-
Heard from Carol (cbpgill26)
I got this from Carol this morning and am sharing as she asked. Carol, thanks for the update and sorry you continue to have a rough time. Hang in there and hopefully this will be over soon. I hope all of this is successful and you won't have to go through radiation or further treatments. We've been thinking about you too.…
-
Happy July 4th !
Happy July 4th everyone ! With all my heart, I hope and pray our celebration of "Independence" will herald continued and permanent freedom from cancer for all of us! I'm still visiting my friend in Muskegon, Michigan and have enjoyed myself while here. This area for the most part has missed the heat wave - the weather has…
-
results
Well the fl is back. Going to do watch and wait for 3months and rescan. Dammit. It's still low grade.
-
hi everyone
i hope everyone is feeling ok. i have a question for anyone that has state insurance do you ever feel like you sre treated diffrent, as an example about 4 weeeks ago i was at the cancer center for over 3 hours which was there fault and then someone else came in and had been there fo about 30 minu and her clothes said…
-
The Gerson Therapy Diet
The Gerson Therapy Hello everyone, I randomly came across this website and read about people who've lost their mother. I lost my mother to cancer and if I could bring her back and start all over I would have tried this. I've been reading online about The Gerson Therapy and there are plenty of people on youtube with…
-
A LITTLE PARANOID ON THE RASH I HAVE IN THE NECK
A month after my radiation, i have this rash in my neck area, it started itching then it got thicker, reddish...then it started flaking. Is this normal or something i should be paranoid about? THANK YOU! :)
-
Biopsy7
Well have another spot under my my arm. Go for biopsy monday. Dammit
-
Makes me wonder....
Hi guys, At my last R infusion 3 weeks ago I asked my doctor a few questions regarding the long term survival rate with Follicular NHL. I could tell he felt a little uncomfortable by my question, so I showed him some information I had printed out and just asked him to give me his honest opinion on what the info reported.…
-
SGN35 is beating me up
Have done all chemos you can think of, never delt with side effects until now. Fatigue, partial loss of appetite. I'm thinking because it's my sisters sc I am reacting different.
-
NHL: ALLERGIC TO RITUXIMAB
Good morning! New here :) I was diagnosed with NHL last year, November and by God's grace, my tumors shrank after 6 chemo and 18 RT BUT WITHOUT RITUXIMAB, was allergic. Anyone with the same case? I want to know if there is a higher chance of recurrence?
-
Monday evening hello
Hi All, I just wanted to say hello and that I am thinking of you all. I've been following all the posts and there seems to be so much going on. Sometimes I just don't know what to say, it's a hard journey for so many right now. Hugs, prayers and positive thoughts to all. Peaceful healing, Lisha
-
How's it going Denise(scuttlebug11)??
Hi Denise, Haven't heard a peep from you this week, so thought I better check up on you. Hope all is going ok.(???) Drop us a note and put our minds at ease sweetie. Keeping you in my prayers and sending you warm loving positive thoughts! Love you...Sue (FNHL-2-3A-6/10)
-
Auto Stem Cell Transplant (Questions)
Hi Everyone, I recently finished my 8th round of chemo (for diffuse large b cell lymphoma) and then I had a pet scan. When I went to see my doctor to get the results he told me that I have residual mass left on my lung with an SUV of 3. We had previously discussed the posibility of an auto stem cell transplant and I met…
-
C returned after our stem cell transplant, at day 102
We heard to day that the cancer has returned. We have dealt with this for 2 years now. The stem cell transplant was March 6, 2012. PET scan was yesterday and its back. A total shock Thought we had a shot with the transplant. Really hard to deal with, but will learn our options next week. Anyone have any ideas or similar…
-
Something to think about :)
I thought I'd share this native American story - simple and true: A native American grandfather was talking to his grandson about how he felt. He said 'I feel as if I have two wolves fighting in my heart. One wolf is the vengeful, angry, violent one. The other wolf is the loving, compassionate one.' The grandson asked him,…
-
Here's to us becoming stronger!
