The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
I AM STILL DANCING WITH NED
Comments
-
-
NEDdjinco said:Very happy for you.
God is faithful and good.
Good for you, AZGrandma! May you have a lifetime of NED.
Unfortunately, the declaration of "no evidence of disease" is about the best state that the medical people will allow us to believe we are in after successful treatment.
Other people who go through successful cancer treatment get to be called "cured" but not us. Or is this the new medical term that every person diagnosed with cancer has to deal with now?
I was telling my husband that I wish we could allow ourselves to THINK in terms of being "cured" after a period of time rather than just having NED. It makes me think of those people in AA forever calling themself an alcoholic whether or not they still drink alcohol.
My husband said, "Maybe it is better not to be called "cured" because women will take better care of themselves while in remission to avoid the disease recurrence." Yeah, as if we knew what that was! OK, I know he means well.
Here's an interesting story:
Someone with kidney failure received a kidney from a donor who had been cured of malignant melanoma 10 years or more prior to their demise. The kidney recipient took the necessary immunosuppressive drugs to prevent rejection of the kidney and ALSO got malignant melanoma. I don't remember if they were cured or not but I think not. -
I am so happyLaundryQueen said:NED
Good for you, AZGrandma! May you have a lifetime of NED.
Unfortunately, the declaration of "no evidence of disease" is about the best state that the medical people will allow us to believe we are in after successful treatment.
Other people who go through successful cancer treatment get to be called "cured" but not us. Or is this the new medical term that every person diagnosed with cancer has to deal with now?
I was telling my husband that I wish we could allow ourselves to THINK in terms of being "cured" after a period of time rather than just having NED. It makes me think of those people in AA forever calling themself an alcoholic whether or not they still drink alcohol.
My husband said, "Maybe it is better not to be called "cured" because women will take better care of themselves while in remission to avoid the disease recurrence." Yeah, as if we knew what that was! OK, I know he means well.
Here's an interesting story:
Someone with kidney failure received a kidney from a donor who had been cured of malignant melanoma 10 years or more prior to their demise. The kidney recipient took the necessary immunosuppressive drugs to prevent rejection of the kidney and ALSO got malignant melanoma. I don't remember if they were cured or not but I think not.
I am beyond words right now, just so happy to be alive -
-
SUPER!Cafewoman53 said:Wonderful
Thank-you for sharing your good news with us ! If I wasn't so sore I would be doing the happy dance for you, but I'm doing it mentally !
Colleen
So happy for you. May I ask how far from your original dx are you. I am approaching my 2 yr mark in May; have been NED since finishing chemo Nov/09. Just wondering because of the port removal, etc. Again I am so happy for you and thank you for sharing!
Verna -
Way to go lynda.vj1 said:SUPER!
So happy for you. May I ask how far from your original dx are you. I am approaching my 2 yr mark in May; have been NED since finishing chemo Nov/09. Just wondering because of the port removal, etc. Again I am so happy for you and thank you for sharing!
Verna
Yay, what wonderful news , keep up the good work x -
-
-
-
-
-
We have to keep the faithmopar said:PTL!
Lynda:
This is the best news I've heard all this week! Blessings to you and your family as you move forward with your life with renewed hope and joy!
(((HUGS)))
Monika
I think we all need to keep our faith and be positive. I have to say it feels fantastic when you get the news, no evidence of cancer. We havebeen celebrating all weekend
Congrats again!!! ((((HUGS))))
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.5K Cancer specific
- 2.8K Anal Cancer
- 455 Bladder Cancer
- 311 Bone Cancers
- 1.6K Brain Cancer
- 28.6K Breast Cancer
- 407 Childhood Cancers
- 27.9K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 802 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 69 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards