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Newest post from cbpgill26(Carol)
Hi guys...Carol posted this morning in an old thred, so thought I better move it up to a new discussion. Sounds like she is having one hell of a time and can really use our words of encouragement and support! Sue June 11, 2012 - 9:58pm Hi Sue Thanks new Well, the bowel issue went the other way and I was unable to even get…
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Carol News
I got a message from Carol yesterday (5/16). I responded and wanted to share with you guys. ================ Hi Carol, I'm sorry you're having these problems. Chemo caused constipation for me big time. They gave me senokot during treatment which helped and I learned to start taking that the day before my treatments…
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Need some advice desparately
I dont know where to start, but I have pain in the throat. And it went down a bit. It also bothers me when I breathe . Have some hacky cough. So went to my primary care dr. They sent me to my gastroentologist and had a EGD done. And that was a big deal because I had to get off the blood thinners and take shots in the belly…
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good news
I talked to the charge nurse at wvu today to ask if my 14year old daughter can come and spend some time with me after i am discharged to the apartment i will be at for 30 days, she said yes and then i talked to her about what a hard time i am having finding someone to stay with me, after some questions and she found out…
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Bottom of the barrel.
I feel like I've hit rock bottom. I feel like there is no more hope. There is no bone marrow transplant, becuse I have no one to stay with me. Sometimes I just feel like giving up. Maybe it would be better if I just die now, instead of waiting for it to happen, becuse this is enough to drive someone insane. I've cut myself…
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BEAM
I am scheduled for a BMT but will first need 6 days of BEAM to kill my bone marrow. If anyone has had this type of chemo, can you tell me how it made you feel? I am a little nervous about having it from what I have heard and read, so I would like to hear from someone who has gone through it... Thank you
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SGN35 and Hodgkins Lymphoma
Update Abs, liver and Kidney have shown improvement after 2 lowered doses, after first dose my Belirubin went from 4 times the normal levels to normal. That is why I was on a lowered dose. I some times get fatigued that is comparable to doing legs squats with no weights. Dr when he seems me says I look great. When I go to…
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Shingles Vaccine
Hi all. I was just catching up reading the thread on Dan's latest challenge with his relapse after his SCT(best wishes Dan). Some were commenting about recommendations for the shingles vaccine. I am curious too. I have had about 15 episodes of shingles since I had Hodgkins Lymphoma in 1989. This past year I had 5 cases.…
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Scared Again - what are the side effects of Rituxan Maintenance
I can't believe that my 2 months of freedom after chemo is up and it's time to start Rituxan Maintenance every other month. I have gained strength and feel great, but now, just the thoughts of walking into that treatment room again scares me to death. I wonder what side effects I will have and if it is going to take me…
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Constipation?: NHL
I've got B-Cell NHL and have completed my 1st treatment of R-Chop. My 2nd is June 6th. So far the symptoms I can handle but I have constipation that doesn't seem to alleviate. Per doctor's suggestions I have used: stool softener, magnesium citrate, enema, Senokot and am now trying out prune juice a few times a day. So far…
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Vinny, how are you and Dad?
Hi Vinny, I just was thinking about you and your Dad. How are you doing? And how is your Dad? Has your Dad started any treatment yet and if so, how is he doing. I hope that you are feeling fine and spending lots of time in your wonderful garden. Keeping you and your Dad close in my thoughts.. Lisha
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first treatment
had my first treatment of retuxat on . yesterday its not only for cancer but also to bring up platelett counte, i have 3 more to go once a week and then i see my onc and have blood draws tuesday, he has made a statement that mabey i have an immune sydtem desise i don,t know if i should wai mt on him to find out or call my…
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Sues Big Tuesday
Good Luck tomorrow at the "R" infusion. I am sure you will be just fine. Of course you will be dragging a bit from the benedryl. John
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hi everyone
i can't sleep tonight my plattes are down to 23000 they should be at least be at 15000; i am really worried what happens if they go to o do i die, i am a smoker or mabey its its because i have state insurranance, i don,t know what to think, mabey they think i have lived long enough off the states money, they have me coming…
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jackie
i know i have not been on much lately and i could give a long list of excuses but mainly i needed a brake. i do have some news my daughter (captianswifey)jackie is now expecting her third baby. so we all feel thankful for her recovery and that she has returned to as normal as she can. this time cancer you…
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4/24/12: Diagnosed B-Cell NHL
I joined here earlier as I had a "tentative" diagnosis of maybe cancer but it turned out to be Sjogrens which is an autoimmune disease also. Weakened immune system. Well as of April 24, 2012 I am officially diagnosed with B-Cell Non-Hodgkins lymphoma. It was a bit of a fluke finding it as they did a CT on my lungs of which…
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Docotor Appt.
