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Lymphoma (Hodgkin and Non-Hodgkin)

Working during RCHOP?
My husband was diagnosed with FNHL 5 years ago, went through chemo with Rituxan and Velcade, and achieved remission 6 months later. Well, we recently noticed a large mass on his jawline and ultrasounds and PET scans (SUV of 12+) initially confirm presence of lymphoma. The biopsy is scheduled for 2 week from now (we're…
I feel it
Hi All I want you to all know that I really do feel the love and support coming from each of you. Reading your words to me, gives me so much hope and courage. I feel surrounded by your strength. I can do this. For me, fear is a very strong emotion. My outer self can appear to be strong but the inner self has a lot of fear.…
CT scan results - what fresh hell is this??
I guess I've been in denial about my medical status for a month or so. After 8 sessions of Rituxan, my platelets were up to 160 and I was feeling well. My hematologist had me go in for a followup CT scan "just to see", and I did that last week. The results are pretty scary. The hematologist knows that I want the actual…
Reality
Hi All Well, I have had my first reality check and meltdown. I thought I was doing so good at keeping my mind focused on details and everything else. The quiet of the night is so hard. the brain starts whirling and it hits. Today we tell our daughters. This is going to be hard. I hate to bring them any type of fear or…
Home with answers and a plan
Hi All Happy Friday the 13th Well I am home. My little appointment turned into an all day many departments type of visit. First, I LOVE my new Onc and her attending Onc. They are both amazing and so far are the perfect fit for me. This is a first, to meet two new Docs and right away think they are the best. This has never…
Chemo Today
Hi Everyone, I have my third infusion today and tomorrow. Bendamustine. Don't know if my doc is adding Ofatumumab or not. Won't know until I see her one hour before the infusion. I am not looking forward to that- can cause weird infusion reactions. Anybody had it yet? But hopefully it will cause a longer Remission- which…
No DX, just looking for answers....please
I had papillary thyroid cancer follicular variant in 2010, thyroidectomy in 10/10, RAI in 11/10. I've alway had a parotid gland on the left side that has been screwy since the RAI, but it's in my cheek. Ever since my survey 19 months ago, I'm still getting bouts of hoarseness, breaking out in hives, (I carry benedryl spray…
Auto Stem Cell Transplant Tomorrow Morning
Tomorrow morning in go in for my Auto stem cell transplant to treat my B Cell Non Hodgkins Lymphoma. Any words of advice or experience wit this procedure would be greatly appreciated.
Survived 2 cancers , possibly have another one , im freaking out !!!!
Hello to everyone , my name is Sebastian , i just turned 30 on Thursday September 22 , as i child i was diagnosed with leukemia ( ALL ) ive been in remission since my bone marrow transplant in 1997 , in 1999 i had a suspicion cell removed from my body , the doctors told me it looked like a super early detected cell that…
Oh Crap!
Hi all my dear sweet friends, I felt that the title of my post is very appropriate. I have tried to log on, but of course this site was full of issues. Seems to be my sort of luck lately. Anyway, I'll try to fill you in before the site goes crazy again.. I had a long chat with the Doc this morning. He was able to answer…
On the fast track
Hi All Just a brief update. I talked to the cancer center and was told that the first appointment was on the 27th. I received a phone a little while ago, and they have fast tracked me in to see the new onc tomorrow morning. Wow, that is really moving along. What a week! Monday saw my reg Doc, Tuesday had the scan,…
Problem with website
Anyone else have/had this problem: 1. Getting a "FALSE SETT" message at top of page 2. I worked around 1 above but site is not displaying images. Showing with red background: The directory files/images does not exist." I couldn't login to the site my usual way from a bookmark but I found another link on the web that let me…
Limited news
Hi All Well I finally heard from the Doc. It was a very brief call with limited info. he said that he will have all the details in the morning. Sigh.. This is what I do know, There is a tumor 17cm and a few smaller than that. That's it. This is what he said. He did not have time to talk to the radiologist today and only…
Just diagnosed with NLPHL
Hi everyone, after years of something being wrong with me(I'm 45) and told its all in my head they finally figured out I have this disease. Had my pet scan yesterday the bone marrow biopsy is today second opinion is next week and treatment after that. Did anyone have sleeping trouble after diagnosis? I have barely slept in…
Treatment plan