I came across this video this morning. Here's to us becoming "stronger" ! :) Keep up the good fight! Hugs to you all, Jim
-
2nd post chemo pet scan tomorrow
Go in tomorrow for my second post chemo pet scan. My last post chemo pet scan was 3 weeks after my last chemo back in March. The last pet scan came back positive after my Oncologist told me i was cancer free. My last 3 ct scans have all came back with no swollen Lymph Nodes. My Oncologist told me that the positive pet was…
-
1st Chemo Treatment Tomorrow
Leaving tonight for my 1st chemo treatment and i just want it to be over already :( We live 3 1/2 hrs from where my onocologist is so it looks like a night in a hotel and tossing and turning for me. Thankfully after the first one i will get them done at our local hospital that way i can go directly home afterwards.
-
Do I have Hypothyroidism?
Hi all, I just discovered this site. I was diagnosed with Nodular Sclerosing Hodgkin's Lymphoma Stage IIA at the age of 23 in 2002. I underwent 8 sessions of chemo in 2 week intervals (ABVD regimen) and was zapped 24 times on a linear accelerator. After 9 years of nothing (hoorayyy) I am starting to experience cycles of…
-
Mouth Sores
I have mouth sores like a mother. Any suggestions on how to take care of them or get rid of them would help. I am currently taking my Mycelex lozenges and those sometimes work but not lately this is my fourth round of SGn35.
-
PRAYERS NEEDED
Hi All, I came across a post from one of our group members. Many of you will remember Tracie1981, she was a young mom with Hodgkins. Her 6 year old daughter is now fighting cancer. She was diagnosed on May 30 with a Brain tumor, Pilomyxoid Astrocytoma. She had had one surgery and is starting chemo. She will have another…
-
My port has been placed
Yesterday was the scarest yet... I has my port put in and it was like reality finally hit... I have CANCER!! The procedure went well I am greatfull for my amazing doctor. I am sore today and extremely tired.... Three surgerys in 5 weeks has taken its toll on my body. The last two surgerys I have bounced right back and went…
-
hi everyone..: )
hi..i have completed 6 cycles of abvd and my pet scan results shows stable disease in mediastinum..My oncologist suggest me to do radiation around 20times..im just curios about the radiation side effect and is there any chances to get secondary cancer by doing it?\ anyone pls i need some help on this..tq hodgkin lymphoma…
-
Saying Hello
My fiancee was diagnosed with Hodgkin's Lymphoma a few weeks ago, and had his first Chemo treatment yesterday. Since his diagnosis, he has been very withdrawn and quiet. He has also chosen not to tell anyone except his employer about his situation. I respect his decision, however I do need the support, and to learn how to…
-
+ Does this remind you of prednisone? ☺♥
I've been researching old TV commercials and came across this rather odd toy, the "Swing Wing". It's only a minute long. Tell me this doesn't remind you of prednisone ☺. "Swing Wing" Hope it makes you laugh. Jim
-
Fathers day weekend...
"HAPPY FATHERS DAY" to all of the wonderful fathers here! May your weekend be filled with lot's of love and pampering! Sunday we are having a peaceful afternoon cookout with our 2 boys and grandchildren. Love to you all...Sue (FNHL-2-3a-6/10)
-
hi sue and john
still here the retuxan makes me feel so tired i dont feel like moving after two treatments my platelett count is still the same 26000 i need prayer for my faith. blessings denise
-
Scuttlebug (Are you out there)
Denise, Checking to see how you are doing. You may not feel like posting right now,but when you get a chance let us know what is going on. Thinking of you. John(FNHL-4-1A-5/10)
-
Results
Hello everybody, I went to see my Onc today and he was very happy that I'm responding to treatment. My spleen is slightly enlarged but decreased in size from previous test. A few lymph nodes showed improvement and others stayed the same. The pain that I'm getting on my back is due to a 2mm disc bulge with annular tear,…
-
Chemo Today
Hi Gang, At Jefferson today getting second infusion, more tomorrow. Hopeful that I don't end up pulling the shenanigans I did last month which ended up with me getting admitted for a few days. :) They are thinking that they may skip the Neulasta shot on day three which they think was the culprit. Getting Bendamustine. No…