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Hissy fitz you ok?
Not seen you on here for a while, you are normally quite vocal!!!!! , hope you are ok?
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Dear Kelly H and Liz.......Moms
Dear Kelly and Liz, Thanks for your well wishes and thoughts about my mother....yes, I am ecstatic and want to offer some hope and optimism to you about your Moms.....The news we received yesterday was the first decent news we have heard in this 2 year journey.....The first.....Do not give up hope.....and remember, even…
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Anti depressants.
Hi ladies, I was wondering how many of you have taken anti depressants through this ordeal? I spoke to my sis , mum has stayed with her since her first doxil infusion, she is still feeling really tired and flu like. Catherine said she was very upset Saturday night, I am going to suggest anti depressants but I know she will…
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Rise in CA125 but CT scan shows everything has reduced
I went to see my oncologist for my CA125 results from #4 and my CT scan. He began by saying that it is good news. The fluid around my lungs is very small now and had reduced considerably from the previous scan. I had a soft tissue cyst in my pelvic area that had reduced in size by half. All other major organs completely…
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After de Vinci PSA .01 up to .06
Prostate was 86 grams - containing high quantity of cancer. Gleason score 3+5, staging pT2c, lymph staging pn1. Other Gleason values 50% grade 3, 30% grade 5, 20% grade 4. PSA @ surgery 9.3. Surgery evaluation (clear: bone scan, CT, margins, pelvic lymph nodes, seminal vesicles) & no bladder invasion. Post surgery report…
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What are the chances
Hi, I have been a member here at CSN for a few years due to having Follicular NHL and have been NED since Aug. 2008. A few days ago my wife went to her ob-gyn and found out that her right side ovary was enlarged. The Dr. said that it has to be removed to find out if it is benign or not. The Dr. I saw back in '08 told me I…
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Does anyone else follow Sarah's (Carcinista) blog?
God love her, she is hanging in there, but not doing so well. She is now on oxygen round the clock and feels like she is looking at the final act. Her spirit and sense of humor have not waivered. She is so courageous and her quick wit never fails to put a smile on my face. www.carcinista.com Carlene
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cunfuzzled in the final stage :(
as you all know we were engaged to be married ! this is bob on janes account . i have been at the hospital for 2 days with little sleep. jane told me yesterday her body was shutting down ! i am in tears typing this to you! i sat for hours on end telling her how much i love her and had our final talk with saying good bye to…
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The Verdict Is In!
All that worry about my ca125 going up, I thught it was nothing to worry about. Not so! Went to visit my son and grandchildren March 3rd. Had a heck of a time breathing and thought for sure the altitude had something to do with it (even though I have been to SLC many times before and never had a breathing problem). Came…
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New to the board
Hi! I am new to this board but I have been monitoring this board for some time and have really found it to be helpful. I have made previous attempts to enter blogs but they all got erased or at least I think they did so if I am repeating myself, I appologize. I had been having abdominal pain and GI changes for 18 months…
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Mopar----did you get the CA125 retested yet?
Mopar, I saw your recent post regarding the unexpected jump in CA125. Is everything ok? Did you get it re-tested? Perhaps the jump was a false read? Please let us know how the re-test results. I am sending positive thoughts you way for good results. In peace and caring. Cindy
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New to everything
Hello everyone. My name is Trishell. I was diagnosed with stage 3c ovarian cancer two weeks ago. I don't know anything about cancer or what is going on with me. I had extremely bad abdominal pains and after several diagnoses and ER visits, I was told that I needed surgery for a total abdominal hysterectomy. It was after…
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How do i help her with this?
Hi Ladies, My Mom (Saundra although she goes by Sam) is having a very difficult time with her diagnosis/prognosis. How do I help her with this? She was told in September that she has one year to 18 months. How do I help her with the fear of dying and the fear of the unknown? I have talked to her about her wishes and I have…
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Has anyone done Topotecan chemotherapy
Hi, I was wondering if anyone has had Topotecan chemo treatments. What I'd like to know is were there many side effects, how was it tolerated, was it by IV, I noticed that there is also a pill, although I don't know if it is approved for ovarian cancer. Anyway, any information that could be given would be greatly…
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New, 31 with Stage 3C OC
Hi Everybody I am new to this site and it looks like there is a bunch a wonderful women here. This whole situation has been horrible. My gynecologist misdiagnosed me thinking that I had dermoid cysts on my ovaries. Even with an MRI that showed some lesions she said she didn't think it was cancer and even reassured me that…
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Carol848 - How is your sister?
Hi Carol, I've been hoping you would post and tell us how your sister did in surgery at MSK on the 15th. Please check in with us and let us know. I have been thinking about the two of you and how difficult it is in the beginning. Hoping for the best. DB
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Interperotonial Taxol chemo?
