-
discouraged
After four rounds of carbo/doxil, which didn't work, my Doc switched me to carbo/gemzar(first week carbo/gem., second gem, week off, then start again) I had labs drawn on Friday and my platelet count was 43. They wanted me to go in this week-end for an emergency draw and today my counts were 20, not enough to get a…
-
New to discussion board
I am new to this board but have read most of the comments under Ovarian Cancer and under Long Term Effects of Treatment. I have found the comments to be inspiring and the information to be very helpful. I was diagnosed with stage 3C last june. I had intestinal troubles for several years and was told it was diverticulitis.…
-
GCF has a new name
Picked this up on Twitter today... Gynecologic Cancer Foundation Effective on Tuesday, March 1, 2011, the Gynecologic Cancer Foundation (GCF) has changed its name to the Foundation for Women's Cancer. A new Facebook page has been created (https://www.facebook.com/pages/Foundation-for-Womens-Cancer/190565747650540) and we…
-
My mom's good news
I have limited contact with all of you on the Discussion Board, but I think of you often. I want to let you know that my mom is still stable since her recurrance a year ago. Her CA125 has been between 1900 and 3500 since recurrance, but she is considered to have stable disease right now. She is on Doxil and Carbo and her…
-
2 questions
I was very ill when diagnosed and took a leave of absence from work. Now that I am feeling better I plan to go back. However, I am used to taking a "couch day" when needed and I am a little leary of returning to work. Does everyone else work while on chemo? I have 3 months of weekly Taxol and monthly Carbo to go. My other…
-
My mom is scaring me
My mom has been doing so remarkedly well that I have actually been able to take a breath of fresh air. She has one chemo tx left as far as I know and her ca-125 has been dropping markedly ( last I heard it was 29). She has scheduled to return to work in April. So yesterday she tells me that she has not had an appetite for…
-
A little humor....figured we could all use some
My friend Becca has a hernia. She posted about it recently on Face Book, and her hernia posted back (sort of). I thought you might all enjoy this totally spontaneous, unscripted give-and-take. Dear Hernia... Go away. Now. Kthxbai. Dear Beck, this is your hernia- I think you're hot, so I am going to stay awhile. But if you…
-
And More Good News For The Board
Good Morning, I had my check-up with the ob/gyn oncologist yesterday. CA-125 is 7, clean scan and good exam. I am 21 months out. Just trying to make it to the 2 year mark. I will still see him every 6 months for 5 years, have a blood draw every 3 months, and scan every 6 months. Oh, and a breast MRI every 6 months.…
-
PPC vs OC w/ carcinomatosis
Tina and anyone else interested I was diagnosed w/ seropapillary w/ carcinomatosis at the end of August, 2010. I was not diagnosed with PPC because the pathology report found cancer in both ovaries. But since my diagnosis included "carcinomatois," I think the two conditions are very similar. Both are the "epithelial" type…
-
Wishing my mum the best of luck today! X
Mum starts her first treatment of doxil today, please pray that we have some joy with it!!! Dear lord, she deserves some good news after no remission from carbo and taxol. She was also going to come skiing with us but feels to poorly now, this whole thing is sooooo ****, I hope the doxil is going to take away her symptoms,…
-
CA-125 continues to rise after surgery & 4 Doxil Treatments
My Mom was diagnoised for the 2nd time with ovarian cancer last January. I posted a couple of questions last year as she re-started her treatments. Mom's CA-125 started out over 5200. Mom had 7 months of Carbo/Taxol treatments every week which lead to blood clots and many other medicial problems. Mom had surgery in August…
-
clinical trials
I read about so many people who try clinical trials and I am so undecided about trying one. I guess what the problem is that when doing a clinical trial, a person has to go for CT scans about every 2 months. My fear is not only the added radiation, but getting injected with the IV contrast, as eventually it could cause…
-
More Vit C Info
This is cut and pasted from a US Dept of Health and Human Services publication. Although it's a bit dated, I thought it was interesting: Vitamin C Injections Slow Tumor Growth in Mice High-dose injections of vitamin C, also known as ascorbate or ascorbic acid, reduced tumor weight and growth rate by about 50 percent in…
-
pen pal
i am searching for someone who has been told they will probably be living with their cancer for the rest of their life (if not the alternative). in most searches, i have met people who are in remission, or who have a curable cancer. i do not have to meet someone with ovarian cancer, just someone who is fairly young (i am…
-
1st Follow up post chemo
Just wanted to let everyone know...... had my 1st 3 month follow up with my onc on Tuesday and all is good, in fact he said i'm in pristine condition lol!!! Michelle x
-
lol I love this board !
