else expand my understanding as to the risks or benefits of…
-
Science/Nutrition Lesson?
I've had four treatments of Doxil, and thankfully the tumors are getting smaller. Out of the blue, I had a vivid mental image of a bunch of dead cancer tissue floating around inside me. I know that the miracles that are our bodies "clean this all up" somehow. But I'm ignorant about how. What are some trustworthy resources…
-
Cytoxin ever affect anyone's WBC? I have to take 2 weeks off of it now.
I have been taking 50 mg Cytoxin daily, combined with an infusion of Avastin every 2 weeks. I had my 4th Avastin infusion today, but only was allowed to get it contingent on coming in tommorow for a Nuelasta shot. And I was told to NOT take the cytoxin the next 2 weeks to see if my bone marrow recovers without it. I was…
-
TEAL WARRIOR MEETING
KATHLEEN HAS BROUGHT UP THE IDEA OF A TEAL MEETING....SOMEWHERE...IN THE MIDDLE...I AM WILLING TO OFFER MY HOUSE UP AS A TEAL MEETING PLACE....WE LIVE IN A WOODED AREA AND HAVE A 4400 SQUARE FOOT HOUSE...WE HAVE THREE EXTRA BEDROOMS DOWNSTAIRS, A SAUNA, AND 2 EXTRA ROOMS UPSTAIRS THAT WE COULD CONVERT INTO ROOMS AS…
-
DEBULKING SURGERY TUESDAY, MAR 15
I have been reading this board snce mid Februray when it was suspected my twin sister had ovarian cancer. She will be having the debulking surgery at Sloan Kettering on Tues, March 15; I am so scared; we are 62 years old and very close. They suspect it may be in her lungs and/or liver. Please keep her in your prayers. This…
-
Partial Remission Vaccine Trial?
Thank you for your your reply Nancy, you are in my thoughts often! Could you give me any guidance as how to find to the vaccine trial you mentioned? I know that Carlene and Linda gave information about how to research trials going on, but unfortunately I can not recall where their posts were. Thanks again, Christine
-
Question for Wendy about colostomy and best wishes to Paula
Hi Wendy, Your mom's experience with the smell of changing the colostomy bag and the frequency of changing it is much like mine. Could you tell me the name of the biological eliminator spray she uses? Also, with changing the bag so often I have found that I would run out of my monthly supply unless I use the drainables or…
-
abraxane
hi, i had 3 treatments of carbo/taxol, but my onco change taxol to abraxane, to minimize body ache. just today i had my treatment #4- carbo/abraxane. do not know what to expect. please let me know if any of you had experience with abraxane. side effects? thank you victoria
-
Tiredness
As you ladies are probably aware I finished my treatment (18 weeks dense dose Taxol, every 3rd week Carbo) Dec 8 2010. I actually feel worse since finishing treatment than I did during it and certainly worse than I did before dx! I am soooooo tired nearly all the time, I work 3 days a week, near my home so I don't have to…
-
Thanks to all who wrote my mother.....
I printed them out and put them under her door so she could have them when she got up this am, and she was so delighted....she has kept them and read through them a couple of times today.....I can't thank you enough as it truly has elevated her mood.....on top of that, the doctor's office called to tell us he CA-125 has…
-
Nutrition question
Hi ladies! My oncologist told me that my cancer is very very very reactive to estrogen which is why I can't be on any hormone replacents. But my question is do you think I should cut out foods that have natural estrogen? I was googling foods that are naturally high in estrogen and they are all healthy foods that I love.…
-
Your opinions please
My 79 year old mom was dx 3 years ago stage IIIc ovarian cancer (by accident)had surgery, chemo. now 3 years later onco says CA 125 has risen to 49 - 39 next test. areas lite up on PET scan. We now have another appointment with surgeon. Family doc says she is not a candidate for more surgery. Chemo and surgery from 1st…
-
Mom had ? about post surgery
Hi everyone. My mom is 74 and was diagnosed with stage IV ovarian cancer on Jan 15th. She had a full hysterectomy (ovaries,tubes,uterus), and a bowel resection (about two inches) where the tumor had wrapped around it. The procedure was preformed on Feb 9th and we (brother,sister and I) had her back home on Feb 17th. She…
-
would some of you write some encouraging words to my mother
She has been doing great until this last round of taxol...it has knocked her on her butt! She needs a break...Her CA-125 has gone from 136 to 104, and her blood counts have held their own, they are low, but not transfusion low....the past few days she can't do anything and is feeling discouraged.....and anxious....I go…
-
CA-125 Help!!!!!
I now this may be a very supid question but I just received my ca125 results and it has gone up from 7 to 9 and I know that is normal range up if it is going up does that mean the cancer is coming back--I have been done with chemo for 1 year now and was just VERY scared. Lately have been feeling very warn out so I am…
-
OPINION ON ELEVATED CA125
Hi all you wonderful ladies and warriors! I'll try to summarize to give you some history: 2000 OVCA, 1C - surgery, chemo 2006 OVCA recurrance - surgery, chemo First dx the CA125 was 48. Since then, it ranges between 12 and 14, but as been as low as 8. The only way the doctor knew I had possible recurrance in 2006(no…
-
Low Hemoglobin
Has anyone else having or had problems with their Hemoglobin count being way low? My wife dropped 3 points in her red blood cells in two days. Symptoms of extreme fatigue, nausea, and dehydration.
-
Internal shaking!
Hi Ladies, Thank you again for answering my repeated questions. I am wondering if anyone else experiences trembling or shaking. Thanks again, Kelly
-
Just a quick question!
My mom has a cancer of unknown primary. However, her oncologist suspects that ovaries are the source due to her blood tests. She has had 4 sessions of radiotherapy so far to treat the lesions in her back that are pressing on her nerves. She will be doing chemo after she finishes radio next week. However, she had severe…
-
Types of Support for Ovarian Cancer
Hi Ladies, I have been researching and looking for varies types of support for medication, financial etc. and am not finding much luck. Are there programs out there supporting Ovarian Cancer? Most of what I came accross supported nearly everything but our's. Any input would be greatly appreciated. Thanks and God Bless,…
-
Neuropathy
Hi ladies , Right mum is complaining of a cramp like feeling in her hands and ankles , is this neuropathy ? And what do suggest we do ? Icepacks? Thanks Liz.
-
PPC vs UPSC
is there a difference? I'm trying to keep up with everything on behalf of my sister whose initial diagnosis was serous carcinoma of the endometrium, stage IVB. She went to MDA for a second opinion which validated the first. I will have her ask for the written diagnosis from MDA, but in the meanwhile, can someone unravel…
-
I AM STILL DANCING WITH NED
Praise God I am still cancer free, God has answered my prayers yet again. I will no longer have to get PET scans unless my blood counts start to go up. I can now get my port taken out of my chest and be back to normal again. God bless you all for praying for me and my family Hugs Lynda
-
Clarity Foundation
I found this on another board and thought I would put the information here for anyone who might be interested. I have heard of blueprinting tumors before and it sounds like a good idea. Keeping everyone in my thoughts and prayers! Kathryn For Patients There are just over 20,000 women diagnosed with ovarian cancer in the US…