After meeting with my normal onc, we're going to do Rituxan and see if I respond to it. He talked about doing once a week for 4 weeks and send me for a sonogram or pet scan in a couple weeks to see if it's responding to it. If not, they'll add bendamustine for 6 months. I think that would be once a month, with rituxan…
My scar aches
I was wondering if anyone could give some insight.... In February I completed 6 r-chop chemos. Pretty much paid it no attention even though I hat very second of it I wasn't going to give in. Thought it was a pretty good attitude at the time. Docs have said that everything is looking good but I live in fear of this bloody…
PET scan
My Oncologist did a PET Scan. Lots of bright red lymph nodes. Today I freaked out on him because he told me he would have to take the node from my abdoman, which would put me off my feet for wo weeks. He then told me the bright red nodes might just be an infection. Is he just feeding me crap to calm me down or is there…
onc visit today
Well I go at 9:15 this morning to meet with my regular onc. I am hoping to come away with a better understanding of my options and a direction that makes sense. The transplant doc I saw last week wants to type me for a donor, as he said it could take quite a while to find a match. I really don't want that if I have other…
new to this board and freightened
Hello all I am Lynda and i am a 2 year survivor of ovarian cancer. I have continued to have blood isses since chemo. i was told yesterday that a test came back positive for a t cell gene rearangement, which i am told may be lymphoma. i get a ct scan next week. can somone tell me a little about lymphoma? i am freightened nd…
Pets and. chemo
I'm curious how many of y'all had pets in your home during chemo and your experiences and methods of staying safe from infection during treatment. We have 2 dogs and 3 cats and a bit of a game plan to keep safe but any and all advice and insight would be much appreciated. Thanks. Aaron
Rituxan Maintenance
I just wanted people to know that I had my first Rituxan Maintenance treatment and all went well! I feel great! Don't fear it! Live on, all of us survivors!!
Coming off prednisone??
Today is the 1st off prednisone and my body hurts all over is this normal?? I really didn't get jittery on it or felt like I had tons off energy but I am extremely tired. Just wondering if this is something that will pass soon.... I was feeling really good and am starting to get discouraged :(
new here just diagnosed nhl +
7 parotid gland tumors now 10 still fighting hmo Medicaid for help diagnosed so far with non hodgkins lymphoma on third biopsy .waiting for pet scan possible lung involvement but pulmonary function test so bad drs said I would die on table .not sure if its sarcoidosas or cancer so pet scan is only hope.I suffer from…
power back on
I've been MIA because a nasty storm knocked out our power for 5 days! We had bought a generator after last years hurricane, so at least we had some power..... a lot of trees came down but minimal property damage. Clean up is going to start soon. Like my wife said we survived cancer twice so we can get thru this! Vinny
Heard from Carol (cbpgill26)
I got this from Carol this morning and am sharing as she asked. Carol, thanks for the update and sorry you continue to have a rough time. Hang in there and hopefully this will be over soon. I hope all of this is successful and you won't have to go through radiation or further treatments. We've been thinking about you too.…
Happy July 4th !
Happy July 4th everyone ! With all my heart, I hope and pray our celebration of "Independence" will herald continued and permanent freedom from cancer for all of us! I'm still visiting my friend in Muskegon, Michigan and have enjoyed myself while here. This area for the most part has missed the heat wave - the weather has…
results
Well the fl is back. Going to do watch and wait for 3months and rescan. Dammit. It's still low grade.
hi everyone
i hope everyone is feeling ok. i have a question for anyone that has state insurance do you ever feel like you sre treated diffrent, as an example about 4 weeeks ago i was at the cancer center for over 3 hours which was there fault and then someone else came in and had been there fo about 30 minu and her clothes said…
The Gerson Therapy Diet
The Gerson Therapy Hello everyone, I randomly came across this website and read about people who've lost their mother. I lost my mother to cancer and if I could bring her back and start all over I would have tried this. I've been reading online about The Gerson Therapy and there are plenty of people on youtube with…
A LITTLE PARANOID ON THE RASH I HAVE IN THE NECK
A month after my radiation, i have this rash in my neck area, it started itching then it got thicker, reddish...then it started flaking. Is this normal or something i should be paranoid about? THANK YOU! :)

Lymphoma (Hodgkin and Non-Hodgkin)

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