Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Ovarian Cancer

extreme fatique from carbo/taxol
hi, i would like to know if anybody else had extreme fatique from carbo/taxol. i am half way - 3 treatments down, 3 more to go and fatique and neuropathy getting progressivly worse. Fatique is killing me, especially being high energetic person on regulat basis, i feel like a log, can not do anything, even write an email…
carbo/taxol
I get taxol weekly and cabo/taxol every 3 weeks. I was really nervous before I started this treatment up, this is my second round of chemo, first time was more extensive. I was 2 weeks on and 9 days off for 18 weeks and did really well. This time I'm only once a week and am feeling scary good, I keep waiting for the other…
Dreams/Nightmares
Ok...so I've been a lurker lately. Things are going well for me. In January, CA125 was 13. However, for the past week, I've had nightmares every night, nightmares about the cancer returning. Last night, I dreamed that I was in the waiting room of the hospital and the nurse called my name. I couldn't hear her, so I called…
Well....here's something I think I can handle
Drink a Second Cup of Coffee It might lower your risk of adult-onset diabetes, according to a study in the American Journal of Clinical Nutrition.
CA125 160 with clear PET/CTscan
Any thoughts on having a clear PET/CT scan but CA125 is 160? My mom had a PET/CT scan done (3 week ago) and the gyn/onc told her you have NO cancer in there. Very encouraging, right? But her CA125 was 89 at the time and now it jumped to 160. Doctor didn't seem to concerned about it and told her she would see her in a…
Jayne Armstrong, may she rest in peace
Jayne passed away this morning - peacefully (thank God) - with her devfoted husband Jimmy at her side. Jayne was my hero. I am beyond sad, and frankly, I am scared. If it could get the best of Jayne, what chance do I have? Jayne's will to live was stronger than anyone's I have ever known. How cruel that I have plans to…
High Blood markers in the ovaries with no primary tumor there or anywhere else!
My mom had a back pain for two months before her doctor decided to order an MRI that showed tumors on her back bone that are pressing on the nerves and causing a severe pain. She was referred to a neurosurgeon who has operated on her back and removed some tissues. He couldn't remove everything because tumors were very…
Clean Colonoscopy & Need Help With Questions for Doctor
I finally had a colonoscopy yesterday, my first ever. I was extremely nervous about it because of the weird GI problems I'd been having since New Year's. I woke to hear that everything was fine, not even any polyps. I'm so glad I've got that taken care of! I'm having my 6 month check up next week, on the 15th, and have put…
Hope Line for Ovarian Cancer
I don't know if this info has already been posted but I thought I would share this from the ocrf.org web site. I noticed that that site has survivor stories and a tribute wall. 877-OV-HOPE-1 The Hope Line, 1-877-OV-HOPE (1-877-684-6731), is a free telephone counseling and referral service that helps patients and families…
Halfway thru the vaccine trial
I just got home last night and was sooooooooo happy to land in DFW's 70+ degree time zone. New York was cold, but then we went to Connecticut to visit family for a couple of days and it was FREEZING. So far I have had literally no side effects, unless you count a slight redness at the injection site, and even that's gone…
CT results
Mom got her results today. Her tumour has not grown but it has not shrunk since her initial diagnosis. They say this is good news but it is good news but i wish it had shrunk.
Any suggestions for aches and pains?
I had my last chemo on 9/15/2010. I feel great but am experiencing the aches and pains I know so many of you are. They seem to be getting worse. I take Tylenol when I go to bed but wake up a lot during the night because I have to change positions in order to alleviate the pain. I even dream about the pain if it doesn't…
The problem with CT scans
Has anyone considered that the recurrence rate of ovarian cancer might possibly be related to how the condition is followed by doing frequent CT scans? I read somewhere that (in Germany) once a woman has had breast cancer, she NEVER gets another mammogram. I think she gets an MRI or ultrasound but not ionizing radiation to…
anyone have carboplatin and gemzar and how have you fared??
i have uterine cancer, upsc, and am usually on that site, but it was recommended that i ask on this site, since maybe a number of you have tried this combination. i will be having chemo for my first recurrence after almost one and half years, and am wondering what your experience on this combo was during chemo, and if it…
Nutrition vs. Cancer
Here is some food for thought. My brother told he me he has listened to this on late night talk radio on how cancer cannot live in a body with a high alkaline level. Here is the link http://www.alkalizeforhealth.net/cancerselftreatment.htm Here is a tidbit of the webpage. Cancer and pH To understand why some tissues in the…
