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Follicular NHL at age of 33
Hello everyone! My name is Monica and I was diagnosed with follicular NHL a month ago. I have stage 4 and my treatment is chemo (Rituxan) 6 times for 5 months every 3 weeks. I would like to hear from people who had or has it. How is your experience and feelings. I'm very positive and my faith keep me strong! I have…
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"Server is down with too much load"
I've been seeing this error a lot lately. CSN was pretty much unavailable all day Sunday (Easter). I wonder what kind of chemo regimen the server is on? You think it needs a shot of Neulasta? Sheesh :) . Hugs, Jim
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Onc appointment
Hi All- Have oncologist appointment in one week. Have fatigue,swollen nodes and leg bruising, and intestinal symptoms. When I saw him 2 months ago he said I need treatment and said he would probably recommend Treanda. The problem is they cannot treat me until my intestinal bacterial overgrowth problem is cleared up. I've…
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Thinking of Sue
Hi Sue, Just wanted you to know that I am thinking all good and positive thoughts for you today. Hopefully you are done with your Rutuxin and have met with your Onc. I'm sure you will be super tired tonight, so let us know how your doing when you are rested. You are in my thoughts today and always. Hugs and love, Lisha
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back in the hospital again
well here i am back in the hospital, my plateletts are low and my nose would'nt stop bleeding my plateletts are dowm to 11000 and now i found out my nuetrphil white count is 0 i hate to be in the hospital and i can't wait to go home or at least go for a walk
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CT results
Hi Guys, I got my scan results in the mail today and as far as I can tell it looks like everything is ok. A few new findings: Vascular Anatomy shows Altherosclerotic calcification of the aorta and iliac vessels without aneurysm..scattered vascular calcification. This wasn't on my last scan a year ago, so I don't know what…
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Wondering
I had a scan Feb 3, and it all seemed fine. However the last three to four weeks I seem to feel a small lump under my chin on the left side. But feel it when I put my fingers on it and when I put my head down. I have been in remission after Zevalin in 2011. But I dont know if it is anything. I dont know even if I should…
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Primary Mediastinal Diffuse Large B-Cell Lymphoma + R-EPOCH
I have a family member who was diagnosed with Primary Mediastinal Diffuse Large B-Cell Lymphoma. He completed his first two treatments of R-EPOCH, and had a PET scan right before the 3rd treatment. The mass has shrunk significantly, but it was not completely dead, as we had hoped. There was still a small amount of "glow"…
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Folicullar NHL REPLAPSE
WELL GOOD EVENING EVERYONE; My wife has a relapse of fillicular for the 3 rd round now. We are in a very early stage. The Doc says theres no new clinical trials that look promising for cure or remission..We ve decided to take a watch and see approach for now.. We want to see how fast it is growing, so we have put off doing…
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needs explaination for pet scan results..
Original ct shown large lobulated soft tissue mass in anterior mediastinum (11.4x8.4x10.9) And the pet scan result shows after 4cycle of abvd.. « focal fdg hypermetabolism in seen in a hypodense lesion(1cm) at anterior mediastinal mass (measuring 3.2x2.1cm). The rest of this mass and another soft tissue mass in the aortic…
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Lymphomatoid Granulomatosis (LYG)
Has anyone ever heard of this or know anyone who has had it? I know it is very rare but looking for anyone who has gone through it and tell us how they got through it.
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Post Radiation Issues
I am new to this site but am very interested in what everyone has to say.As my 16th anniversary approaches from my horrific battle with non-Hodgkin lymphoma I am looking for some answers to try and relieve my constant cough and breathing issues. At the age of 29 (1995-96)I had Stage IV type B large cell non-Hodgkin…
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Diffuse large cell B lymphoma
Has anyone survived a tumor on the orbit of the eye that was Diffuse large cell B lymphoma? I would appreciate a comment. I am petrified. Just diagnosed. with Diffuse Large B Cell Lymphoma.
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Worried!
