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bald again
well i'm without hair again, which really does'nt bother me, it will grow back what really bothers me is the fatgie that i that i can,t deal with. i can,t stand just sitting around. blessings denise
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my dads passing
my dad was diagnosed with t cell non hodgkins lymphoma in November. On April 12, he lost his life. This has been the hardest thing I have ever gone through. i miss him so much and think its not fair. Every chemo treatment went fine. One week after his last treament he was sick. Four days later he died. Sad and confused
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A new riddle
Have a great day everyone! Riddle: (I didn't get it and felt a little stupid when I got the answer - if I had a dollar for everytime I felt stupid, I'd be pretty wealthy by now;)). Forward I'm heavy, but backwards I'm not. What am I?
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+ Problems with this site :(
I'm going to vent here... Grrrrrrr... Lately, I feel like I'm contantly fighting with this website. I know it's free and how valuable it is to us and I'm thankful we have it. Lately (past 2-3 weeks), I'm having so many problems getting on or staying on the site. It constantly drops me right in the middle of posting or…
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Anyone heard from Carol - cbpgill26 ?
Has anyone heard from Carol - cbpgill26 ? I sent her a private message today also.
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I am home
Well I am home, i feel really tired. My onc is out of town and the fill in did'nt feel like i needed more red blood cells they are at 8.8 i feel tired and i keep freezing. my white cell count has already started dropping so tomorrow i go for bloodwork and a nuelasta shot still feels good to be home. blessings denise
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wondering about Donald
Just wondering how Donald51 is? I hope he is still in remission after getting the Zevalin like I did. I have always looked to see if anyone relapsed at all after receiving the Zevalin. I pray for everyone on here. Hilde
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mabey i will go home today
i have my fingers crossed, first i was constipated now low red blood cells ,but,the doctor said after i get the red blood cells mabey i could go home today. I hope so these beds hurt my back and i always miss my daughter. blessings denise
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Riddled with Riddles (another one) :)
Blame John (Cobra) and Denise (Scuttlebug) :) . ================================================ A sharpshooter hung up his hat and put on a blindfold. He then walked 100 yards, turned around, and shot a bullet through his hat. The blindfold was a perfectly good one, completely blocking the man's vision. How did he manage…
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heres another
i stand on a high hill and have only one eye,what am i? have fun
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Zevalin beam transplant
My dad is having a zevalin beam transplant at City of Hope. Does anyone have any info on this type of transplant? Thanks
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Bendamustine with Rituxan
My husband has Mantle Cell Lymphoma and now is getting his duo port in on Tuesday and begins treatment on Thursday with 2 rounds of bendamustine then following Thursday Rituxan. Anyone who has had this could you share your information with us we would greatly appreciate it. I know everyone reacts differently to the…
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Hi everyone...I'm new to the site but not to fNHL...
Hi everyone, I'm new to the site, and so glad that I've found, what seems to be a very supportive group of people. In 2010, I was diagnosed with fNHL, stage 2. I went through the 6 month treatment, and I'm now on maintenance Rutuximab (2 yr. treatment.) I had treatment # 5 on Wed. I feel awful. I don't know what to do, or…
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living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
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Brain Twister or not???
OKAY...Lets get serious for a little bit. Its driving me crazy. "Brothers and sister I have none,but this mans father is my fathers son" Who is it? There is an answer but I can;t figure it out.
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PET approval
Hey guy's, just an update, I got approved for my PET Scan, my doc did a lot of fighting for me! Having it May 1, day after we get back from Florida, lol. Vinny
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how,s this one
probally easy, as i was walking i seen a man if i say his name i'll be the blame i've said his na me five times ( go for it )
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I need help
Hello all, I can't believe I still don't know what I should know. Anyway, I wanted to post 2 paragraghs from the radiologe site. I am unable to do so. Therefore, I will post 2 separate posts. I believe I have had only pet scans since I was dx in Sept 2009. I thought I read at one time, there is a combined Pet Scan and Ct…
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Thanks for helping me decide.
I am one of those singular posters who does not return. I was diagnosed with MCL on 12/23/11. I completed my fouth cycle on the 13th of April and the Pet scan showed no sign of the cancer. Still feeling pretty lousy from last weeks treatment. I was drawn to this site like that moth Jim described to a flame. So confused and…
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more chemo
i'm back in the hospital for round2 of rice, this is the worst treatment i have had so far. my date for the consult at wvu is may7th i hope i have some good news this time. my daughter is back home, she has to go to court on the 25th, the stste took over go figure don't they don't they do what they want. i,m praying for…
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So confussed.....
My partner has stage 3 Large Cell Lymphoma a very rare form that on 3% of the world is diagnosed. She is currently in remission. We felt a lump under her left arm pit. She had a PET scan yesterday and it was clear. What worries us is her symptoms. She has gone from 192 to 168 in a month. She is itchy, achy all over and…
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denial
Hi guy's need to vent a bit, my Oncologist ordered a PET scan for May, and my Insurance company denied it! There reasoning was it's looking for evidenced of disease. Hello!!!!!!!! Just don't make any sense. I had no symptoms to begin with only a cough, when dumb luck found my NHL through a routine PET scan, not to mention…
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In the Hospital
Just an update. I finished my 6 treatments of R-chop for MCL. My oncologist odered a CT scan and they wanted more so they ordered a PET scan which showed cancer still in the groin. He handed me off to Dr Phillips at the Wilmont Cancer Center in Rochester because he is the doc doing the stem cell transplant. As I type this…
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living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
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living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
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Update
Just wanted to offer a quick update. My husband has DLBC Non-Hodgkins Lymphoma. I should say HAD! He recently had a repeat PET scan after his 3rd R-CHOP treatment and there was no sign of cancer. We are very Blessed. Initially, his cancer was in his left tonsil and a few surrounding lymph nodes. He will continue treatment…
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carol
Hi not forgotten you jimwins will tell you all. This computer overwhelms me. I told all about me and I am now at MD Anderson in Houston. lol
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Possible Breast Cancer 12 Years Post Hodgkins
I was diagnosed with Stage IIA (bulky) Hodgkins in 1999 at age 19. Completed 12 weeks of Standford V Chemo and 20 treatments of mantle field radiation to the chest and neck. My thyroid failed immediately and I have been on meds for that for almost 12 years. I've had a few side effects such as heart palpatations/fluttering,…
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Advice Needed
My brother has had a relapse of HL stage IV and will begin a clinical trial of LBH589 one week prior to starting ICE. Can anyone offer advice of how best to prepare, what to expect and questions to ask drs? Thank you so much in advance!
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stem cell transplants for non hodgkin lymphoma
Would like to talk to someone who has gone through a stem cell transplant process for lymphoma I am 64 and will be starting right away.