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Platelets - is it wrong to worship them??
My platelets were at 18 when I was first diagnosed with marginal zone B cell lympoma on 4/13. Hard to believe it has only been a little more than a month ago! I'm being treated with Rituxan and Prednisone, nothing else for now because I also have ITP (an autoimmune disorder) that was diagnosed at the same time. The ITP…
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should i happy or sad
Hi buddys..i juz completed abvd 6.2 which mean 12 times of chemo..i felt my whole body system haved change..nw awaiting for pet scan in a month time..what i scared is will i get a report that shows no evidence of lymphoma cells or still have lymphoma cells activities. Feeling very tired and depression at the same…
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Possible Lymphoma with redness in both eyes
Hi, My mother currently has a mass on her right breast. The doctors performed a biopsy on the mass and found some B-cells. They are suspicious of lymphoma. She went in and received a CT scan of her chest to pelvic area and did not see anything abnormal other than the mass. She's going to receive a 2nd biopsy on her right…
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It has been years since last treatment
And every test I go to has come back clean. I had type II Hodgkin's Lymphoma and after 6 months of chemo, 1 month of radiation and 1 surgery, everything was gone except scar tissue. Except every day I think about having cancer again. I feel like every day I wake up I am going to feel another lump, or start to feel tired.…
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What is up with eyelashes?
The first thing that grew back after my last chemo treatment (May 13) were my eyelashes and eyebrows. They were just getting long enough for mascara and now it appears the long ones are falling out again. Anyone have a similar thing happen? - Susan
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My son with Hodgkins..
Does anyone know the regiman regarding ABVD treatments? My son has just gone through 6 mos of treatments and has had a month from that before going into a PT Scan next week Monday... He is saying that he thinks he still has his cancer...he says he thinks he still feels it in his back. The doctor is saying that he won't…
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CT Scan Today
This afternoon is CT Scan, port flush, blood work and visit with the oncologist. I'm so "excited". Actually, I experienced some anxiety and spent most of the night watching TV and surfing the net until I could finally sleep (yawn). I guess I wasn't so good at being positive but I'm okay now ☺. Hugs are welcome :) . Jim
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no chemo
no chemo this week, my platelete are still low my dotor put on 2 prdonizones a day for it which i don't know how that would bring up my platelets,but i felt to bad to even to talk to him about anything. i hope everyone else is good and sue lizzy is so cute i can;t believe shes a y. ear old blessings denise
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5 Day Hi-Dose Pred. OK?
I am starting chemo tomorrow R-Chop. One of the pills the dr wants me to take is Prednisone 20mg. BUT she has me prescribed FIVE TABLETS (total 100mg) for five days and then I am off it completely. Then when I have chemo again in 3 wks I will be prescribed do that again. Does that seem abnormally high to you or have some…
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Carol - Helpful info on Side Effects
Hi Carol, I thought it would be helpful to start a new thread for you. I read in your last post about you receiving your Neulasta injection, I believe today. This has the potential to cause some real bone pain, as it helps to grow new cells at a fast rate. Many Oncs just give you narcotics, which is fine but there is…
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News!
Hi Everyone, Well went to my oncologist today and got my test results. No amyloidosis! Thank God for that! But lots of information today. I'm a bit overwhelmed. However, my hemolglobin is a bit low and several nodes are up. The biggie is the bone marrow though. I went from 10% to 50% infiltration. So needless to say…
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WHERE IS EVERYBODY???????
EITHER EVERYONE IS TAKING A LONG WEEKEND OR YOU ARE HAVING TROUBLE GETTING ON THE SITE.
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PET SCAN
Got my Pet Scan report back today....N.E.D.John
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HAPPY MOTHERS DAY
Happy Mothers Day to all you mothers out there.Young, old,in between and to the ones that are going to be mothers someday.The majority of our group are female so this is for you. Oh,Hey guys don't feel left out you all know we are a bunch of mothers too. LOL
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Please comment on Nieces blog with Lymphoma encouragement!
