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Happy 1st Birthday baby Lizzy
Hi Sue I just wanted to say that I was thinking of you and Lizzy. So hard to believe that she is one. Have a wonderful day celebrating with your very special granddaughter. Love and Hugs Lisha
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Sues vacation "Rollin' on the River"
Sue is back from vacation and now the burning question on everybodys mind is........DID YA' CATCH ANY FISH?
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back pain
Just wondering the symptoms people felt after a stem cell transplant? My dad had his and is home now, but he has a bad back ache and I just fear it is the cancer causing the pain. He won't get a pet scan for a month.
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Pic's
Good morning, for those who asked , I posted some pic's of last years Veggie garden on my expressions page, hope I did it right! LOL Vinny
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Recovering my immune system
Hi, I've been in remission from NHL since chemo and stem cell therapy in Jan 2000 and things have been going extremely well. Except for the fact that my immune system never completely recovered. So I'm posting here to see if anyone who has been through the same can help. Some of my immunoglobulins particularly IgG are…
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result's
Hello friends, I have the good news bad news on my PET scan, the bad news is that my father had his follow up scan, and it came back positive. He has lung cancer again, I'm hoping that he can just go through chemo, I don't think he could handle another surgery. As far as mine goes, its all good except for that area in hip…
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Brought this to the top for Carol....she needs our support.
April 24, 2012 - 10:03am Today the onocologist begins. new All of my stuff has gotten here from MD Anderson and I will find out what they are going to do to me here for treatment. Sounded gruesome when they spoke of it in Houston. I am battling a rotten bladder infection on top of it all. I feel like throwing in the towel.…
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Carol's first day of chemo....
Hi Carol, Just wanted to let you know that you are in my thoughts and prayers while getting your first round of chemo. It's a big day, but I'm confident everything is going to go just fine! I hope you are resting peacefully from the pre-meds. Much love...Sue (FNHL-2-3A-6/10)
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MERRY WINNER
Mary, I know you do not post as much anymore.Sometimes we just have other things to do in life and get busy. Would like to know how things are going for you. John(FNHL-1-4A-5/10)
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Bendamustine/Treanda
Hi All, Went to the Onc yesterday and I am going to have Bendamustine. No Rituxan with it because of my bad allergic reaction last time. So next I have a couple of tests to get through and then if they come out okay we will proceed. Oh boy. So for those that have had Bendamustine- details please?! I have read about it and…
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LRF
Hey, I got an E-mail from the LRF yesterday as I am sure a lot of you did. It says there is a person diagnosed with blood cancer every 4 mins.You notice I said DIAGNOSED. How about the ones that are not diagnosed and never will be? Do the math here.Thats 131,400 people a year. And the numbers are rising.They are not…
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Checking in...
Hi All, I have been thinking of you all and miss you bunches. I have had a real difficult time getting on the site lately, today was much better. I feel okay, mostly. Coming out of my fog a little. It's still so hard. Getting ready to resume the "oh so much fun" Dr visits. I hope to get out in my garden more, now that we…
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The Thymus
I recently had a CT scan (instead of my normal PET scan) and it was noted that the Thymus had decreased considerably in size. I know very little of this gland except that it is large when you are a child and shrinks as you age and this is where the T-cell and B-cells originate from. I have Follicular NH Lymphoma, not…
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New T-Cell lymphoma treatments on the horizon
This applies specifically to Peripheral T-Cell Lymphomas. At treatment Monday, I was advised by my clinical trial/study nurse that a couple of new combinations are being worked on by Fred Hutchinson: Specifically, I-CEOP, which will combine Istodax (Romidepsin) with Etoposide, vincristine, prednisone, and…
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New Riddle - easy I think ☺
Full of love, caring and vigilance I read and post on CSN with diligence. To provide an ear or advice, I'm never too busy. I love my little miracle who rhymes with dizzy. Who am I? ☺
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bald again
well i'm without hair again, which really does'nt bother me, it will grow back what really bothers me is the fatgie that i that i can,t deal with. i can,t stand just sitting around. blessings denise
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my dads passing
my dad was diagnosed with t cell non hodgkins lymphoma in November. On April 12, he lost his life. This has been the hardest thing I have ever gone through. i miss him so much and think its not fair. Every chemo treatment went fine. One week after his last treament he was sick. Four days later he died. Sad and confused
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A new riddle
Have a great day everyone! Riddle: (I didn't get it and felt a little stupid when I got the answer - if I had a dollar for everytime I felt stupid, I'd be pretty wealthy by now;)). Forward I'm heavy, but backwards I'm not. What am I?
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+ Problems with this site :(
I'm going to vent here... Grrrrrrr... Lately, I feel like I'm contantly fighting with this website. I know it's free and how valuable it is to us and I'm thankful we have it. Lately (past 2-3 weeks), I'm having so many problems getting on or staying on the site. It constantly drops me right in the middle of posting or…
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Anyone heard from Carol - cbpgill26 ?
Has anyone heard from Carol - cbpgill26 ? I sent her a private message today also.
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I am home
Well I am home, i feel really tired. My onc is out of town and the fill in did'nt feel like i needed more red blood cells they are at 8.8 i feel tired and i keep freezing. my white cell count has already started dropping so tomorrow i go for bloodwork and a nuelasta shot still feels good to be home. blessings denise
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wondering about Donald
Just wondering how Donald51 is? I hope he is still in remission after getting the Zevalin like I did. I have always looked to see if anyone relapsed at all after receiving the Zevalin. I pray for everyone on here. Hilde
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mabey i will go home today
i have my fingers crossed, first i was constipated now low red blood cells ,but,the doctor said after i get the red blood cells mabey i could go home today. I hope so these beds hurt my back and i always miss my daughter. blessings denise
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Riddled with Riddles (another one) :)
Blame John (Cobra) and Denise (Scuttlebug) :) . ================================================ A sharpshooter hung up his hat and put on a blindfold. He then walked 100 yards, turned around, and shot a bullet through his hat. The blindfold was a perfectly good one, completely blocking the man's vision. How did he manage…
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heres another
i stand on a high hill and have only one eye,what am i? have fun
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Zevalin beam transplant
My dad is having a zevalin beam transplant at City of Hope. Does anyone have any info on this type of transplant? Thanks
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Bendamustine with Rituxan
My husband has Mantle Cell Lymphoma and now is getting his duo port in on Tuesday and begins treatment on Thursday with 2 rounds of bendamustine then following Thursday Rituxan. Anyone who has had this could you share your information with us we would greatly appreciate it. I know everyone reacts differently to the…
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Hi everyone...I'm new to the site but not to fNHL...
Hi everyone, I'm new to the site, and so glad that I've found, what seems to be a very supportive group of people. In 2010, I was diagnosed with fNHL, stage 2. I went through the 6 month treatment, and I'm now on maintenance Rutuximab (2 yr. treatment.) I had treatment # 5 on Wed. I feel awful. I don't know what to do, or…
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living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
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Brain Twister or not???
OKAY...Lets get serious for a little bit. Its driving me crazy. "Brothers and sister I have none,but this mans father is my fathers son" Who is it? There is an answer but I can;t figure it out.