I am so worried. I was diagnoised with diffuse large B cell lymphoma (bulky stage 2)in December 2011. At that time the mass on my lung was 15.5 x 10.5 cm. Since then I have had 5 chemo treatments and I also had a CT scan done last week to see how things are progressing. My doctor told me that he was sure that since I had…
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Still Scared - Last Round of Chemo
You would think that after 5 rounds of chemo, I wouldn't be so afraid of my last round tomorrow, but I am! What is it that I fear?
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platelets
does anyone know the normal range for platelets? mine are 35.000.i seen ny onc today and he talked to the onc whi will do the transplant, and he wants to use the allogenic and if a doner is not found then a autologous. blessings denise
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Fighting Fear
Hi Everyone! My last chemotherapy treatment was December 8th 2011. On that day my oncologist told me that the results from my cat scan (I had one 2 weeks before my last treatment to "check on progress") were clean and I was cancer free. It has been 3 almost 4 months since then. For 2 months after treatment I was having…
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Anyone know of COBRA assistance available?
Hello everyone. Big hugs and warm wishes coming your way. I've been researching and haven't come up with much so I thought I'd toss it out here for responses. I am not able to return to work yet and though my company has been more generous than most (my insurance at the employee price was extended a year past the date my…
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there,s no place like home" click click"
i am home from the hospital and the rice was'nt as bad as i thought it would be, i feel weak but not sick my head has started itching and my scalp is tender, i guess its time to get the scarves back out, i don't like the wigs and the hats are to big. i feel like someone much stronger than me has thier hand on this.…
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Rituxan day for John...
Good luck buddy...hope everything went off without a hitch. You should be getting home soon if you went in this morning....(9:30 here...12:30 there)in NC. I always schedule mine for as early as possible. Is this the last one until 5 mo's from now? Hope so...then you can have a nice long rest before going back at it again.…
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Low immunoglobin M, what does it mean
Does anyone know the significance of laving a low immunogloblin M level. I had blood work done and the level was 25. The “A” and “H” were in normal range. The normal range for “M” is 40-230. I have NHL and just finished 20 rad treatments, which seem to have work.
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Hodgkins Lymphoma for the 2nd time
Hi I have had 2 transplants (bone marrow from sister and stem cell of my own ) transplants and it has seems to come back again . I seem to take well to all chemos they give me as I go into remission but it doesnt seem to go away. These last test said its a chance its back based of bone scars in a pet scan that then were…
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Burkitt's DLBC NHL
I am new to the boards and have recently undergone treatment for Burkitts DLBC NHL and was looking on here for people who may have gone through the same thing and was unable to find anything related that was not 5+ years old. So I was just wondering if anyone on here has an experience with Burkitt's Diffused Large B-Cell…
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Chemo
I have Lymphoma and my chemo has reduced my immune system down to zero. I am constantly fighting infections. I am now getting IG infusions, anyone else have this problem? Bill
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change of plans
pic-line was placed today, and tomorrow I start rice, changed from what my onc first planned I don't care for new doctors I hope he knows what hes doing. Has anyone had rice if so how long does it take to get it and what are the side effects.
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Positive thoughts for Sue
Hi Sue, Thinking of you today and sending love and positive thoughts your way. You have been a pillar of strength for me and that means so much. I am here for you too! Hopefully you will get your results back super fast. Then you can breathe and relax and enjoy. Love and Hugs Lisha
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Current Active Duty and recently diagnosed with Nodular Sclerosis Hodgkins Lymphome
I was recently diagnosed with Stage III BS Hodkins Lymphoma. It is pretty serious and has me worried I know the out come is good but I am a healthy in shape young male that never in my life would think I would be going thourgh this. A civilian hospital found a mass in my lungs by CT scan back in December around the…
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Celebrating a year of Remission :)
Hello all, I know I have not posted or replied in awhile, life has definitely been keeping me busy, but I wanted to share with you all that I am still hanging in there and winning the battle over a possible relapse. Till this day I have never asked why me when it comes to having had cancer, I just believe that he knew I…
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What do you do know
I've been going threw this lymphoma cancer for several monthes. I don't understand that my wife left me and my world has falen appart.I hope if I beat this I will be a stronger person. Kevin
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Natalie
Hi Natalie Please post as soon as you feel up to doing it. I have been thinking of you and how you are doing. God bless you.