Mom's doctor suggested a phase one study with the interperotonial (sp?) nanoparticle of Taxol. Does anyone have any information on this at all? She's 78 and has undergone 6 taxol/carboplatin rounds and is now going to have surgery. The IP chemo would be after surgery. She had extensive ascites. Would appreciate any info…
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A question for Monika (Mopar) or anyone else regarding flax seed and fish oil.
Hello, This question is for Monika (Mopar) and anyone else who might know more about the benefits or risks of flaxseed for ovarian cancer. Please correct me if I'm wrong, Monika you said that flaxseed as related to estrogen should not be used? Can you or anyone else expand my understanding as to the risks or benefits of…
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Science/Nutrition Lesson?
I've had four treatments of Doxil, and thankfully the tumors are getting smaller. Out of the blue, I had a vivid mental image of a bunch of dead cancer tissue floating around inside me. I know that the miracles that are our bodies "clean this all up" somehow. But I'm ignorant about how. What are some trustworthy resources…
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Cytoxin ever affect anyone's WBC? I have to take 2 weeks off of it now.
I have been taking 50 mg Cytoxin daily, combined with an infusion of Avastin every 2 weeks. I had my 4th Avastin infusion today, but only was allowed to get it contingent on coming in tommorow for a Nuelasta shot. And I was told to NOT take the cytoxin the next 2 weeks to see if my bone marrow recovers without it. I was…
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TEAL WARRIOR MEETING
KATHLEEN HAS BROUGHT UP THE IDEA OF A TEAL MEETING....SOMEWHERE...IN THE MIDDLE...I AM WILLING TO OFFER MY HOUSE UP AS A TEAL MEETING PLACE....WE LIVE IN A WOODED AREA AND HAVE A 4400 SQUARE FOOT HOUSE...WE HAVE THREE EXTRA BEDROOMS DOWNSTAIRS, A SAUNA, AND 2 EXTRA ROOMS UPSTAIRS THAT WE COULD CONVERT INTO ROOMS AS…
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DEBULKING SURGERY TUESDAY, MAR 15
I have been reading this board snce mid Februray when it was suspected my twin sister had ovarian cancer. She will be having the debulking surgery at Sloan Kettering on Tues, March 15; I am so scared; we are 62 years old and very close. They suspect it may be in her lungs and/or liver. Please keep her in your prayers. This…
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Partial Remission Vaccine Trial?
Thank you for your your reply Nancy, you are in my thoughts often! Could you give me any guidance as how to find to the vaccine trial you mentioned? I know that Carlene and Linda gave information about how to research trials going on, but unfortunately I can not recall where their posts were. Thanks again, Christine
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Question for Wendy about colostomy and best wishes to Paula
Hi Wendy, Your mom's experience with the smell of changing the colostomy bag and the frequency of changing it is much like mine. Could you tell me the name of the biological eliminator spray she uses? Also, with changing the bag so often I have found that I would run out of my monthly supply unless I use the drainables or…
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abraxane
hi, i had 3 treatments of carbo/taxol, but my onco change taxol to abraxane, to minimize body ache. just today i had my treatment #4- carbo/abraxane. do not know what to expect. please let me know if any of you had experience with abraxane. side effects? thank you victoria
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Tiredness
As you ladies are probably aware I finished my treatment (18 weeks dense dose Taxol, every 3rd week Carbo) Dec 8 2010. I actually feel worse since finishing treatment than I did during it and certainly worse than I did before dx! I am soooooo tired nearly all the time, I work 3 days a week, near my home so I don't have to…
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Thanks to all who wrote my mother.....
I printed them out and put them under her door so she could have them when she got up this am, and she was so delighted....she has kept them and read through them a couple of times today.....I can't thank you enough as it truly has elevated her mood.....on top of that, the doctor's office called to tell us he CA-125 has…
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Nutrition question
Hi ladies! My oncologist told me that my cancer is very very very reactive to estrogen which is why I can't be on any hormone replacents. But my question is do you think I should cut out foods that have natural estrogen? I was googling foods that are naturally high in estrogen and they are all healthy foods that I love.…
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Your opinions please
My 79 year old mom was dx 3 years ago stage IIIc ovarian cancer (by accident)had surgery, chemo. now 3 years later onco says CA 125 has risen to 49 - 39 next test. areas lite up on PET scan. We now have another appointment with surgeon. Family doc says she is not a candidate for more surgery. Chemo and surgery from 1st…
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Mom had ? about post surgery
Hi everyone. My mom is 74 and was diagnosed with stage IV ovarian cancer on Jan 15th. She had a full hysterectomy (ovaries,tubes,uterus), and a bowel resection (about two inches) where the tumor had wrapped around it. The procedure was preformed on Feb 9th and we (brother,sister and I) had her back home on Feb 17th. She…