-
PET approval
Hey guy's, just an update, I got approved for my PET Scan, my doc did a lot of fighting for me! Having it May 1, day after we get back from Florida, lol. Vinny
-
how,s this one
probally easy, as i was walking i seen a man if i say his name i'll be the blame i've said his na me five times ( go for it )
-
I need help
Hello all, I can't believe I still don't know what I should know. Anyway, I wanted to post 2 paragraghs from the radiologe site. I am unable to do so. Therefore, I will post 2 separate posts. I believe I have had only pet scans since I was dx in Sept 2009. I thought I read at one time, there is a combined Pet Scan and Ct…
-
Thanks for helping me decide.
I am one of those singular posters who does not return. I was diagnosed with MCL on 12/23/11. I completed my fouth cycle on the 13th of April and the Pet scan showed no sign of the cancer. Still feeling pretty lousy from last weeks treatment. I was drawn to this site like that moth Jim described to a flame. So confused and…
-
more chemo
i'm back in the hospital for round2 of rice, this is the worst treatment i have had so far. my date for the consult at wvu is may7th i hope i have some good news this time. my daughter is back home, she has to go to court on the 25th, the stste took over go figure don't they don't they do what they want. i,m praying for…
-
So confussed.....
My partner has stage 3 Large Cell Lymphoma a very rare form that on 3% of the world is diagnosed. She is currently in remission. We felt a lump under her left arm pit. She had a PET scan yesterday and it was clear. What worries us is her symptoms. She has gone from 192 to 168 in a month. She is itchy, achy all over and…
-
denial
Hi guy's need to vent a bit, my Oncologist ordered a PET scan for May, and my Insurance company denied it! There reasoning was it's looking for evidenced of disease. Hello!!!!!!!! Just don't make any sense. I had no symptoms to begin with only a cough, when dumb luck found my NHL through a routine PET scan, not to mention…
-
In the Hospital
Just an update. I finished my 6 treatments of R-chop for MCL. My oncologist odered a CT scan and they wanted more so they ordered a PET scan which showed cancer still in the groin. He handed me off to Dr Phillips at the Wilmont Cancer Center in Rochester because he is the doc doing the stem cell transplant. As I type this…
-
living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
-
living with Follicular Lymphoma 5 years
I saw my first physician with pain in my left side in 2007. The ultrasound revealed my spleen was swollen. My doctor said spleen's do that when a body is fighting off infection. I asked if I could see a specialist and she said that wouldn't be necessary. I found another primary and after my gallbladder was taken out I…
-
Update
Just wanted to offer a quick update. My husband has DLBC Non-Hodgkins Lymphoma. I should say HAD! He recently had a repeat PET scan after his 3rd R-CHOP treatment and there was no sign of cancer. We are very Blessed. Initially, his cancer was in his left tonsil and a few surrounding lymph nodes. He will continue treatment…
-
carol
Hi not forgotten you jimwins will tell you all. This computer overwhelms me. I told all about me and I am now at MD Anderson in Houston. lol
-
Possible Breast Cancer 12 Years Post Hodgkins
I was diagnosed with Stage IIA (bulky) Hodgkins in 1999 at age 19. Completed 12 weeks of Standford V Chemo and 20 treatments of mantle field radiation to the chest and neck. My thyroid failed immediately and I have been on meds for that for almost 12 years. I've had a few side effects such as heart palpatations/fluttering,…
-
Advice Needed
My brother has had a relapse of HL stage IV and will begin a clinical trial of LBH589 one week prior to starting ICE. Can anyone offer advice of how best to prepare, what to expect and questions to ask drs? Thank you so much in advance!
-
stem cell transplants for non hodgkin lymphoma
Would like to talk to someone who has gone through a stem cell transplant process for lymphoma I am 64 and will be starting right away.