I just wrote this long-winded post and when I previewed it , it disappeared ! How funny ! Anyway what I had to say can be summed up with: Has anyone been on Avastin alone and gotten very tired ? and I love you all thanks for your support ! Colleen
-
anyone hear from NCEllen?
I remember she feared a recurrence. Anyone know anything?
-
activated charcoal
hello i would like to see if anyone had heard about benefits of activated charcoal to lessen chemo side effects. friend of mine who worked at onco instritute in Moscow told me that they had huge study on that topic years ago, that patients who took activated charcial few days - to a week prior to chemo had less side…
-
Fragmin and hives
Well after my 5th dose of fragmin (to prevent blood clots) I've developed hives. Really? Can't seem to catch a break.
-
Flaxseed
I just bought smoe flaxssed today and was wondering if it is safe to use. I heard this has a laxative effect and wonder if I should take this as I have had a bowel resection. I read it has great health benefits and wonder if you ladies take it. I bought whole seed and will gring them up and start slow with some oatmeal.…
-
Can it be ovarian cancer?
My mom's first oncologist have told us based on the biopsy that she has a breast cancer that has metastasized to her backbone where she had surgery 3 weeks ago to remove part of the tumor. The biopsy results of the tissues removed from her back revealed that she may have breast , lung or bone cancer. She went to see…
-
Help Dealing with Nausea, Muscle Aches, Etc
Hi All, I am new to the discussion board, after having been recently diagnosed with ovarian cancer stage 1C clear cell. I underwent surgery on 2/3/11 to remove the cancer along with a full hysterectomy, removal of lymph nodes and debulking procedure. The only cancer found was in the left ovary thank heavens. Last Friday…
-
Has anyone's CA 125 fluctuated while on Avastin and Cytoxan?
I know CA 125 is not a reliable tumor marker test to begin with. I had it measured today after 3 full treatments of Avastin and Cytoxan. While it didn't go up much, it did rise a little, but is still well below the normal limit of 35. Has anyone else been on Avastin and Cytoxan (the oral pill) and had the CA 125 actually…
-
Heard some good things about Hexalan pill chemotherapy for ovarian cancer
On another discussion group (by telephone), several ladies were on Hexalan, a chemotherapy pill, for ovarian cancer. Has anyone here used this particular chemotherapy? And, if you have, was it successful? I know the ladies on this discussion group, several of them were without evidence of disease for a year. Any…
-
For anyone near the US/Canada border interested in a clinical trial with IV Vitamin C infusions
I have no idea whether or not there is any cost associated with this trial, but for those who are not in remission, and would be interested in Vit C infusions, but have been deterred by the cost, I found a clinical trial at Jewish General Hospital in Montreal, Canada that is recruiting patients. Here is the criteria:…
-
question for Carolenk
Hi Carol, My sister in law just called me about a class she attended and the women claims she cured her husband of advanced brain cancer using Frankincense Essential Oil. She also went on to state that Sloan Kettering is using it in their therapy. (They are???? I haven't heard about it.) Anyway, I know you are very…
-
Toenails and Taxol...these are a few of my favorite things
Today was my 9th infusion of Taxol maintenance. Prior to that, I had six months of Taxol and Carbo, so I have been on Taxol (same dose) for a long time (14 months). I have been fortunate to tolerate it so well. Very little neuropathy, which is normally the big bug-a-boo. I have recently noticed that two of my toenails are…
-
Feeling DOWN :(
I'm having a really horrible time of it at the moment :( My husband, who is really a good man, has been very miserable and short tempered for the past few weeks, i have to tread on eggshells around him which is quite stressful. When i ask what's the matter he says things like 'it's been a tough 9 months' (since my dx) and…
-
Blood test for Ferritin level
My Ferritin level in my blood was above normal. Normal is 13.0 - 150.0, mine is 342.8. My doctor told me cancer caused inflammation in my body and this is why ferritin level went up and theres nothing we can do about it! But I read online: high level of ferritin in blood can damage organs like liver and heart!? ( does…
-
I hate this disease
I am having platelet problems with gemzar and was researching old posts. I have been on the board for a while and came across so many posts from those who didn't make it. I found myself crying. These ladies were the best of the best and so helpful to all of us. It distresses me that there are so many new members and so few…