Today I went to the doctors, my platlets have not budged, there still twenty-three thousand, tomorrow I start retuxin, to attempt to pull up my platlet count. But.. It didn't work before, but they have NEVER been this low ! I need prayer.. For not only my platlets, but also my faith. -Denise.
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Pleurisy from Lymphoma?
In February I was diagnosed with pleurisy. The doctor tried antibiotics but it didn't work. He finally tried prednisone and that stopped the pain. After a few weeks I stopped taking one day and the pain came back. I had my normal check-up ct-scan on Febuary 6th that said I was stable. Then another ct-scan on February 23 to…
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CureToday.com article
Hi Guys, Just thought I would share this info with you. I get newsletters from CureToday and this was in my e-mail today. Hope everyone is doing good. We are expecting snow today, so I'm getting hunkered down in case it turns out to be more snow than whats being predicted.BRRRRR! Love...Sue (FNHL-2-3A-6/10) CuereToday.com…
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Prednisone
What side effects have you experienced with Prednisone ?
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Endoscopy Results
I finally got the results after 13 days. I suppose it took so long because of the holiday. I really don't believe that?? Anyway, all 5 biopsies are negative. I was starting to think, if there were a problem, I would of heard early on. Still, it is better to hear the results asap. The Gastro doctor is very good, and has…
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How to post a clickable link
I put a document on the Recipe Project site that shows how to create a clickable link on a discussion board or message on CSN. Just go to the site and open/download the pdf document titled "How to Post a Clickable Link" Recipe Project - How to Post a Clickable Link on CSN Also, there hasn't been much activity as far as…
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hi everyoune out there! can anyone help me look for an answer.?
hi everyone! i am ja from the philippines. i was diagnosed having HODGKIN's LYMPHOMA 2008 and had my 6 cycles of chemo for one year which ended feb 2009.. and until now i haven't had my menstrual period since then. im dying to know if i can possibly have it back! i am 28 now. and have this heavy pressure on me not to get…
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Finally off prednisone!
My doctor sent me an email over the weekend and told me that I can finally stop the prednisone. Yippee! Seems like I have been on it forever, and I'm not convinced that it did me any good at all. I had an actual, real dinner tonight - not yet another plate full of asparagus and spinach. I've been so afraid of gaining…
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OT- Graduation pictures
Hi All I have posted some photos from my daughter's graduation and party. She received a Master's Degree in Social Work! They are on my expression page.
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Coming off prednisone
I'm going nuts. Feel anxious and nervous. Sore. Anyone experience this while weaning off. Down to 10 mg every other day. Then off by Wednesday
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Have a nice Memorial weekend!
Just wishing everyone a great and safe Memorial weekend. I don't have a lot planned - going to visit a friend on Sunday - he heard I can cook - LOL ☺. Hugs and good wishes, Jim
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Yesterday
Hi guys, I forgot to mention, I never received the results of the endoscopy this Friday. The results didn't come in yet. Yesterday, the weather in New York was good. Therefore, we had the BQ as planned outside under a shaded tree. Gotta go. My friend just called she's back in the hospital from the dog bit. bye. Maggie
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Memorial Day
Hello everyone, I hope everyone will be enjoying this weekend. I also will remember all the soldiers, and the soldiers who came home so disabled from both wars in the middle east. In my opinion, and my mom's words so long ago, there will never be peace in the middle east. Forgive me for my negative thoughts. The weather in…
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Memorial weekend..
Hi my peeps, :) Just wanted to wish everyone a safe and happy Memorial weekend. I'm headed to my Aunts house in Klamath Falls Oregon tomorrow morning. She has cancer, so I go twice a year to help her around the house getting various projects done. Usually go in the spring and then again in October. This trip my oldest…