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Question for Donna (RockchickSurvivor) re: your trial
I am so sorry to hear about your 3rd battle with ovarian cancer. I, too, seem to be fighting battle after battle. I'm sorry that you are in pain, because I know what pain feels like and on a scale from 1-10, mine was a 10 (although I'm not in pain now). I have heard about the cytoxan trial, I think it's with ABT-888. I…
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Getting my ducks in a row
After the recent loss of of some beloved members of the discussion board, I decided to come out of Lala Land for a while to get my "ducks in a row." I appreciated reading all the things some of the survivors have done to help their loved ones in handling their affairs when they reach their demise. I haven't done much…
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Attn: kayandok
Is the IMPACT a liquid supplement that you drink? That's what I found when searching online. Thanks, Beth bcollins712@yahoo.com
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Dear Eileen (EWARD)
I am so sorry to hear about your mom. Since December, being on different chemos, I have been having slight progression, they can't seem to find the right combination of drugs. So, over the last 6 months they have grown but have not invaded any other organs. It's almost like they have a long list of chemo drugs and if one…
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Worried it's the beginning of the end
My Mom's left foot has been swollen off and on for the last week. The swelling seems to be getting a little worse and it is travelling a little up her leg, their is no pain and no redness. My Dad has called the gyn/oncologist twice and she seems unconcerned. This really p*sses me off. I think Mom needs to have an…
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Mom and Ovarian Cancer
My mom has had the tumor debulking surgery about 2 years ago and a couple of rounds of chemo. She had fluid on lungs which I think that caused her pnemonia. She still wants to fight with chemo. A doctor at the hospital also mentioned the possibility of radiation. What are some of the things I can do to help prevent another…
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Seedlings, sprouts and sprays from the Greenhouse
Thank you all for your thoughts and prayers. I felt them with me every minute for the past two weeks! As I've been recovering from brain surgery, I've learned that we've lost Nancy and my own grandfather in the past few days. I am heartsick. I will write more later, I just wanted to stop by and let you all know how very…
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OK sisters, time for our Big Girl panties
Whoa, we have been on a h*ll of a ride lately. Almost too much heartbreaking and terrifing news coming in all the same time. I'm having a good hard cry and then I'm putting on those Big Girl panties because we have many newbies who have joined us lately. They are overwhelmed with being diagnosed and fearful of starting…
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Leaps of Faith
I know everyone is feeling sad right now with all the bad news being posted on this board, and rightfully so. But Linda brought up an interesting point under another topic. We all make leaps of faith, everyday. We do things or plan things from which we won't reap the benefits for a day, for a week, for a year, that we at…
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Anyone heard anymore about Leesa?
if anyone is in contact with Leesa or her husband would you please send along our love and hope that she'll be home, safe and sound, real soon! Miss you, Leesa! (((HUGS))) Maria
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Ovarian Cancer Stage 4
I am just curious about a few things. Just because you have Ovarian Cancer stage 4, does it always mean that it is incurable? Is there anyone who has been cured from this stage who never had to do chemo again? Is there anything out here that looks promising for a cure? I also heard there is a new test called OVA1 that is…
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Where did the time go?
I cannot believe tomorrow it will be one year since we first heard the big C word. I will never forget it. I was supposed to go away for the weekend with some friends and my nephew was going to take my mom/dad to the doctor. Dad is blind so he can't drive. Something told me to cancel my plans and go with them. I remember…
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am still NED!!!
Went for my check up yesterday, Ca-125 is 10 and exam was good .Will see Doctor in august so now I will enjoy my summer. I post this as from good advice that our teal sisters and new sisters need some hope that this disease is not going down without a fight..we all need hope and faith even when things sound so…
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Picture this
I took time of work to go in for the port placement. I was tickled pink that I could have it done today. I asked the anesthesia clinic about any prepatory things for last night and this morning....none...if you need some the doctor will call you tonight(last night) otherwise they will talk to you at bedside. Ok....thei…
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Question - please help with your advise
Hello All. I am a 43 yr old thyroid and breast cancer survivor. Just finished rads for the breast and am waiting for surgery for a reoccurance of the thyroid ca. Original was 2 yrs ago. When I was first diag with breast ca, they did a CT scan and found a large mass on my ovary. Then u/s showed it was two large cysts (one…
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Nancy....