-
Follicular NHL at age of 33
Hello everyone! My name is Monica and I was diagnosed with follicular NHL a month ago. I have stage 4 and my treatment is chemo (Rituxan) 6 times for 5 months every 3 weeks. I would like to hear from people who had or has it. How is your experience and feelings. I'm very positive and my faith keep me strong! I have…
-
"Server is down with too much load"
I've been seeing this error a lot lately. CSN was pretty much unavailable all day Sunday (Easter). I wonder what kind of chemo regimen the server is on? You think it needs a shot of Neulasta? Sheesh :) . Hugs, Jim
-
Onc appointment
Hi All- Have oncologist appointment in one week. Have fatigue,swollen nodes and leg bruising, and intestinal symptoms. When I saw him 2 months ago he said I need treatment and said he would probably recommend Treanda. The problem is they cannot treat me until my intestinal bacterial overgrowth problem is cleared up. I've…
-
Thinking of Sue
Hi Sue, Just wanted you to know that I am thinking all good and positive thoughts for you today. Hopefully you are done with your Rutuxin and have met with your Onc. I'm sure you will be super tired tonight, so let us know how your doing when you are rested. You are in my thoughts today and always. Hugs and love, Lisha
-
back in the hospital again
well here i am back in the hospital, my plateletts are low and my nose would'nt stop bleeding my plateletts are dowm to 11000 and now i found out my nuetrphil white count is 0 i hate to be in the hospital and i can't wait to go home or at least go for a walk
-
CT results
Hi Guys, I got my scan results in the mail today and as far as I can tell it looks like everything is ok. A few new findings: Vascular Anatomy shows Altherosclerotic calcification of the aorta and iliac vessels without aneurysm..scattered vascular calcification. This wasn't on my last scan a year ago, so I don't know what…
-
Wondering
I had a scan Feb 3, and it all seemed fine. However the last three to four weeks I seem to feel a small lump under my chin on the left side. But feel it when I put my fingers on it and when I put my head down. I have been in remission after Zevalin in 2011. But I dont know if it is anything. I dont know even if I should…
-
Primary Mediastinal Diffuse Large B-Cell Lymphoma + R-EPOCH
I have a family member who was diagnosed with Primary Mediastinal Diffuse Large B-Cell Lymphoma. He completed his first two treatments of R-EPOCH, and had a PET scan right before the 3rd treatment. The mass has shrunk significantly, but it was not completely dead, as we had hoped. There was still a small amount of "glow"…
-
Folicullar NHL REPLAPSE
WELL GOOD EVENING EVERYONE; My wife has a relapse of fillicular for the 3 rd round now. We are in a very early stage. The Doc says theres no new clinical trials that look promising for cure or remission..We ve decided to take a watch and see approach for now.. We want to see how fast it is growing, so we have put off doing…
-
needs explaination for pet scan results..
Original ct shown large lobulated soft tissue mass in anterior mediastinum (11.4x8.4x10.9) And the pet scan result shows after 4cycle of abvd.. « focal fdg hypermetabolism in seen in a hypodense lesion(1cm) at anterior mediastinal mass (measuring 3.2x2.1cm). The rest of this mass and another soft tissue mass in the aortic…
-
Lymphomatoid Granulomatosis (LYG)
Has anyone ever heard of this or know anyone who has had it? I know it is very rare but looking for anyone who has gone through it and tell us how they got through it.
-
Post Radiation Issues
I am new to this site but am very interested in what everyone has to say.As my 16th anniversary approaches from my horrific battle with non-Hodgkin lymphoma I am looking for some answers to try and relieve my constant cough and breathing issues. At the age of 29 (1995-96)I had Stage IV type B large cell non-Hodgkin…
-
Diffuse large cell B lymphoma
Has anyone survived a tumor on the orbit of the eye that was Diffuse large cell B lymphoma? I would appreciate a comment. I am petrified. Just diagnosed. with Diffuse Large B Cell Lymphoma.
-
Worried!
I am so worried. I was diagnoised with diffuse large B cell lymphoma (bulky stage 2)in December 2011. At that time the mass on my lung was 15.5 x 10.5 cm. Since then I have had 5 chemo treatments and I also had a CT scan done last week to see how things are progressing. My doctor told me that he was sure that since I had…
-
Still Scared - Last Round of Chemo
You would think that after 5 rounds of chemo, I wouldn't be so afraid of my last round tomorrow, but I am! What is it that I fear?