Hi! Our niece Tina was recently diagnosed with Stage 3 Burkitts lymphoma. She's a beautiful 24 yr. old Mom of Ehtan (6) and Alexis (3). Tina, her husband Mayk and children live in Imlay City, MI. We've recently started a Blog for Tina and would like other cancer surviors to post encouraging comments for Tina. Here's her…
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Virus or something on this site??
Did everyone see and read the posts from linxi????? Also, right after an advertisement for coats???? I hope our computers are OK?????????? Maggie
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hi everyone
t husdday i had to go in the hospital for blood and platelets idont know what my plalets were, but my red blood count was down to6 i think they gave me 4 units of blood. saterday i got out of the hospital monday i went to wvu to check on the bone marrow transplant, they had 3 doners but they don't kwon if they are still…
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Insert Happy Dance Here... ♥ ☺☺☺
Okay, I need for you guys to find some interesting "Happy Dances" for us to share :) . CT results were good - still NED (no evidence detected). John, my "blook word" was good for post chemo - some levels were low but the oncologist says I'm doing great. Thank you all for your good wishes and cyber hugs. I have no doubt…
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Pics of Lizzy...
Hi guys... I posted a couple of pictures on my expression page...me and Lizzy and Chelsie with Lizzy. Chelsie is my 21 year old granddaughter. The 3 of us had a little party at noon today...pudding and cookies. Love you all...Sue (FNHL-2-3a-6/10)
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Getting an auto stem cell transplant in few weeks and would really appreciate some feedback
Hi Im mike (34 years old) and have been battling diffuse large b cell lymphoma for about 8 months. Did four rounds of R EPOCH and 5 rounds of Hyper C VAD. Great outcome, 98.5% of the cancer is gone. One lymphnode is still showing signs of cancer. After speaking to my doctors we have agreed to a Auto Stem Cell transplant. I…
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Scuttlebug (Are you out there)
Denise, Just wondering where you are and how things are going for you. Haven't heard from you in a while. John
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Burkitts Lymphoma
Hey would love to connect with others who have been through Burkitts Lymphoma. What treatment protocol did you have? How are you these days? What was your experience?
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Happy 1st Birthday baby Lizzy
Hi Sue I just wanted to say that I was thinking of you and Lizzy. So hard to believe that she is one. Have a wonderful day celebrating with your very special granddaughter. Love and Hugs Lisha
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Sues vacation "Rollin' on the River"
Sue is back from vacation and now the burning question on everybodys mind is........DID YA' CATCH ANY FISH?
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back pain
Just wondering the symptoms people felt after a stem cell transplant? My dad had his and is home now, but he has a bad back ache and I just fear it is the cancer causing the pain. He won't get a pet scan for a month.
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Pic's
Good morning, for those who asked , I posted some pic's of last years Veggie garden on my expressions page, hope I did it right! LOL Vinny
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Recovering my immune system
Hi, I've been in remission from NHL since chemo and stem cell therapy in Jan 2000 and things have been going extremely well. Except for the fact that my immune system never completely recovered. So I'm posting here to see if anyone who has been through the same can help. Some of my immunoglobulins particularly IgG are…
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result's
Hello friends, I have the good news bad news on my PET scan, the bad news is that my father had his follow up scan, and it came back positive. He has lung cancer again, I'm hoping that he can just go through chemo, I don't think he could handle another surgery. As far as mine goes, its all good except for that area in hip…
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Brought this to the top for Carol....she needs our support.
April 24, 2012 - 10:03am Today the onocologist begins. new All of my stuff has gotten here from MD Anderson and I will find out what they are going to do to me here for treatment. Sounded gruesome when they spoke of it in Houston. I am battling a rotten bladder infection on top of it all. I feel like throwing in the towel.…
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Carol's first day of chemo....
Hi Carol, Just wanted to let you know that you are in my thoughts and prayers while getting your first round of chemo. It's a big day, but I'm confident everything is going to go just fine! I hope you are resting peacefully from the pre-meds. Much love...Sue (FNHL-2-3A-6/10)