I haven't heard from Nancy's family but her sister posted this early yesterday morning on Facebook: "I feel the grim reaper lurking around every corner....my heart is breaking beyond repair." I don't think I will get to see Nancy again, or even hear her voice. It's been such a quick decline. It's really scary. I was pretty…
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Fear of dying during heart attack
Fear of Dying During Heart Attack May Make Matters Worse. High anxiety linked to greater inflammation, study finds By Amanda Gardner / HealthDay Reporter WEDNESDAY, June 1 (HealthDay News) -- People who become very afraid of dying in the moments during and days after a heart attack also seem to have more inflammation, an…
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Nancy is very ill....
I talked to Nancy's mom and her sister today. They said she had been asking about us, saying she needed to call or text me so I could keep everyone up-to-speed. But she is very, very weak. She cannot stand without help, although her mom said she wants to get out of bed. She just doesn't have the strength. The mets to her…
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I just got some news I'm upset about
A dear friend called me to ask what the normal range for CA 125 is. Last week she went in for a biopsy for a growth or (?) in her uterus and she requested a CA 125 largely because of me. She told me tonight that her result is 29. I told her that anything less than 35 is in the normal range. She has to go back for another…
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In Recurrenc - Will try HIPEC but there's dillema
My Dear Friends, I am new to this board. I am glad to find a place with so ladies with good knowledge, and above all, with great heart and incredible courage. Brief history of the desease: I had surgery on 12/29/2009 and confirmed the diagnosis of Ovarian Cancer IIIC. After surgery, I had 8 cycles of Carbo/Toxel. CA125…
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Has anyone been on Taxotere only
Hi everyone, I'm starting my new chemo which is going to be Taxotere only. I'm scheduled for weekly for 3 weeks then 1 week off. If anyone has been on this, could you let me know how it was tolerated? Any bad side effects? I just got off of 6 months of Avastin and 2 months of Topotecan and my white blood cell count, and…
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"Incurable" ovarian cancer
Hello Ladies:This is my 2nd recurrance and I was told almost a year ago that I have "incurable" ovarian cancer and had only a few months to live. I have a beautiful 7 year old daughter and pulled through because of her. I just finished my chemo May 11/11 and my ca-125 was in the normal range. I was in remission for a year…
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My 2 year anniversary
Hi, Today is my 2 year survivor anniversary. I was diagnosed 2C. I'm doing well! CA125 is 7. It doesn't move much. I still worry about when/if the other shoe will drop, but I guess the worry probably won't go away. I do check in to see how everyone is doing. I don't usually post because I don't know the answers to any of…
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Emotional Freedom Technique (NOT SPAM)
I know, I know, I keep getting all of these wacky alternative therapies from well meaning friends. And this falls in that realm. BUT I found it LBC (life before cancer) and it's simple, free, it makes sense and it worked for me. I am now using it for Stage IV OC. It is basic self-affirmation mixed with acupressure and some…
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swelling in feet
I have been ned for one year never had swelling untill now this worries me. I hope this is not cancer fluid. Has anyone had this and what was the out come. very afrid, tomcat 59
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My Mother Nancy
Let me just start by saying, this site was very important to my mother, and she made me promise that I would continue to post for her incase anything happened. Most of you know about her hospitalization around mothers day. My mother finally came home on hospice about 2 weeks ago, Dr.S had told her to go home on hospice for…
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Leesa
Leesa's husband posted this yesterday on Facebook: "Leesa is getting kicked out of the ICU. Seems they only let sick people stay here :) " Some good news for a change. Thank goodness. I am so happy that Leesa is doing well! Carlene
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Linda gets difficult news
Well, we tried to beat the cancer a third time last September through December. 4 rousing cycles of I forget what. Cisplatin and Taxotere I remember now, to knock back a tumor near her colon. And it did disappear that tumor rather profoundly. But unfortunately the cancer appears to be back a fourth time. Again in the same…
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cisplatin vs carboplatin
Is there a real difference between cisplatin and carboplatin? I am getting cisplating and topotecan on Monday. I read very little difference in the description beyond maybe side effects. R34
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Strength/Fitness program for cancer patients and survivors
I joined the Living Stong Living Well program sponsored by Stanford. It is a 12-week program that includes two days of strength/fitness training and one optional day of group support. It is geared to cancer patients/survivors who need help getting through treatment or getting back in shape after treatment. I was referred…