Back home from my break
Hi Loves, When last I posted I had literally cried on my ONC's shoulder and told him that I needed a break! I have been chemoing for 13 months for my 1st recurrance and I had HAD ENOUGH! He put me on prozac :) and gave me a month off. I return to my carbo/gemzar next week. This time off has done me a world of good. I went…
Weight!
I still can't figure out why I am not a size 4 with all that I'm going through! I initially lost about 15 pounds, but it has managed to creep up. Is it really crazy to think of joining Weight Watchers while on chemo? I can't imagine that I ever will be thin from cancer. I suppose I should be grateful I'm not a sack of…
Cisplatin
I was diagnosed with Ovarian cancer stage III in 2008 and at this point am considered "stable". My doctor has changed my chemo several times, due to some side effects or he felt it wasn't doing the job he felt it should. He now mentioned the use of cisplatin and am wondering if anyone has used it and what if any were the…
How much water during chemo?
I am on carbo/gem and had a problem last month with dehydration. I was told today I should be drinking 96 ounces of liquid. Is this correct? It seems like a lot. In the past, I have had to go in for extra bags of hydration. Thanks, Froggy
Response to Nancy591 re: Hives and Fragmin
I haven't been able to give myself the injection, I'm just really a chicken, so a member of my family gives it to me. We give it in the abdomen, but I do black and blue quite a bit, I guess mostly because I've been on blood thinners for well over a year now. I've even had to start using different areas for the injection. I…
What do I say when my daughter cries
What do I say when my daughter cries, says this is too much for her and her husband to bear and is scared to death that she will not be around for her three young children? I don't want to say the wrong things. Linda
Way to go Platelets!
My platelets were down as low as 20(10 is transfusion) and a week after that they are at 405! So, I was able to get chemo today. They reduced the dosage a little to see if I wouldn't tank so much. 'Will be interesting. But, it's good news that I rebounded so quickly. Thanks for all the good wishes. Ginny
Promising new OVC research on Gene Sequencing
OncoMap Gene Sequencing Finds 50 Mutations in Ovarian Tumors Elsevier Global Medical News. 2010 Nov 16, J Smith Mutational analysis using a Sequenom-based technique of ovarian cancer samples has unveiled more mutations than were previously known, and could become part of a personalized standard of care for these…
Jayne Armstrong is gone
For those who followed the blog of Jane, shopping karma, she passed away this morning. Her husband wrote a lovely note. She was one special lady. http://shoppingkharma.blogspot.com/
What does this mean?
I am a 50 year old woman and premenapause. I recently found out I have a couple of cysts on my ovaries one being simple and one complex. I have had the CA-125 test and was told it was normal but dont have the actual numbers. I did receive a copy of the recent ultrasound and it is below, it honestly is greek to me and the…
Dear Nancy591 How are you doing on Fragmin
Hi Nancy, read your postings and was wondering how you were doing. How are you doing on the fragmin. I saw my oncologist last week and told him that I was having alot of difficulty with the Fragmin re: pain and bruising. He said he might change me to Lovenox, but that's still the same thing, injections in your stomach…
set back for Angela
Haven't been here in a longtime. Busy with life as it is. Angela got thru all her chemo treatments. Her CA 125 has consistantly come down from over 5000 to now 26. It was 36 just after her last chemno in Dec, now 26. The problem is the CT scan show two lisions, one about two inches in size. The dr. says it is either scar…
Response to cfont11 and asking for prayers please.....
Hello, My story is something similar to yours..... I went into the hospital in September with fluid around the lungs, bloating, and throwing up. To make a long story short, initially the plan was to do the total hysterectomy etc. to remove everything, and a temporary colostomy for a blockage. However, only the omentum…
Blog: MSKCC doctor's wife has cancer
Thought some might find this link interesting. When the Doctor's Wife Has Cancer well.blogs.nytimes.com A doctor at Memorial Sloan-Kettering Cancer Center feels like a first-time visitor in his hospital after his wife receives a cancer diagnosis http://well.blogs.nytimes.com/2011/02/21/when-the-doctors-wife-has-cancer/
Latest test results
I had my 3 month check up today. Nineteen months out from surgery and diagnosis, My CA-125 is 1. My CT scan is clear. If you want to know what I am doing to keep things that way, see my post under the discussion "Boosting the Immune System" from January of this year. I'll be back in 3 months with my next update. Take care.

Ovarian Cancer

Discussion List

Discussion Boards